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  • 1 month later...

What a fantastic testament to the performance of a resurfaced joint! You

ought to get sponsorship from whoever supplied your implant - and this kind

of story ought to be retold to all the Ortho surgeons out there who doubt

the resurfacing approach - I got into a verbal disagreement with one of my

Orthos last week - the guy who originally diagnosed my hip properly as due

to an injury - he practically called me a fool for going with a resurf -

when I finally pinned him down, all he argued was that I might come down

with cancer or renal problems due to metallic ions in my system - so I

regurgitated the various studies that showed an increase, but then a

leveling off, but no reports after 9 years of any problems in this area -

he claimed that one researcher conducting a study of ion problems quit his

program due to a concern that resurfacing was going to lead to later health

problems - anyone heard of this? I also told him my father was involved in

the industrial hygiene business for 35 years as VP of Industrial Hygiene

for ASARCO, a metals smelting co. which made lead, antimony, bismuth,

arsenic, mercury, selenium and copper, many of which can produce nasty

chemical/health problems - his job was insuring via regular blood and urine

tests of all the plant workers that they would stay healthy and wear their

respirators and other safety gear and take any other precautions on the job

to preserve their health - the only thing he couldn't do was get them to

quit smoking!

I asked him about any dangers from trace amounts of chrome-cobalt metal

ions in the body, and he felt this was not an issue. However, all we need

to do now is determine what kind of checkup or test we might want to do

annually to keep track of our ion levels in the body - do any of the

clinical trials really do this?

Depending on the metal, there are ways to rid the body of different

materials thru various approaches - there are chelating chemicals which

combine with lead in the blood to cause the metal to be excreted, so there

may be ways to handle any ion problems - but evidently chrome-cobalt has

been used in dentistry for 40 years - a fellow surfacehippy - Ralph Bozell,

a dentist, told me that this metal is very hard, and is subject to much

higher stress in artificial teeth than in a hip joint, and has never caused

side effects in the body.

Ken - Dr. Gross 9-18-03

" nwismans " n.wismans@...> on 10/23/2003 10:27:26 AM

Please respond to surfacehippy

To: surfacehippy

cc:

Subject: back again

Just got back from a three months walk from Belgium to Santiago in

Spain. In the beginning I walked 10 miles a day with a 13 kilo

backback, at the and 20 miles a day with 8 kilos. Started at the 14

of july, 5 monyhs after the BHR. It is such a wonder that I didn't

feel any pain in my hip and after a while even didn't think of the

hip anymore. I wish you the same wonder too.

Nico Wismans,

RBHR, DeSmet, 02-19-03

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What a fantastic testament to the performance of a resurfaced joint! You

ought to get sponsorship from whoever supplied your implant - and this kind

of story ought to be retold to all the Ortho surgeons out there who doubt

the resurfacing approach - I got into a verbal disagreement with one of my

Orthos last week - the guy who originally diagnosed my hip properly as due

to an injury - he practically called me a fool for going with a resurf -

when I finally pinned him down, all he argued was that I might come down

with cancer or renal problems due to metallic ions in my system - so I

regurgitated the various studies that showed an increase, but then a

leveling off, but no reports after 9 years of any problems in this area -

he claimed that one researcher conducting a study of ion problems quit his

program due to a concern that resurfacing was going to lead to later health

problems - anyone heard of this? I also told him my father was involved in

the industrial hygiene business for 35 years as VP of Industrial Hygiene

for ASARCO, a metals smelting co. which made lead, antimony, bismuth,

arsenic, mercury, selenium and copper, many of which can produce nasty

chemical/health problems - his job was insuring via regular blood and urine

tests of all the plant workers that they would stay healthy and wear their

respirators and other safety gear and take any other precautions on the job

to preserve their health - the only thing he couldn't do was get them to

quit smoking!

I asked him about any dangers from trace amounts of chrome-cobalt metal

ions in the body, and he felt this was not an issue. However, all we need

to do now is determine what kind of checkup or test we might want to do

annually to keep track of our ion levels in the body - do any of the

clinical trials really do this?

Depending on the metal, there are ways to rid the body of different

materials thru various approaches - there are chelating chemicals which

combine with lead in the blood to cause the metal to be excreted, so there

may be ways to handle any ion problems - but evidently chrome-cobalt has

been used in dentistry for 40 years - a fellow surfacehippy - Ralph Bozell,

a dentist, told me that this metal is very hard, and is subject to much

higher stress in artificial teeth than in a hip joint, and has never caused

side effects in the body.

Ken - Dr. Gross 9-18-03

" nwismans " n.wismans@...> on 10/23/2003 10:27:26 AM

Please respond to surfacehippy

To: surfacehippy

cc:

Subject: back again

Just got back from a three months walk from Belgium to Santiago in

Spain. In the beginning I walked 10 miles a day with a 13 kilo

backback, at the and 20 miles a day with 8 kilos. Started at the 14

of july, 5 monyhs after the BHR. It is such a wonder that I didn't

feel any pain in my hip and after a while even didn't think of the

hip anymore. I wish you the same wonder too.

Nico Wismans,

RBHR, DeSmet, 02-19-03

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Dear Niko,

So glad you are doing so well. After hearing about your plans for

the 3 month walk, your other surgery sister, , thought of doing

a cross country walk to bring attention to surface hip replacement -

while that didn't fit into my busy schedule or lifestyle, at your

inspiration, I started walking up and down 4 flights of stairs at

work - a lot of exercise for a person whose primary excercise is

shopping!

Just got back from a vacation in Aruba - walked many miles on the

beach - and for the first time in years, my husband was left in the

dust!

Sometimes things ache, but never, never, my hip.

Good to hear of your wonderful progress.

Your surgery sister, Bev rbhr 2/19/03 DeSmet

> Just got back from a three months walk from Belgium to Santiago in

> Spain. In the beginning I walked 10 miles a day with a 13 kilo

> backback, at the and 20 miles a day with 8 kilos. Started at the 14

> of july, 5 monyhs after the BHR. It is such a wonder that I didn't

> feel any pain in my hip and after a while even didn't think of the

> hip anymore. I wish you the same wonder too.

> Nico Wismans,

> RBHR, DeSmet, 02-19-03

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Good on both of you!!! I look forward to the time I can even come close.

Sharry

RBHR De Smet 27/08/2003

Re: back again

Dear Niko,

So glad you are doing so well. After hearing about your plans for

the 3 month walk, your other surgery sister, , thought of doing

a cross country walk to bring attention to surface hip replacement -

while that didn't fit into my busy schedule or lifestyle, at your

inspiration, I started walking up and down 4 flights of stairs at

work - a lot of exercise for a person whose primary excercise is

shopping!

Just got back from a vacation in Aruba - walked many miles on the

beach - and for the first time in years, my husband was left in the

dust!

Sometimes things ache, but never, never, my hip.

Good to hear of your wonderful progress.

Your surgery sister, Bev rbhr 2/19/03 DeSmet

> Just got back from a three months walk from Belgium to Santiago in

> Spain. In the beginning I walked 10 miles a day with a 13 kilo

> backback, at the and 20 miles a day with 8 kilos. Started at the 14

> of july, 5 monyhs after the BHR. It is such a wonder that I didn't

> feel any pain in my hip and after a while even didn't think of the

> hip anymore. I wish you the same wonder too.

> Nico Wismans,

> RBHR, DeSmet, 02-19-03

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Good on both of you!!! I look forward to the time I can even come close.

Sharry

RBHR De Smet 27/08/2003

Re: back again

Dear Niko,

So glad you are doing so well. After hearing about your plans for

the 3 month walk, your other surgery sister, , thought of doing

a cross country walk to bring attention to surface hip replacement -

while that didn't fit into my busy schedule or lifestyle, at your

inspiration, I started walking up and down 4 flights of stairs at

work - a lot of exercise for a person whose primary excercise is

shopping!

Just got back from a vacation in Aruba - walked many miles on the

beach - and for the first time in years, my husband was left in the

dust!

Sometimes things ache, but never, never, my hip.

Good to hear of your wonderful progress.

Your surgery sister, Bev rbhr 2/19/03 DeSmet

> Just got back from a three months walk from Belgium to Santiago in

> Spain. In the beginning I walked 10 miles a day with a 13 kilo

> backback, at the and 20 miles a day with 8 kilos. Started at the 14

> of july, 5 monyhs after the BHR. It is such a wonder that I didn't

> feel any pain in my hip and after a while even didn't think of the

> hip anymore. I wish you the same wonder too.

> Nico Wismans,

> RBHR, DeSmet, 02-19-03

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Hi Ken,

What you are saying below about people in metal industries echo's what my OS

told me last time I saw him....... He has been examining the issue and there

is a paper somewhere he and others wrote....... but he said from all that

they can gather one isn't at any more risk for us than to people who work in

metal industries and no evidence of work related cancers has come up

there........ And there are so many variables involved really for anyone to

make any great assertions........i.e. we get this hip prothesis at different

ages, some people are more prone to be affected by anything, some people

will wear more ions off into their bodies, some people may be run over by a

bus before they come down with any related cancer anyway and so

on..............so how anyone could make much sense of any information is

beyond me, let alone make great assertions as if true.............

What I did find immediately post Resurface and regaining of being able to

have functioning muscles in my left leg, was the departure of a pale yellow

hue to my entire body skin and a constant feeling of being tired and

poisoned.......... This has been amazing to all who know me and no one has

really been able to explain it that well why.............. I just laugh and

say it is the metal ions........ I obviously needed a good dose of whatever

metal are involved to have a properly functioning metalibolism........smile.

And as I felt I was dying preop I have already gained an extra year of

happiness thanks to the BHR........ and any more will be sheer bonus as far

as I am concerned........... BTW I was up a ladder cleaning gutters this

afternoon - and while my back will scream tonight, gee it felt good to be

able to easily do things like that again.

Edith LBHR Dr. L Walter Syd Aust 8/02

>

> What a fantastic testament to the performance of a resurfaced joint! You

> ought to get sponsorship from whoever supplied your implant - and this

kind

> of story ought to be retold to all the Ortho surgeons out there who doubt

> the resurfacing approach - I got into a verbal disagreement with one of my

> Orthos last week - the guy who originally diagnosed my hip properly as due

> to an injury - he practically called me a fool for going with a resurf -

> when I finally pinned him down, all he argued was that I might come down

> with cancer or renal problems due to metallic ions in my system - so I

> regurgitated the various studies that showed an increase, but then a

> leveling off, but no reports after 9 years of any problems in this area -

> he claimed that one researcher conducting a study of ion problems quit his

> program due to a concern that resurfacing was going to lead to later

health

> problems - anyone heard of this? I also told him my father was involved

in

> the industrial hygiene business for 35 years as VP of Industrial Hygiene

> for ASARCO, a metals smelting co. which made lead, antimony, bismuth,

> arsenic, mercury, selenium and copper, many of which can produce nasty

> chemical/health problems - his job was insuring via regular blood and

urine

> tests of all the plant workers that they would stay healthy and wear their

> respirators and other safety gear and take any other precautions on the

job

> to preserve their health - the only thing he couldn't do was get them to

> quit smoking!

> I asked him about any dangers from trace amounts of chrome-cobalt metal

> ions in the body, and he felt this was not an issue. However, all we need

> to do now is determine what kind of checkup or test we might want to do

> annually to keep track of our ion levels in the body - do any of the

> clinical trials really do this?

> Depending on the metal, there are ways to rid the body of different

> materials thru various approaches - there are chelating chemicals which

> combine with lead in the blood to cause the metal to be excreted, so there

> may be ways to handle any ion problems - but evidently chrome-cobalt has

> been used in dentistry for 40 years - a fellow surfacehippy - Ralph

Bozell,

> a dentist, told me that this metal is very hard, and is subject to much

> higher stress in artificial teeth than in a hip joint, and has never

caused

> side effects in the body.

>

> Ken - Dr. Gross 9-18-03

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  • 5 years later...

Jack...you didn't answer me if the address @roadrunner.com is YOURS. I don't click on ANYTHING I'm not sure of anymore.

Yes, I've been aware you had/have computer problems. Sure hope they are fixed now. I feel so out of touch when mine goes down.

I have an IBM Aptiva and it must be at least 7-9 years old. When this gives up I'm not sure what I will do. Sure can't afford another. I did replace the tower once, suppose that is a maybe if I need to again.

I will write Tina...or better yet, here is her addy...I'm sure she will not mind if I give it to a member:

tdweimer@...

I'm trying to think about any special news of members...Jon had the VATS and is having complications. Had to go into isolation w/staph then back on chest drain. He is is great pain. Still in hospital. He posted today (or maybe yesterday) you can catch his post.

Peggy went on a weekend trip and didn't fare so well. Home very very tired but she posted today as well.

With my bad memory I no doubt forgot someone but you'll catch up.

Don't forget to tell me if the roadrunner addy is you... if so, is this replacing BOTH your email addresses? Apparently not the one we're using...Duh.

Hugs.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Back Again

It's back again, again. I was without internet access since December 12 and finally gained access yesterday. I did the right thing. I kicked out all thos snotty men who know so much about computers but couldn't fix my problem. Then I hired smart lady who fixed it in 30 minutes. That's why I admire women so much.

I spent most of today rebuilding my address book and sending out notices of the new address. I finally got to to the Support Group site to find 264 messages. I'll never be able to read them all. I just hope all is well with all the members and that you had a festive Christmas.

If the young lady who needed an oximeter - I think her name was Tina - would again email me her name, address and telephone number, I will order one. In the scramble over no internet and Christmas, I lost her info. Jack79/IPF - UIP/dx06/05 Maine

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Well it's about time. I thought maybe you got lost in the mountains.. How did your appointment at Duke go ?Yep when something needs doin call a woman. "We so SMART" LOL Glad your back. Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  It's back again, again.  I was without internet access since December 12 and finally gained access yesterday.  I did the right thing.  I kicked out all thos snotty men who know so much about computers but couldn't fix my problem.  Then I hired smart lady who fixed it in 30 minutes.  That's why I admire women so much. I spent most of today rebuilding my address book and sending out notices of the new address.  I finally got to to the Support Group site to find 264 messages.  I'll never be able to read them all.  I just hope all is well with all the members and that you had a festive Christmas. If the young lady who needed an oximeter - I think her name was Tina - would again email me her name, address and telephone number, I will order one.  In the scramble over no internet and Christmas, I lost her info. Jack79/IPF - UIP/dx06/05 Maine

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Oh DAMNIT! I didn't realize I was sending this to the board!! I would never have put Tina's addy up. I thought I was writing to you personally, Jack.

Good thing I didn't write anything personal...(lol) everyone knows how I love dancing w/you, wearing my beautiful gown. Why, I was downright smitten. (lol).

But we'll keep all that between us Jack.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Back Again

It's back again, again. I was without internet access since December 12 and finally gained access yesterday. I did the right thing. I kicked out all thos snotty men who know so much about computers but couldn't fix my problem. Then I hired smart lady who fixed it in 30 minutes. That's why I admire women so much.

I spent most of today rebuilding my address book and sending out notices of the new address. I finally got to to the Support Group site to find 264 messages. I'll never be able to read them all. I just hope all is well with all the members and that you had a festive Christmas.

If the young lady who needed an oximeter - I think her name was Tina - would again email me her name, address and telephone number, I will order one. In the scramble over no internet and Christmas, I lost her info. Jack79/IPF - UIP/dx06/05 Maine

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Sher, I wouldn't worry about sharing addresses because they come whenever anyone posts. Not a big deal. This site is pretty secure. Just usins here. I have everything about myself on here and don't worry one bit. It is just the Air Family here.. ;) Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Oh DAMNIT!  I didn't realize I was sending this to the board!! I would never have put Tina's addy up. I thought I was writing to you personally, Jack.Good thing I didn't write anything personal...(lol) everyone knows how I love dancing w/you, wearing my beautiful gown. Why, I was downright smitten. (lol).But we'll keep all that between us Jack. MamaSher, age 70. IPF 3-06, OR.   NasturtiumsDon't fret about tomorrow, God is already there!  Back AgainIt's back again, again.  I was without internet access since December 12 and finally gained access yesterday.  I did the right thing.  I kicked out all thos snotty men who know so much about computers but couldn't fix my problem.  Then I hired smart lady who fixed it in 30 minutes.  That's why I admire women so much. I spent most of today rebuilding my address book and sending out notices of the new address.  I finally got to to the Support Group site to find 264 messages.  I'll never be able to read them all.  I just hope all is well with all the members and that you had a festive Christmas. If the young lady who needed an oximeter - I think her name was Tina - would again email me her name, address and telephone number, I will order one.  In the scramble over no internet and Christmas, I lost her info. Jack79/IPF - UIP/dx06/05 Maine

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Yes I am making Bibles. for christmas I got some beautiful material from . so I am at it again as soon as I feelup to it.  Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Oh DAMNIT!  I didn't realize I was sending this to the board!! I would never have put Tina's addy up. I thought I was writing to you personally, Jack.Good thing I didn't write anything personal...(lol) everyone knows how I love dancing w/you, wearing my beautiful gown. Why, I was downright smitten. (lol).But we'll keep all that between us Jack. MamaSher, age 70. IPF 3-06, OR.   NasturtiumsDon't fret about tomorrow, God is already there!  Back AgainIt's back again, again.  I was without internet access since December 12 and finally gained access yesterday.  I did the right thing.  I kicked out all thos snotty men who know so much about computers but couldn't fix my problem.  Then I hired smart lady who fixed it in 30 minutes.  That's why I admire women so much. I spent most of today rebuilding my address book and sending out notices of the new address.  I finally got to to the Support Group site to find 264 messages.  I'll never be able to read them all.  I just hope all is well with all the members and that you had a festive Christmas. If the young lady who needed an oximeter - I think her name was Tina - would again email me her name, address and telephone number, I will order one.  In the scramble over no internet and Christmas, I lost her info. Jack79/IPF - UIP/dx06/05 Maine

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Peggy... well I don't really ~worry~ it's just the principal of it. I'm careful to guard people's privacy. We are very lucky on this board aren't we. Only a few times have we had a problem with someone.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

� Back Again

It's back again, again.� I was without internet access since December 12 and finally gained access yesterday.� I did the right thing.� I kicked out all thos snotty men who know so much about computers but couldn't fix my problem.� Then I hired smart lady who fixed it in 30 minutes.� That's why I admire women so much.

�

I spent most of today rebuilding my address book and sending out notices of the new address.� I finally got to to the Support Group site to find 264 messages.� I'll never be able to read them all.� I just hope all is well with all the members and that you had a festive Christmas.

�

If the young lady who needed an oximeter - I think her name was Tina - would again email me her name, address and telephone number, I will order one.� In the scramble over no internet and Christmas, I lost her info.�Jack79/IPF - UIP/dx06/05 Maine

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Yes, the roadrunner.com is my new address. Thanks for the update. I was particularly worried to read of Lou's problems. I didn't skip over those. It was not 246 messages I had, but 546. Things email wise are going ok so far. Most of my business is conducted bia email and it makes business life difficult when it's not working. Another failure like this past one and I will shoot the computer.

Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Wednesday, January 7, 2009 1:49:53 PMSubject: Re: Back Again

Jack...you didn't answer me if the address @roadrunner. com is YOURS. I don't click on ANYTHING I'm not sure of anymore.

Yes, I've been aware you had/have computer problems. Sure hope they are fixed now. I feel so out of touch when mine goes down.

I have an IBM Aptiva and it must be at least 7-9 years old. When this gives up I'm not sure what I will do. Sure can't afford another. I did replace the tower once, suppose that is a maybe if I need to again.

I will write Tina...or better yet, here is her addy...I'm sure she will not mind if I give it to a member:

tdweimer (AT) hotmail (DOT) com

I'm trying to think about any special news of members...Jon had the VATS and is having complications. Had to go into isolation w/staph then back on chest drain. He is is great pain. Still in hospital. He posted today (or maybe yesterday) you can catch his post.

Peggy went on a weekend trip and didn't fare so well. Home very very tired but she posted today as well.

With my bad memory I no doubt forgot someone but you'll catch up.

Don't forget to tell me if the roadrunner addy is you... if so, is this replacing BOTH your email addresses? Apparently not the one we're using...Duh.

Hugs.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Back Again

It's back again, again. I was without internet access since December 12 and finally gained access yesterday. I did the right thing. I kicked out all thos snotty men who know so much about computers but couldn't fix my problem. Then I hired smart lady who fixed it in 30 minutes. That's why I admire women so much.

I spent most of today rebuilding my address book and sending out notices of the new address. I finally got to to the Support Group site to find 264 messages. I'll never be able to read them all. I just hope all is well with all the members and that you had a festive Christmas.

If the young lady who needed an oximeter - I think her name was Tina - would again email me her name, address and telephone number, I will order one. In the scramble over no internet and Christmas, I lost her info. Jack79/IPF - UIP/dx06/05 Maine

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No problem. I've told everybody in Maine about my west coast woman. They haven't slapped me down yet. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Wednesday, January 7, 2009 1:58:30 PMSubject: Re: Back Again

Oh DAMNIT! I didn't realize I was sending this to the board!! I would never have put Tina's addy up. I thought I was writing to you personally, Jack.

Good thing I didn't write anything personal...( lol) everyone knows how I love dancing w/you, wearing my beautiful gown. Why, I was downright smitten. (lol).

But we'll keep all that between us Jack.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Back Again

It's back again, again. I was without internet access since December 12 and finally gained access yesterday. I did the right thing. I kicked out all thos snotty men who know so much about computers but couldn't fix my problem. Then I hired smart lady who fixed it in 30 minutes. That's why I admire women so much.

I spent most of today rebuilding my address book and sending out notices of the new address. I finally got to to the Support Group site to find 264 messages. I'll never be able to read them all. I just hope all is well with all the members and that you had a festive Christmas.

If the young lady who needed an oximeter - I think her name was Tina - would again email me her name, address and telephone number, I will order one. In the scramble over no internet and Christmas, I lost her info. Jack79/IPF - UIP/dx06/05 Maine

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Oh so funny. LOL. Your 'west coast woman'. In the pink dress remember!

Jack you are an absolute jewel. No wonder this old gal loves you!

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Back Again

It's back again, again. I was without internet access since December 12 and finally gained access yesterday. I did the right thing. I kicked out all thos snotty men who know so much about computers but couldn't fix my problem. Then I hired smart lady who fixed it in 30 minutes. That's why I admire women so much.

I spent most of today rebuilding my address book and sending out notices of the new address. I finally got to to the Support Group site to find 264 messages. I'll never be able to read them all. I just hope all is well with all the members and that you had a festive Christmas.

If the young lady who needed an oximeter - I think her name was Tina - would again email me her name, address and telephone number, I will order one. In the scramble over no internet and Christmas, I lost her info. Jack79/IPF - UIP/dx06/05 Maine

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