Re: [SPAM] what do you say to parents of untreated babies?

[Guest guest]

I think in some ways, that would be a hard conversation to start up. A co worker of mine has a grandson with Brachy. When I brought my son into work after he got his DOC band I had to explain to everyone why he had the band. That triggered a conversation with my coworker about her Grandson. I gave her all of the information about treating Brachy and who she needed to talk to. She past the information onto her daughter, but they are choosing so far to not treat it. Her grandson is a year now and has severe brachy (but the doc said he would grow out of it...)

I think when you see a child with untreated plagio, all you can do is politely as possible try and talk to the parent about it and offer up treatment information. Maybe just say, "I see your child has plagio, when did they get diagnosed?" If anything else this can be a conversation starter. Although it can be awkward bringing something like this up to a stranger. Although on the opposite side, strangers had no problem coming up to me and asking me why my son had a "helmet" on. How funny is that.

Lorie

Mom to Spencer and Alizabeth 11 months.

Spencer- Left side Plagio- DOC band Grad 9/07-12/07

Glendale,AZ

[sPAM] what do you say to parents of untreated babies?

What do people think is the best thing to do when you see a baby with untreated plagio? I have seen some pretty severe cases and wonder if their parents have the information they should. The "older plag" group is filled with stories of distraught parents who were told not to get treatment or didn't realize anything could be done until it was too late. I had to go against two pediatrician's advice and seek treatment on my own because they said it would go away with time (even though I saw my son's condition worsening). It was a very scary time for me when I didn't know that there was help for him and so many of you out there offering support. I think I would have appreciated being approached by parents in the same boat and find out from them that I wasn't being a crazy overly zealous parent (like my doctors made me feel).I'm just unsure of how to bring up the subject to total strangers without being insulting or insensitive. If anyone asks about my son's helmet, I'm so glad for the chance to share information and hopefully get the word out, but I'm just uncomfortable bringing it up to people I see on the street or at the playground. How do you start the conversation?

[Guest guest]

I have found that keeping my mouth shut with other friends babies is the way to go. Unfortuantely, I tried to help one with an issue that I thought might be tort only to be made to feel badly. I decided to let them do their own research. It is sad but I just dont feel comfortable intergecting my advice anymore. If I met someone or the friend was a true close friend looking for advice then by all means. You need to know the audience as in all things. Tammy

From: Lorie Fitzgerald <lfitz_1@...>Subject: Re: [sPAM] what do you say to parents of untreated babies?Plagiocephaly Date: Wednesday, March 26, 2008, 12:06 AM

I think in some ways, that would be a hard conversation to start up. A co worker of mine has a grandson with Brachy. When I brought my son into work after he got his DOC band I had to explain to everyone why he had the band. That triggered a conversation with my coworker about her Grandson. I gave her all of the information about treating Brachy and who she needed to talk to. She past the information onto her daughter, but they are choosing so far to not treat it. Her grandson is a year now and has severe brachy (but the doc said he would grow out of it...)

I think when you see a child with untreated plagio, all you can do is politely as possible try and talk to the parent about it and offer up treatment information. Maybe just say, "I see your child has plagio, when did they get diagnosed?" If anything else this can be a conversation starter. Although it can be awkward bringing something like this up to a stranger. Although on the opposite side, strangers had no problem coming up to me and asking me why my son had a "helmet" on. How funny is that.

Lorie

Mom to Spencer and Alizabeth 11 months.

Spencer- Left side Plagio- DOC band Grad 9/07-12/07

Glendale,AZ

[sPAM] what do you say to parents of untreated babies?

What do people think is the best thing to do when you see a baby with untreated plagio? I have seen some pretty severe cases and wonder if their parents have the information they should. The "older plag" group is filled with stories of distraught parents who were told not to get treatment or didn't realize anything could be done until it was too late. I had to go against two pediatrician' s advice and seek treatment on my own because they said it would go away with time (even though I saw my son's condition worsening). It was a very scary time for me when I didn't know that there was help for him and so many of you out there offering support. I think I would have appreciated being approached by parents in the same boat and find out from them that I wasn't being a crazy overly zealous parent (like my doctors made me feel).I'm just unsure of how to bring up the subject to total strangers without being

insulting or insensitive. If anyone asks about my son's helmet, I'm so glad for the chance to share information and hopefully get the word out, but I'm just uncomfortable bringing it up to people I see on the street or at the playground. How do you start the conversation?

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

It is really hard because you want to help but don't want to overstep your bonderies either. I have a girlfriend who has a baby girl who is 11 months. I noticed a flat spot on her head when I was babysitting her and she knows why my son has his band and I've pointed out my son's flat spot to her and she said she did see it after I pointed it out but not prior to that. I want to say, your daughter has a flat spot as well but I'm not going to because she knows her daughter better than I do and she is well aware of my son's treatment so I feel like if she felt it was an issue she would probably say something to me or ask me more questions. Sometimes just talking about what you are going through is enough to make other people aware. I think it is important to tell people about what you are going through and then let them make up there own minds about there own children. Tough topic!!!!!!! Good

luck.Tammy Sabs <princessluau@...> wrote: I have found that keeping my mouth shut with other friends babies is the way to go. Unfortuantely, I tried to help one with an issue that I thought might be tort only to be made to feel badly. I decided to let them do their own research. It is sad but I just dont feel comfortable intergecting my advice anymore. If I met someone or the friend was a true close friend looking for advice then by all means.

You need to know the audience as in all things. Tammy From: Lorie Fitzgerald <lfitz_1>Subject: Re: [sPAM] what do you say to parents of untreated babies?Plagiocephaly Date: Wednesday, March 26, 2008, 12:06 AM I think in some ways, that would be a hard conversation to start up. A co worker of mine has a grandson with Brachy. When I brought my son into work after he got his DOC band I had to explain to everyone why he had the band. That triggered a conversation with my coworker about her Grandson. I gave her all of the information about treating Brachy and who she needed to talk to. She past the information onto her

daughter, but they are choosing so far to not treat it. Her grandson is a year now and has severe brachy (but the doc said he would grow out of it...) I think when you see a child with untreated plagio, all you can do is politely as possible try and talk to the parent about it and offer up treatment information. Maybe just say, "I see your child has plagio, when did they get diagnosed?" If anything else this can be a conversation starter. Although it can be awkward bringing something like this up to a stranger. Although on the opposite side, strangers had no problem coming up to me and asking me why my son had a "helmet" on. How funny is that. Lorie Mom to Spencer and Alizabeth 11

months. Spencer- Left side Plagio- DOC band Grad 9/07-12/07 Glendale,AZ [sPAM] what do you say to parents of untreated babies? What do

people think is the best thing to do when you see a baby with untreated plagio? I have seen some pretty severe cases and wonder if their parents have the information they should. The "older plag" group is filled with stories of distraught parents who were told not to get treatment or didn't realize anything could be done until it was too late. I had to go against two pediatrician' s advice and seek treatment on my own because they said it would go away with time (even though I saw my son's condition worsening). It was a very scary time for me when I didn't know that there was help for him and so many of you out there offering support. I think I would have appreciated being approached by parents in the same boat and find out from them that I wasn't being a crazy overly zealous parent (like my doctors made me feel).I'm just unsure of how to bring up the subject to total strangers without being insulting or insensitive. If

anyone asks about my son's helmet, I'm so glad for the chance to share information and hopefully get the word out, but I'm just uncomfortable bringing it up to people I see on the street or at the playground. How do you start the conversation? Be a better friend, newshound, and know-it-all with Mobile. Try it now.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.