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Hi to those of you who've been so supportive in n's progress -

We had his follow up today at CIRS with Bobby because Trish was out

sick. It's been a long haul of repo and agonizing over this

decision, but we decided to go for the band because it showed today

that his plagio got worse - from 3-4mm which was negligible to me to

5-6mm in a month and a half so even with ALL THE REPO EFFORT for

that to have happened, I was heartbroken and I was concerned it

would keep on getting worse still. Good news, his brachy numbers

improved, so the side sleeping has really held in the sides - he

went from 89-92 based on level of scan to 88-86 based on level of

scan. Bobby said he'd want to correct the bit of plagio first

before addressing the brachy, whcih I have heard here before, but

which is very frustrating to me, because we're making such brachy

progress with repo (altho possibly at the expense of the symmetry) -

he as usual would not commit on timeline, but I am hoping evening

out 6mm of plagio to like a 2-3mm range will happen fast, and we

will still have time to get a few more % down on the brachy. In my

perfect world, he'd be 0-3mm and 83% CI, but we'll see. He

commented that one baby he is following has been in the band 5

months will very little growth (6-11 months) which freaked me out.

I am hoping this will not be my son. In my head, I've allotted 3

months for this all to take place -that is all I can stand to think

of right now.

We ordered the plain white band because my husband is an architect

and very creative, and we will make it our own. The new solid blue

was too purply for us, and the patterns I decided I might get sick

of.

I'm pretty apprehensive right now about how n will adapt in

general - he is so fussy already. And he's been sleeping worse and

worse already (maybe teething?) - I guess this is normal - I just

feel kind of sad about all that repo effort and still being here

altho I know it would have been much much worse without the repo.

Anyway that sums it up I guess. Just wanted to send out one update.

PS: Molly I saw your Xmas card at CIRS with all 3 boys and hubby -

how cute!!!!

- mom to n, 5.5 months, repoed since 2 months,

Starbaning fit 1-12-07

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