Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 In a message dated 12/16/01 10:00:49 PM Eastern Standard Time, kelly_shindledecker@... writes: > Glad Kathy told me about this group! > Love, > > , I'm glad I told you about this group too. It's slower than normal, probably due to the holidays. I agree with you. I have known people to get disability due to their depression more than the fibro CFS. Unfortunately there are still too many doubting people including judges that do not believe in fibro. Gosh, some doctor's still don't. It took so many, many, years for people to believe in clinical depression. Now, most intelligent people do. I think it is going to take as many years for people to realize how badly we suffer from fibro. I just hope it doesn't take as long as mental illness did. Too many people were thought of as lazy. I know a lot about that because I was a psych nurse for many years, until fibro took that career away. I wish everyone the best of luck. I used to work for a doctor that did disability claims every friday. He once told me that if you have records from a Psychiartrist, and are taking med's it's almost a given. You should definately , always, bring depression up. It weighs heavy in the decision. Happy Holidays Kathy D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2002 Report Share Posted January 7, 2002 Hi all, As I wrote one Xmas eve, my hearing before a judge is Jan 15th. A great website about dis. is immunesupport.com. There you will read that the issue is not what you are diagnosed with, but regular (monthly, etc) documentation from your doctor with notes in your record about all the things you can NOT do. I have been turned down by mail 2 times - then you see a judge. I've heard most people are turned down twice to weed out malingerers. Now - in my denial letters, they said I could STILL be a sales clerk, a secretary or a cashier. SURE...like so NOT TRUE. Colette, S. FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2002 Report Share Posted January 7, 2002 Hi all, As I wrote one Xmas eve, my hearing before a judge is Jan 15th. A great website about dis. is immunesupport.com. There you will read that the issue is not what you are diagnosed with, but regular (monthly, etc) documentation from your doctor with notes in your record about all the things you can NOT do. I have been turned down by mail 2 times - then you see a judge. I've heard most people are turned down twice to weed out malingerers. Now - in my denial letters, they said I could STILL be a sales clerk, a secretary or a cashier. SURE...like so NOT TRUE. Colette, S. FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Shandi: Disability for Fibro is extremely difficult to get as Fibro isn't even one of the " Officially Recognised Conditions " for SSD. I do know some people have gotten it but it is a long hard fight. CFS is on the list at this time but not Fibro. Remember though it is not the actual diagnosis that really determines if you qualify for SSD/SSI but rather how it affects your ability to work. You must be unable to work in any capacity (according to the SSA) to qualify. I suggest you go to the SSA's official web site and read the section on Determining Disability. I am sorry I don't have the link handy but you can do a search for US Gov. Social Security Administration to find the info. Also you can go to many of the web sites for Fibro to get information about how to apply and what the qualifications are. I believe you will also find some links on yahoo group page for this group. Tina winphal@... --- angel_of_harlemu2 angel_of_harlemu2@...> wrote: > Can anyone speak to how hard it is to get disability > for fibro? Work > is often a marathon of agony for me, but I need the > money cause > getting disability seems so impossible to > get....thanks. > > Shandi > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Shandi: Disability for Fibro is extremely difficult to get as Fibro isn't even one of the " Officially Recognised Conditions " for SSD. I do know some people have gotten it but it is a long hard fight. CFS is on the list at this time but not Fibro. Remember though it is not the actual diagnosis that really determines if you qualify for SSD/SSI but rather how it affects your ability to work. You must be unable to work in any capacity (according to the SSA) to qualify. I suggest you go to the SSA's official web site and read the section on Determining Disability. I am sorry I don't have the link handy but you can do a search for US Gov. Social Security Administration to find the info. Also you can go to many of the web sites for Fibro to get information about how to apply and what the qualifications are. I believe you will also find some links on yahoo group page for this group. Tina winphal@... --- angel_of_harlemu2 angel_of_harlemu2@...> wrote: > Can anyone speak to how hard it is to get disability > for fibro? Work > is often a marathon of agony for me, but I need the > money cause > getting disability seems so impossible to > get....thanks. > > Shandi > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Shandi: Disability for Fibro is extremely difficult to get as Fibro isn't even one of the " Officially Recognised Conditions " for SSD. I do know some people have gotten it but it is a long hard fight. CFS is on the list at this time but not Fibro. Remember though it is not the actual diagnosis that really determines if you qualify for SSD/SSI but rather how it affects your ability to work. You must be unable to work in any capacity (according to the SSA) to qualify. I suggest you go to the SSA's official web site and read the section on Determining Disability. I am sorry I don't have the link handy but you can do a search for US Gov. Social Security Administration to find the info. Also you can go to many of the web sites for Fibro to get information about how to apply and what the qualifications are. I believe you will also find some links on yahoo group page for this group. Tina winphal@... --- angel_of_harlemu2 angel_of_harlemu2@...> wrote: > Can anyone speak to how hard it is to get disability > for fibro? Work > is often a marathon of agony for me, but I need the > money cause > getting disability seems so impossible to > get....thanks. > > Shandi > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Thanks Tina...will do some research...Shandi > > Can anyone speak to how hard it is to get disability > > for fibro? Work > > is often a marathon of agony for me, but I need the > > money cause > > getting disability seems so impossible to > > get....thanks. > > > > Shandi > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Thanks Tina...will do some research...Shandi > > Can anyone speak to how hard it is to get disability > > for fibro? Work > > is often a marathon of agony for me, but I need the > > money cause > > getting disability seems so impossible to > > get....thanks. > > > > Shandi > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Thanks Tina...will do some research...Shandi > > Can anyone speak to how hard it is to get disability > > for fibro? Work > > is often a marathon of agony for me, but I need the > > money cause > > getting disability seems so impossible to > > get....thanks. > > > > Shandi > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 > Disability > > > Can anyone speak to how hard it is to get disability for fibro? Work > is often a marathon of agony for me, but I need the money cause > getting disability seems so impossible to get....thanks. > > Shandi I've been WAY WAY Behind on this list and am not going to read most posts, but I saw this one and decided I should. I started the process almost 2 years ago. Originally I filed with Severe Depression (which is even harder) and got rejected, so I filed a request for hearing, and I'm still waiting for the date about 6 months later. My suggestion is to get an attorney. There are lots of them the specialize in SSD cases and they can tell you what your chances are, and what the best things for you to do to increase your chances. Also, they only get paid if you do. Mine for example gets 25% of the initial payment (which is back to when your illness began, or when you filed) or $4,000 whichever is less. I know some are even less than that, 24% is a lot, but I figure it's worth it if I can get it. If I am refused, he doesn't get anything accept reimbursment for things like phone calls and costs for copies and such. This is what he told me the first time I visited his office. Like another person said, it's not necessarily the diagnosis, but your restrictions. I asked my Dr. for restrictions (he asked me what I couldn't do, and I jokingly told him anything that requires any physical or mental activity ) and he wrote me a really good letter, I think I have a good chance this time. I suggest you first call SSI and order the forms, then when you recieve them, find an attorney, and see if they will help you fill it out (take all your employment records and all Dr.'s information (Name, address, phone, dates seen, etc). I didn't have much of that, so it was really tough getting things filled out. I have some Dr.s in Nebraska and here in Colorado both, my history goes back to 1995. If I were you, I'd go ahead and start right away. It takes up to 6 months for them to even make the first decision, and it appears to be at least that long to get a hearing for appeal. Good luck to you, and feel free to e-mail me for more info, or just to visit. And please keep me posted. Jewel ICQ-201492 Yahoo-drgnsjwl " Plain women know more about men than beautiful women do. " - Katharine Hepburn " The test of friendship is assistance in adversity, and that too, unconditional assistance. Co-operation which needs consideration is a commercial contract and not friendship. Conditional co-operation is like adulterated cement which does not bind. " - Mahatma Gandhi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Wow! Thanks for so much information. I have been looking into lawyers who specialize in this, and my state offers a free legal service for doing something like this. It has amazed me that it's easier to get money for mental illness as opposed to anything physical. I always wonder, what about the depression and anxiety that go with this? Surely that ought to count for something. Shandi > > Disability > > > > > > Can anyone speak to how hard it is to get disability for fibro? Work > > is often a marathon of agony for me, but I need the money cause > > getting disability seems so impossible to get....thanks. > > > > Shandi > > I've been WAY WAY Behind on this list and am not going to read most posts, > but I saw this one and decided I should. > > I started the process almost 2 years ago. Originally I filed with Severe > Depression (which is even harder) and got rejected, so I filed a request for > hearing, and I'm still waiting for the date about 6 months later. > > My suggestion is to get an attorney. There are lots of them the specialize > in SSD cases and they can tell you what your chances are, and what the best > things for you to do to increase your chances. Also, they only get paid if > you do. Mine for example gets 25% of the initial payment (which is back to > when your illness began, or when you filed) or $4,000 whichever is less. I > know some are even less than that, 24% is a lot, but I figure it's worth it > if I can get it. If I am refused, he doesn't get anything accept > reimbursment for things like phone calls and costs for copies and such. > > This is what he told me the first time I visited his office. Like another > person said, it's not necessarily the diagnosis, but your restrictions. I > asked my Dr. for restrictions (he asked me what I couldn't do, and I > jokingly told him anything that requires any physical or mental activity > ) and he wrote me a really good letter, I think I have a good chance this > time. > > I suggest you first call SSI and order the forms, then when you recieve > them, find an attorney, and see if they will help you fill it out (take all > your employment records and all Dr.'s information (Name, address, phone, > dates seen, etc). I didn't have much of that, so it was really tough > getting things filled out. I have some Dr.s in Nebraska and here in > Colorado both, my history goes back to 1995. If I were you, I'd go ahead > and start right away. It takes up to 6 months for them to even make the > first decision, and it appears to be at least that long to get a hearing for > appeal. > > Good luck to you, and feel free to e-mail me for more info, or just to > visit. And please keep me posted. > > Jewel > ICQ-201492 Yahoo-drgnsjwl > > " Plain women know more about men than beautiful women do. " - Katharine > Hepburn > > " The test of friendship is assistance in adversity, and that too, > unconditional assistance. Co-operation which needs consideration is a > commercial contract and not friendship. Conditional co-operation is like > adulterated cement which does not bind. " - Mahatma Gandhi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Wow! Thanks for so much information. I have been looking into lawyers who specialize in this, and my state offers a free legal service for doing something like this. It has amazed me that it's easier to get money for mental illness as opposed to anything physical. I always wonder, what about the depression and anxiety that go with this? Surely that ought to count for something. Shandi > > Disability > > > > > > Can anyone speak to how hard it is to get disability for fibro? Work > > is often a marathon of agony for me, but I need the money cause > > getting disability seems so impossible to get....thanks. > > > > Shandi > > I've been WAY WAY Behind on this list and am not going to read most posts, > but I saw this one and decided I should. > > I started the process almost 2 years ago. Originally I filed with Severe > Depression (which is even harder) and got rejected, so I filed a request for > hearing, and I'm still waiting for the date about 6 months later. > > My suggestion is to get an attorney. There are lots of them the specialize > in SSD cases and they can tell you what your chances are, and what the best > things for you to do to increase your chances. Also, they only get paid if > you do. Mine for example gets 25% of the initial payment (which is back to > when your illness began, or when you filed) or $4,000 whichever is less. I > know some are even less than that, 24% is a lot, but I figure it's worth it > if I can get it. If I am refused, he doesn't get anything accept > reimbursment for things like phone calls and costs for copies and such. > > This is what he told me the first time I visited his office. Like another > person said, it's not necessarily the diagnosis, but your restrictions. I > asked my Dr. for restrictions (he asked me what I couldn't do, and I > jokingly told him anything that requires any physical or mental activity > ) and he wrote me a really good letter, I think I have a good chance this > time. > > I suggest you first call SSI and order the forms, then when you recieve > them, find an attorney, and see if they will help you fill it out (take all > your employment records and all Dr.'s information (Name, address, phone, > dates seen, etc). I didn't have much of that, so it was really tough > getting things filled out. I have some Dr.s in Nebraska and here in > Colorado both, my history goes back to 1995. If I were you, I'd go ahead > and start right away. It takes up to 6 months for them to even make the > first decision, and it appears to be at least that long to get a hearing for > appeal. > > Good luck to you, and feel free to e-mail me for more info, or just to > visit. And please keep me posted. > > Jewel > ICQ-201492 Yahoo-drgnsjwl > > " Plain women know more about men than beautiful women do. " - Katharine > Hepburn > > " The test of friendship is assistance in adversity, and that too, > unconditional assistance. Co-operation which needs consideration is a > commercial contract and not friendship. Conditional co-operation is like > adulterated cement which does not bind. " - Mahatma Gandhi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 Wow! Thanks for so much information. I have been looking into lawyers who specialize in this, and my state offers a free legal service for doing something like this. It has amazed me that it's easier to get money for mental illness as opposed to anything physical. I always wonder, what about the depression and anxiety that go with this? Surely that ought to count for something. Shandi > > Disability > > > > > > Can anyone speak to how hard it is to get disability for fibro? Work > > is often a marathon of agony for me, but I need the money cause > > getting disability seems so impossible to get....thanks. > > > > Shandi > > I've been WAY WAY Behind on this list and am not going to read most posts, > but I saw this one and decided I should. > > I started the process almost 2 years ago. Originally I filed with Severe > Depression (which is even harder) and got rejected, so I filed a request for > hearing, and I'm still waiting for the date about 6 months later. > > My suggestion is to get an attorney. There are lots of them the specialize > in SSD cases and they can tell you what your chances are, and what the best > things for you to do to increase your chances. Also, they only get paid if > you do. Mine for example gets 25% of the initial payment (which is back to > when your illness began, or when you filed) or $4,000 whichever is less. I > know some are even less than that, 24% is a lot, but I figure it's worth it > if I can get it. If I am refused, he doesn't get anything accept > reimbursment for things like phone calls and costs for copies and such. > > This is what he told me the first time I visited his office. Like another > person said, it's not necessarily the diagnosis, but your restrictions. I > asked my Dr. for restrictions (he asked me what I couldn't do, and I > jokingly told him anything that requires any physical or mental activity > ) and he wrote me a really good letter, I think I have a good chance this > time. > > I suggest you first call SSI and order the forms, then when you recieve > them, find an attorney, and see if they will help you fill it out (take all > your employment records and all Dr.'s information (Name, address, phone, > dates seen, etc). I didn't have much of that, so it was really tough > getting things filled out. I have some Dr.s in Nebraska and here in > Colorado both, my history goes back to 1995. If I were you, I'd go ahead > and start right away. It takes up to 6 months for them to even make the > first decision, and it appears to be at least that long to get a hearing for > appeal. > > Good luck to you, and feel free to e-mail me for more info, or just to > visit. And please keep me posted. > > Jewel > ICQ-201492 Yahoo-drgnsjwl > > " Plain women know more about men than beautiful women do. " - Katharine > Hepburn > > " The test of friendship is assistance in adversity, and that too, > unconditional assistance. Co-operation which needs consideration is a > commercial contract and not friendship. Conditional co-operation is like > adulterated cement which does not bind. " - Mahatma Gandhi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2002 Report Share Posted April 10, 2002 > Wow! Thanks for so much information. I have been looking into > lawyers who specialize in this, and my state offers a free legal > service for doing something like this. It has amazed me that it's > easier to get money for mental illness as opposed to anything > physical. I always wonder, what about the depression and anxiety > that go with this? Surely that ought to count for something. > > Shandi That's not necessarily true, it's REALLY hard to get it for just Depression. I put down everything I had, including endometriosis and anxiety attacks. Tell your Doctor to confirm your diagnosis. Then you list all those things in the application. Then you can get a letter from your Dr saying what your restrictions are, and list the problems and to state that you are completely disabled. Good for you on the attorney, GET ONE. I wish I would have had one the first time around. They just are experienced enough to know details that will help. They know exactly how to fill out the forms...and there is a lot of info on those forms. Good luck ! Jewel ICQ-201492 Yahoo-drgnsjwl AIM-jewelyn1211 MSN-jeweldragoness@... " Plain women know more about men than beautiful women do. " - Katharine Hepburn " The test of friendship is assistance in adversity, and that too, unconditional assistance. Co-operation which needs consideration is a commercial contract and not friendship. Conditional co-operation is like adulterated cement which does not bind. " - Mahatma Gandhi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2002 Report Share Posted April 12, 2002 Dear Shandi, Hope this will help you a little hon. I have a friend who is a disability attorney who specialises in fibro cases. His name is Jeff Rabin. He will talk to all in America what ever state they are in. His toll free number is 1- if you do give him a call please mention my name.... Tigi. You can also contact him directly at my own Fibro support group We Are FMily http://forums.delphiforums.com/fmsupport/messages Jeff is on the staff there and will answer question put to him there as well. Disability is hard to get but it is possible. Luv & Hugs Tigi >From: " angel_of_harlemu2 " Reply-To: To: > Subject: Disability >Date: Wed, 10 Apr 2002 03:01:28 -0000 > >Can anyone speak to how hard it is to get disability for fibro? Work is >often a marathon of agony for me, but I need the money cause getting >disability seems so impossible to get....thanks. > >Shandi > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Charyl, I think she is right about your husband not thinking things through very thoroughly. YOU need to be on top of YOUR condition, what YOU can do and not do, and just agree to disagree with your hubby. Times can get tough, sure, but I have begun again so many times in my life, it is almost to be expected every few years. Just the nature of living, for most of us. We are here for you, hon. Hugs, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2009 Report Share Posted January 22, 2009 I did spend a lot of time getting all of the papers ready for my interview at social security-- I was well prepared, that is probably why the processing was so quick, Pink Joyce IPF 3/06 Pennsylvania Donate Life Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.