Guest guest Posted October 31, 2004 Report Share Posted October 31, 2004 Life is forever changing. So I'll work on patience. WIth love,Lyn Lyn, I am sorry that you were feeling low and yes the only thing we can count on is that life is always changing . So we endure the bad and pray for the good. Patience is a hard one to work on especially when you are in a lot of pain. So Lyn I hope you have a wonderful Sunday and watch out for all those gob;ins that'll be out tonight. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2004 Report Share Posted October 31, 2004 Hi Lin, I'll open by asking if you or anyone else has had a problem with RSD spreading to buttocks and backs of thighs. It is really becoming a problem and I have trouble sitting. Having trouble standing and having trouble sitting leaves only laying which has its own set of problems. I am grateful that the symptoms over my left arm and back comes and then goes for periods. At least I have " change " . If I have my dear next to me his body warmth directly contacting my skin seems to reduce the " freeze pain " I have regardless if it is in my rear, leg, back or face. Last night I gently buried my various parts on him and felt some relief. It isn't just heat because a heating pad doesn't feel the same. Anyone else have this response? And thank you for the good wishes through the highs and lows. Today is a new day. My dear friend, Gail, at 54 passed away in June. She battled cancer for many years. She was there for me in my horrible years with RSD. And I was there for her. I remember one year I was hobbling around taking care of her after one of her many extensive surgeries. It was the sick caring for the sick! What a picture we made. We were such a mess together. Bless her heart. I miss her very much. I find myself thinking of her in new ways every day. She has become my inspiration to make the most of " this " day, " this " moment. Even the last few days she carried the thought that she wasn't leaving yet. Then she was gone. And I know she'd gladly take my place to live just one more day where she could be with the people who meant the most to her. So I will do that for her and for me. I will make the most of every single day. It will be on my terms and in my own way with what I have to work with at the moment. I don't know if you checked your mail yet. I was late getting your mail because it is new for me to have a yahoo address. I forget that I even have it! It will become a habit after using it a few more times! Hope I didn't overload you with too long of a letter. With love and caring, Lyn " " <schloss76@y...> wrote: > Life is forever changing. So I'll work > on patience. WIth love, > Lyn > > Lyn, > I am sorry that you were feeling low and yes the only thing we can count on is that life is always changing . So we endure the bad and pray for the good. Patience is a hard one to work on especially when you are in a lot of pain So Lyn I hope you have a wonderful Sunday and watch out for all those goblins that'll be out tonight. > Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2004 Report Share Posted October 31, 2004 Hi Lyn, I have it in my hips but not buttocks. I have trouble with anyone touching the areas that hurt, especially my knees, I can't have the covers on my left knee because of the fall I took. My daughter wants me to talk to the doctor to see if I can go back to PT to help me with my balance, of course the fact that I have always been a klutz doesn't have anything to do with it. In fact the only one in the family that is worse than me is her husband. My father was a klutz too, it was a joke for awhile that we were taking turns, because he would get hurt then I would and so on and so on. Anyway I am glad that you have found some relief from your freezing pain and I am sure that doesn't mind either :-)) I hope you have a great Sunday, Lin -- Re: THANK S EVERYONE Hi Lin,I'll open by asking if you or anyone else has had a problem with RSD spreading to buttocks and backs of thighs. It is really becoming a problem and I have trouble sitting. Having trouble standing and having trouble sitting leaves only laying which has its own set of problems. I am grateful that the symptoms over my left arm and back comes and then goes for periods. At least I have "change". If I have my dear next to me his bodywarmth directly contacting my skin seems to reduce the "freeze pain"I have regardless if it is in my rear, leg, back or face. Last night I gently buried my various parts on him and felt some relief. It isn't just heat because a heating pad doesn't feel the same. Anyone else have this response? And thank you for the good wishes through the highs and lows. Today is a new day. My dear friend, Gail, at 54 passed away in June. She battled cancer for many years. She was there for me in my horrible years with RSD. And I was there for her. I remember one year I was hobbling around taking care of her after one of her many extensive surgeries. It was the sick caring for the sick! What a picture we made. We were such a mess together. Bless her heart. I miss her very much. I find myself thinking of her in new ways every day. She has become my inspiration to make the most of "this" day, "this" moment. Even the last few daysshe carried the thought that she wasn't leaving yet. Then she was gone. And I know she'd gladly take my place to live just one more day where she could be with the people who meant the most to her. So I will do that for her and for me. I will make the most of every single day. It will be on my terms and in my own way with what I have to work with at the moment.I don't know if you checked your mail yet. I was late gettingyour mail because it is new for me to have a yahoo address. I forget that I even have it! It will become a habit after using it a few more times! Hope I didn't overload you with too long of a letter. With love and caring, Lyn "" <schloss76@y...> wrote:> Life is forever changing. So I'll work > on patience. WIth love,> Lyn> > Lyn,> I am sorry that you were feeling low and yes the only thing we can count on is that life is always changing . So we endure the bad and pray for the good. Patience is a hard one to work on especially when you are in a lot of pain So Lyn I hope you have a wonderful Sunday and watch out for all those goblins that'll be outtonight.> Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2004 Report Share Posted October 31, 2004 patches13033@y...> wrote: > Lyn, yes if my husband is close to me it seems his body heat gives me more relief than a heating pad. Hello Pam, So you know what I am talking about! These many layers of pain are inseparable and hard to explain. This " freeze " pain as I call it that turns into a horrendous aching has been the most difficult to describe. Is there a technical name for it? If I had naturally warm hands I think I could help myself at times but I am blessed with " cold hands warm h----- " as the saying goes. They come in handy when someone has a headache! I just place my freezing cold hands on a forehead and presto Ice Packs! LOL Thank you, Pam for your kind words, they feel really good, With love, Lyn .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2004 Report Share Posted October 31, 2004 Lyn first wrote: If I have my dear next to me his body > warmth directly contacting my skin seems to reduce the " freeze pain " ... Lin wrote: I have trouble with anyone touching > the areas that hurt..... Hi Lin, Yes, that is the paradox for me. It hurts to be touched and it hurts to move my limbs yet if I can do it in a certain way it can help temporarily until some other body part starts screaming louder . Makes no sense to me whatsoever! It sure brings out the detective in me. Take care this evening! With love, Lyn Quote Link to comment Share on other sites More sharing options...
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