OP in St. Louis???? Or anyone??

[Guest guest]

Where did you go to in St. Louis? We travel about 2.5 hours to go to Children's Hospital in St. Louis. We were very pleased with their promptness and caring--- to begin with. Our baby boy was diagnosed with plagiocephaly and facial nerve palsy. We were told that he may need a surgical procedure dealing with the nerves in his face and probably helmet therapy for the plagiocephaly. After an MRI, a C-T scan and thousands of dollars (and time) the doctors completely contradicted themselves and said that they don't do helmet therapy and he was fine (no palsy)-- but his head is flat, his left ear is sideways and in the back, his left side of his face does not move and his eyes are very different from each other. I'm sorry, but my baby does need treatment. I have no idea why they were so helpful and hopeful with his first visits and then completely changed with the last phone call we had. Any suggestions? ( is 6.5 months & we're running out of time!)

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