Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Lin, I'm trying the neurontin again cuz if I recall the pain wasn't so bad. I'm desperate. My doc is not an RSD dr. just gen. I have a pain mgmt. dr. who really is only treating my scalp with injection every 6 months or so. He's a jerk. I'm going to request a different one. But mayo just doesn't want you to change dr. if you have seen one before. It's a pain to get dr.s changed. I feel like my docs. are running in circles some times. My reg dr. sends me to one for awhile and then to the other so we don't "burn out the two" as he says. Mayo clinic does not have RSD clinic or specialists. Closes is 50 miles away in Wis. I just feel so burned out with all of this. Hope this answers some questions. Do you think it's a good idea to keep trying the neurontin? LUV LAURIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Laurie, Some people take Neurontin without any problems, so if it helps then that is good. Lin -- Re: HOLA Lin, I'm trying the neurontin again cuz if I recall the pain wasn't so bad. I'm desperate. My doc is not an RSD dr. just gen. I have a pain mgmt. dr. who really is only treating my scalp with injection every 6 months or so. He's a jerk. I'm going to request a different one. But mayo just doesn't want you to change dr. if you have seen one before. It's a pain to get dr.s changed. I feel like my docs. are running in circles some times. My reg dr. sends me to one for awhile and then to the other so we don't "burn out the two" as he says. Mayo clinic does not have RSD clinic or specialists. Closes is 50 miles away in Wis. I just feel so burned out with all of this. Hope this answers some questions. Do you think it's a good idea to keep trying the neurontin? LUV LAURIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Laurie, Some people take Neurontin without any problems, so if it helps then that is good. Lin -- Re: HOLA Lin, I'm trying the neurontin again cuz if I recall the pain wasn't so bad. I'm desperate. My doc is not an RSD dr. just gen. I have a pain mgmt. dr. who really is only treating my scalp with injection every 6 months or so. He's a jerk. I'm going to request a different one. But mayo just doesn't want you to change dr. if you have seen one before. It's a pain to get dr.s changed. I feel like my docs. are running in circles some times. My reg dr. sends me to one for awhile and then to the other so we don't "burn out the two" as he says. Mayo clinic does not have RSD clinic or specialists. Closes is 50 miles away in Wis. I just feel so burned out with all of this. Hope this answers some questions. Do you think it's a good idea to keep trying the neurontin? LUV LAURIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Laurie, Some people take Neurontin without any problems, so if it helps then that is good. Lin -- Re: HOLA Lin, I'm trying the neurontin again cuz if I recall the pain wasn't so bad. I'm desperate. My doc is not an RSD dr. just gen. I have a pain mgmt. dr. who really is only treating my scalp with injection every 6 months or so. He's a jerk. I'm going to request a different one. But mayo just doesn't want you to change dr. if you have seen one before. It's a pain to get dr.s changed. I feel like my docs. are running in circles some times. My reg dr. sends me to one for awhile and then to the other so we don't "burn out the two" as he says. Mayo clinic does not have RSD clinic or specialists. Closes is 50 miles away in Wis. I just feel so burned out with all of this. Hope this answers some questions. Do you think it's a good idea to keep trying the neurontin? LUV LAURIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 > Laurie, > Some people take Neurontin without any problems, so if it helps then that is > good. > Lin Laurie - I was on 2700mg/day of Neurontin. It worked pretty well for my pain, it controlled the electrical " zapping " down my leg, but didn't do a lot for the chronic ache/burn/foreign skin feelings. The only reason I stopped taking it (gradually, I might add) is that it was turning me into a flipping moron. My short-term memory was erased as quickly as a thought was entering my head. I got off the stuff, my memory returned to normal and the pain came back. Unfortunately, I have to work so, I manage the pain (and I'm in sort of a remissive state so it isn't so bad right now) with Vicodin and a new med called Cymbalta. I've been taking the Cymbalta for about a month now. It was making me pretty fatigued, but that's passing. My mood's become more positive and the depression that usually accompanies chronic pain is subsiding. The jury's still out on any actual pain relief (it's approved for diabetic neuropathy, so the doc said " what the heck " and I'm checking it out). Laurie, the bottom line is that medication is powerful stuff as we all know. Also, there has been tons of recent controversy (not to mention lawsuits) regarding off-label use of Neurontin. If you're taking it properly and are being supervised for signs of seizures and the like AND it's working, then God Bless you and Feel Better, darn it! Peace, love and pain relief!!! Cliff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 > Laurie, > Some people take Neurontin without any problems, so if it helps then that is > good. > Lin Laurie - I was on 2700mg/day of Neurontin. It worked pretty well for my pain, it controlled the electrical " zapping " down my leg, but didn't do a lot for the chronic ache/burn/foreign skin feelings. The only reason I stopped taking it (gradually, I might add) is that it was turning me into a flipping moron. My short-term memory was erased as quickly as a thought was entering my head. I got off the stuff, my memory returned to normal and the pain came back. Unfortunately, I have to work so, I manage the pain (and I'm in sort of a remissive state so it isn't so bad right now) with Vicodin and a new med called Cymbalta. I've been taking the Cymbalta for about a month now. It was making me pretty fatigued, but that's passing. My mood's become more positive and the depression that usually accompanies chronic pain is subsiding. The jury's still out on any actual pain relief (it's approved for diabetic neuropathy, so the doc said " what the heck " and I'm checking it out). Laurie, the bottom line is that medication is powerful stuff as we all know. Also, there has been tons of recent controversy (not to mention lawsuits) regarding off-label use of Neurontin. If you're taking it properly and are being supervised for signs of seizures and the like AND it's working, then God Bless you and Feel Better, darn it! Peace, love and pain relief!!! Cliff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 > Laurie, > Some people take Neurontin without any problems, so if it helps then that is > good. > Lin Laurie - I was on 2700mg/day of Neurontin. It worked pretty well for my pain, it controlled the electrical " zapping " down my leg, but didn't do a lot for the chronic ache/burn/foreign skin feelings. The only reason I stopped taking it (gradually, I might add) is that it was turning me into a flipping moron. My short-term memory was erased as quickly as a thought was entering my head. I got off the stuff, my memory returned to normal and the pain came back. Unfortunately, I have to work so, I manage the pain (and I'm in sort of a remissive state so it isn't so bad right now) with Vicodin and a new med called Cymbalta. I've been taking the Cymbalta for about a month now. It was making me pretty fatigued, but that's passing. My mood's become more positive and the depression that usually accompanies chronic pain is subsiding. The jury's still out on any actual pain relief (it's approved for diabetic neuropathy, so the doc said " what the heck " and I'm checking it out). Laurie, the bottom line is that medication is powerful stuff as we all know. Also, there has been tons of recent controversy (not to mention lawsuits) regarding off-label use of Neurontin. If you're taking it properly and are being supervised for signs of seizures and the like AND it's working, then God Bless you and Feel Better, darn it! Peace, love and pain relief!!! Cliff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Laurie , I had a problem with neurontin at first for about a month I was going crazy then my system got more acustomed to it. please just pray that I get threw this I'm on the edge and I dont know if I can hold on any more i reall thank you all for caring and you all are like a second family to me ...soft hugs pam wrote: Laurie, Some people take Neurontin without any problems, so if it helps then that is good. Lin -- Re: HOLA Lin, I'm trying the neurontin again cuz if I recall the pain wasn't so bad. I'm desperate. My doc is not an RSD dr. just gen. I have a pain mgmt. dr. who really is only treating my scalp with injection every 6 months or so. He's a jerk. I'm going to request a different one. But mayo just doesn't want you to change dr. if you have seen one before. It's a pain to get dr.s changed. I feel like my docs. are running in circles some times. My reg dr. sends me to one for awhile and then to the other so we don't "burn out the two" as he says. Mayo clinic does not have RSD clinic or specialists. Closes is 50 miles away in Wis. I just feel so burned out with all of this. Hope this answers some questions. Do you think it's a good idea to keep trying the neurontin? LUV LAURIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Laurie , I had a problem with neurontin at first for about a month I was going crazy then my system got more acustomed to it. please just pray that I get threw this I'm on the edge and I dont know if I can hold on any more i reall thank you all for caring and you all are like a second family to me ...soft hugs pam wrote: Laurie, Some people take Neurontin without any problems, so if it helps then that is good. Lin -- Re: HOLA Lin, I'm trying the neurontin again cuz if I recall the pain wasn't so bad. I'm desperate. My doc is not an RSD dr. just gen. I have a pain mgmt. dr. who really is only treating my scalp with injection every 6 months or so. He's a jerk. I'm going to request a different one. But mayo just doesn't want you to change dr. if you have seen one before. It's a pain to get dr.s changed. I feel like my docs. are running in circles some times. My reg dr. sends me to one for awhile and then to the other so we don't "burn out the two" as he says. Mayo clinic does not have RSD clinic or specialists. Closes is 50 miles away in Wis. I just feel so burned out with all of this. Hope this answers some questions. Do you think it's a good idea to keep trying the neurontin? LUV LAURIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Laurie , I had a problem with neurontin at first for about a month I was going crazy then my system got more acustomed to it. please just pray that I get threw this I'm on the edge and I dont know if I can hold on any more i reall thank you all for caring and you all are like a second family to me ...soft hugs pam wrote: Laurie, Some people take Neurontin without any problems, so if it helps then that is good. Lin -- Re: HOLA Lin, I'm trying the neurontin again cuz if I recall the pain wasn't so bad. I'm desperate. My doc is not an RSD dr. just gen. I have a pain mgmt. dr. who really is only treating my scalp with injection every 6 months or so. He's a jerk. I'm going to request a different one. But mayo just doesn't want you to change dr. if you have seen one before. It's a pain to get dr.s changed. I feel like my docs. are running in circles some times. My reg dr. sends me to one for awhile and then to the other so we don't "burn out the two" as he says. Mayo clinic does not have RSD clinic or specialists. Closes is 50 miles away in Wis. I just feel so burned out with all of this. Hope this answers some questions. Do you think it's a good idea to keep trying the neurontin? LUV LAURIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 Donna - Not sure if it's all the meds they try on us, or have us on. Or if it's the RSD. But, I think that a lot of us do have elevated blood pressures now. I'm not taking any other meds, but I do have to take BP med now, and before the RSD I always had a "perfect" BP. So, my guess is that it's the RSD itself. Hugs, TriciaDonna wrote: Does anyone know if the Neurontin causes an increase in pressure or if the RSD does? I've been on Altace for the last 2 months because my pressure has been really high which it never was before.HugsDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 just pray that I get threw this I'm on the edge and I dont know if I can hold on any more Pam, You'll make it--you have to believe that. If you feel totally out of control emotionally you really need to get help. I got to that point at the beginning of this year. It was really hard to admit that I had gotten to that point, but was forced when I couldn't promise my psychologist that I would be safe until the next time I came--not even three days. Didn't have any plans at the minute, just wasn't sure that I could hang on. It was so weird-my mind wanted to say "yes, I'll be okay" and absolutely couldn't. It was like God sealed my mouth knowing I needed the help. I am glad she was protective, even if I didn't want to have to go. My assoc. pastor wasn't surprised at all when she found out I was in the hospital. She had noticed on Sun. that things were pretty bad. Went in on a Tues. I'm assuming this is what you mean by not being sure you can hold on anymore. But I will pray for you since I understand how you feel. Love, N. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 > Donna - Not sure if it's all the meds they try on us, or have us on. Or if it's the RSD. But, I think that a lot of us do have elevated pressures now. I'm not taking any other meds, but I do have to take BP med now, and before the RSD I always had a " perfect " BP. So, my guess is that it's the RSD itself. Thats what Im figuring Tricia. I wasnt on any meds besides my neurontin before the pressure went out of control. Now Im on 2.5 of altace which keeps it in check..when I was in for my injections it was 132/110 now it stays normal at 125/70 with the meds. Im not on much else now except for zoloft and ultram. This monster just gets better and better every day...NOT Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 Pam, You can make it. If you need to talk my phone number is in my profile, I will continue to pray for you. Lin -- Re: HOLA just pray that I get threw this I'm on the edge and I dont know if I can hold on any more Pam, You'll make it--you have to believe that. If you feel totally out of control emotionally you really need to get help. I got to that point at the beginning of this year. It was really hard to admit that I had gotten to that point, but was forced when I couldn't promise my psychologist that I would be safe until the next time I came--not even three days. Didn't have any plans at the minute, just wasn't sure that I could hang on. It was so weird-my mind wanted to say "yes, I'll be okay" and absolutely couldn't. It was like God sealed my mouth knowing I needed the help. I am glad she was protective, even if I didn't want to have to go. My assoc. pastor wasn't surprised at all when she found out I was in the hospital. She had noticed on Sun. that things were pretty bad. Went in on a Tues. I'm assuming this is what you mean by not being sure you can hold on anymore. But I will pray for you since I understand how you feel. Love, N. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 Pam, You can make it. If you need to talk my phone number is in my profile, I will continue to pray for you. Lin -- Re: HOLA just pray that I get threw this I'm on the edge and I dont know if I can hold on any more Pam, You'll make it--you have to believe that. If you feel totally out of control emotionally you really need to get help. I got to that point at the beginning of this year. It was really hard to admit that I had gotten to that point, but was forced when I couldn't promise my psychologist that I would be safe until the next time I came--not even three days. Didn't have any plans at the minute, just wasn't sure that I could hang on. It was so weird-my mind wanted to say "yes, I'll be okay" and absolutely couldn't. It was like God sealed my mouth knowing I needed the help. I am glad she was protective, even if I didn't want to have to go. My assoc. pastor wasn't surprised at all when she found out I was in the hospital. She had noticed on Sun. that things were pretty bad. Went in on a Tues. I'm assuming this is what you mean by not being sure you can hold on anymore. But I will pray for you since I understand how you feel. Love, N. Quote Link to comment Share on other sites More sharing options...
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