Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 My older son had outbursts pretty severely. I recommend the book " The Explosive Child " by Ross Greene. Also, once he went through puberty he really calmed down behaviorally. You didn't say how old your daughter is. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 It is so good to know that we are not the only ones. I have three other children and she just makes everyone so upset. this morning she " lost it " because she didn't want her hair brushed. I just feel like I need to get away from her sometimes because I feel like I am going to completelly have a nervous breakdown. I just wish that there was some way that we could help her get control of herself. Thanks for the advice , erica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 my daughter is 7 and a half. It is good to know that maybe at puberty things may settle down. erica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 I have talked to her dr about her not sleeping so many times I feel like i am just repeating myself every month when we go in. See, at school she is so well behaved and when we go to the dr. she couldn't be any better, it is just at home. I don't get it. I have tried everything I can think of. erica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 My 9 1/2 year old son has these diagnosis and is on a boat load of meds. There are a lot of good books to read that give great suggestions on how to handle things before the melt down. The last medication added to our son was depakote for mood stabilization and out of all his medications this is the one I have seen the most results from so far although he always seems to still get major angry with me especially in the morning no matter what I say We also see a chiropractor which was recommended by his psychiatrist which has helped. I didn't think it was making a difference till we missed a week and he had an unbelievable bad week end. Not sure what will happen when we are done with all the sessions for that or if he will be seen regularly for maintenance. I know the walking on egg shells well and there are certain things in life that set him off that we can't avoid and I dread those events. We are planning on a 2 week vacation like we normally do this summer and if I could get over the guilt of not taking him I think I would because I know that he will make it miserable. He loves vacation and the beach but such stupid things set him off. It's not fair to the other kids I know dealing with this but I just can't leave him behind. You're not alone and that has helped me knowing there are other parents out there dealing with this. Suzanne -- ( ) hello, new to group hey everyone, how are you? I really need help. My daughter has as. and adhd and odd, she has these fits where we litterally have to restrain her, she doesn't sleep and we have tried everything! She is on concerta and seraquil in the morning and mirtazapine( remeron) at night . The concerta is helping her so much at school. Her grades are awsome, but at home she is a different child. I feel like I can't take anymore. We are walking on egg shells just so that we don't upset her and throw her into one of her " meltdowns " . Does anyone else have any of these problems or some suggestions to help us ? I am desperate! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Subject: ( ) hello, new to group hey everyone, how are you? I really need help. My daughter has as. and adhd and odd, she has these fits where we litterally have to restrain her, she doesn't sleep and we have tried everything! She is on concerta and seraquil in the morning and mirtazapine( remeron) at night . The concerta is helping her so much at school. Her grades are awsome, but at home she is a different child. I feel like I can't take anymore. We are walking on egg shells just so that we don't upset her and throw her into one of her " meltdowns " . Does anyone else have any of these problems or some suggestions to help us ? I am desperate! Hi! Do you have any local resources available to you? It sounds like you might look into finding a behavioral specialist - someone who can come in and assess her behaviors and figure out a behavior plan that works. If she isn't sleeping, that is probably a huge reason she is so grouchy or unreasonable. Talk to the med doc about her sleeping problems. She needs to get to sleep!! Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Hi! I feel you! My daughter is almost 7 and she sounds very similar to yours. Although she has a hard time everywhere not just at home, home seems to be the worst. I think that is typical with most kids though, they are alway worse with their mothers than anyone else. Sometimes I just don't know how I'm going to make it through a morning with her without losing my mind or strangling her. I worry about days that I have alone with her, I'm freaked about this summer because I just can't handle her for an entire day by myself, I do it when I have to but I know it isn't good for either of us. I know thats awful to admit as a mother but its the truth. The best thing for me is to get some time away even just to have one other person to share the duties with husband, grandma, aunt, etc. I don't know how some of you guys homeschool, I would absolutely lose my mind! But I know too how different all these kids are. My daughter doesn't sleep either and we just recently tried Clonidine and its been working awesome! I posted here about it a couple weeks ago to see if anyone had tried it and I got a flood of positive responses. I can't tell you how wonderful it is for everyone to get a full nights sleep. Keep us posted! Rechelle > > hey everyone, how are you? I really need help. My daughter has as. and > adhd and odd, she has these fits where we litterally have to restrain > her, she doesn't sleep and we have tried everything! She is on > concerta and seraquil in the morning and mirtazapine( remeron) at > night . The concerta is helping her so much at school. Her grades are > awsome, but at home she is a different child. I feel like I can't take > anymore. We are walking on egg shells just so that we don't upset her > and throw her into one of her " meltdowns " . > Does anyone else have any of these problems or some suggestions to > help us ? I am desperate! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Rechelle, It is so good to hear that I am not the only one out there! I completelly hear yah when you say you dread being alone with her all day. I feel the same way. My husband is a Marine and I am so deathly afraid of the next time he deploys. Last time he was gone for 8 months and we have three other children and we had the military police at our house, I don't know how many times. Sometimes I called them because I couldn't take it anymore and I had nowhere else to turn. I thought maybe they could scare her into behaving, but as we all know that worked for maybe 10 minutes. I dread waking her up in the morning for school because I don't know what her mood is going to be and what may set her off that day. God forgive me, but I love my daughter very much, but sometimes I really don't like her. Do you feel the same way? We have tried Clonidine. It worked awsome for about a month then it just stopped working.That seems to be the biggest problem, she becomes amune (sp?) to her meds so quickly. The only one that she hasn't had a problem with is the concerta. But that just makes it easier for her to study. I wish that we could just find something that would make her sleep. I don't think my husband and I have had a full nights sleep for over a year, and we are just so darn tired. I swear, her dr. must think we are drug happy because everytime we go in I am asking for something else to help her. I even go in, in tears begging her to help. She just tells me that we will get it figured out and to remember that she is there for my daughter not my husband or myself. Well, enough rambling, it is so good to know that we are not alone in this. Thank you for responding to my message. Maybe we could keep in contact. Kinda help eachother. erica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 We only saw the behaviors at home for the longest time and I was told that was where my son felt safest and because of unconditional love. It was just this fall that things started falling apart at school and then the things that have happened makes me want to scream. Suzanne -- Re: ( ) hello, new to group I have talked to her dr about her not sleeping so many times I feel like i am just repeating myself every month when we go in. See, at school she is so well behaved and when we go to the dr. she couldn't be any better, it is just at home. I don't get it. I have tried everything I can think of. erica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 In a message dated 3/28/2006 11:37:26 AM Pacific Standard Time, jjtripletmom@... writes: http://www.danasview.net/yeast.htm I will definatlly look into that. Thanks ! erica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 that's not a bad idea, I will definatlly try that. Is your child on meds at night for sleeping problems? If so, what knds have worked/ not worked? erica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 My daughter has sleep problems when her yeast is high. I have had her tested and she has very high yeast but treating yeast can be very complicated. The following site has some good info you yeast/autism issues. Until we started treating her yeast she rarely if ever slept like a typical child. Read up more on the yeast/sutism link. http://www.danasview.net/yeast.htm rechelle5us <rechelle5@...> wrote: Hi! I feel you! My daughter is almost 7 and she sounds very similar to yours. Although she has a hard time everywhere not just at home, home seems to be the worst. I think that is typical with most kids though, they are alway worse with their mothers than anyone else. Sometimes I just don't know how I'm going to make it through a morning with her without losing my mind or strangling her. I worry about days that I have alone with her, I'm freaked about this summer because I just can't handle her for an entire day by myself, I do it when I have to but I know it isn't good for either of us. I know thats awful to admit as a mother but its the truth. The best thing for me is to get some time away even just to have one other person to share the duties with husband, grandma, aunt, etc. I don't know how some of you guys homeschool, I would absolutely lose my mind! But I know too how different all these kids are. My daughter doesn't sleep either and we just recently tried Clonidine and its been working awesome! I posted here about it a couple weeks ago to see if anyone had tried it and I got a flood of positive responses. I can't tell you how wonderful it is for everyone to get a full nights sleep. Keep us posted! Rechelle > > hey everyone, how are you? I really need help. My daughter has as. and > adhd and odd, she has these fits where we litterally have to restrain > her, she doesn't sleep and we have tried everything! She is on > concerta and seraquil in the morning and mirtazapine( remeron) at > night . The concerta is helping her so much at school. Her grades are > awsome, but at home she is a different child. I feel like I can't take > anymore. We are walking on egg shells just so that we don't upset her > and throw her into one of her " meltdowns " . > Does anyone else have any of these problems or some suggestions to > help us ? I am desperate! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Subject: Re: ( ) hello, new to group I have talked to her dr about her not sleeping so many times I feel like i am just repeating myself every month when we go in. See, at school she is so well behaved and when we go to the dr. she couldn't be any better, it is just at home. I don't get it. I have tried everything I can think of. erica Well, you could always video tape the problems to show the doc. Or find another doc who does believe you. My two take meds for sleep and this can be a common problem for kids with AS/HFA. Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2006 Report Share Posted March 30, 2006 Subject: Re: ( ) hello, new to group that's not a bad idea, I will definatlly try that. Is your child on meds at night for sleeping problems? If so, what knds have worked/ not worked? erica We've used clonidine with great success for sleep issues. Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2007 Report Share Posted May 7, 2007 Contact your Early Intervention 0-3 years old. You can also get a referral from your pediatrician. Early Intervention will come to your house and evaluate your child for speech and if he qualifies you can get speech therapy for him. Usually at 18 months a child has between 25-50 words. Do a search on developmental milestones and you can get a better idea if he is meeting his milestones not just for speech, but fine/gross motor also. Have you had his hearing checked? Tina > > hello i am a new comer to this group and i have a 20 month old son that > doesn't talk or have much interest in it. he jibber jabbers, but no > words yet. i was wondering if that is even normal? I have friends and > alot of family all on my butt on why he isn't talking? Everyday I am > getting asked from several people if my son is talking yet, so I am > courious of i need to start being concerned? I am getting a bit > fusterated on what to do. I am a stay home mom and feeling liek i am > not doing enough. can i get some advise and ideas on this. Thank you > soooo much. > > Tara B > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2007 Report Share Posted May 7, 2007 Get him evaluated by Early Intervention in your state. It's free. He should be saying something by now. It's free and if there is nothing wrong they will tell you. Generally he should be saying a few words now and have 50 words by age 2. I had my son evaluated at 20 months. It has been slow going because speech is not natural for him but it is the best decision I ever made. You will cry and be scared but it is worth it and there is so much hope, especially getting to it early. God Bless! Liz Tara wrote: >hello i am a new comer to this group and i have a 20 month old son that >doesn't talk or have much interest in it. he jibber jabbers, but no >words yet. i was wondering if that is even normal? I have friends and >alot of family all on my butt on why he isn't talking? Everyday I am >getting asked from several people if my son is talking yet, so I am >courious of i need to start being concerned? I am getting a bit >fusterated on what to do. I am a stay home mom and feeling liek i am >not doing enough. can i get some advise and ideas on this. Thank you >soooo much. > >Tara B > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 Hi, I'm and my son is Owen, 4 1/2 mos old, and he was just diagnosed with plagiocephaly on friday and he got a head ct today, and unfortunately the appointment for physical therapy isn't until August (soonest they could get us in). Is there anything we can do ourselves to help him while we wait? Thanks! - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 That sure is a long time to wait. Go to this website and it pretty much gives you the exercises that the Therapist will give you. http://www.neckexercises.info/ It is on the Plagiocephaly website. > > Hi, I'm and my son is Owen, 4 1/2 mos old, and he was just > diagnosed with plagiocephaly on friday and he got a head ct today, and > unfortunately the appointment for physical therapy isn't until August > (soonest they could get us in). Is there anything we can do ourselves > to help him while we wait? Thanks! > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2007 Report Share Posted June 26, 2007 Welcome ! Does Owen have Torticollis? If so, There are stretches you can do - and most of your PT will be done by you - But honestly He needs to be seen by a PT who can evaluate him. Did you get x-rays of his neck to look for bone abnormalities? If there is an abnormality(though rare) PT can actually cause harm. If Aug. is the 1st you can get in to see a PT then call a different one. Look for one that treats kids w/ Torticollis. Also, Call you ped. They may have a handout with the stretches diagramed for you. HTH!  Jen and Luli - 18 mo. Left Tort - Right Plagio - Hanger Band Grad - CA tallulah jayne www.babiesonline.com/babies/j/jens5th/ Hello, New to Group Hi, I'm and my son is Owen, 4 1/2 mos old, and he was just diagnosed with plagiocephaly on friday and he got a head ct today, and unfortunately the appointment for physical therapy isn't until August (soonest they could get us in). Is there anything we can do ourselves to help him while we wait? Thanks! - AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2008 Report Share Posted May 16, 2008 Welcome Lori, Our son was also diagnosed late. He was almost 17. He is now 18 and graduating high school. He has plans for a local college. Keep reading and you may find it very helpful. Ginny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Did he have a lot of food issues? In hindsight yes. I mentioned the possibility a few times, but as often as we moved with the military, it didn't get handled. I feel bad about that. > > Crohns can be hard to manage. I feel for the poor guy. Did he have a > lot of food issues growing up? > > > > > > > > Hi, I'm Lori and I live in West Texas with my AF husband, two sons 17 > > and 20, and three cats and special needs dog. My oldest son has > > Asperger's syndrome that was not diagnosed until he was 15, and he has > > also been recently diagnosed with Crohn's disease. I am wondering how > > many of your kids may have other medical type issues, especially > > autoimmune? Or if there is a family history of that? I ask because of > > the new research and our own situation. Thanks, Lori deep in the heart > > of Texas > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 According to several studies from different sources, there is a definite correlation. I do understand trying to get diagnosed, because it took many years for me to get diagnosed with Lupus/UCTD. > > About the autoimmune connection...thats interesting. My Mom has RA, and MS runs in our family as well. I have some sort of autoimmune thing going on I think, that I am trying to get diagnosed right now (very frustrating, WHOLE different subject ) and I have a son with AS. I wonder if there may be a connection? > thanks, > kate > Quote Link to comment Share on other sites More sharing options...
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