Re: new here, lots to learn.... impatient to heal. Diagnosed with UC

[Guest guest]

> I've been on SCD for about a month. I've tried alot of different

> alternatives to medication from day 1 of being diagnosed because

> i've never liked taking medicine for anything, but this is the first

> time in my life where i'm forced to in order to be able to function

> day to day.

>

> Here's some quick questions.

>

> Almond flour, how much is too much? It seems like we make everything

> from almond flour or peannuts (at least the bread like baked goods)

> but i've heard of people developing an allergy to almond flour after

> using it for a while. Is this true? If so, should I be limiting my

> use of almond flour, or try to use walnut flour instead? Walnut

> flour def does not taste as good!

not walnut, hazelnut or pecan.

>

> I guess I would consider myself impatient. I've been following this

> diet super strict for a month, but i've been on it for about 4

> months although I could not be 100% because of weddings or other

> once in a lifetime events that I " had " to cheat at. Unfortunatly I

> haven't noticed any improvements. I'm going to stay on this diet for

> a year because I believe in it, and I want to at least give it a

> chance to work. I figure if I did 26 years worth of damage to my

> body without knowing it, a year of trying to see some sort of

> improvement is worth a shot.

>

did you do intro? it sounds like if you are having a lot of almond

flour one month in, you

may not have gone slowly enough at the beginning really to benefit.

Plus - most people

cannot handle peanuts and peanut butter one month in as well - I

certainly could not.

> What does everyone cook to eat throuout the week? I am ALWAYS

> hungry. I was always a big eater before even though I always ate

> healthy. No potatoes except sweet potatoes, I avoided bread, ect...

> but now i'm still hungry and I can't have a quick fix of a frozen

> pizza from the atore unless I made one myself previously and froze

> it. I've been trying that, and trying to keep a steady supply of PB

> brownies, SCD cheesecake, and pork roasts around, but it's still

> hard! Any tips for keeping enough food handy? Maybe things that you

> have found easy to make that last a long time?

big pots of soup and casserole - make enough for several helpings of

most things you make,

etc.

> I feel like all I do is divide my time between work and trying to

> find the time to cook enough food. I'm also busy which doesn't help

> and I go to the gym so that takes up alot of time as well.

>

>

> How did you deal with the emotional side of things? Taking the meds

> sucks, and I still feel like i'm never really better, but not really

> that sick either. I still have D and blood even though i'm taking 12

> Asacol a day.

what do you have? It's hard to be advice specific without that. CD

or UC?

If it is one of those two, you should check out the LDN we've

discussed once you get

down to a lower dose of prednisone (as they are counterindicated.)

> It only goes away when I use an entocort enema... EWW... and it's

> only temporary for the day after I use it. Sometimes it really gets

> me down. Expecially the " why me " . I have great support, but nobody

> really knows how i'm feeling unless your going through the same

> things I am. Having your stomach hurt 24/7 for the past year isn't

> comparable to very much... although I do realize alot of people have

> it much worse off than I do. I still don't feel very lucky though.

Well the LDN will almost definitely help with that - -almost

immediately.

>

> -

> 10mg Prednisone (doc thinks i'm taking 20 but I am having the same

> results on 10 as I was on 40.. it's doing nothing)

>

> 4 Asacol 3 times a day. (this helped the first week now it's

> plateued into taking my pain away but I still have the symptoms of

> blood, mucus, and not much else comes out.

>

> entocort enema for " special occasions " when I really want to be

> " normal " the next day.

>

>

>

> ------------------------------------

>

>

[Guest guest]

> I've been on SCD for about a month. I've tried alot of different

> alternatives to medication from day 1 of being diagnosed because

> i've never liked taking medicine for anything, but this is the first

> time in my life where i'm forced to in order to be able to function

> day to day.

>

> Here's some quick questions.

>

> Almond flour, how much is too much? It seems like we make everything

> from almond flour or peannuts (at least the bread like baked goods)

> but i've heard of people developing an allergy to almond flour after

> using it for a while. Is this true? If so, should I be limiting my

> use of almond flour, or try to use walnut flour instead? Walnut

> flour def does not taste as good!

not walnut, hazelnut or pecan.

>

> I guess I would consider myself impatient. I've been following this

> diet super strict for a month, but i've been on it for about 4

> months although I could not be 100% because of weddings or other

> once in a lifetime events that I " had " to cheat at. Unfortunatly I

> haven't noticed any improvements. I'm going to stay on this diet for

> a year because I believe in it, and I want to at least give it a

> chance to work. I figure if I did 26 years worth of damage to my

> body without knowing it, a year of trying to see some sort of

> improvement is worth a shot.

>

did you do intro? it sounds like if you are having a lot of almond

flour one month in, you

may not have gone slowly enough at the beginning really to benefit.

Plus - most people

cannot handle peanuts and peanut butter one month in as well - I

certainly could not.

> What does everyone cook to eat throuout the week? I am ALWAYS

> hungry. I was always a big eater before even though I always ate

> healthy. No potatoes except sweet potatoes, I avoided bread, ect...

> but now i'm still hungry and I can't have a quick fix of a frozen

> pizza from the atore unless I made one myself previously and froze

> it. I've been trying that, and trying to keep a steady supply of PB

> brownies, SCD cheesecake, and pork roasts around, but it's still

> hard! Any tips for keeping enough food handy? Maybe things that you

> have found easy to make that last a long time?

big pots of soup and casserole - make enough for several helpings of

most things you make,

etc.

> I feel like all I do is divide my time between work and trying to

> find the time to cook enough food. I'm also busy which doesn't help

> and I go to the gym so that takes up alot of time as well.

>

>

> How did you deal with the emotional side of things? Taking the meds

> sucks, and I still feel like i'm never really better, but not really

> that sick either. I still have D and blood even though i'm taking 12

> Asacol a day.

what do you have? It's hard to be advice specific without that. CD

or UC?

If it is one of those two, you should check out the LDN we've

discussed once you get

down to a lower dose of prednisone (as they are counterindicated.)

> It only goes away when I use an entocort enema... EWW... and it's

> only temporary for the day after I use it. Sometimes it really gets

> me down. Expecially the " why me " . I have great support, but nobody

> really knows how i'm feeling unless your going through the same

> things I am. Having your stomach hurt 24/7 for the past year isn't

> comparable to very much... although I do realize alot of people have

> it much worse off than I do. I still don't feel very lucky though.

Well the LDN will almost definitely help with that - -almost

immediately.

>

> -

> 10mg Prednisone (doc thinks i'm taking 20 but I am having the same

> results on 10 as I was on 40.. it's doing nothing)

>

> 4 Asacol 3 times a day. (this helped the first week now it's

> plateued into taking my pain away but I still have the symptoms of

> blood, mucus, and not much else comes out.

>

> entocort enema for " special occasions " when I really want to be

> " normal " the next day.

>

>

>

> ------------------------------------

>

>

[Guest guest]

> I've been on SCD for about a month. I've tried alot of different

> alternatives to medication from day 1 of being diagnosed because

> i've never liked taking medicine for anything, but this is the first

> time in my life where i'm forced to in order to be able to function

> day to day.

>

> Here's some quick questions.

>

> Almond flour, how much is too much? It seems like we make everything

> from almond flour or peannuts (at least the bread like baked goods)

> but i've heard of people developing an allergy to almond flour after

> using it for a while. Is this true? If so, should I be limiting my

> use of almond flour, or try to use walnut flour instead? Walnut

> flour def does not taste as good!

not walnut, hazelnut or pecan.

>

> I guess I would consider myself impatient. I've been following this

> diet super strict for a month, but i've been on it for about 4

> months although I could not be 100% because of weddings or other

> once in a lifetime events that I " had " to cheat at. Unfortunatly I

> haven't noticed any improvements. I'm going to stay on this diet for

> a year because I believe in it, and I want to at least give it a

> chance to work. I figure if I did 26 years worth of damage to my

> body without knowing it, a year of trying to see some sort of

> improvement is worth a shot.

>

did you do intro? it sounds like if you are having a lot of almond

flour one month in, you

may not have gone slowly enough at the beginning really to benefit.

Plus - most people

cannot handle peanuts and peanut butter one month in as well - I

certainly could not.

> What does everyone cook to eat throuout the week? I am ALWAYS

> hungry. I was always a big eater before even though I always ate

> healthy. No potatoes except sweet potatoes, I avoided bread, ect...

> but now i'm still hungry and I can't have a quick fix of a frozen

> pizza from the atore unless I made one myself previously and froze

> it. I've been trying that, and trying to keep a steady supply of PB

> brownies, SCD cheesecake, and pork roasts around, but it's still

> hard! Any tips for keeping enough food handy? Maybe things that you

> have found easy to make that last a long time?

big pots of soup and casserole - make enough for several helpings of

most things you make,

etc.

> I feel like all I do is divide my time between work and trying to

> find the time to cook enough food. I'm also busy which doesn't help

> and I go to the gym so that takes up alot of time as well.

>

>

> How did you deal with the emotional side of things? Taking the meds

> sucks, and I still feel like i'm never really better, but not really

> that sick either. I still have D and blood even though i'm taking 12

> Asacol a day.

what do you have? It's hard to be advice specific without that. CD

or UC?

If it is one of those two, you should check out the LDN we've

discussed once you get

down to a lower dose of prednisone (as they are counterindicated.)

> It only goes away when I use an entocort enema... EWW... and it's

> only temporary for the day after I use it. Sometimes it really gets

> me down. Expecially the " why me " . I have great support, but nobody

> really knows how i'm feeling unless your going through the same

> things I am. Having your stomach hurt 24/7 for the past year isn't

> comparable to very much... although I do realize alot of people have

> it much worse off than I do. I still don't feel very lucky though.

Well the LDN will almost definitely help with that - -almost

immediately.

>

> -

> 10mg Prednisone (doc thinks i'm taking 20 but I am having the same

> results on 10 as I was on 40.. it's doing nothing)

>

> 4 Asacol 3 times a day. (this helped the first week now it's

> plateued into taking my pain away but I still have the symptoms of

> blood, mucus, and not much else comes out.

>

> entocort enema for " special occasions " when I really want to be

> " normal " the next day.

>

>

>

> ------------------------------------

>

>

[Guest guest]

The best price I found for almond flour is at www.digestivewellness.com . they are much cheaper than my local health food store and offer other foods, appliance and books which cater to the SCD. I got my cookbooks there for much less than I would have paid at and Noble. I am just starting out as well, so this is all I got! > I've been on SCD for about a month. I've tried alot of different > alternatives to medication from day 1 of being diagnosed because > i've never liked taking medicine for anything, but this is the first > time in my life where i'm forced to in order to be able to function > day to day.>> Here's some quick questions.>> Almond flour, how much is too much? It seems like we make everything > from almond flour or peannuts (at least the bread like baked goods) > but i've heard of people developing an allergy to almond flour after > using it for a while. Is this true? If so, should I be limiting my > use of almond flour, or try to use walnut flour instead? Walnut > flour def does not taste as good!not walnut, hazelnut or pecan.>> I guess I would consider myself impatient. I've been

following this > diet super strict for a month, but i've been on it for about 4 > months although I could not be 100% because of weddings or other > once in a lifetime events that I "had" to cheat at. Unfortunatly I > haven't noticed any improvements. I'm going to stay on this diet for > a year because I believe in it, and I want to at least give it a > chance to work. I figure if I did 26 years worth of damage to my > body without knowing it, a year of trying to see some sort of > improvement is worth a shot.>did you do intro? it sounds like if you are having a lot of almond flour one month in, youmay not have gone slowly enough at the beginning really to benefit. Plus - most peoplecannot handle peanuts and peanut butter one month in as well - I certainly could not.> What does everyone cook to eat throuout the week? I am ALWAYS > hungry. I was

always a big eater before even though I always ate > healthy. No potatoes except sweet potatoes, I avoided bread, ect... > but now i'm still hungry and I can't have a quick fix of a frozen > pizza from the atore unless I made one myself previously and froze > it. I've been trying that, and trying to keep a steady supply of PB > brownies, SCD cheesecake, and pork roasts around, but it's still > hard! Any tips for keeping enough food handy? Maybe things that you > have found easy to make that last a long time?big pots of soup and casserole - make enough for several helpings of most things you make,etc.> I feel like all I do is divide my time between work and trying to > find the time to cook enough food. I'm also busy which doesn't help > and I go to the gym so that takes up alot of time as well.>>> How did you deal with the emotional side of

things? Taking the meds > sucks, and I still feel like i'm never really better, but not really > that sick either. I still have D and blood even though i'm taking 12 > Asacol a day.what do you have? It's hard to be advice specific without that. CD or UC?If it is one of those two, you should check out the LDN we've discussed once you getdown to a lower dose of prednisone (as they are counterindicated. )> It only goes away when I use an entocort enema... EWW... and it's > only temporary for the day after I use it. Sometimes it really gets > me down. Expecially the "why me". I have great support, but nobody > really knows how i'm feeling unless your going through the same > things I am. Having your stomach hurt 24/7 for the past year isn't > comparable to very much... although I do realize alot of people have > it much worse off than I do. I still don't

feel very lucky though.Well the LDN will almost definitely help with that - -almost immediately.>> -> 10mg Prednisone (doc thinks i'm taking 20 but I am having the same > results on 10 as I was on 40.. it's doing nothing)>> 4 Asacol 3 times a day. (this helped the first week now it's > plateued into taking my pain away but I still have the symptoms of > blood, mucus, and not much else comes out.>> entocort enema for "special occasions" when I really want to be > "normal" the next day.>>>> ------------ --------- --------- ------>>

[Guest guest]

The best price I found for almond flour is at www.digestivewellness.com . they are much cheaper than my local health food store and offer other foods, appliance and books which cater to the SCD. I got my cookbooks there for much less than I would have paid at and Noble. I am just starting out as well, so this is all I got! > I've been on SCD for about a month. I've tried alot of different > alternatives to medication from day 1 of being diagnosed because > i've never liked taking medicine for anything, but this is the first > time in my life where i'm forced to in order to be able to function > day to day.>> Here's some quick questions.>> Almond flour, how much is too much? It seems like we make everything > from almond flour or peannuts (at least the bread like baked goods) > but i've heard of people developing an allergy to almond flour after > using it for a while. Is this true? If so, should I be limiting my > use of almond flour, or try to use walnut flour instead? Walnut > flour def does not taste as good!not walnut, hazelnut or pecan.>> I guess I would consider myself impatient. I've been

following this > diet super strict for a month, but i've been on it for about 4 > months although I could not be 100% because of weddings or other > once in a lifetime events that I "had" to cheat at. Unfortunatly I > haven't noticed any improvements. I'm going to stay on this diet for > a year because I believe in it, and I want to at least give it a > chance to work. I figure if I did 26 years worth of damage to my > body without knowing it, a year of trying to see some sort of > improvement is worth a shot.>did you do intro? it sounds like if you are having a lot of almond flour one month in, youmay not have gone slowly enough at the beginning really to benefit. Plus - most peoplecannot handle peanuts and peanut butter one month in as well - I certainly could not.> What does everyone cook to eat throuout the week? I am ALWAYS > hungry. I was

always a big eater before even though I always ate > healthy. No potatoes except sweet potatoes, I avoided bread, ect... > but now i'm still hungry and I can't have a quick fix of a frozen > pizza from the atore unless I made one myself previously and froze > it. I've been trying that, and trying to keep a steady supply of PB > brownies, SCD cheesecake, and pork roasts around, but it's still > hard! Any tips for keeping enough food handy? Maybe things that you > have found easy to make that last a long time?big pots of soup and casserole - make enough for several helpings of most things you make,etc.> I feel like all I do is divide my time between work and trying to > find the time to cook enough food. I'm also busy which doesn't help > and I go to the gym so that takes up alot of time as well.>>> How did you deal with the emotional side of

things? Taking the meds > sucks, and I still feel like i'm never really better, but not really > that sick either. I still have D and blood even though i'm taking 12 > Asacol a day.what do you have? It's hard to be advice specific without that. CD or UC?If it is one of those two, you should check out the LDN we've discussed once you getdown to a lower dose of prednisone (as they are counterindicated. )> It only goes away when I use an entocort enema... EWW... and it's > only temporary for the day after I use it. Sometimes it really gets > me down. Expecially the "why me". I have great support, but nobody > really knows how i'm feeling unless your going through the same > things I am. Having your stomach hurt 24/7 for the past year isn't > comparable to very much... although I do realize alot of people have > it much worse off than I do. I still don't

feel very lucky though.Well the LDN will almost definitely help with that - -almost immediately.>> -> 10mg Prednisone (doc thinks i'm taking 20 but I am having the same > results on 10 as I was on 40.. it's doing nothing)>> 4 Asacol 3 times a day. (this helped the first week now it's > plateued into taking my pain away but I still have the symptoms of > blood, mucus, and not much else comes out.>> entocort enema for "special occasions" when I really want to be > "normal" the next day.>>>> ------------ --------- --------- ------>>

[Guest guest]

The best price I found for almond flour is at www.digestivewellness.com . they are much cheaper than my local health food store and offer other foods, appliance and books which cater to the SCD. I got my cookbooks there for much less than I would have paid at and Noble. I am just starting out as well, so this is all I got! > I've been on SCD for about a month. I've tried alot of different > alternatives to medication from day 1 of being diagnosed because > i've never liked taking medicine for anything, but this is the first > time in my life where i'm forced to in order to be able to function > day to day.>> Here's some quick questions.>> Almond flour, how much is too much? It seems like we make everything > from almond flour or peannuts (at least the bread like baked goods) > but i've heard of people developing an allergy to almond flour after > using it for a while. Is this true? If so, should I be limiting my > use of almond flour, or try to use walnut flour instead? Walnut > flour def does not taste as good!not walnut, hazelnut or pecan.>> I guess I would consider myself impatient. I've been

following this > diet super strict for a month, but i've been on it for about 4 > months although I could not be 100% because of weddings or other > once in a lifetime events that I "had" to cheat at. Unfortunatly I > haven't noticed any improvements. I'm going to stay on this diet for > a year because I believe in it, and I want to at least give it a > chance to work. I figure if I did 26 years worth of damage to my > body without knowing it, a year of trying to see some sort of > improvement is worth a shot.>did you do intro? it sounds like if you are having a lot of almond flour one month in, youmay not have gone slowly enough at the beginning really to benefit. Plus - most peoplecannot handle peanuts and peanut butter one month in as well - I certainly could not.> What does everyone cook to eat throuout the week? I am ALWAYS > hungry. I was

always a big eater before even though I always ate > healthy. No potatoes except sweet potatoes, I avoided bread, ect... > but now i'm still hungry and I can't have a quick fix of a frozen > pizza from the atore unless I made one myself previously and froze > it. I've been trying that, and trying to keep a steady supply of PB > brownies, SCD cheesecake, and pork roasts around, but it's still > hard! Any tips for keeping enough food handy? Maybe things that you > have found easy to make that last a long time?big pots of soup and casserole - make enough for several helpings of most things you make,etc.> I feel like all I do is divide my time between work and trying to > find the time to cook enough food. I'm also busy which doesn't help > and I go to the gym so that takes up alot of time as well.>>> How did you deal with the emotional side of

things? Taking the meds > sucks, and I still feel like i'm never really better, but not really > that sick either. I still have D and blood even though i'm taking 12 > Asacol a day.what do you have? It's hard to be advice specific without that. CD or UC?If it is one of those two, you should check out the LDN we've discussed once you getdown to a lower dose of prednisone (as they are counterindicated. )> It only goes away when I use an entocort enema... EWW... and it's > only temporary for the day after I use it. Sometimes it really gets > me down. Expecially the "why me". I have great support, but nobody > really knows how i'm feeling unless your going through the same > things I am. Having your stomach hurt 24/7 for the past year isn't > comparable to very much... although I do realize alot of people have > it much worse off than I do. I still don't

feel very lucky though.Well the LDN will almost definitely help with that - -almost immediately.>> -> 10mg Prednisone (doc thinks i'm taking 20 but I am having the same > results on 10 as I was on 40.. it's doing nothing)>> 4 Asacol 3 times a day. (this helped the first week now it's > plateued into taking my pain away but I still have the symptoms of > blood, mucus, and not much else comes out.>> entocort enema for "special occasions" when I really want to be > "normal" the next day.>>>> ------------ --------- --------- ------>>

[Guest guest]

I've been on SCD for about a month. I've tried alot of different alternatives to medication from day 1 of being diagnosed because i've never liked taking medicine for anything,Ditto. IMO, diet is much better!!! but this is the first time in my life where i'm forced to in order to be able to function day to day.Yup. Nothin' like a 'no choice' situation to really change your life!Here's some quick questions.Almond flour, how much is too much? It seems like we make everything from almond flour or peannuts (at least the bread like baked goods) but i've heard of people developing an allergy to almond flour after using it for a while. Is this true? If so, should I be limiting my use of almond flour, or try to use walnut flour instead? Walnut flour def does not taste as good!Ugh. Walnuts. Look on digestivewellnes.com, they have hazelnut flour and pecan flour as well, so you could rotate through those. Pricey though =( IMO, peanuts are a very bad thing to eat right off, because they are one of the top allergens, apparently very hard to digest as they are actually a bean, and a very advanced food. I think pecan flour is the easiest to digest. If you rotate foods in general you are less likely to become sensitive or allergic to them.I guess I would consider myself impatient. I've been following this diet super strict for a month, but i've been on it for about 4 months although I could not be 100% because of weddings or other once in a lifetime events that I "had" to cheat at. Unfortunatly I haven't noticed any improvements. I'm going to stay on this diet for a year because I believe in it, and I want to at least give it a chance to work. I figure if I did 26 years worth of damage to my body without knowing it, a year of trying to see some sort of improvement is worth a shot.Yeah, I'm lucky because Ive only had UC symptoms for a little over a year. Depending on how long you've been diagnosed, you'll probably take longer to heal. What does everyone cook to eat throuout the week? I am ALWAYS hungry. I was always a big eater before even though I always ate healthy. No potatoes except sweet potatoes, I avoided bread, ect... but now i'm still hungry and I can't have a quick fix of a frozen pizza from the atore unless I made one myself previously and froze it. I've been trying that, and trying to keep a steady supply of PB brownies, SCD cheesecake, and pork roasts around, but it's still hard! Any tips for keeping enough food handy? Maybe things that you have found easy to make that last a long time?Buy an extra freezer, put it in the garage, and stock it with at least one new double batch recipe every week. I'm hopefully getting a freezer soon...SO EXCITED!!! I have a feeling it will make life a lot easier =) I feel like all I do is divide my time between work and trying to find the time to cook enough food. I'm also busy which doesn't help and I go to the gym so that takes up alot of time as well.Same with me and school, although now that schools out its a little easier. How did you deal with the emotional side of things? Taking the meds sucks, and I still feel like i'm never really better, but not really that sick either. I still have D and blood even though i'm taking 12 Asacol a day. For me, the Asacol GAVE me bloody D. Imagine that. My GI was pretty annoying though, because she wouldn't explain what the point was of taking meds that gave you the very symptom you were trying to eliminate.It only goes away when I use an entocort enema... EWW... and it's only temporary for the day after I use it.Bummer. Sometimes it really gets me down. Expecially the "why me". I have great support, but nobody really knows how i'm feeling unless your going through the same things I am. Having your stomach hurt 24/7 for the past year isn't comparable to very much... although I do realize alot of people have it much worse off than I do. I still don't feel very lucky though.This is where this group has been great for me. Once you see what others on here have gone through and have to deal with (I can't even name names cuz there are SO MANY people on here who have such a rough time of it) you will feel so lucky you won't even BELIEVE your great fortune. Believe me, I have my bouts of self pity, but something always gets me out of it. I think of all the people who are paralyzed from the neck down. Why them? At least we have HOPE of a cure. So really, you should think why NOT me. I always think about the poor people in the third world countries who don't even have clean water to drink. Makes me feel pretty lucky. Another thing I think about is how no matter what happens, life goes on. Whatever is happening at the moment will not always be happening, and you just have to get through it the best you can.Okay, that's about all the pep talk I have for now =)Good luck, and just imagine how you'll feel in a year or two when you're off meds! Woot! Pour Dieu, pour terre,Alyssa, 15 UC 1 year

[Guest guest]

I've been on SCD for about a month. I've tried alot of different alternatives to medication from day 1 of being diagnosed because i've never liked taking medicine for anything,Ditto. IMO, diet is much better!!! but this is the first time in my life where i'm forced to in order to be able to function day to day.Yup. Nothin' like a 'no choice' situation to really change your life!Here's some quick questions.Almond flour, how much is too much? It seems like we make everything from almond flour or peannuts (at least the bread like baked goods) but i've heard of people developing an allergy to almond flour after using it for a while. Is this true? If so, should I be limiting my use of almond flour, or try to use walnut flour instead? Walnut flour def does not taste as good!Ugh. Walnuts. Look on digestivewellnes.com, they have hazelnut flour and pecan flour as well, so you could rotate through those. Pricey though =( IMO, peanuts are a very bad thing to eat right off, because they are one of the top allergens, apparently very hard to digest as they are actually a bean, and a very advanced food. I think pecan flour is the easiest to digest. If you rotate foods in general you are less likely to become sensitive or allergic to them.I guess I would consider myself impatient. I've been following this diet super strict for a month, but i've been on it for about 4 months although I could not be 100% because of weddings or other once in a lifetime events that I "had" to cheat at. Unfortunatly I haven't noticed any improvements. I'm going to stay on this diet for a year because I believe in it, and I want to at least give it a chance to work. I figure if I did 26 years worth of damage to my body without knowing it, a year of trying to see some sort of improvement is worth a shot.Yeah, I'm lucky because Ive only had UC symptoms for a little over a year. Depending on how long you've been diagnosed, you'll probably take longer to heal. What does everyone cook to eat throuout the week? I am ALWAYS hungry. I was always a big eater before even though I always ate healthy. No potatoes except sweet potatoes, I avoided bread, ect... but now i'm still hungry and I can't have a quick fix of a frozen pizza from the atore unless I made one myself previously and froze it. I've been trying that, and trying to keep a steady supply of PB brownies, SCD cheesecake, and pork roasts around, but it's still hard! Any tips for keeping enough food handy? Maybe things that you have found easy to make that last a long time?Buy an extra freezer, put it in the garage, and stock it with at least one new double batch recipe every week. I'm hopefully getting a freezer soon...SO EXCITED!!! I have a feeling it will make life a lot easier =) I feel like all I do is divide my time between work and trying to find the time to cook enough food. I'm also busy which doesn't help and I go to the gym so that takes up alot of time as well.Same with me and school, although now that schools out its a little easier. How did you deal with the emotional side of things? Taking the meds sucks, and I still feel like i'm never really better, but not really that sick either. I still have D and blood even though i'm taking 12 Asacol a day. For me, the Asacol GAVE me bloody D. Imagine that. My GI was pretty annoying though, because she wouldn't explain what the point was of taking meds that gave you the very symptom you were trying to eliminate.It only goes away when I use an entocort enema... EWW... and it's only temporary for the day after I use it.Bummer. Sometimes it really gets me down. Expecially the "why me". I have great support, but nobody really knows how i'm feeling unless your going through the same things I am. Having your stomach hurt 24/7 for the past year isn't comparable to very much... although I do realize alot of people have it much worse off than I do. I still don't feel very lucky though.This is where this group has been great for me. Once you see what others on here have gone through and have to deal with (I can't even name names cuz there are SO MANY people on here who have such a rough time of it) you will feel so lucky you won't even BELIEVE your great fortune. Believe me, I have my bouts of self pity, but something always gets me out of it. I think of all the people who are paralyzed from the neck down. Why them? At least we have HOPE of a cure. So really, you should think why NOT me. I always think about the poor people in the third world countries who don't even have clean water to drink. Makes me feel pretty lucky. Another thing I think about is how no matter what happens, life goes on. Whatever is happening at the moment will not always be happening, and you just have to get through it the best you can.Okay, that's about all the pep talk I have for now =)Good luck, and just imagine how you'll feel in a year or two when you're off meds! Woot! Pour Dieu, pour terre,Alyssa, 15 UC 1 year

[Guest guest]

I've been on SCD for about a month. I've tried alot of different alternatives to medication from day 1 of being diagnosed because i've never liked taking medicine for anything,Ditto. IMO, diet is much better!!! but this is the first time in my life where i'm forced to in order to be able to function day to day.Yup. Nothin' like a 'no choice' situation to really change your life!Here's some quick questions.Almond flour, how much is too much? It seems like we make everything from almond flour or peannuts (at least the bread like baked goods) but i've heard of people developing an allergy to almond flour after using it for a while. Is this true? If so, should I be limiting my use of almond flour, or try to use walnut flour instead? Walnut flour def does not taste as good!Ugh. Walnuts. Look on digestivewellnes.com, they have hazelnut flour and pecan flour as well, so you could rotate through those. Pricey though =( IMO, peanuts are a very bad thing to eat right off, because they are one of the top allergens, apparently very hard to digest as they are actually a bean, and a very advanced food. I think pecan flour is the easiest to digest. If you rotate foods in general you are less likely to become sensitive or allergic to them.I guess I would consider myself impatient. I've been following this diet super strict for a month, but i've been on it for about 4 months although I could not be 100% because of weddings or other once in a lifetime events that I "had" to cheat at. Unfortunatly I haven't noticed any improvements. I'm going to stay on this diet for a year because I believe in it, and I want to at least give it a chance to work. I figure if I did 26 years worth of damage to my body without knowing it, a year of trying to see some sort of improvement is worth a shot.Yeah, I'm lucky because Ive only had UC symptoms for a little over a year. Depending on how long you've been diagnosed, you'll probably take longer to heal. What does everyone cook to eat throuout the week? I am ALWAYS hungry. I was always a big eater before even though I always ate healthy. No potatoes except sweet potatoes, I avoided bread, ect... but now i'm still hungry and I can't have a quick fix of a frozen pizza from the atore unless I made one myself previously and froze it. I've been trying that, and trying to keep a steady supply of PB brownies, SCD cheesecake, and pork roasts around, but it's still hard! Any tips for keeping enough food handy? Maybe things that you have found easy to make that last a long time?Buy an extra freezer, put it in the garage, and stock it with at least one new double batch recipe every week. I'm hopefully getting a freezer soon...SO EXCITED!!! I have a feeling it will make life a lot easier =) I feel like all I do is divide my time between work and trying to find the time to cook enough food. I'm also busy which doesn't help and I go to the gym so that takes up alot of time as well.Same with me and school, although now that schools out its a little easier. How did you deal with the emotional side of things? Taking the meds sucks, and I still feel like i'm never really better, but not really that sick either. I still have D and blood even though i'm taking 12 Asacol a day. For me, the Asacol GAVE me bloody D. Imagine that. My GI was pretty annoying though, because she wouldn't explain what the point was of taking meds that gave you the very symptom you were trying to eliminate.It only goes away when I use an entocort enema... EWW... and it's only temporary for the day after I use it.Bummer. Sometimes it really gets me down. Expecially the "why me". I have great support, but nobody really knows how i'm feeling unless your going through the same things I am. Having your stomach hurt 24/7 for the past year isn't comparable to very much... although I do realize alot of people have it much worse off than I do. I still don't feel very lucky though.This is where this group has been great for me. Once you see what others on here have gone through and have to deal with (I can't even name names cuz there are SO MANY people on here who have such a rough time of it) you will feel so lucky you won't even BELIEVE your great fortune. Believe me, I have my bouts of self pity, but something always gets me out of it. I think of all the people who are paralyzed from the neck down. Why them? At least we have HOPE of a cure. So really, you should think why NOT me. I always think about the poor people in the third world countries who don't even have clean water to drink. Makes me feel pretty lucky. Another thing I think about is how no matter what happens, life goes on. Whatever is happening at the moment will not always be happening, and you just have to get through it the best you can.Okay, that's about all the pep talk I have for now =)Good luck, and just imagine how you'll feel in a year or two when you're off meds! Woot! Pour Dieu, pour terre,Alyssa, 15 UC 1 year

[Guest guest]

> I guess I would consider myself impatient. I've been following this diet super

strict for a month, but i've been on it for about 4 months although I could not

be 100% because of weddings or other once in a lifetime events that I " had " to

cheat at.

I think it does take patience, endurance, and needs to be followed strictly to

work. I'm not an expert at these traits either. Focus on one day at a time.

Social situations are the hardest. I've just started at SCD too, but I have

learned to bring my own food along and focus on the other aspects, like being

with people.

>

> What does everyone cook to eat throuout the week? I am ALWAYS hungry.

I am guessing from your posts that you are a young man, and I am a mom of teen

boys who are always hungry. I'm always cooking anyway..LOL, but a key to SCD

success is to cook in large quantities and freeze: soup, cooked chicken,

whatever you like, in individual containers. Adding fats to foods helps with

hunger. I can mix some nut butter, cooked apples with yogurt and cinnamon for a

tasty treat. You can take broth and add any leftover legal cooked meat, veggies

and drop eggs into it while it is boiling to make a healthy egg drop soup meal.

Bake an acorn squash and add butter, or sunflower oil and a little bit of honey

to it.

> How did you deal with the emotional side of things? Especially the " why me " .

It's a challenge.I like this group because it is people from all walks of life

trying to do something about their situation- and helping others by giving

advice. In time, you may be able to share your advice to others on this diet.

The attitude of many of the people here is inspiring. Log on and read if you

feel alone.

I wish you much success and hope you recover soon.

PJ

[Guest guest]

> I guess I would consider myself impatient. I've been following this diet super

strict for a month, but i've been on it for about 4 months although I could not

be 100% because of weddings or other once in a lifetime events that I " had " to

cheat at.

I think it does take patience, endurance, and needs to be followed strictly to

work. I'm not an expert at these traits either. Focus on one day at a time.

Social situations are the hardest. I've just started at SCD too, but I have

learned to bring my own food along and focus on the other aspects, like being

with people.

>

> What does everyone cook to eat throuout the week? I am ALWAYS hungry.

I am guessing from your posts that you are a young man, and I am a mom of teen

boys who are always hungry. I'm always cooking anyway..LOL, but a key to SCD

success is to cook in large quantities and freeze: soup, cooked chicken,

whatever you like, in individual containers. Adding fats to foods helps with

hunger. I can mix some nut butter, cooked apples with yogurt and cinnamon for a

tasty treat. You can take broth and add any leftover legal cooked meat, veggies

and drop eggs into it while it is boiling to make a healthy egg drop soup meal.

Bake an acorn squash and add butter, or sunflower oil and a little bit of honey

to it.

> How did you deal with the emotional side of things? Especially the " why me " .

It's a challenge.I like this group because it is people from all walks of life

trying to do something about their situation- and helping others by giving

advice. In time, you may be able to share your advice to others on this diet.

The attitude of many of the people here is inspiring. Log on and read if you

feel alone.

I wish you much success and hope you recover soon.

PJ

[Guest guest]

> I guess I would consider myself impatient. I've been following this diet super

strict for a month, but i've been on it for about 4 months although I could not

be 100% because of weddings or other once in a lifetime events that I " had " to

cheat at.

I think it does take patience, endurance, and needs to be followed strictly to

work. I'm not an expert at these traits either. Focus on one day at a time.

Social situations are the hardest. I've just started at SCD too, but I have

learned to bring my own food along and focus on the other aspects, like being

with people.

>

> What does everyone cook to eat throuout the week? I am ALWAYS hungry.

I am guessing from your posts that you are a young man, and I am a mom of teen

boys who are always hungry. I'm always cooking anyway..LOL, but a key to SCD

success is to cook in large quantities and freeze: soup, cooked chicken,

whatever you like, in individual containers. Adding fats to foods helps with

hunger. I can mix some nut butter, cooked apples with yogurt and cinnamon for a

tasty treat. You can take broth and add any leftover legal cooked meat, veggies

and drop eggs into it while it is boiling to make a healthy egg drop soup meal.

Bake an acorn squash and add butter, or sunflower oil and a little bit of honey

to it.

> How did you deal with the emotional side of things? Especially the " why me " .

It's a challenge.I like this group because it is people from all walks of life

trying to do something about their situation- and helping others by giving

advice. In time, you may be able to share your advice to others on this diet.

The attitude of many of the people here is inspiring. Log on and read if you

feel alone.

I wish you much success and hope you recover soon.

PJ

[Guest guest]

Hi ,

Welcome!

>

> i've never liked taking medicine for anything, but this is the first

time in my life where i'm forced to in order to be able to function day

to day.

>

I sympathize. I was diagnosed with " mild " UC in 2006 (started having

symptoms in late 2005), and it has taken me several years to understand

that there is no CURE for UC. In fact, after reading BTVC and starting

the diet, I really thought that the diet would heal my colon and I would

be able to go back to eating " normally " after about 2 years - because

that's basically what the book says!

My original goal with SCD was to get off all my meds, which I did by

slowly tapering throughout my first year on SCD. I was med free for

about 9 months and then had some bleeding after receiving IV antibiotics

during outpatient surgery. Modifying the diet and getting back to intro

didn't help. Starting up my meds again didn't help. Finally, I tried

Canasa suppositories (which BTW I would suggest you try instead of the

enemas ... it's still " EWWWW " but I'd say a little less so) and my

bleeding stopped within 2 days. I've weaned off of them but am still

taking my other meds (sulfasalazine 2000 mg a day).

> Here's some quick questions.

>

> Almond flour, how much is too much?

Almond flour is pretty advanced - you might want to try things made with

almond or pecan butter instead. The Peanut Butter brownies in the BTVC

book are good except that peanuts/PB is advanced, so you could try using

pecans instead. If you have (or can borrow) a food processor, you

basically grind up 2 cups of pecans and that will make 1 cup of pecan

butter. They're pretty yummy!

>

> I could not be 100% because of weddings or other once in a lifetime

events that I " had " to cheat at.

Wahhhll, that's not really being " super strict " - those cheats are just

continuing to feed the bad bacteria that's causing you problems. When

Elaine says in the book that you have to be fanatical, she's not

kidding. That means weeding out anything illegal down to what feels like

the molecular level. For things like weddings, you can usually call the

hotel/etc ahead of time and request a meal that has only safe food

(i.e., steak and well-cooked veggies) - or bring your own.

>

> What does everyone cook to eat throuout the week? I am ALWAYS hungry.

This is by far the hardest part of getting used to this lifestyle

change. First, you have to be really and truly strict, because your

hunger is most likely the bad bugs crying out to be fed. Like others

have said, cook big pots of food and freeze some - spend a day over the

weekend just cooking. Always have some leftover meat and slices of

cheese and hard-boiled eggs around - it makes a good quick snack that

will satisfy your hunger. It's hard to learn, but you'll also find that

eating every few hours helps. It may seem weird to have meat and cheese

for breakfast, but it will help.

>

>

> How did you deal with the emotional side of things?

Living with this illness is a challenge and re-making your life around

SCD is also very overwhelming. This group is a great source of

encouragement and support because we've all been there and know how you

feel. But I will say that if you stick with it, follow the gradual

introduction of foods (hopefully you have found the " Pecanbread stages "

guidelines), you really will start to feel better. For me, that has been

HUGE. No more bloating, cramping, blood & mucus with nothing else,

grinding stomach, etc. I can tell my gut is much happier. But yes, it's

definitely 2 steps forward, 3-4 steps back ... and takes time. Plus, you

will eventually get your arms around planning for cooking and managing

your food.

Kathy

UC since 12/05

SCD since 7/07

sulfasalazine 2000 mg/day

[Guest guest]

Hi ,

Welcome!

>

> i've never liked taking medicine for anything, but this is the first

time in my life where i'm forced to in order to be able to function day

to day.

>

I sympathize. I was diagnosed with " mild " UC in 2006 (started having

symptoms in late 2005), and it has taken me several years to understand

that there is no CURE for UC. In fact, after reading BTVC and starting

the diet, I really thought that the diet would heal my colon and I would

be able to go back to eating " normally " after about 2 years - because

that's basically what the book says!

My original goal with SCD was to get off all my meds, which I did by

slowly tapering throughout my first year on SCD. I was med free for

about 9 months and then had some bleeding after receiving IV antibiotics

during outpatient surgery. Modifying the diet and getting back to intro

didn't help. Starting up my meds again didn't help. Finally, I tried

Canasa suppositories (which BTW I would suggest you try instead of the

enemas ... it's still " EWWWW " but I'd say a little less so) and my

bleeding stopped within 2 days. I've weaned off of them but am still

taking my other meds (sulfasalazine 2000 mg a day).

> Here's some quick questions.

>

> Almond flour, how much is too much?

Almond flour is pretty advanced - you might want to try things made with

almond or pecan butter instead. The Peanut Butter brownies in the BTVC

book are good except that peanuts/PB is advanced, so you could try using

pecans instead. If you have (or can borrow) a food processor, you

basically grind up 2 cups of pecans and that will make 1 cup of pecan

butter. They're pretty yummy!

>

> I could not be 100% because of weddings or other once in a lifetime

events that I " had " to cheat at.

Wahhhll, that's not really being " super strict " - those cheats are just

continuing to feed the bad bacteria that's causing you problems. When

Elaine says in the book that you have to be fanatical, she's not

kidding. That means weeding out anything illegal down to what feels like

the molecular level. For things like weddings, you can usually call the

hotel/etc ahead of time and request a meal that has only safe food

(i.e., steak and well-cooked veggies) - or bring your own.

>

> What does everyone cook to eat throuout the week? I am ALWAYS hungry.

This is by far the hardest part of getting used to this lifestyle

change. First, you have to be really and truly strict, because your

hunger is most likely the bad bugs crying out to be fed. Like others

have said, cook big pots of food and freeze some - spend a day over the

weekend just cooking. Always have some leftover meat and slices of

cheese and hard-boiled eggs around - it makes a good quick snack that

will satisfy your hunger. It's hard to learn, but you'll also find that

eating every few hours helps. It may seem weird to have meat and cheese

for breakfast, but it will help.

>

>

> How did you deal with the emotional side of things?

Living with this illness is a challenge and re-making your life around

SCD is also very overwhelming. This group is a great source of

encouragement and support because we've all been there and know how you

feel. But I will say that if you stick with it, follow the gradual

introduction of foods (hopefully you have found the " Pecanbread stages "

guidelines), you really will start to feel better. For me, that has been

HUGE. No more bloating, cramping, blood & mucus with nothing else,

grinding stomach, etc. I can tell my gut is much happier. But yes, it's

definitely 2 steps forward, 3-4 steps back ... and takes time. Plus, you

will eventually get your arms around planning for cooking and managing

your food.

Kathy

UC since 12/05

SCD since 7/07

sulfasalazine 2000 mg/day

[Guest guest]

Hi ,

Welcome!

>

> i've never liked taking medicine for anything, but this is the first

time in my life where i'm forced to in order to be able to function day

to day.

>

I sympathize. I was diagnosed with " mild " UC in 2006 (started having

symptoms in late 2005), and it has taken me several years to understand

that there is no CURE for UC. In fact, after reading BTVC and starting

the diet, I really thought that the diet would heal my colon and I would

be able to go back to eating " normally " after about 2 years - because

that's basically what the book says!

My original goal with SCD was to get off all my meds, which I did by

slowly tapering throughout my first year on SCD. I was med free for

about 9 months and then had some bleeding after receiving IV antibiotics

during outpatient surgery. Modifying the diet and getting back to intro

didn't help. Starting up my meds again didn't help. Finally, I tried

Canasa suppositories (which BTW I would suggest you try instead of the

enemas ... it's still " EWWWW " but I'd say a little less so) and my

bleeding stopped within 2 days. I've weaned off of them but am still

taking my other meds (sulfasalazine 2000 mg a day).

> Here's some quick questions.

>

> Almond flour, how much is too much?

Almond flour is pretty advanced - you might want to try things made with

almond or pecan butter instead. The Peanut Butter brownies in the BTVC

book are good except that peanuts/PB is advanced, so you could try using

pecans instead. If you have (or can borrow) a food processor, you

basically grind up 2 cups of pecans and that will make 1 cup of pecan

butter. They're pretty yummy!

>

> I could not be 100% because of weddings or other once in a lifetime

events that I " had " to cheat at.

Wahhhll, that's not really being " super strict " - those cheats are just

continuing to feed the bad bacteria that's causing you problems. When

Elaine says in the book that you have to be fanatical, she's not

kidding. That means weeding out anything illegal down to what feels like

the molecular level. For things like weddings, you can usually call the

hotel/etc ahead of time and request a meal that has only safe food

(i.e., steak and well-cooked veggies) - or bring your own.

>

> What does everyone cook to eat throuout the week? I am ALWAYS hungry.

This is by far the hardest part of getting used to this lifestyle

change. First, you have to be really and truly strict, because your

hunger is most likely the bad bugs crying out to be fed. Like others

have said, cook big pots of food and freeze some - spend a day over the

weekend just cooking. Always have some leftover meat and slices of

cheese and hard-boiled eggs around - it makes a good quick snack that

will satisfy your hunger. It's hard to learn, but you'll also find that

eating every few hours helps. It may seem weird to have meat and cheese

for breakfast, but it will help.

>

>

> How did you deal with the emotional side of things?

Living with this illness is a challenge and re-making your life around

SCD is also very overwhelming. This group is a great source of

encouragement and support because we've all been there and know how you

feel. But I will say that if you stick with it, follow the gradual

introduction of foods (hopefully you have found the " Pecanbread stages "

guidelines), you really will start to feel better. For me, that has been

HUGE. No more bloating, cramping, blood & mucus with nothing else,

grinding stomach, etc. I can tell my gut is much happier. But yes, it's

definitely 2 steps forward, 3-4 steps back ... and takes time. Plus, you

will eventually get your arms around planning for cooking and managing

your food.

Kathy

UC since 12/05

SCD since 7/07

sulfasalazine 2000 mg/day

[Guest guest]

It is a learning curve in the kitchen- I'm glad it gets to be second nature. I

don't mind the food. It's being in social situations that gets tricky. I suppose

you get used to that too?

It also must help to have SCD friends near you. That's why I like this board- to

not feel alone with this. I suppose in time it gets to be a routine with the

food.

PJ

> >In fact, after reading BTVC and starting the

> >diet, I really thought that the diet would heal

> >my colon and I would be able to go back to

> >eating " normally " after about 2 years - because

> >that's basically what the book says!

>

> One thing to realize is that the longer you have

> been sick (and we are typically sick for some

> time before being diagnosed, if we are ever

> diagnosed), the longer it will take to heal.

>

> I haven't read the book for awhile, because doing

> SCD has become second nature to me, but I think

> it says " two years symptom free " which is not the

> same thing as returning to eating everything you ate before SCD.

>

> You may be amazed at how your definition of

> " normal " eating changes. To me, now, SCD is

> normal. SAD (Standard American Diet) is abnormal.

>

> SCD can probably heal your colon. But it takes time.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

[Guest guest]

Cyn, Here's that 15 year old again:

This is where this group has been great for me. Once you see what others on here have gone through and have to deal with (I can't even name names cuz there are SO MANY people on here who have such a rough time of it) you will feel so lucky you won't even BELIEVE your great fortune. Believe me, I have my bouts of self pity, but something always gets me out of it. I think of all the people who are paralyzed from the neck down. Why them? At least we have HOPE of a cure. So really, you should think why NOT me. I always think about the poor people in the third world countries who don't even have clean water to drink. Makes me feel pretty lucky. Another thing I think about is how no matter what happens, life goes on. Whatever is happening at the moment will not always be happening, and you just have to get through it the best you can.

Okay, that's about all the pep talk I have for now =)

Good luck, and just imagine how you'll feel in a year or two when you're off meds! Woot!

[Guest guest]

Cyn, Here's that 15 year old again:

This is where this group has been great for me. Once you see what others on here have gone through and have to deal with (I can't even name names cuz there are SO MANY people on here who have such a rough time of it) you will feel so lucky you won't even BELIEVE your great fortune. Believe me, I have my bouts of self pity, but something always gets me out of it. I think of all the people who are paralyzed from the neck down. Why them? At least we have HOPE of a cure. So really, you should think why NOT me. I always think about the poor people in the third world countries who don't even have clean water to drink. Makes me feel pretty lucky. Another thing I think about is how no matter what happens, life goes on. Whatever is happening at the moment will not always be happening, and you just have to get through it the best you can.

Okay, that's about all the pep talk I have for now =)

Good luck, and just imagine how you'll feel in a year or two when you're off meds! Woot!

[Guest guest]

Cyn, Here's that 15 year old again:

This is where this group has been great for me. Once you see what others on here have gone through and have to deal with (I can't even name names cuz there are SO MANY people on here who have such a rough time of it) you will feel so lucky you won't even BELIEVE your great fortune. Believe me, I have my bouts of self pity, but something always gets me out of it. I think of all the people who are paralyzed from the neck down. Why them? At least we have HOPE of a cure. So really, you should think why NOT me. I always think about the poor people in the third world countries who don't even have clean water to drink. Makes me feel pretty lucky. Another thing I think about is how no matter what happens, life goes on. Whatever is happening at the moment will not always be happening, and you just have to get through it the best you can.

Okay, that's about all the pep talk I have for now =)

Good luck, and just imagine how you'll feel in a year or two when you're off meds! Woot!

[Guest guest]

Sorry folks. Meant to send some of Alyssa's youthful wisdom to my daughter who could benefit from some of her mature philosophy.

Phyllis

Re: new here, lots to learn.... impatient to heal. Diagnosed with UC

Cyn, Here's that 15 year old again:

This is where this group has been great for me. Once you see what others on here have gone through and have to deal with (I can't even name names cuz there are SO MANY people on here who have such a rough time of it) you will feel so lucky you won't even BELIEVE your great fortune. Believe me, I have my bouts of self pity, but something always gets me out of it. I think of all the people who are paralyzed from the neck down. Why them? At least we have HOPE of a cure. So really, you should think why NOT me. I always think about the poor people in the third world countries who don't even have clean water to drink. Makes me feel pretty lucky. Another thing I think about is how no matter what happens, life goes on. Whatever is happening at the moment will not always be happening, and you just have to get through it the best you can.

Okay, that's about all the pep talk I have for now =)

Good luck, and just imagine how you'll feel in a year or two when you're off meds! Woot!

[Guest guest]

Sorry folks. Meant to send some of Alyssa's youthful wisdom to my daughter who could benefit from some of her mature philosophy.

Phyllis

Re: new here, lots to learn.... impatient to heal. Diagnosed with UC

Cyn, Here's that 15 year old again:

This is where this group has been great for me. Once you see what others on here have gone through and have to deal with (I can't even name names cuz there are SO MANY people on here who have such a rough time of it) you will feel so lucky you won't even BELIEVE your great fortune. Believe me, I have my bouts of self pity, but something always gets me out of it. I think of all the people who are paralyzed from the neck down. Why them? At least we have HOPE of a cure. So really, you should think why NOT me. I always think about the poor people in the third world countries who don't even have clean water to drink. Makes me feel pretty lucky. Another thing I think about is how no matter what happens, life goes on. Whatever is happening at the moment will not always be happening, and you just have to get through it the best you can.

Okay, that's about all the pep talk I have for now =)

Good luck, and just imagine how you'll feel in a year or two when you're off meds! Woot!

[Guest guest]

Sorry folks. Meant to send some of Alyssa's youthful wisdom to my daughter who could benefit from some of her mature philosophy.

Phyllis

Re: new here, lots to learn.... impatient to heal. Diagnosed with UC

Cyn, Here's that 15 year old again:

This is where this group has been great for me. Once you see what others on here have gone through and have to deal with (I can't even name names cuz there are SO MANY people on here who have such a rough time of it) you will feel so lucky you won't even BELIEVE your great fortune. Believe me, I have my bouts of self pity, but something always gets me out of it. I think of all the people who are paralyzed from the neck down. Why them? At least we have HOPE of a cure. So really, you should think why NOT me. I always think about the poor people in the third world countries who don't even have clean water to drink. Makes me feel pretty lucky. Another thing I think about is how no matter what happens, life goes on. Whatever is happening at the moment will not always be happening, and you just have to get through it the best you can.

Okay, that's about all the pep talk I have for now =)

Good luck, and just imagine how you'll feel in a year or two when you're off meds! Woot!

[Guest guest]

I think I see your point. The gut can heal, but if you still have that tendency

are you cured? Despite this debate, we know that medication does not " cure' this

either. If SCD can at least manage symptoms, then it is worth it. From what I

have read there is still that clause that says everyone is different. Some

choose to stop meds and others use meds along with SCD. There are still reports

of some who have normal colonoscopies after years of SCD, and some who eat off

SCD after several years and do OK...and it looks like some here stay on SCD

permanently. We hope for the best, and yes, it is an emotional situation to deal

with the long term of it. I'm glad the diet is helping you. This gives me as a

" newbie " much hope.

PJ

>

> > > One thing to realize is that the longer you have

> > > been sick (and we are typically sick for some

> > > time before being diagnosed, if we are ever

> > > diagnosed), the longer it will take to heal.

> > >

> > > I haven't read the book for awhile, because doing

> > > SCD has become second nature to me, but I think

> > > it says " two years symptom free " which is not the

> > > same thing as returning to eating everything you ate before SCD.

>