Re: Which types of EDS has the adhesive allergy and skin itching ...

[Guest guest]

Hi Caro,

I have similar sounding skin reactions to adhesives, even the

hypoallergenic types. I cause all kinds of mayhem for my doctors when

I need dressings. I also have a bad allergy to perfumes and certain

additives too. I'm not sure whether it's linked to any particular

type of EDS or a condition wide complaint though. I've heard a lot of

people mention allergies across several types. I personally have a

variant EDS mutation with Marfanoid factors.

I'm sorry to hear Bill is having so much trouble with this and hope

they can get to the bottom of it soon. Take care and know I'm

thinking of you. :-)

Love and hugs...Jo

xxx

P.S. Thanks for the email re blood pressure - I'll reply properly

tomorrow as it after 2am here now!

[Guest guest]

I too am allergic to all tape adhesives etc and get the itching

reactions to meds and things as well. Taking a bath with 1 cup of

rolled ats added (put the oats in the end of a pair of panyhose so

the bath isn't goopy) and try to have it lukewarm to cool and wash

your body with the little baggy using the white goo that comes out of

it.

This helps the itching as do cold compresses (not ice so much but

that helps too).

Sharon

> Hi all,

>

> My husband Bill, still in the hospital is still having grief over

his skin

> reactions to adhesives on his skin. [DURAGESIC is one too.] An

ordinary piece of

> tape leaves its outline on his skin.

>

> His other problem is that the various medications especially pain

medications

> is making him itch terribly. He tries to treat his itching by

swabbing with

> isopropyl alcohol.

>

> QUESTION: Is it any particular type of EDS that has this type of

skin

> reaction?

>

> Caro

>

>

>

[Guest guest]

In a message dated 2/12/04 8:57:29 PM Eastern Standard Time,

CDillardda@... writes:

<< An ordinary piece of

tape leaves its outline on his skin. >>

This happens to me too....although I do have Latex allergy too!

The isopropyl alcohol will really dry out his skin and make it

worse.......can they try soemthing like Benedrl cream? You would need to ask

the doctor,

of course, but there are a lot of things that would be better for his skin than

alcohol.

Hugs,

Sue

[Guest guest]

In a message dated 2/13/04 6:18:15 AM Eastern Standard Time,

aase.m@... writes:

<< They

gave me a huuuuuuge roll which I have had for 4 years)... >>

Is it Hypofix? That is the best tape i know of. It sticks real good,

doesn't pull when it comes off......it is special for sensitive skin/allergies.

Hugs,

Sue

[Guest guest]

Hi again,

Forgot one important thing... There is a type of band-aid which I

always make sure to get. He could ask for this one at the hospital

instead of the dreadful tape they always use.... I often bring it

with me to make sure I get it, but my own doc always have it in store

for me...

I just can't remember what it is called now.... I looked, but could

not find a box with the name on... I do know though that 3M makes it

as well as the Norwegian Norgesplaster. I know they do export it to

the US (I asked them once, the factory is here where I live. They

gave me a huuuuuuge roll which I have had for 4 years)...

I will try to explain what I mean. It is made of a non-woven,

perforated fabric which is very soft with an almost velvet feel to it

when you touch it. The perforation is small holes all over it, makes

it very stretchy, so it is so easy to put on on joints etc. without

it bothering you at all. It is really neat stuff.

What makes this so perfect for me, is that first of all it is so

soft. I have no idea why, but I do not react allergic to the glue on

this one either. It also won't make the grazes when I take it off,

which is great. What it does instead, is to leave a lot of glue on

the skin. That is not a problem though, that can be removed. I

normally use a plaster glue remover, but I have also removed it with

vegetable oil when I didn't have anything else...

When I have gone to a pharmacy to ask for this stuff, not knowing the

name, I have explained like above and they have found it for me...

Hopefully it will work for you too...

Aase Marit

[Guest guest]

Hi Caro --

I have VEDS and when I was in the hospital, they had to put an IV in my neck

(ugh!!). After a couple of days the tape they used to hold it in place left a

small hole in my neck which, of course, bled. They had to remove the IV. All

tape affects my skin - when I have an EKG I have itchy red spots on my chest and

legs where they put the leads. I have tried paper tape - I still get a reaction

to that but not as severe.

Bandaids can really reek havok (sp??).

Patti

Which types of EDS has the adhesive allergy and skin itching

....

Hi all,

My husband Bill, still in the hospital is still having grief over his skin

reactions to adhesives on his skin. [DURAGESIC is one too.] An ordinary piece

of

tape leaves its outline on his skin.

Caro

[Guest guest]

Would Fixomull (http://www.safetyday.com.au/wound_care/tapes.asp?

menuid=4 scroll down to Fixomull Stretch) be what you are thinking of

(I am allergic to this too, I just get like an extra 1/2-1 hr out of

it than I do with the others).

Sharon

> Hi again,

>

> Forgot one important thing... There is a type of band-aid which I

> always make sure to get. He could ask for this one at the hospital

> instead of the dreadful tape they always use.... I often bring it

> with me to make sure I get it, but my own doc always have it in

store

> for me...

>

> I just can't remember what it is called now.... I looked, but could

> not find a box with the name on... I do know though that 3M makes

it

> as well as the Norwegian Norgesplaster. I know they do export it to

> the US (I asked them once, the factory is here where I live. They

> gave me a huuuuuuge roll which I have had for 4 years)...

>

> I will try to explain what I mean. It is made of a non-woven,

> perforated fabric which is very soft with an almost velvet feel to

it

> when you touch it. The perforation is small holes all over it,

makes

> it very stretchy, so it is so easy to put on on joints etc. without

> it bothering you at all. It is really neat stuff.

>

> What makes this so perfect for me, is that first of all it is so

> soft. I have no idea why, but I do not react allergic to the glue

on

> this one either. It also won't make the grazes when I take it off,

> which is great. What it does instead, is to leave a lot of glue on

> the skin. That is not a problem though, that can be removed. I

> normally use a plaster glue remover, but I have also removed it

with

> vegetable oil when I didn't have anything else...

>

> When I have gone to a pharmacy to ask for this stuff, not knowing

the

> name, I have explained like above and they have found it for me...

> Hopefully it will work for you too...

>

>

> Aase Marit

[Guest guest]

Hi,

I could not get that link to work, but found another at

http://www.medisave.co.uk/product_info.php/products_id/1210

That looks a lot more like it, I think that can be the right one. But

I have not used this one from 3M much, the one I have been using, is

made by Norgesplaster (http:www.norgesplaster.com). I did know that

they had been bought by a larger company a while ago, but didn't

realize until now that they were bought by a US company. Or I think

more correct would be that the company that bought them had also been

bought by a US company... I read at

http://www.devicelink.com/emdm/archive/02/11/produp7.html on my way

looking now that their products are also used in allergy testing and

such, so maybe their adhesive is a better one? Maybe at least for

some, this is so individual... I have always liked their products,

maybe also because my dad used to work there when I was a kid, so I

really grew up with their things. I remember that using adhesives

that allergic people could use, was a lot in focus back then, sure

must have been since I remember it so well. I was just a kid...

I was wondering if it could be Ultrafix. I see that this tape is

manufactured by Dumex. I know that Dumex, like Norgesplaster, also

was bought by Alpharma. So maybe it is really made by Norgesplaster?

You never know. At this picture it looks as if it might be the same

thing:

http://www.dumex.com/wcd/disc2/pages/ultrafix.htm

I saw one place that they recommended that you put this bandaid on

first before applying a sports tape, that could actually be a good

use for it for many with EDS....

Info about taping at http://www.aptei.com/library/viewReport.jsp?report=132

Wasn't easy to search for Ultrafix, because a band has that name. Not

a bandAGE or a bandAID, but more like a jazz or rock band, he-he....

Anyway... I did e-mail Norgesplaster to get the name. Have contacted

them a couple of times before with the same question, I think... I

keep forgetting...

Take care!

Aase Marit

>Would Fixomull (http://www.safetyday.com.au/wound_care/tapes.asp?

>menuid=4 scroll down to Fixomull Stretch) be what you are thinking of

>(I am allergic to this too, I just get like an extra 1/2-1 hr out of

>it than I do with the others).

>Sharon

>

>

>

>

>> Hi again,

>>

>> Forgot one important thing... There is a type of band-aid which I

>> always make sure to get. He could ask for this one at the hospital

>> instead of the dreadful tape they always use.... I often bring it

>> with me to make sure I get it, but my own doc always have it in

>store

>> for me...

>>

>> I just can't remember what it is called now.... I looked, but could

>> not find a box with the name on... I do know though that 3M makes

>it

>> as well as the Norwegian Norgesplaster. I know they do export it to

>> the US (I asked them once, the factory is here where I live. They

>> gave me a huuuuuuge roll which I have had for 4 years)...

>>

>> I will try to explain what I mean. It is made of a non-woven,

>> perforated fabric which is very soft with an almost velvet feel to

>it

>> when you touch it. The perforation is small holes all over it,

>makes

>> it very stretchy, so it is so easy to put on on joints etc. without

>> it bothering you at all. It is really neat stuff.

>>

>> What makes this so perfect for me, is that first of all it is so

>> soft. I have no idea why, but I do not react allergic to the glue

>on

>> this one either. It also won't make the grazes when I take it off,

>> which is great. What it does instead, is to leave a lot of glue on

>> the skin. That is not a problem though, that can be removed. I

>> normally use a plaster glue remover, but I have also removed it

>with

>> vegetable oil when I didn't have anything else...

>>

>> When I have gone to a pharmacy to ask for this stuff, not knowing

>the

>> name, I have explained like above and they have found it for me...

>> Hopefully it will work for you too...

> >

>>

>> Aase Marit

>

>

>

>To learn more about EDS, visit our website: http://www.ceda.ca

>

>