Fw: Fw: [edsers] Question: EDS, POTS, and Medicaid

[Guest guest]

Here is more info from the person needing help on POTS, Procrit, and

Medicaid.

-Barb

Re: Fw: [edsers] Question: EDS, POTS, and Medicaid

Hi Barb,

i figured i should go ahead and attach for you the letter i sent out. it

explains my situation much more clearly....unfortunately i only worked for 2

business brokers, and health insurance wasn't an option for me there. the

big problem isn't being on medicaid, or ssi, or ssdi....what really happened

was that i was still on my parents' insurance as a disabled dependent, when

i went back to work, i got the boot.....medicaid became my only prescription

coverage and is denying procrit because they say i don't meet the

criteria---cancer, kidney failure--

the best solution for me would be to get the law changed that says

dysautonomia is criteria for one to be on procrit. seems easier said than

done, as the only call i received was from the news person that contacted

you as well....it's only been a week so i try to keep a positive attitude.

on side notes, dr. grubb is (thank god) one of my doctors, and the one who

in fact prescribed the procrit....and i am part of ndrf as well.

i was thinking last night about how you told me you have pots as well, it

seems as if you are extremely busy in your own life.....i am wondering what

your secret is, if you wouldn't mind sharing.

thanks again for your help, my letter is attached. take care

ps. i forgot to thank you again for sending me all the forwards, it really

helps reading them that even though people may not have answers for me, they

are trying all angles!!!