Joe, Joanie, Sandy, Jack, Bruce and everyone thinking about me!

[Guest guest]

First, let me say how wonderful it is to be a part of this family! My Christmas visit with Joe and Joanie was wonderful! I am so happy that they made time to see me while they were in town - and I am not the easiest person to track down sometimes! We have shared some great moments together and I look forward to seeing them someday in their neck of the woods! (P.S. Joe and Joanie - I hope I make it to your neighborhood one of these days!)

And, I am so thankful for the responses from everyone here on the Board. I wish I had more time to visit with each and everyone. I am hoping that this spring I will be able to make it to the Florida get together. I plan on bringing my son and spending at least a day at Disney World. I've taken him there before, but he was only 2 at the time. He would have so much more fun now that he is almost 7!

If I know only one thing is this life to be absolute, that is that we will all have to answer for what we have done in life to One Person. This is why I can look in the perverbial mirror and like the person looking back at me. I know my ex-husband cannot do that. His lies and his motives are so awful, but as a christian I do not hate him, I pray for him. He needs the prayers! I have to rely on my faith to get me through each and every day. I am not as strong as I put on, and I get hurt a lot, but I cannot pity myself or I wouldn't be doing anyone any justice. I am very lucky to have great family and friends for support, and a really good church. Unfortunately, I have been so ill lately I haven't made it to church since before Christmas! I am only inches away from hospitalization again - and I am trying so hard to take it easy. I have pneumonia again! Each time it seems to be worse

than the last time. I am back on Prednisone and it makes me feel so awful - and I realized (just recently) it makes me extremely grouchy, moody and I cry when the wind blows! I am also doing 6 breathing treatments a day on my nebulizer. These help; but they effect is awful too! I shake like a leaf for hours after each treatment and just when the shaking lets up, it's time for another treatment! My next appointment with my transplant team was scheduled for Tuesday, January 13, but I had to cancel because of being so ill again. My PFT results would be so distorted while I am this sick. My O2 is up to 6 lpm at rest and even higher if I am doing anything. That's a huge change from the 2 lpm I was on just one year ago.

God Bless,

Tina, Ohio

IPF; PH; listed for transplant

Tina

From: Gwynne Keyland <gwynnek (AT) sbcglobal (DOT) net>Subject: miscellaneousTo: "BREATHE-SUPPORT Information" <Breathe-Support@ yahoogroups. com>Date: Thursday, January 8, 2009, 8:24 PM

Jon and Teri,I'm thinking of you and praying for some answers andgood outcomes from the s Hopkins study.I hope you are taking good care of yourselves whiledealing with this stress. You've been through a lot.I'm glad you have each other. Bless you both.. hangin there!Gita, Beth, and Caro,I probably won't write a book, because that entails somuch reliving the past. That's not something I want todo, but if it would really help people I might ought toconsider it. Lou,Wishing you a good day and an even better tomorrow!Big hugs to you. Beth,I hope your biopsies went well. I had a punch biopsydone on my cheek recently, and it turned out to be abasil cell carcinoma. I'll have to have a Moh's surgeryto remove it. Bah - makes me grumpy. P,Thanks so much for the great post on aging. Itcontains a lot of little pearls of wisdom. I

hadread it before somewhere, but I'm delighted toget to read it again. Take care.Mike,I never used a concentrator, but a lot of board membershave experience with the Inogen model. Maybe you'llget some direction from one of them. Good luck.,I'm very glad you're back home and out of theBig House. I'm sorry things ballooned out ofcontrol with the UTI. You didn't need pneumonia.Hope you're getting some good rest - I'm sureyou need it. I currently have a UTI too, that testedpositive for e-coli. No picnic but at least it hasn'tdeveloped into a huge deal like yours did. It'salways something, right?Joyce,Thanks for sharing the wonderful article in whichyour interview is included. I wish everyone couldread it. There is such a critical need for more peopleto register as donors, and it's so easy to register!Today I heard a wild story from a friend who heardon

the news about a couple who are getting divorced.The woman has had two kidney transplants, onefrom her husband. Now he wants it back! Unreal, huh?Leanne,How ARE you doing these days? Well, I hope. Hope youhad a lovely Christmas and will have a stable, happyNew Year, my friend.Hugs and blessings,Gwynne 57 Single-lung Transplant for IPF on 4-3-08at UTHSC - San Fort Worth, TX