Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 My daughter currently has siemens prisma aids-digital programmable. She got them 2 1/2 years ago. Lately her stress levels have increased and she has been expressing a lot of frustration. I feel like we have investigated many avenues...met with her HI consultant at school who told me she's an 8 year old girl and girls have girl issues, met with her teachers and principal who say she is happy, doing well and has not had any issues with friends, I took her to meet for audiology and her loss has not changed. I am feeling lost and frustrated. I am wondering if her frustration is just part of her age or if I am missing something. Is it normal for HOH kids to become frustrated with their loss...she was diagnosed at 13 mos? I am now thinking we should consider new aids. Our audiologist discouraged us from new aids. She felt our daughter would not gain from the newest digital. After reading and comparing all the new options out there I am wondering what anyone else has experienced. Do the new Siemens, Phonak or any others offer kids more? Will the improved technologies help ease her frustration? Does anyone have experience moving to the new digitals? Can anyone recommend any? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Hi and thanks. You are exactly right---academic stakes are much higher and she is a very curious kid. Where do you get word recognition tests? I am really interested in exploring this. I was confident Kaley's loss increased as she is saying what non-stop. I was shocked when the audiogram was the same. Maybe this is part of the issue and Kaley needs more assistance to ensure she understands. > She tests between 40-45 db, the same in both ears. I wish I knew > what her frustrations stem from. She is a happy kid. She loves her > aids, panics when she takes them out if she can't see them > instantly. She definitely has some social struggles. She seems to > overreact if she misses, or thinks she misses anything. Lately her > frustrations escalate. After she melts down she says she feels > terrible and is so sad. I thought for sure her loss had increased > but her tests came back the same. I am thinking I should take her > for another eval to someone new and consider new aids. > > > How did your boys deal with missing the social stuff? > --- end of quote --- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 --- You wrote: Hi and thanks. You are exactly right---academic stakes are much higher and she is a very curious kid. Where do you get word recognition tests? I am really interested in exploring this. I was confident Kaley's loss increased as she is saying what non-stop. I was shocked when the audiogram was the same. Maybe this is part of the issue and Kaley needs more assistance to ensure she understands. --- end of quote --- Our audiologist does word recognition tests when she's testing our boys - so not only do they test in the booth with beeps and such, they also are given a list of words. Ask your audiologist (or your NEW audiologist - he he he) about it. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Hi Amy - keep us posted? And yes, I came to that realization at some point with my boys - that overall we're the ones who know more than anyone about our kids in particular and hearing loss in general. We're fortunately now in a good situation with both boys - academically and audiologically - but been there! We changed audiologists maybe 5-6 years ago and I'm really glad we did. Good luck! Hugs, Barbara --- You wrote: I am going to do just that. Thank you so much. It is unreal how much asking, demanding and fighting we have to do just to give our daughter the opportunity to learn and be her best. I really appreciate your info. Cannot wait for audiology offices to open. Have a great day! Amy Barbara.T.Mellert@... wrote: --- You wrote: Hi and thanks. You are exactly right---academic stakes are much higher and she is a very curious kid. Where do you get word recognition tests? I am really interested in exploring this. I was confident Kaley's loss increased as she is saying what non-stop. I was shocked when the audiogram was the same. Maybe this is part of the issue and Kaley needs more assistance to ensure she understands. --- end of quote --- Our audiologist does word recognition tests when she's testing our boys - so not only do they test in the booth with beeps and such, they also are given a list of words. Ask your audiologist (or your NEW audiologist - he he he) about it. --- end of quote --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 I am going to do just that. Thank you so much. It is unreal how much asking, demanding and fighting we have to do just to give our daughter the opportunity to learn and be her best. I really appreciate your info. Cannot wait for audiology offices to open. Have a great day! Amy Barbara.T.Mellert@... wrote: --- You wrote: Hi and thanks. You are exactly right---academic stakes are much higher and she is a very curious kid. Where do you get word recognition tests? I am really interested in exploring this. I was confident Kaley's loss increased as she is saying what non-stop. I was shocked when the audiogram was the same. Maybe this is part of the issue and Kaley needs more assistance to ensure she understands. --- end of quote --- Our audiologist does word recognition tests when she's testing our boys - so not only do they test in the booth with beeps and such, they also are given a list of words. Ask your audiologist (or your NEW audiologist - he he he) about it. Barbara All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 I don't have experience with newer digital aids, but I am in a very similar situation. My daughter, almost 9, also has Siemens Prisma/Prisma P aids, and has had them for a similar length of time. She regularly expresses stress and frustration, but for her there are some good reasons due to family events. She does specifically express frustration with having hearing loss at times, and I really empathize with her there. I also attribute it partly to her personality - very meticulous, follows rules, does her homework as soon as she gets home without prompting, makes lists and more lists of her friends, who's going to her birthday party, what toys she wants to save up for, etc. So when she can't solve a homework or other problem, or things don't go the way she wants, she's not in control and it doesn't make sense. She is also very tired by the end of the day, due at least in part to the added stress of living with hearing loss, and this may affect her emotions. And she is getting into the age that's one teacher referred to as " mini adolescence " . Jeepers, I thought I'd have a few more years before that! So all in all I'd say that while hearing loss probably adds stress and frustration to any child's (or adult's) life, for Hannah I don't have the feeling that different aids would change that. Good luck, --- kayday7 wrote: > My daughter currently has siemens prisma aids-digital programmable. > She got them 2 1/2 years ago. Lately her stress levels have > increased and she has been expressing a lot of frustration. I feel > like we have investigated many avenues...met with her HI consultant > at school who told me she's an 8 year old girl and girls have girl > issues, met with her teachers and principal who say she is happy, > doing well and has not had any issues with friends, I took her to > meet for audiology and her loss has not changed. I am feeling lost > and frustrated. > > I am wondering if her frustration is just part of her age or if I am > missing something. Is it normal for HOH kids to become frustrated > with their loss...she was diagnosed at 13 mos? > > I am now thinking we should consider new aids. Our audiologist > discouraged us from new aids. She felt our daughter would not gain > from the newest digital. After reading and comparing all the new > options out there I am wondering what anyone else has experienced. > Do the new Siemens, Phonak or any others offer kids more? Will the > improved technologies help ease her frustration? > > Does anyone have experience moving to the new digitals? Can anyone > recommend any? > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 , Thanks so much for sharing. I am thrilled to hear about your daughter. She sounds identical to mine. Kaley is extremely organized, takes care of herself, her room, her homework....everything without being asked. She has to be in control of everything. This is the balance that she struggles with. When things do not go her way....her frustration escalates. She has never expressed any of this at school but by the time she gets home she is exhausted. I have read so many great stories on the newer digitals so thought it's worth exploring...just wish insurance would cover them. Thanks again. Amy Pyle wrote: I don't have experience with newer digital aids, but I am in a very similar situation. My daughter, almost 9, also has Siemens Prisma/Prisma P aids, and has had them for a similar length of time. She regularly expresses stress and frustration, but for her there are some good reasons due to family events. She does specifically express frustration with having hearing loss at times, and I really empathize with her there. I also attribute it partly to her personality - very meticulous, follows rules, does her homework as soon as she gets home without prompting, makes lists and more lists of her friends, who's going to her birthday party, what toys she wants to save up for, etc. So when she can't solve a homework or other problem, or things don't go the way she wants, she's not in control and it doesn't make sense. She is also very tired by the end of the day, due at least in part to the added stress of living with hearing loss, and this may affect her emotions. And she is getting into the age that's one teacher referred to as " mini adolescence " . Jeepers, I thought I'd have a few more years before that! So all in all I'd say that while hearing loss probably adds stress and frustration to any child's (or adult's) life, for Hannah I don't have the feeling that different aids would change that. Good luck, --- kayday7 wrote: > My daughter currently has siemens prisma aids-digital programmable. > She got them 2 1/2 years ago. Lately her stress levels have > increased and she has been expressing a lot of frustration. I feel > like we have investigated many avenues...met with her HI consultant > at school who told me she's an 8 year old girl and girls have girl > issues, met with her teachers and principal who say she is happy, > doing well and has not had any issues with friends, I took her to > meet for audiology and her loss has not changed. I am feeling lost > and frustrated. > > I am wondering if her frustration is just part of her age or if I am > missing something. Is it normal for HOH kids to become frustrated > with their loss...she was diagnosed at 13 mos? > > I am now thinking we should consider new aids. Our audiologist > discouraged us from new aids. She felt our daughter would not gain > from the newest digital. After reading and comparing all the new > options out there I am wondering what anyone else has experienced. > Do the new Siemens, Phonak or any others offer kids more? Will the > improved technologies help ease her frustration? > > Does anyone have experience moving to the new digitals? Can anyone > recommend any? > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 , Thanks so much for sharing. I am thrilled to hear about your daughter. She sounds identical to mine. Kaley is extremely organized, takes care of herself, her room, her homework....everything without being asked. She has to be in control of everything. This is the balance that she struggles with. When things do not go her way....her frustration escalates. She has never expressed any of this at school but by the time she gets home she is exhausted. I have read so many great stories on the newer digitals so thought it's worth exploring...just wish insurance would cover them. Thanks again. Amy Pyle wrote: I don't have experience with newer digital aids, but I am in a very similar situation. My daughter, almost 9, also has Siemens Prisma/Prisma P aids, and has had them for a similar length of time. She regularly expresses stress and frustration, but for her there are some good reasons due to family events. She does specifically express frustration with having hearing loss at times, and I really empathize with her there. I also attribute it partly to her personality - very meticulous, follows rules, does her homework as soon as she gets home without prompting, makes lists and more lists of her friends, who's going to her birthday party, what toys she wants to save up for, etc. So when she can't solve a homework or other problem, or things don't go the way she wants, she's not in control and it doesn't make sense. She is also very tired by the end of the day, due at least in part to the added stress of living with hearing loss, and this may affect her emotions. And she is getting into the age that's one teacher referred to as " mini adolescence " . Jeepers, I thought I'd have a few more years before that! So all in all I'd say that while hearing loss probably adds stress and frustration to any child's (or adult's) life, for Hannah I don't have the feeling that different aids would change that. Good luck, --- kayday7 wrote: > My daughter currently has siemens prisma aids-digital programmable. > She got them 2 1/2 years ago. Lately her stress levels have > increased and she has been expressing a lot of frustration. I feel > like we have investigated many avenues...met with her HI consultant > at school who told me she's an 8 year old girl and girls have girl > issues, met with her teachers and principal who say she is happy, > doing well and has not had any issues with friends, I took her to > meet for audiology and her loss has not changed. I am feeling lost > and frustrated. > > I am wondering if her frustration is just part of her age or if I am > missing something. Is it normal for HOH kids to become frustrated > with their loss...she was diagnosed at 13 mos? > > I am now thinking we should consider new aids. Our audiologist > discouraged us from new aids. She felt our daughter would not gain > from the newest digital. After reading and comparing all the new > options out there I am wondering what anyone else has experienced. > Do the new Siemens, Phonak or any others offer kids more? Will the > improved technologies help ease her frustration? > > Does anyone have experience moving to the new digitals? Can anyone > recommend any? > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 " I am thinking I should take her for another eval to someone new and consider new aids. " Trust your gut--Do it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 In a message dated 1/31/2006 8:48:04 P.M. Central Standard Time, agooch@... writes: She definitely has some social struggles. She seems to overreact if she misses, or thinks she misses anything. Lately her frustrations escalate. After she melts down she says she feels terrible and is so sad. I thought for sure her loss had increased but her tests came back the same. I am thinking I should take her for another eval to someone new and consider new aids. I am wayyy behind on emails but I wanted to respond to this. At 8 years of age, kids are starting to be exposed to more complex language and it becomes a bit harder to " fill in the gaps " when you miss out on pieces of what is being said. This becomes especially hard when new vocabulary or new concepts are used. Also, I do remember that when my daughter was 8, there were some social issues as well because the girls she hung out with would frequently have meltdowns over who was playing with who or who was sitting next to who! Putz Illinois Families for Hands & Voices _www.handsandvoices.org_ (http://www.handsandvoices.org/) _www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/) Email: support@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 In a message dated 1/31/2006 8:48:04 P.M. Central Standard Time, agooch@... writes: She definitely has some social struggles. She seems to overreact if she misses, or thinks she misses anything. Lately her frustrations escalate. After she melts down she says she feels terrible and is so sad. I thought for sure her loss had increased but her tests came back the same. I am thinking I should take her for another eval to someone new and consider new aids. I am wayyy behind on emails but I wanted to respond to this. At 8 years of age, kids are starting to be exposed to more complex language and it becomes a bit harder to " fill in the gaps " when you miss out on pieces of what is being said. This becomes especially hard when new vocabulary or new concepts are used. Also, I do remember that when my daughter was 8, there were some social issues as well because the girls she hung out with would frequently have meltdowns over who was playing with who or who was sitting next to who! Putz Illinois Families for Hands & Voices _www.handsandvoices.org_ (http://www.handsandvoices.org/) _www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/) Email: support@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 In a message dated 2/6/2006 11:25:47 A.M. Eastern Standard Time, Parentsofdeafhoh@... writes: Also, I do remember that when my daughter was 8, there were some social issues as well because the girls she hung out with would frequently have meltdowns over who was playing with who or who was sitting next to who! Or who wore the same pants/shirt/hair scrunchie. That is the age when my daughter started melting down and she hears just fine. We had tears one minute and giggles the next. The friends cycled in and out of favor. Some girls started getting some serious crushes on boys, others (like my daughter) thought of the boys as their brothers or as stupid and annoying. So, would play kick ball with them, and the crushing girls would get mad at her because she talked to " their boyfriends. " It was a bizarre time. The high drama continued from 2nd grade through 5th, and seems to be calming down this year -- 6th grade. Which is kind of funny since many of my friends said their daughters had more high drama in middle school. Maybe my daughter and her friends have already weathered the girl storms and are now more inured to the drama. Who knows. has had a run-in this year with what she calls the " lip-gloss posse " and took it all in stride, even found some of it comical. Especially since their queen bee comes to my 's shoulder and try as she might to look intimidating, all had to do was stand up and stare down at her and she went away. Certainly some of this may be D/HOH related, and the peer-to-peer the interacting is very hard. Our Ian had a terrible time at the lunch tables trying to follow conversation and I know he felt the isolation at that age more acutely than he did in later grades. But a lot of this may also be age appropriate angst. I just mentioned this is another post, but I'll mention it again, this is about the age when I looked for help for our son. It is very hard for our kids to deal with it all and sometimes a little counseling can be a big help. It was for us. Best -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 Thanks so much. It is a relief just to hear others have gone through the same things. I keep wrestling with normal stuff or being hyper sensitive to is it HOH related. Either way my daughter has to cope, adjust and learn to function in the hearing world so she can be happy. I keep looking for ways to help her work through the emotions. It seems to be a hard age-fitting in and being ok with being different. Amy JillcWood@... wrote: In a message dated 2/6/2006 11:25:47 A.M. Eastern Standard Time, Parentsofdeafhoh@... writes: Also, I do remember that when my daughter was 8, there were some social issues as well because the girls she hung out with would frequently have meltdowns over who was playing with who or who was sitting next to who! Or who wore the same pants/shirt/hair scrunchie. That is the age when my daughter started melting down and she hears just fine. We had tears one minute and giggles the next. The friends cycled in and out of favor. Some girls started getting some serious crushes on boys, others (like my daughter) thought of the boys as their brothers or as stupid and annoying. So, would play kick ball with them, and the crushing girls would get mad at her because she talked to " their boyfriends. " It was a bizarre time. The high drama continued from 2nd grade through 5th, and seems to be calming down this year -- 6th grade. Which is kind of funny since many of my friends said their daughters had more high drama in middle school. Maybe my daughter and her friends have already weathered the girl storms and are now more inured to the drama. Who knows. has had a run-in this year with what she calls the " lip-gloss posse " and took it all in stride, even found some of it comical. Especially since their queen bee comes to my 's shoulder and try as she might to look intimidating, all had to do was stand up and stare down at her and she went away. Certainly some of this may be D/HOH related, and the peer-to-peer the interacting is very hard. Our Ian had a terrible time at the lunch tables trying to follow conversation and I know he felt the isolation at that age more acutely than he did in later grades. But a lot of this may also be age appropriate angst. I just mentioned this is another post, but I'll mention it again, this is about the age when I looked for help for our son. It is very hard for our kids to deal with it all and sometimes a little counseling can be a big help. It was for us. Best -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 Thanks so much. It is a relief just to hear others have gone through the same things. I keep wrestling with normal stuff or being hyper sensitive to is it HOH related. Either way my daughter has to cope, adjust and learn to function in the hearing world so she can be happy. I keep looking for ways to help her work through the emotions. It seems to be a hard age-fitting in and being ok with being different. Amy JillcWood@... wrote: In a message dated 2/6/2006 11:25:47 A.M. Eastern Standard Time, Parentsofdeafhoh@... writes: Also, I do remember that when my daughter was 8, there were some social issues as well because the girls she hung out with would frequently have meltdowns over who was playing with who or who was sitting next to who! Or who wore the same pants/shirt/hair scrunchie. That is the age when my daughter started melting down and she hears just fine. We had tears one minute and giggles the next. The friends cycled in and out of favor. Some girls started getting some serious crushes on boys, others (like my daughter) thought of the boys as their brothers or as stupid and annoying. So, would play kick ball with them, and the crushing girls would get mad at her because she talked to " their boyfriends. " It was a bizarre time. The high drama continued from 2nd grade through 5th, and seems to be calming down this year -- 6th grade. Which is kind of funny since many of my friends said their daughters had more high drama in middle school. Maybe my daughter and her friends have already weathered the girl storms and are now more inured to the drama. Who knows. has had a run-in this year with what she calls the " lip-gloss posse " and took it all in stride, even found some of it comical. Especially since their queen bee comes to my 's shoulder and try as she might to look intimidating, all had to do was stand up and stare down at her and she went away. Certainly some of this may be D/HOH related, and the peer-to-peer the interacting is very hard. Our Ian had a terrible time at the lunch tables trying to follow conversation and I know he felt the isolation at that age more acutely than he did in later grades. But a lot of this may also be age appropriate angst. I just mentioned this is another post, but I'll mention it again, this is about the age when I looked for help for our son. It is very hard for our kids to deal with it all and sometimes a little counseling can be a big help. It was for us. Best -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 In a message dated 2/6/2006 12:57:16 P.M. Central Standard Time, JillcWood@... writes: Certainly some of this may be D/HOH related, and the peer-to-peer the interacting is very hard. Our Ian had a terrible time at the lunch tables trying to follow conversation and I know he felt the isolation at that age more acutely than he did in later grades. But a lot of this may also be age appropriate angst. We are tackling this issue with my oldest son. is in 7th grade and while he is happy in his school overall, he tells me that lunch time is the pits. We have an IEP meeting tomorrow to discuss this with the school. Some of the options we are exploring is to have the itinerant put together some social activities for the kids in the district (78 mainstreamed kids and many have never met another deaf/hh kid in the district), lunch once a week or more with a few friends in a quiet place and we are also exploring the option of attending a cluster school. Putz Illinois Families for Hands & Voices _www.handsandvoices.org_ (http://www.handsandvoices.org/) _www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/) Email: support@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 In a message dated 2/6/2006 12:57:16 P.M. Central Standard Time, JillcWood@... writes: Certainly some of this may be D/HOH related, and the peer-to-peer the interacting is very hard. Our Ian had a terrible time at the lunch tables trying to follow conversation and I know he felt the isolation at that age more acutely than he did in later grades. But a lot of this may also be age appropriate angst. We are tackling this issue with my oldest son. is in 7th grade and while he is happy in his school overall, he tells me that lunch time is the pits. We have an IEP meeting tomorrow to discuss this with the school. Some of the options we are exploring is to have the itinerant put together some social activities for the kids in the district (78 mainstreamed kids and many have never met another deaf/hh kid in the district), lunch once a week or more with a few friends in a quiet place and we are also exploring the option of attending a cluster school. Putz Illinois Families for Hands & Voices _www.handsandvoices.org_ (http://www.handsandvoices.org/) _www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/) Email: support@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 In a message dated 2/6/2006 12:57:16 P.M. Central Standard Time, JillcWood@... writes: Certainly some of this may be D/HOH related, and the peer-to-peer the interacting is very hard. Our Ian had a terrible time at the lunch tables trying to follow conversation and I know he felt the isolation at that age more acutely than he did in later grades. But a lot of this may also be age appropriate angst. We are tackling this issue with my oldest son. is in 7th grade and while he is happy in his school overall, he tells me that lunch time is the pits. We have an IEP meeting tomorrow to discuss this with the school. Some of the options we are exploring is to have the itinerant put together some social activities for the kids in the district (78 mainstreamed kids and many have never met another deaf/hh kid in the district), lunch once a week or more with a few friends in a quiet place and we are also exploring the option of attending a cluster school. Putz Illinois Families for Hands & Voices _www.handsandvoices.org_ (http://www.handsandvoices.org/) _www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/) Email: support@... Quote Link to comment Share on other sites More sharing options...
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