Re: Myomectomies and Fertility

November 14, 2003

Hi, Ketty, I was at Monterey also -- it's great to hear from you.

And what great news! I'm so glad you had the fibroids taken care of -

- and so very happy for you and your husband!

I think you make a great point that we need to restate every so

often, which is that quite often we get so used to feeling

rotten/having our social lives cut short/living close to the bathroom

due to our fibroids, that we actually forget what a " normal " life

feels like. I remember , I believe it was, making that point

to the doctors -- that asking us how we feel and just accepting

our " ok " without probing further does not necessarily give them the

truth of what we're living with. Because it's grown on us so slowly,

we've gotten used to accepting a degree of discomfort that someone

else would know is most certainly not " ok " if it were dropped on them

suddenly.

All the best, and please let us know how your pregnancy progresses.

Leonie

Ketty wrote:

> Hello Ladies,

>

> I was a member of the group that met in Monterey CA for the NUFF

> Opening Doors Convention this past January. While I was there, the

> ladies convinced me that the best thing to do was to remove my

> fibroids. I was kind of scared and so I was playing the watching

and

> waiting game. I felt like crap and there was a possibility that the

> fibroids were interfering with my fertility (we had been trying for

> almost 2 years).

November 14, 2003

OH KETTY -- I AM SOOOOOOO HAPPY FOR YOU !! I just knew it was going

to happen. --- and IT DID, IT DID, IT DID.

I'm elated -- really - I am.

Don't forget: You told us we could be -- The Godmothers of

Monterey !!

Big Hugs & Much Love,

And now I have to run off and start KNITTING !!!

Pat

> Hello Ladies,

>

>>

> Well, looks like I won't be needing IVF after all. Yesterday, my

> doctor just confirmed that I was pregnant. My husband still

doesn't

> believe it, so he is still keeping it from his parents. He told

me he

> might believe it when my stomach starts to grow.

>

> KettyI

November 14, 2003

Good Luck Ketty and God Bless

--- Ketty wrote:

> Fertility. I guess there really is hope for us

> victims of fibroids. If there is anyone who is trying to get pregnant

> after fibroids, post a message. I have learned so much in my quest. If

> I can help I will.

November 14, 2003

Hi,

I want to let you's know that I am 2 yrs post-myo and have been

trying for year and half and still know luck. I am starting to get

disappointed.

> > Fertility. I guess there really is hope for us

> > victims of fibroids. If there is anyone who is trying to get

pregnant

> > after fibroids, post a message. I have learned so much in my

quest. If

> > I can help I will.

November 14, 2003

Hi ,

I have a ton of questions for you. How old are you? What kind of

fibroids did you have? Where were they located? You said you had a

myo. What kind of doctor did your surgery? What kind of tests did

your doctor do for you before and after? What were the results? Have

you seen a fertility specialist? If so, what did they say?

As you probably know, there are a ton of things that can affect

fertility besides fibroids. First thing is to make sure nothing else

is wrong before we assume fibroids is the issue. So if you haven't

seen a fertility expert, do it. It's expensive and many HMOs do not

cover it but you might be twiddling your thumbs thinking your myo

screwed you, when in reality it's something totally different. One of

my girlfriends found out her immune system was killing off her

husbands sperm upon contact. IVF was the only way for her to go.

Personally, I think the accomplishment of getting pregnant with

fertility problems is 50% money. Be prepared to pay if you want

results. I still have a huge credit card bill, and I started seeing

my fertility guy the end of last year, and I didn't even have IVF.

Give me some more info and I think I can help you.

> I want to let you's know that I am 2 yrs post-myo and have been

> trying for year and half and still know luck.

November 16, 2003

Hi Natnice,

I don't mean to alarm you, but the HSG test was pretty bad. They told

me to take a couple of aspirin an hour before the test. Personally I

think they should have given me a local. I took the aspirin. It

didn't help at all. This is what I found out. They place this

instrument inside you you to widen the cervix. Then they place a tube

which expels the fluid into you. Some doctors (mine) then use a clamp

to clamp down the opening of the cervix. I think this is to create

more pressure and to stop the fluid from going back out. The clamp

hurts like the dickens and the pressure from the fluid is pretty bad.

They ask you to turn from side to side on the table and take a

couple of pics. When they're done, you feel like you just ran a

marathon. This was my experience.

I have spoken with 2 other women who had this done and 1 doctor who

does these regularly. One of the women had an experience just like

mine, the other said she hardly had any pain at all, she was just

disoriented after the ordeal. The doctor told me that he doesn't

clamp most of the patients he gets. He only uses the clamp if he has

problems getting good pics.

Conclusion: everyone has a unique experience.

> By the way did the HSG test hurt? I'm kinda nervous about that..and

do you get the results right away??

November 16, 2003

Thx Ketty for the report..I dread paim and dont to go thru that, but if i have

to i will..So do you get the results right away?

How were your findings?

Ketty wrote:

>I don't mean to alarm you, but the HSG test was pretty bad. They told

>me to take a couple of aspirin an hour before the test. Personally I

>think they should have given me a local

November 16, 2003

You are supposed to schedule a meeting with your doctor afterwards to

go over the results. In my case, the doctor who did the test was not

my doctor. If you ask questions, they usually give you answers. They

are not supposed to, but both times I had the procedure done, they

answered my questions. The HSG I did pre-myo showed a distorted

uterine cavity due to fibroids. The center of the cavity was very

very small. The HSG I did post-myo showed a normal sized cavity but

it also showed that one of my tubes might be blocked. The fluid they

used could not go up one tube, so they told me that one tube might be

blocked. My doctor later told me that sometimes even though the fluid

does not go into the tube, it might still be open. I think he meant

that there may be more than one reason why the fluid might not flow

into the tube.

Another radiologist I spoke to told me that when he does an HSG and

the fluid doesn't go into a tube, he injects the patient with

something (maybe a drug or hormone - I don't remember) and this stuff

helps to somehow clear the tube provided there is no major problem

with the persons tubes.

My doctor told me that the reason he has this test done post-myo is to

see the state of the uterine cavity. He wanted to make sure the

uterus is no longer distorted due to fibroids. He wanted to make sure

he got all of them out.

Hope this helps!

Ketty

> >I don't mean to alarm you, but the HSG test was pretty bad. They told

> >me to take a couple of aspirin an hour before the test. Personally I

> >think they should have given me a local

November 16, 2003