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Re: Digest Number 1550

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Hi: I had my left hip done 8/2000 and the right done 5/2001 by Dr. Treacy in

Birmigham England. He is great and I still feel like I never had anything

wrong or done to the hips. ALSO, PLEASE ALL OF YOU, REGARDLESS WHAT YOUR GP

SAYS, GET A DNA FOR HEREDITARY HEMOCHROMATOSIS. this disease is deadly if not

caught in time. It hits the major joints and organs. I have it and I ended up

with a knee replacement and the two hips. Lucky me it did not kill the kidney

or the liver first. This is very very important. The sneaky part is your GP

will tell you the blood tests are normal but your GP can't tell by that. I had

two sister who were told this and because of my insistence they got DNA tests

and consequently I saved their lives. I only come on this site every once in

a while to try and get this disease across. Stanford University calls it a

common disease. It has no symptoms until it is to late. Iron stores in the

heart, liver, kidneys, joints, etc., and your blood test hct and hemoglobin show

normal and your ferritin and iron saturation shows normal. This is serious

business. Margaret

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Margaret and all

I did a search after reading Margaret's post. I did not know what

Hererditary Hemochromatosis is. Below is some of what I found and the

web'dress.

Alyce

http://munstermom.tripod.com/hemo.html

HEREDITARY HEMOCHROMATOSIS

Hereditary Hemochromatosis,[HH] is a genetic condition of iron overload

affecting approximately 1 out of 200-300 people, with 1 in 8-10 people being

carriers.  It is 100% fatal if not diagnosed early & treated aggressively, yet

with

early diagnosis & treatment, one can expect a normal life span.

It is very important that the proper tests are ran to check your iron

status.  A hemoglobin [hgb] level alone is not sufficient & patients may even

have a

low hgb. level, yet be iron overloaded.  A low hgb. should always be evaluated

to find the CAUSE of the anemia before assuming that it is from iron

deficiency & routinely treating with iron.  Do NOT ever take iron without first

knowing your true iron status!

The correct lab tests that you should ask your doctor to do are:

* Iron

* Ferritin

* Total Iron Binding Capacity [TIBC]

* Transferrin Saturation[TS]

These should be done in the morning hours, after an overnight fast. There is

also a genetic test now available that you can do in the comfort of your

home, without needles! 

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