Re: Finally got answers to my pain

[Guest guest]

please please tell me you got the lyme test from a good lab. i dont want to

alarm you but i know of hundreds of people misdiagnosed with fibro or ms or

als lupus etc when it was really one of the over 100 strains of lyme

borrelosis bacteria. rheumatologists are famous for prescribing steroids for

the symptoms which weakens your immune system. f you have lyme steroids are

fatal!! please go to www.lymenet.org if you dont believe me. hundreds of

people on that site are suffering due to a incorrect dx. some have been

misdiagnosed for years because insurance companies pay for the elisa titers

test which will only show a few strains of the disease. this test is only 30%

accurate so many believe they dont have lyme when they actually do. I have

had to be my own advocate for treatment because of the 15 different

rhumies,neurologist etc non had a clue or wanted to because they are in the

insurance companies pocket. I am just worried about this.I would hate to see

another person suffer because most drs are just ignorant when it comes to

lyme. and if i remember you had a bite with a rash in the past. please for

your own good check this out. many rheumatologists dx fibro when they cant

find any other cause for your symptoms. lyme is treatable and curable. if

caught early enough and if your immune system is not compromized due to

steroid use.

on another note the specialist told me surgery of any kind aor any sort of

stress or trauma will bring the lyme bacteria out of its dormant stage. this

is what happened to me. I was strong as horse and my immune system was

keeping it in check until my surgery and recovery from it. so please just

take this seriously. lyme is everywhere,in your backyard.at the park . IN

YOUR HOUSE if you have pets. they just discovered 2 more diseases carried by

ticks that cause similar symptoms but are more like malaria.

I dont mean to be an alarmist but since I found I have lyme the horror

stories of incompetant drs and scumbag insurance companies is too much to

ignore. I just wish you the healthiest life possible and your symptoms were

exactly like mine. there is a ton of info on lymenet and if you ask ques on

the discussion board there are many very helpful people who can direct you to

links and information.

peace,love,and good health,

cheryl lap rny 5-17-01 263/135 sz 26 to sz 5

[Guest guest]

Dear Angie,

I'm sorry to read that you're suffering with fibromyalgia. I don't

have this condition but from what I've read from our other sisters on the

board -- Well, it's very difficult.

You're in my prayers for healing, relief from your pain and comfort.

::Soft Hugs From Your Sis in Virginia::

Love,

Trace in Va. Beach, VA

Dr. Schechner, Va. Beach, VA

Open RNY -- 9/5/02

Height -- 5' 9 1/2 "

Starting weight -- 351.2

Current weight -- 266

Minus -- 85.2 pounds gone!

Gal. 2:20

[Guest guest]

Angie I don't know if that is a thanks God or a OH GOD . I use

neurontin,zanaflex and doxipin for mine . Hope you get some relief soon

but the cold does not help us at all

Finally got answers to my pain

> WELL THANK GOD IS ALL I CAN SAY RIGHT NOW!

>

> After few months of several tests, no answers and lots of pain and

exhaustion

> I finally got some answers today at the doctors. The surgeon following me

(or

> should i say not really doign anything for me or watching out for me) sent

me

> to rheumatologist and today they said it was official and definetly safe

to

> say that I am suffering from Fibromyalgia which we were kind thinking

along

> those lines. So now the next part is controling my stress levels that are

> throught the roof right now and finding right meds to help me tolerate

pain

> right now, God knows tylenol didnt touch it, but he has meing trying

> " ultrcet " which is ultram and tylenol mixture and said would be safe for

me

> to take, He said with RNY and my bipolar meds it will be difficult to find

> right one to work for me so well see where it goes for now but at least

there

> is some solace in knowing its something and not in my head like many have

> insinuated...

> all for now

> Angie

> City, NY

> OPEN RNY 7/24/02

> 325/220

>

>

>

[Guest guest]

Angie,

So sorry you have to suffer with fibro. I can't imagine what it's all about

other than hearing about our other poor sisters here. You're all in my

prayers.

~Janet in central NY

[Guest guest]

Angie,

So sorry you have to suffer with fibro. I can't imagine what it's all about

other than hearing about our other poor sisters here. You're all in my

prayers.

~Janet in central NY

[Guest guest]

angie ,with the fibro flair blues we all have now , i might suggest that

you go to Immune Support

Group site they give daily E-mails and they are really great for us they

also give advise for Chronic fatigue ,me i spent the day in bed today

,with Ultraset and warm water bed, now am having cup of decaf tea ,and

then back in bed , they are expecting snow here tomorrow so with the

combo (now there`s a word i have not used in a while) anyhow ! of

Rhumatoid and Fibro i don`t have a chance,

Ethel also it was hard on hubby today he had to run business by

hisself !!!!!

nottab@... wrote:

> Dear Angie,

>

> I'm sorry to read that you're suffering with fibromyalgia. I

> don't

> have this condition but from what I've read from our other sisters on the

> board -- Well, it's very difficult.

>

> You're in my prayers for healing, relief from your pain and

> comfort.

>

> ::Soft Hugs From Your Sis in Virginia::

>

> Love,

> Trace in Va. Beach, VA

> Dr. Schechner, Va. Beach, VA

> Open RNY -- 9/5/02

> Height -- 5' 9 1/2 "

> Starting weight -- 351.2

> Current weight -- 266

> Minus -- 85.2 pounds gone!

> Gal. 2:20

>

>

>

>

[Guest guest]

angie ,with the fibro flair blues we all have now , i might suggest that

you go to Immune Support

Group site they give daily E-mails and they are really great for us they

also give advise for Chronic fatigue ,me i spent the day in bed today

,with Ultraset and warm water bed, now am having cup of decaf tea ,and

then back in bed , they are expecting snow here tomorrow so with the

combo (now there`s a word i have not used in a while) anyhow ! of

Rhumatoid and Fibro i don`t have a chance,

Ethel also it was hard on hubby today he had to run business by

hisself !!!!!

nottab@... wrote:

> Dear Angie,

>

> I'm sorry to read that you're suffering with fibromyalgia. I

> don't

> have this condition but from what I've read from our other sisters on the

> board -- Well, it's very difficult.

>

> You're in my prayers for healing, relief from your pain and

> comfort.

>

> ::Soft Hugs From Your Sis in Virginia::

>

> Love,

> Trace in Va. Beach, VA

> Dr. Schechner, Va. Beach, VA

> Open RNY -- 9/5/02

> Height -- 5' 9 1/2 "

> Starting weight -- 351.2

> Current weight -- 266

> Minus -- 85.2 pounds gone!

> Gal. 2:20

>

>

>

>

[Guest guest]

angie ,with the fibro flair blues we all have now , i might suggest that

you go to Immune Support

Group site they give daily E-mails and they are really great for us they

also give advise for Chronic fatigue ,me i spent the day in bed today

,with Ultraset and warm water bed, now am having cup of decaf tea ,and

then back in bed , they are expecting snow here tomorrow so with the

combo (now there`s a word i have not used in a while) anyhow ! of

Rhumatoid and Fibro i don`t have a chance,

Ethel also it was hard on hubby today he had to run business by

hisself !!!!!

nottab@... wrote:

> Dear Angie,

>

> I'm sorry to read that you're suffering with fibromyalgia. I

> don't

> have this condition but from what I've read from our other sisters on the

> board -- Well, it's very difficult.

>

> You're in my prayers for healing, relief from your pain and

> comfort.

>

> ::Soft Hugs From Your Sis in Virginia::

>

> Love,

> Trace in Va. Beach, VA

> Dr. Schechner, Va. Beach, VA

> Open RNY -- 9/5/02

> Height -- 5' 9 1/2 "

> Starting weight -- 351.2

> Current weight -- 266

> Minus -- 85.2 pounds gone!

> Gal. 2:20

>

>

>

>

[Guest guest]

Thanks Janet

Re: Finally got answers to my pain

> Angie,

> So sorry you have to suffer with fibro. I can't imagine what it's all

about

> other than hearing about our other poor sisters here. You're all in my

> prayers.

>

> ~Janet in central NY

>

>

>

[Guest guest]

Thanks Janet

Re: Finally got answers to my pain

> Angie,

> So sorry you have to suffer with fibro. I can't imagine what it's all

about

> other than hearing about our other poor sisters here. You're all in my

> prayers.

>

> ~Janet in central NY

>

>

>

[Guest guest]

ETHEL HOPE YOU FEEL BETTER SOON

Re: Finally got answers to my pain

> angie ,with the fibro flair blues we all have now , i might suggest that

> you go to Immune Support

> Group site they give daily E-mails and they are really great for us they

> also give advise for Chronic fatigue ,me i spent the day in bed today

> ,with Ultraset and warm water bed, now am having cup of decaf tea ,and

> then back in bed , they are expecting snow here tomorrow so with the

> combo (now there`s a word i have not used in a while) anyhow ! of

> Rhumatoid and Fibro i don`t have a chance,

> Ethel also it was hard on hubby today he had to run business by

> hisself !!!!!

>

> nottab@... wrote:

>

> > Dear Angie,

> >

> > I'm sorry to read that you're suffering with fibromyalgia. I

> > don't

> > have this condition but from what I've read from our other sisters on

the

> > board -- Well, it's very difficult.

> >

> > You're in my prayers for healing, relief from your pain and

> > comfort.

> >

> > ::Soft Hugs From Your Sis in Virginia::

> >

> > Love,

> > Trace in Va. Beach, VA

> > Dr. Schechner, Va. Beach, VA

> > Open RNY -- 9/5/02

> > Height -- 5' 9 1/2 "

> > Starting weight -- 351.2

> > Current weight -- 266

> > Minus -- 85.2 pounds gone!

> > Gal. 2:20

> >

> >

> >

> >

[Guest guest]

ETHEL HOPE YOU FEEL BETTER SOON

Re: Finally got answers to my pain

> angie ,with the fibro flair blues we all have now , i might suggest that

> you go to Immune Support

> Group site they give daily E-mails and they are really great for us they

> also give advise for Chronic fatigue ,me i spent the day in bed today

> ,with Ultraset and warm water bed, now am having cup of decaf tea ,and

> then back in bed , they are expecting snow here tomorrow so with the

> combo (now there`s a word i have not used in a while) anyhow ! of

> Rhumatoid and Fibro i don`t have a chance,

> Ethel also it was hard on hubby today he had to run business by

> hisself !!!!!

>

> nottab@... wrote:

>

> > Dear Angie,

> >

> > I'm sorry to read that you're suffering with fibromyalgia. I

> > don't

> > have this condition but from what I've read from our other sisters on

the

> > board -- Well, it's very difficult.

> >

> > You're in my prayers for healing, relief from your pain and

> > comfort.

> >

> > ::Soft Hugs From Your Sis in Virginia::

> >

> > Love,

> > Trace in Va. Beach, VA

> > Dr. Schechner, Va. Beach, VA

> > Open RNY -- 9/5/02

> > Height -- 5' 9 1/2 "

> > Starting weight -- 351.2

> > Current weight -- 266

> > Minus -- 85.2 pounds gone!

> > Gal. 2:20

> >

> >

> >

> >