Re: Complainin'

[Guest guest]

Oh {{{{{{{{{{{{{{HUGZ}}}}}}}}}}}}}}}}}}}}

I wish there were something I could do for you!!!

I will get you and those little babies on as many prayers lists as I can

. We both know the power of prayer!

Try to hang on, rest lots and know you are loved and everyone is pulling for

you!!!

Love,

Jody

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[Guest guest]

Hi , I'm sorry you are having a hard time! You need to hang tough here

and put your feet up and breath and try to be calm.

And then print out some articles on pregnancy with gd for your endo. I have

some, I'll email them to you tomorrow.

Hugs! And hang in there...

:)Pam B.

[Guest guest]

,

Wish I could do something too. You shall be in my prayers.

We know you are in good hands, and I am sure past experience will help .

I just know these babies will do well.

-Pam L -

[Guest guest]

Hi ,

I wish I could do something to help you! I know you have the best medical

attention you can get both at home and outside it, but obviously it's not

enough to keep you from being miserable. But, I think (with absolutely no

reason but instinct) that those two babies are getting the best from you,

and what's happening is that your body is sacrificing itself for them. I

suspect you don't have to worry as much for them, as for yourself. I also

wonder if there's some more sensitive test that you can do to determine

whether you're hypo, than the normal ones. Since I don't know squat about

such things, it's just another idle thought I'm afraid. I'm just rambling,

I'm dead tired after the harvest festival today, and really ought to be in

bed rather than trying to think straight. But, I wanted you to know I'm

listening!

Hugs,

Terry

>

> Reply-To: graves_support

> Date: Sun, 22 Sep 2002 21:35:17 -0700

> To: graves_support >

> Subject: Complainin'

>

> Hi Everybody-

>

> Oh! I just hate everything about this stupid disease!!!!! I have ulcerative

> keratitis (from exophthalmus) again which didn't get as bad as it has before

> probably because I'm on steroids. On the other hand, my doctor wanted me to

> come in to the hospital last Monday because my blood pressure spiked at

> 180/115 (very bad for a pregnant lady). My husband (who is a physician)

> talked the OB/GYN out of it because he could watch me more closely than they

> can at the hospital. My BP is probably worse because of the steroids. So,

> I've got a catch-22 going on. If I stay on the steroids, I'll probably end up

> with preeclampsia but if I go off of them, I can have another immune reaction

> to the chorionic villi risking the pregnancy.

>

> To top it off, I'm sure I'm getting hypothyroid again. My hair is cracking

> off and falling out and I always have eye problems when I'm hypothyroid. My

> muscles are aching and my skin is trashed. Yet my FT3 and FT4 levels are

> mid-normal. They have dropped a little since I've gotten pregnant but not

> enough for my endo to increase my meds. This happened during my last

> pregnancy. Every single pregnant woman that's on thyroid hormone that I know

> needs her meds increased during pregnancy. Not me. AGAIN!!!! When I'm

> pregnant with twins?

>

> In the endo's defense, I'm already on a very high dose of T3 and T4. But I'm

> worried that the same thing's happening that happened with my 1st pregnancy.

> That time I wasn't on a high dose of thyroid hormone and the tests never

> showed I needed an increase. That's not normal.

>

> I just want these babies out of me as soon as they can be healthy outside.

> I'm so scared that this wretched body will betray them before they can be

> safely born.

>

> Take care,

>

>

>

>

>

[Guest guest]

Hi ,

I'm so sorry your going through so much.

I don't understand why there would be a problem in increasing hormone, to get

you into the upper part of the normal range.

My blood pressure did the horrid spikes when I the doctor said I was normal.

Shortly thereafter my TSH was definitely hypo.

Good luck,

Bertta

[Guest guest]

<<>> !

Praying for ya!

[Guest guest]

-

I really wish I had something productive to tell you, but I don't

have any experience with that

Least you've got hubby there to look after you! Can your doc drop the

steroid dose a little? Or will that affect the chorionic villi too much?

I know you're worried about not having to increase your thyroid meds yet,

but maybe your body knows what it's doing. I think it's actually kind of

amazing that you've managed to stay pretty much on an even keel even with

twins! I know that doesn't help you when you feel like cr*p, though. If it

makes you feel any better, I felt lousy for the whole 9 months and didn't

even have a thyroid problem then!

Best I can do is pray, pray, pray for you and those lovely little babies.

Take care of yourself - we're all here pulling for you! Don't be afraid to

complain all you want - it's a " luxury " of being pregnant!

Complainin'

> Hi Everybody-

>

> Oh! I just hate everything about this stupid disease!!!!! I have

ulcerative keratitis (from exophthalmus) again which didn't get as bad as it

has before probably because I'm on steroids. On the other hand, my doctor

wanted me to come in to the hospital last Monday because my blood pressure

spiked at 180/115 (very bad for a pregnant lady). My husband (who is a

physician) talked the OB/GYN out of it because he could watch me more

closely than they can at the hospital. My BP is probably worse because of

the steroids. So, I've got a catch-22 going on. If I stay on the steroids,

I'll probably end up with preeclampsia but if I go off of them, I can have

another immune reaction to the chorionic villi risking the pregnancy.

>

> To top it off, I'm sure I'm getting hypothyroid again. My hair is

cracking off and falling out and I always have eye problems when I'm

hypothyroid. My muscles are aching and my skin is trashed. Yet my FT3 and

FT4 levels are mid-normal. They have dropped a little since I've gotten

pregnant but not enough for my endo to increase my meds. This happened

during my last pregnancy. Every single pregnant woman that's on thyroid

hormone that I know needs her meds increased during pregnancy. Not me.

AGAIN!!!! When I'm pregnant with twins?

>

> In the endo's defense, I'm already on a very high dose of T3 and T4. But

I'm worried that the same thing's happening that happened with my 1st

pregnancy. That time I wasn't on a high dose of thyroid hormone and the

tests never showed I needed an increase. That's not normal.

>

> I just want these babies out of me as soon as they can be healthy outside.

I'm so scared that this wretched body will betray them before they can be

safely born.

>

> Take care,

>

>

>

>

>

[Guest guest]

Dear -

I'm so sorry to hear about the problems you're having. My prayers

have been with you for a long time now, as I know everyone else has

been praying for you and your family as well.

I'm sure your husband and the other doctors who are caring for you

will find the best answers for you. I do just have a couple of off-

the-cuff questions:

You say that your T4 and T3 are in a good range, but you have hypo

symptoms - including high blood pressure. Have you had your adrenals

checked? Adrenal exhaustion can cause symptoms that are similar to

hypothyroidism.

Also, perhaps the pregnancy, steroids, and other meds are throwing

off your nutritional balance. Is there any way you can get a

COMPLETE nutritional analysis? You might just find some answers

there.

I did read that steroids like prednisone can lower T3 levels

somehow. This info came up while searching " steroids, synthroid and

cytomel. " Apparently some bodybuilders take cytomel so they can eat

a lot and not gain weight - Funny how hypothyroid patients have to

get on their knees and beg for the stuff. Anyway, I wonder if your

thyroid tests might not be revealing the true status of your T3

(which is a short-lived thyroid hormone), and if the steroids are

somehow tamping down the T3, increasing the T3 slightly might be the

answer.

Is there some reason you are not on Armour?

You'll find the answers you need. You are a very strong-willed lady,

and you will conquer this!

Love,

C

[Guest guest]

--

Like the others, I too wish there were something I could do to help you. The

one thing I can do is send you love and prayers and hope that you, along with

your support group at home and with the doctors, will get through this, and

that your twins will be healthy too. What a struggle, a challenge. Thank

you for " complainin' " -- we all care immensely. You and yours are in my

thoughts. Hang in there, even when it seems the darkest.

Ann

[Guest guest]

Dear

Sorry to hear that you are having another problem. My prayers are with you

and your family.

I know there isn't much I can say with all you've been through, just know

that you are in my thoughts and prayers.

Hugs and Prayers, Debbie R.