Re: Strange responses to knowledge of illness

[Guest guest]

Joyce, if you can't afford an oximeter, send me your full name, mailing address, telephone number, and personal email address to my personal email - JMARSHALL6867@... - and I will have one sent to you. No cost to you. The company requires all that information for shipping.

An oximeter is too necessary for controlling your SATS to wait until you can afford one. I can't sleep well knowing that one of our extended family does not have one, so I offer to send one to each

who needs it.

I will away for the next week, but I will be checking my email and I can order it from whereever I am Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Friday, January 16, 2009 9:28:21 AMSubject: Re: Strange responses to knowledge of illness



Peggy- I have been told about getting a oximeter but have no money at the moment to get one. I will get one as soon as I can. I see my Primary doc today and will ask her for a prescription. If my insurance company won't honor it I can use it as a tax deduction if I have a prescription. I'm afraid my doc will think me foolish for asking but, what the hell, I can try. Joyce Prescott IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear..They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you) I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit

that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it' s supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted. I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas] --><!--[endif]-->

<!--[if !supportEmptyParas] --><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]

Joyce, if you can't afford an oximeter, send me your full name, mailing address, telephone number, and personal email address to my personal email - JMARSHALL6867@... - and I will have one sent to you. No cost to you. The company requires all that information for shipping.

An oximeter is too necessary for controlling your SATS to wait until you can afford one. I can't sleep well knowing that one of our extended family does not have one, so I offer to send one to each

who needs it.

I will away for the next week, but I will be checking my email and I can order it from whereever I am Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Friday, January 16, 2009 9:28:21 AMSubject: Re: Strange responses to knowledge of illness



Peggy- I have been told about getting a oximeter but have no money at the moment to get one. I will get one as soon as I can. I see my Primary doc today and will ask her for a prescription. If my insurance company won't honor it I can use it as a tax deduction if I have a prescription. I'm afraid my doc will think me foolish for asking but, what the hell, I can try. Joyce Prescott IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear..They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you) I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit

that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it' s supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted. I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas] --><!--[endif]-->

<!--[if !supportEmptyParas] --><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]

Joyce, if you can't afford an oximeter, send me your full name, mailing address, telephone number, and personal email address to my personal email - JMARSHALL6867@... - and I will have one sent to you. No cost to you. The company requires all that information for shipping.

An oximeter is too necessary for controlling your SATS to wait until you can afford one. I can't sleep well knowing that one of our extended family does not have one, so I offer to send one to each

who needs it.

I will away for the next week, but I will be checking my email and I can order it from whereever I am Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Friday, January 16, 2009 9:28:21 AMSubject: Re: Strange responses to knowledge of illness



Peggy- I have been told about getting a oximeter but have no money at the moment to get one. I will get one as soon as I can. I see my Primary doc today and will ask her for a prescription. If my insurance company won't honor it I can use it as a tax deduction if I have a prescription. I'm afraid my doc will think me foolish for asking but, what the hell, I can try. Joyce Prescott IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear..They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you) I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit

that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it' s supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted. I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas] --><!--[endif]-->

<!--[if !supportEmptyParas] --><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]

Well, my friends, I am off tomorrow morning to North Carolina, Dr. on, and - best of all - our

beloved Beth. I will be checking my email periodically and will try to keep up with the posts.

I plan to enjoy NC's current 40 degree weather. It was minus 21 here in Bangor, Maine. My thermomter showed too lines instead of the figures. I think the reading was below it's numbers.

I also will do a little house hunting in anticiaptation of my move to NC sometime this summer.

Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Friday, January 16, 2009 9:56:02 AMSubject: Re: Strange responses to knowledge of illnessJoyce, Some of us have had Docs tell us not to use them.. my response to that is they don't have this disease and don't have a clue what it is like to have your saturation drop until you drop. It just makes me nuts.. Anyhow you will be doing yourself such a huge favor buying one. When your walking and your thigh muscles hurt that is lack of 0xygen. I had that for probably 2 or 3 years before I was Dx. (diagnosed) So you will find 99% of Docs say they understand but they can't until they walk around with this monster on your back. The thing that is your BEST

for you is attitude.. Stay as positive as possible. Find happy where ever

you find yourself. Trust me the sad days of sorrow, anger and why me will find you....FIGHT girl FIGHT..

God Bless you with sweet peace and strength.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

Peggy- I have been told about getting a oximeter but have no money at the moment to get one. I will get one as soon as I can. I see my Primary doc today and will ask her for a prescription. If my insurance company won't honor it I can use it as a tax deduction if I have a prescription. I'm afraid my doc will think me foolish for asking but, what the hell, I can try. Joyce Prescott IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear.They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you)

I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it' s supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted. I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas] --><!--[endif]-->

<!--[if !supportEmptyParas] --><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't

expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]

Well, my friends, I am off tomorrow morning to North Carolina, Dr. on, and - best of all - our

beloved Beth. I will be checking my email periodically and will try to keep up with the posts.

I plan to enjoy NC's current 40 degree weather. It was minus 21 here in Bangor, Maine. My thermomter showed too lines instead of the figures. I think the reading was below it's numbers.

I also will do a little house hunting in anticiaptation of my move to NC sometime this summer.

Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Friday, January 16, 2009 9:56:02 AMSubject: Re: Strange responses to knowledge of illnessJoyce, Some of us have had Docs tell us not to use them.. my response to that is they don't have this disease and don't have a clue what it is like to have your saturation drop until you drop. It just makes me nuts.. Anyhow you will be doing yourself such a huge favor buying one. When your walking and your thigh muscles hurt that is lack of 0xygen. I had that for probably 2 or 3 years before I was Dx. (diagnosed) So you will find 99% of Docs say they understand but they can't until they walk around with this monster on your back. The thing that is your BEST

for you is attitude.. Stay as positive as possible. Find happy where ever

you find yourself. Trust me the sad days of sorrow, anger and why me will find you....FIGHT girl FIGHT..

God Bless you with sweet peace and strength.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

Peggy- I have been told about getting a oximeter but have no money at the moment to get one. I will get one as soon as I can. I see my Primary doc today and will ask her for a prescription. If my insurance company won't honor it I can use it as a tax deduction if I have a prescription. I'm afraid my doc will think me foolish for asking but, what the hell, I can try. Joyce Prescott IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear.They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you)

I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it' s supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted. I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas] --><!--[endif]-->

<!--[if !supportEmptyParas] --><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't

expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]

Well, my friends, I am off tomorrow morning to North Carolina, Dr. on, and - best of all - our

beloved Beth. I will be checking my email periodically and will try to keep up with the posts.

I plan to enjoy NC's current 40 degree weather. It was minus 21 here in Bangor, Maine. My thermomter showed too lines instead of the figures. I think the reading was below it's numbers.

I also will do a little house hunting in anticiaptation of my move to NC sometime this summer.

Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Friday, January 16, 2009 9:56:02 AMSubject: Re: Strange responses to knowledge of illnessJoyce, Some of us have had Docs tell us not to use them.. my response to that is they don't have this disease and don't have a clue what it is like to have your saturation drop until you drop. It just makes me nuts.. Anyhow you will be doing yourself such a huge favor buying one. When your walking and your thigh muscles hurt that is lack of 0xygen. I had that for probably 2 or 3 years before I was Dx. (diagnosed) So you will find 99% of Docs say they understand but they can't until they walk around with this monster on your back. The thing that is your BEST

for you is attitude.. Stay as positive as possible. Find happy where ever

you find yourself. Trust me the sad days of sorrow, anger and why me will find you....FIGHT girl FIGHT..

God Bless you with sweet peace and strength.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

Peggy- I have been told about getting a oximeter but have no money at the moment to get one. I will get one as soon as I can. I see my Primary doc today and will ask her for a prescription. If my insurance company won't honor it I can use it as a tax deduction if I have a prescription. I'm afraid my doc will think me foolish for asking but, what the hell, I can try. Joyce Prescott IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear.They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you)

I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it' s supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted. I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas] --><!--[endif]-->

<!--[if !supportEmptyParas] --><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't

expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]

Jack,

Hopefully it will warm up some by the time you get here but at the moment it is a frigid 16 degrees here in Durham. Brrrrrrrrrr

Beth in North Carolina

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, January 16, 2009 10:15:35 AMSubject: Re: Strange responses to knowledge of illness

Well, my friends, I am off tomorrow morning to North Carolina, Dr. on, and - best of all - our

beloved Beth. I will be checking my email periodically and will try to keep up with the posts.

I plan to enjoy NC's current 40 degree weather. It was minus 21 here in Bangor, Maine. My thermomter showed too lines instead of the figures. I think the reading was below it's numbers.

I also will do a little house hunting in anticiaptation of my move to NC sometime this summer.

Jack79/IPF - UIP/dx06/05 Maine

From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support@ yahoogroups. comSent: Friday, January 16, 2009 9:56:02 AMSubject: Re: Strange responses to knowledge of illnessJoyce, Some of us have had Docs tell us not to use them.. my response to that is they don't have this disease and don't have a clue what it is like to have your saturation drop until you drop. It just makes me nuts.. Anyhow you will be doing yourself such a huge favor buying one. When your walking and your thigh muscles hurt that is lack of 0xygen. I had that for probably 2 or 3 years before I was Dx. (diagnosed) So you will find 99% of Docs say they understand but they can't until they walk around with this

monster on your back. The thing that is your BEST for you is attitude.. Stay as positive as possible. Find happy where ever you find yourself. Trust me the sad days of sorrow, anger and why me will find you....FIGHT girl FIGHT..

God Bless you with sweet peace and strength.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

Peggy- I have been told about getting a oximeter but have no money at the moment to get one. I will get one as soon as I can. I see my Primary doc today and will ask her for a prescription. If my insurance company won't honor it I can use it as a tax deduction if I have a prescription. I'm afraid my doc will think me foolish for asking but, what the hell, I can try. Joyce Prescott IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear.They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you) I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit

that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it' s supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted. I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas] --><!--[endif]-->

<!--[if !supportEmptyParas] --><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]

Jack,

Hopefully it will warm up some by the time you get here but at the moment it is a frigid 16 degrees here in Durham. Brrrrrrrrrr

Beth in North Carolina

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, January 16, 2009 10:15:35 AMSubject: Re: Strange responses to knowledge of illness

Well, my friends, I am off tomorrow morning to North Carolina, Dr. on, and - best of all - our

beloved Beth. I will be checking my email periodically and will try to keep up with the posts.

I plan to enjoy NC's current 40 degree weather. It was minus 21 here in Bangor, Maine. My thermomter showed too lines instead of the figures. I think the reading was below it's numbers.

I also will do a little house hunting in anticiaptation of my move to NC sometime this summer.

Jack79/IPF - UIP/dx06/05 Maine

From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support@ yahoogroups. comSent: Friday, January 16, 2009 9:56:02 AMSubject: Re: Strange responses to knowledge of illnessJoyce, Some of us have had Docs tell us not to use them.. my response to that is they don't have this disease and don't have a clue what it is like to have your saturation drop until you drop. It just makes me nuts.. Anyhow you will be doing yourself such a huge favor buying one. When your walking and your thigh muscles hurt that is lack of 0xygen. I had that for probably 2 or 3 years before I was Dx. (diagnosed) So you will find 99% of Docs say they understand but they can't until they walk around with this

monster on your back. The thing that is your BEST for you is attitude.. Stay as positive as possible. Find happy where ever you find yourself. Trust me the sad days of sorrow, anger and why me will find you....FIGHT girl FIGHT..

God Bless you with sweet peace and strength.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

Peggy- I have been told about getting a oximeter but have no money at the moment to get one. I will get one as soon as I can. I see my Primary doc today and will ask her for a prescription. If my insurance company won't honor it I can use it as a tax deduction if I have a prescription. I'm afraid my doc will think me foolish for asking but, what the hell, I can try. Joyce Prescott IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear.They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you) I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit

that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it' s supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted. I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas] --><!--[endif]-->

<!--[if !supportEmptyParas] --><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]

Jack,

Hopefully it will warm up some by the time you get here but at the moment it is a frigid 16 degrees here in Durham. Brrrrrrrrrr

Beth in North Carolina

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, January 16, 2009 10:15:35 AMSubject: Re: Strange responses to knowledge of illness

Well, my friends, I am off tomorrow morning to North Carolina, Dr. on, and - best of all - our

beloved Beth. I will be checking my email periodically and will try to keep up with the posts.

I plan to enjoy NC's current 40 degree weather. It was minus 21 here in Bangor, Maine. My thermomter showed too lines instead of the figures. I think the reading was below it's numbers.

I also will do a little house hunting in anticiaptation of my move to NC sometime this summer.

Jack79/IPF - UIP/dx06/05 Maine

From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support@ yahoogroups. comSent: Friday, January 16, 2009 9:56:02 AMSubject: Re: Strange responses to knowledge of illnessJoyce, Some of us have had Docs tell us not to use them.. my response to that is they don't have this disease and don't have a clue what it is like to have your saturation drop until you drop. It just makes me nuts.. Anyhow you will be doing yourself such a huge favor buying one. When your walking and your thigh muscles hurt that is lack of 0xygen. I had that for probably 2 or 3 years before I was Dx. (diagnosed) So you will find 99% of Docs say they understand but they can't until they walk around with this

monster on your back. The thing that is your BEST for you is attitude.. Stay as positive as possible. Find happy where ever you find yourself. Trust me the sad days of sorrow, anger and why me will find you....FIGHT girl FIGHT..

God Bless you with sweet peace and strength.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

Peggy- I have been told about getting a oximeter but have no money at the moment to get one. I will get one as soon as I can. I see my Primary doc today and will ask her for a prescription. If my insurance company won't honor it I can use it as a tax deduction if I have a prescription. I'm afraid my doc will think me foolish for asking but, what the hell, I can try. Joyce Prescott IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear.They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you) I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit

that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it' s supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted. I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas] --><!--[endif]-->

<!--[if !supportEmptyParas] --><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg. com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]



Peggy-ever since my decision to go to the Jewish Hospital I have been feeling joyous! I feel like I will finally get some info and be able to help myself! I am a positive person and when I felt trapped without knowledge it frustrated me but now I am feeling light hearted and happy. I just need some knowledge about this dredful illness and I will learn to cope with it....though I know that sometimes depression will over come me I will always fight it. I have, though, decided if I get to be so sick I have too hard a time taking care of myself and my dog family I will kill myself. I don't want to be totally dependent on some others or end up in a nursing home.Such dependence has always been a dred of mine and I'm afraid I don't have the strength to overcome it. But, that won't happen for many years if at all. Right now I am enjoying the day. I went out to the store yesterday and bought a canteloupe even though it was costly and the dead of winter...I would usually say "that is too expensive I can wait" but now I just buy it. LOL Taste tremendous too! Joyce R Prescott AZ IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear.They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you) I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it's supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted.I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas]--><!--[endif]-->

<!--[if !supportEmptyParas]--><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]



Peggy-ever since my decision to go to the Jewish Hospital I have been feeling joyous! I feel like I will finally get some info and be able to help myself! I am a positive person and when I felt trapped without knowledge it frustrated me but now I am feeling light hearted and happy. I just need some knowledge about this dredful illness and I will learn to cope with it....though I know that sometimes depression will over come me I will always fight it. I have, though, decided if I get to be so sick I have too hard a time taking care of myself and my dog family I will kill myself. I don't want to be totally dependent on some others or end up in a nursing home.Such dependence has always been a dred of mine and I'm afraid I don't have the strength to overcome it. But, that won't happen for many years if at all. Right now I am enjoying the day. I went out to the store yesterday and bought a canteloupe even though it was costly and the dead of winter...I would usually say "that is too expensive I can wait" but now I just buy it. LOL Taste tremendous too! Joyce R Prescott AZ IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear.They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you) I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it's supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted.I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas]--><!--[endif]-->

<!--[if !supportEmptyParas]--><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]



Peggy-ever since my decision to go to the Jewish Hospital I have been feeling joyous! I feel like I will finally get some info and be able to help myself! I am a positive person and when I felt trapped without knowledge it frustrated me but now I am feeling light hearted and happy. I just need some knowledge about this dredful illness and I will learn to cope with it....though I know that sometimes depression will over come me I will always fight it. I have, though, decided if I get to be so sick I have too hard a time taking care of myself and my dog family I will kill myself. I don't want to be totally dependent on some others or end up in a nursing home.Such dependence has always been a dred of mine and I'm afraid I don't have the strength to overcome it. But, that won't happen for many years if at all. Right now I am enjoying the day. I went out to the store yesterday and bought a canteloupe even though it was costly and the dead of winter...I would usually say "that is too expensive I can wait" but now I just buy it. LOL Taste tremendous too! Joyce R Prescott AZ IPF 11-08

Re: Strange responses to knowledge of illness

Joyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear.They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you) I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it's supposed to be outstanding.

Z 64, fibriotic NSIP/o5/PA

And "mild" PH/10/07 and Reynaud's too!!

No, NSIP was not self-inflicted.I never smoked!

Potter, reader,carousel lover and MomMom to Darah

and Sara

"I'm gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my flower

<!--[if !supportEmptyParas]--><!--[endif]-->

<!--[if !supportEmptyParas]--><!--[endif]-->greycharlie wrote:

When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]

MB

It's 24 degrees here.....grrrrrrrrrrrrrrrrrrrr

> When I told a few friends and my son that I had an illness that was

> terminal some of them and my son responded with:Well, we all have to

go

> sometime. Has anyone had someone say this to them and if so what do

you

> say when they say that? It hurt me deeply when my son said that to me.

> And, it is such a cold thing to say.....it also hurt when my friends

> say it to me or as one said well, you are getting old you didn't

expect

> to live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZ

> PF Nov o8

>

>

>

> ________________________________

> No virus found in this incoming message.

> Checked by AVG - http://www.avg. com

> Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date:

1/15/2009 7:46 AM

>

[Guest guest]

MB

It's 24 degrees here.....grrrrrrrrrrrrrrrrrrrr

> When I told a few friends and my son that I had an illness that was

> terminal some of them and my son responded with:Well, we all have to

go

> sometime. Has anyone had someone say this to them and if so what do

you

> say when they say that? It hurt me deeply when my son said that to me.

> And, it is such a cold thing to say.....it also hurt when my friends

> say it to me or as one said well, you are getting old you didn't

expect

> to live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZ

> PF Nov o8

>

>

>

> ________________________________

> No virus found in this incoming message.

> Checked by AVG - http://www.avg. com

> Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date:

1/15/2009 7:46 AM

>

[Guest guest]

MB

It's 24 degrees here.....grrrrrrrrrrrrrrrrrrrr

> When I told a few friends and my son that I had an illness that was

> terminal some of them and my son responded with:Well, we all have to

go

> sometime. Has anyone had someone say this to them and if so what do

you

> say when they say that? It hurt me deeply when my son said that to me.

> And, it is such a cold thing to say.....it also hurt when my friends

> say it to me or as one said well, you are getting old you didn't

expect

> to live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZ

> PF Nov o8

>

>

>

> ________________________________

> No virus found in this incoming message.

> Checked by AVG - http://www.avg. com

> Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date:

1/15/2009 7:46 AM

>

[Guest guest]

30 here. In the teens this AM around 6:30 when my son (who is NOT wrapped tight) went to pull in his trout lines..Supposed to be 28 tonight.. BBBBBBRRRRRRRRR  this IS Florida.. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  MBIt's 24 degrees here.....grrrrrrrrrrrrrrrrrrrr> When I told a few friends and my son that I had an illness that was> terminal some of them and my son responded with:Well, we all have togo> sometime. Has anyone had someone say this to them and if so what doyou> say when they say that? It hurt me deeply when my son said that to me.> And, it is such a cold thing to say.....it also hurt when my friends> say it to me or as one said well, you are getting old you didn'texpect> to live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZ> PF Nov o8>>>> ________________________________> No virus found in this incoming message.> Checked by AVG - http://www.avg. com> Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date:1/15/2009 7:46 AM>

[Guest guest]

30 here. In the teens this AM around 6:30 when my son (who is NOT wrapped tight) went to pull in his trout lines..Supposed to be 28 tonight.. BBBBBBRRRRRRRRR  this IS Florida.. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  MBIt's 24 degrees here.....grrrrrrrrrrrrrrrrrrrr> When I told a few friends and my son that I had an illness that was> terminal some of them and my son responded with:Well, we all have togo> sometime. Has anyone had someone say this to them and if so what doyou> say when they say that? It hurt me deeply when my son said that to me.> And, it is such a cold thing to say.....it also hurt when my friends> say it to me or as one said well, you are getting old you didn'texpect> to live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZ> PF Nov o8>>>> ________________________________> No virus found in this incoming message.> Checked by AVG - http://www.avg. com> Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date:1/15/2009 7:46 AM>

[Guest guest]

30 here. In the teens this AM around 6:30 when my son (who is NOT wrapped tight) went to pull in his trout lines..Supposed to be 28 tonight.. BBBBBBRRRRRRRRR  this IS Florida.. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  MBIt's 24 degrees here.....grrrrrrrrrrrrrrrrrrrr> When I told a few friends and my son that I had an illness that was> terminal some of them and my son responded with:Well, we all have togo> sometime. Has anyone had someone say this to them and if so what doyou> say when they say that? It hurt me deeply when my son said that to me.> And, it is such a cold thing to say.....it also hurt when my friends> say it to me or as one said well, you are getting old you didn'texpect> to live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZ> PF Nov o8>>>> ________________________________> No virus found in this incoming message.> Checked by AVG - http://www.avg. com> Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date:1/15/2009 7:46 AM>

[Guest guest]

Jack, when there is nothing but lines that means RUN and don't go back until there are some kind of numbers.. That is crazy. I did hear some places up north are going to set record low temps.. I am cold here----in the house..  hee heeI am a wimp.. Are you coming to Orlando in March ? Hope so. I wanna meet all the family possible this trip.  Beth is gonna brighten up your trip for sure. Just don't let her break into the chicken dance.. that's all I'm sayin.. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Well, my friends, I am off tomorrow morning to North Carolina, Dr. on, and - best of all - ourbeloved  Beth.  I will be checking my email periodically and will try to keep up with the posts.I plan to enjoy NC's current 40 degree weather.  It was  minus 21 here in Bangor, Maine.  My thermomter showed too lines instead of the figures.  I think the reading was below it's numbers. I also will do a little house hunting in anticiaptation of my move to NC sometime this summer.  Jack79/IPF - UIP/dx06/05 MaineFrom: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support Sent: Friday, January 16, 2009 9:56:02 AMSubject: Re: Strange responses to knowledge of illnessJoyce, Some of us have had Docs tell us not to use them.. my response to that is they don't have this disease and don't have a clue what it is like to have your saturation drop until you drop. It just makes me nuts.. Anyhow you will be doing yourself such a huge favor buying one. When your walking and your thigh muscles hurt that is lack of 0xygen. I had that for probably 2 or 3 years before I was Dx. (diagnosed) So you will find 99% of Docs say they understand but they can't until they walk around with this monster on your back. The thing that is your BEST for you is attitude.. Stay as positive as possible. Find happy where everyou find yourself. Trust me the sad days of sorrow, anger and why me will find you....FIGHT girl FIGHT..God Bless you with sweet peace and strength.Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Peggy- I have been told about getting a oximeter but have no money at the moment to get one. I will get one as soon as I can. I see my Primary doc today and will ask her for a prescription. If my insurance company won't honor it I can use it as a tax deduction if I have a prescription. I'm afraid my doc will think me foolish for asking but, what the hell, I can try. Joyce Prescott IPF 11-08Re: Strange responses to knowledge of illnessJoyce, I've previously stated that illness seems to act like a filter in some strange way.The people who truly care float to the top and many unlikely ones seem to disappear.They stopped calling!!I've had to distance myself from many who I thought were friends but who reallywere not.. On the other hands I have become closer with many who I would not haveexpected to be so caring. Family members ( for me...my brother) sometimes are the one thathurt us the most. My brother thinks that because I can get out ( with O2.. mind you) I'm fine andnot ill. So why can't I just drop everything and run whenever my 89 year old very strong Mom needs help.He of coursesends his wife...I guess he figures that that counts. No matter what I;ve said, or what Mike has told him. he just doesn't get it at all! It's painful to admit that he makes me so angry..but just saying that takes energyaway from my positive activities.Sorry for sort of dumping on you...didn't mean to.Have a good week-end.I'm happy that you connected with Jewish Hospital in Denver...it' s supposed to be outstanding. Z 64, fibriotic NSIP/o5/PAAnd "mild" PH/10/07 and Reynaud's too!!No, NSIP was not self-inflicted. I never smoked!Potter, reader,carousel lover and MomMom to Darahand Sara"I'm gonna be iron like a lion in Zion" Bob MarleyVinca Minor-periwinkle is my flower<!--[if !supportEmptyParas] --><!--[endif]--><!--[if !supportEmptyParas] --><!--[endif]-->greycharlie wrote:When I told a few friends and my son that I had an illness that wasterminal some of them and my son responded with:Well, we all have to gosometime. Has anyone had someone say this to them and if so what do yousay when they say that? It hurt me deeply when my son said that to me.And, it is such a cold thing to say.....it also hurt when my friendssay it to me or as one said well, you are getting old you didn't expectto live to be 90 did you? (actually I did! LOL ). Joyce R. Prescott AZPF Nov o8No virus found in this incoming message.

Checked by AVG - http://www.avg. com

Version: 8.0.176 / Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46 AM

[Guest guest]

I have found that everyone reacts differently. My brother refuses to

acknowledge that I am ill, much less terminal. He tells me to " tough it out. "

At first I was deeply hurt, then I realized that he just can not really come to

terms with some one being ill.

I hope that you find that your son was not being callous, merely unable to

express himself. It can be overwhelming for us (the sick ones) and for them

(the healthy ones!!) They do not know how to respond or react, they need time

to come to grips with the situation also.

Give your family time to sort out how they feel, and your friends the benefit of

the doubt. Our illness is a big, overwhelming obstacle, one that is hard to come

to terms with.

I will admit that I have had several people make such uncalled for statements

that I seriously was speechless. with those people, the ones who are so

thoughtless that it boggles your mind, they are not worth the time of day. See

them for what they are, and take all they say with a grain of salt. Do not

waste time, tears or emotions on people that are not worth it.

Be selective. Why not? Surround yourself with loving, positive, supportive

people. Life is to precious to waste on someone who has nothing but ill will or

nasty remarks.

Sorry, long winded again.

Later,

NSIP 08

>

> Subject: Strange responses to knowledge of illness

> To: Breathe-Support

> Date: Thursday, January 15, 2009, 5:45 PM

> When I told a few friends and my son that I had an illness

> that was

> terminal some of them and my son responded with:Well, we

> all have to go

> sometime. Has anyone had someone say this to them and if so

> what do you

> say when they say that? It hurt me deeply when my son said

> that to me.

> And, it is such a cold thing to say.....it also hurt when

> my friends

> say it to me or as one said well, you are getting old you

> didn't expect

> to live to be 90 did you? (actually I did! LOL ). Joyce R.

> Prescott AZ

> PF Nov o8

[Guest guest]

I have found that everyone reacts differently. My brother refuses to

acknowledge that I am ill, much less terminal. He tells me to " tough it out. "

At first I was deeply hurt, then I realized that he just can not really come to

terms with some one being ill.

I hope that you find that your son was not being callous, merely unable to

express himself. It can be overwhelming for us (the sick ones) and for them

(the healthy ones!!) They do not know how to respond or react, they need time

to come to grips with the situation also.

Give your family time to sort out how they feel, and your friends the benefit of

the doubt. Our illness is a big, overwhelming obstacle, one that is hard to come

to terms with.

I will admit that I have had several people make such uncalled for statements

that I seriously was speechless. with those people, the ones who are so

thoughtless that it boggles your mind, they are not worth the time of day. See

them for what they are, and take all they say with a grain of salt. Do not

waste time, tears or emotions on people that are not worth it.

Be selective. Why not? Surround yourself with loving, positive, supportive

people. Life is to precious to waste on someone who has nothing but ill will or

nasty remarks.

Sorry, long winded again.

Later,

NSIP 08

>

> Subject: Strange responses to knowledge of illness

> To: Breathe-Support

> Date: Thursday, January 15, 2009, 5:45 PM

> When I told a few friends and my son that I had an illness

> that was

> terminal some of them and my son responded with:Well, we

> all have to go

> sometime. Has anyone had someone say this to them and if so

> what do you

> say when they say that? It hurt me deeply when my son said

> that to me.

> And, it is such a cold thing to say.....it also hurt when

> my friends

> say it to me or as one said well, you are getting old you

> didn't expect

> to live to be 90 did you? (actually I did! LOL ). Joyce R.

> Prescott AZ

> PF Nov o8

[Guest guest]

I have found that everyone reacts differently. My brother refuses to

acknowledge that I am ill, much less terminal. He tells me to " tough it out. "

At first I was deeply hurt, then I realized that he just can not really come to

terms with some one being ill.

I hope that you find that your son was not being callous, merely unable to

express himself. It can be overwhelming for us (the sick ones) and for them

(the healthy ones!!) They do not know how to respond or react, they need time

to come to grips with the situation also.

Give your family time to sort out how they feel, and your friends the benefit of

the doubt. Our illness is a big, overwhelming obstacle, one that is hard to come

to terms with.

I will admit that I have had several people make such uncalled for statements

that I seriously was speechless. with those people, the ones who are so

thoughtless that it boggles your mind, they are not worth the time of day. See

them for what they are, and take all they say with a grain of salt. Do not

waste time, tears or emotions on people that are not worth it.

Be selective. Why not? Surround yourself with loving, positive, supportive

people. Life is to precious to waste on someone who has nothing but ill will or

nasty remarks.

Sorry, long winded again.

Later,

NSIP 08

>

> Subject: Strange responses to knowledge of illness

> To: Breathe-Support

> Date: Thursday, January 15, 2009, 5:45 PM

> When I told a few friends and my son that I had an illness

> that was

> terminal some of them and my son responded with:Well, we

> all have to go

> sometime. Has anyone had someone say this to them and if so

> what do you

> say when they say that? It hurt me deeply when my son said

> that to me.

> And, it is such a cold thing to say.....it also hurt when

> my friends

> say it to me or as one said well, you are getting old you

> didn't expect

> to live to be 90 did you? (actually I did! LOL ). Joyce R.

> Prescott AZ

> PF Nov o8

[Guest guest]

Are we related? I swear our brothers are the same person!!

NSIP 08

> >

> > When I told a few friends and my son that I had an

> illness that was

> > terminal some of them and my son responded with:Well,

> we all have to go

> > sometime. Has anyone had someone say this to them and

> if so what do you

> > say when they say that? It hurt me deeply when my son

> said that to me.

> > And, it is such a cold thing to say.....it also hurt

> when my friends

> > say it to me or as one said well, you are getting old

> you didn't expect

> > to live to be 90 did you? (actually I did! LOL ).

> Joyce R. Prescott AZ

> > PF Nov o8

> >

> >

> >

> ------------------------------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com Version: 8.0.176 /

> Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46

> AM

> >

> >

[Guest guest]

Are we related? I swear our brothers are the same person!!

NSIP 08

> >

> > When I told a few friends and my son that I had an

> illness that was

> > terminal some of them and my son responded with:Well,

> we all have to go

> > sometime. Has anyone had someone say this to them and

> if so what do you

> > say when they say that? It hurt me deeply when my son

> said that to me.

> > And, it is such a cold thing to say.....it also hurt

> when my friends

> > say it to me or as one said well, you are getting old

> you didn't expect

> > to live to be 90 did you? (actually I did! LOL ).

> Joyce R. Prescott AZ

> > PF Nov o8

> >

> >

> >

> ------------------------------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com Version: 8.0.176 /

> Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46

> AM

> >

> >

[Guest guest]

Are we related? I swear our brothers are the same person!!

NSIP 08

> >

> > When I told a few friends and my son that I had an

> illness that was

> > terminal some of them and my son responded with:Well,

> we all have to go

> > sometime. Has anyone had someone say this to them and

> if so what do you

> > say when they say that? It hurt me deeply when my son

> said that to me.

> > And, it is such a cold thing to say.....it also hurt

> when my friends

> > say it to me or as one said well, you are getting old

> you didn't expect

> > to live to be 90 did you? (actually I did! LOL ).

> Joyce R. Prescott AZ

> > PF Nov o8

> >

> >

> >

> ------------------------------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com Version: 8.0.176 /

> Virus Database: 270.10.7/1895 - Release Date: 1/15/2009 7:46

> AM

> >

> >