Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Hi everyone, I'm leaving in a little while to have my skin and my muscle biopsies done. They are both very simple procedures so aside from a little soreness I don't expect any problems. Wish me luck!! Beth in North Carolina Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Hi Honey, I'll be praying for a pain free procedure. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Hi everyone,I'm leaving in a little while to have my skin and my muscle biopsies done. They are both very simple procedures so aside from a little soreness I don't expect any problems. Wish me luck!! Beth in North CarolinaModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 MARY BETH: Why are you having a muscle biopsy done?????????? MARY LOU > > Hi everyone, > I'm leaving in a little while to have my skin and my muscle biopsies done. They are both very simple procedures so aside from a little soreness I don't expect any problems. > Wish me luck!! > > Beth in North Carolina > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Good luck Beth!! I am thinking of you!CaroASTHMA 1976,OSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08Mississippi Subject: Re: Biopsies todayTo: Breathe-Support Date: Thursday, January 8, 2009, 10:49 AM MARY BETH: Why are you having a muscle biopsy done???????? ??MARY LOU>> Hi everyone,> I'm leaving in a little while to have my skin and my muscle biopsies done. They are both very simple procedures so aside from a little soreness I don't expect any problems. > Wish me luck!!> > Beth in North Carolina> Moderator> Fibrotic NSIP 06/06 Dermatomyositi s 11/08> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 MB Good luck. They may both be simple but I'm still a wimp toward them and know I'll end up having them. > > Hi everyone, > I'm leaving in a little while to have my skin and my muscle biopsies done. They are both very simple procedures so aside from a little soreness I don't expect any problems. > Wish me luck!! > > Beth in North Carolina > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Lou It would be from rheumatologist belief that she has dermatomyositis. They often do these to determine connective tissue diseases, especially polymyositis and dermatomyositis. > > > > Hi everyone, > > I'm leaving in a little while to have my skin and my muscle biopsies > done. They are both very simple procedures so aside from a little > soreness I don't expect any problems. > > Wish me luck!! > > > > Beth in North Carolina > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Praying for a pain free procedure and quick recovery. God bless you Beth- R. (52) Sarcoid/PF 3/2006 Carlsbad, California Subject: Biopsies todayTo: Breathe-Support Date: Thursday, January 8, 2009, 8:05 AM Hi everyone, I'm leaving in a little while to have my skin and my muscle biopsies done. They are both very simple procedures so aside from a little soreness I don't expect any problems. Wish me luck!! Beth in North Carolina Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 HI BRUCE: Thanks so much for answering my question about MB's muscle test. The pulmo said my muscle weakness yesterday was caused from either, PF itself!!..... Prednisone........ or Crestor. WELL, Bruce, now I am back with the black patch on my left eye probably for good. If the eye isn't any better (sight wise) in 1 month, he will do a prescription for it at that time and I will just have to live with it. You have always said you don't like stuff being done to your eyes, I am getting that way, but they were wonderful to me and very professional and clean and did all they could for me and I know that. They really wanted to make my sight better and VA Eye Inst. is the best around. If you get gittery about something happening to your eyes, just grit your teeth and you will feel no pain. I will prob. be putting drops in for a while yet, also what they call " tear drops " for both eyes. Said my eyes were very dry. Do you do those at all? Thanks again, Bruce Lou IPF - 02 > > > > > > Hi everyone, > > > I'm leaving in a little while to have my skin and my muscle biopsies > > done. They are both very simple procedures so aside from a little > > soreness I don't expect any problems. > > > Wish me luck!! > > > > > > Beth in North Carolina > > > Moderator > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 Lou Many of us either have or are suspected of possibly having connective tissue/autoimmune diseases. PF itself may ultimately be found to be very similar to them in nature and cause. Often we're classified as Undifferentiated Connective Tissue Disease, meaning they think we have something, but don't know what and think it may or may not manifest itself sometime so they can figure out what it is. Now, there is a belief too that these diseases can sometimes be the underlying causes of the PF, especially when someone has NSIP. And, if that is the case, then treating the connective tissue disease can slow or stop even for a while the progression of the PF. We have several members who do have one of the Myositis's, either Poly or Dermato. Those can be very mild in nature or quite severe. I've been tested and labbed to death and while there are indications I have a connective tissue muscle disease they cannot diagnose me as having one. So my rheumatologist keeps checking and referring. He's honestly much more concerned about figuring it out than I am. I figure if I do have one that sometime it will manifest itself in another way. For MB that appears to be a typical Dermatomyositis problem of skin rash. Now, in my case, even if I have an autoimmune disease it probably is not the cause of my PF, since I do have UIP. But, this whole thing is so complicated, I just live my life and don't worry about it. I may have an EMG sometime which could lead to a muscle biopsy which could lead to figuring it out which then could just lead to a whole new question of what do we do about it. > > > > > > > > Hi everyone, > > > > I'm leaving in a little while to have my skin and my muscle > biopsies > > > done. They are both very simple procedures so aside from a little > > > soreness I don't expect any problems. > > > > Wish me luck!! > > > > > > > > Beth in North Carolina > > > > Moderator > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 I had a Muscle biopsy back in 12/98 to prove I had Polymositis. The start of my DOWN turn, that keeps on going down and down and down. Feels like I am getting near the bottom LOL P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 9 LPM 8/04, PH 3/06, ILL yo 60Subject: Re: Biopsies todayTo: Breathe-Support Date: Thursday, January 8, 2009, 12:34 PM Lou It would be from rheumatologist belief that she has dermatomyositis. They often do these to determine connective tissue diseases, especially polymyositis and dermatomyositis. > > > > Hi everyone, > > I'm leaving in a little while to have my skin and my muscle biopsies > done. They are both very simple procedures so aside from a little > soreness I don't expect any problems. > > Wish me luck!! > > > > Beth in North Carolina > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 I realize that you have been on that downturn and from the day Polymyositis was first mentioned to me, you were the first one I thought of. I do hope that you're just having the best life still you can and getting the care and support you need. I know you've been one to keep going as much as possible and I admire that. Did your Polymyositis manifest itself fully limiting your mobility or did it sort of linger there with some symptoms but the main one remaining the PF? What did you do for the Polymyositis treatment wise? > > > > > > > > Hi everyone, > > > > I'm leaving in a little while to have my skin and my muscle biopsies > > > done. They are both very simple procedures so aside from a little > > > soreness I don't expect any problems. > > > > Wish me luck!! > > > > > > > > Beth in North Carolina > > > > Moderator > > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.