Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 We will try to find you some docs in Texas...If nothing comes up, wait until after the new year and post again when there are more folks around to answer...Try to put what you really want to know in your Subject line. Don't worry about being cranky, we all get like that! Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 .. Yea I'm sure we do all understand.. *(sad laugh)*... I can't help with the dr search.. I'm sorry I can't.. i'm in nc.. and don't even have more than a internal medicine dr myself.. I'm only 24 and suffer from bipolar.. and suspected fibro, and myofascial pain. Serena __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 .. Yea I'm sure we do all understand.. *(sad laugh)*... I can't help with the dr search.. I'm sorry I can't.. i'm in nc.. and don't even have more than a internal medicine dr myself.. I'm only 24 and suffer from bipolar.. and suspected fibro, and myofascial pain. Serena __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 Thank you, everyone. I feel even worse that I went off on all of you earlier this evening., because you've been so nice to me and I was so ugly to you. I do live in Lubbock, and I've worked in the medical field for the past 20 years, so I know just about every doctor (and nurse) here. Whoever summarized the doctors in this area did a good job. I could add a few more to your list of those to avoid. And I do not know a good psychiatrist or therapist in this area, and I know every one of them. I moved away 5 years ago (Dr. Mills was my doctor then but he has since retired). I had a bad flare about two years ago, that has just worsened since that time. I've also developed these heart problems and the neuropathy which has made it harder to treat the fibro. Fortunately, the doctor I had up north believed me, listened to me, understood and did everything he could to treat me. But he can't treat me this far away. The neuropathy has damaged the nerves in my feet, hands and bladder. I had cancer and was on chemotherapy for that, and they think the chemo may have contributed to the nerve damage. It could also be the diabetes. My hands and feet have that burning sensation as if they've been asleep and are getting better, only the burning never goes away. I feel like I'm walking with stones in my shoes, and I fall because I can't feel where my feet are. Neurontin helped, but for some reason they had to stop that when I developed the heart problems. The neuropathy effects my bladder in that I'm incontinent (not exactly conducive to developing any long-term relationships with the opposite sex). I'm not sure what diagnosis my doctor used on the SSDI forms. It maybe have been a combination of all of them (I have 9 different medical diagnoses), and not any one that got me approved. I was approved the first time around, and I don't think it was approved on the basis of fibro alone, because if that was all I had, I could still work with that. It may have been the " fibro fog " , because my job requires a lot of concentration and there is no room for mistakes. Also, my memory is like swiss cheese. I don't know if he included the depression, but I've been taking medication for that since I had cancer, which was before I was diagnosed with fibro. A support group in this area would be a great idea. So many people wrote, I'm not sure who suggested that. Thank you to all of you who wrote tonight. I'm not going to be sleeping much tonight (I also have sleep apnea), but your posts were a lot of help to me psychologically. Thank you so much, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 Thank you, everyone. I feel even worse that I went off on all of you earlier this evening., because you've been so nice to me and I was so ugly to you. I do live in Lubbock, and I've worked in the medical field for the past 20 years, so I know just about every doctor (and nurse) here. Whoever summarized the doctors in this area did a good job. I could add a few more to your list of those to avoid. And I do not know a good psychiatrist or therapist in this area, and I know every one of them. I moved away 5 years ago (Dr. Mills was my doctor then but he has since retired). I had a bad flare about two years ago, that has just worsened since that time. I've also developed these heart problems and the neuropathy which has made it harder to treat the fibro. Fortunately, the doctor I had up north believed me, listened to me, understood and did everything he could to treat me. But he can't treat me this far away. The neuropathy has damaged the nerves in my feet, hands and bladder. I had cancer and was on chemotherapy for that, and they think the chemo may have contributed to the nerve damage. It could also be the diabetes. My hands and feet have that burning sensation as if they've been asleep and are getting better, only the burning never goes away. I feel like I'm walking with stones in my shoes, and I fall because I can't feel where my feet are. Neurontin helped, but for some reason they had to stop that when I developed the heart problems. The neuropathy effects my bladder in that I'm incontinent (not exactly conducive to developing any long-term relationships with the opposite sex). I'm not sure what diagnosis my doctor used on the SSDI forms. It maybe have been a combination of all of them (I have 9 different medical diagnoses), and not any one that got me approved. I was approved the first time around, and I don't think it was approved on the basis of fibro alone, because if that was all I had, I could still work with that. It may have been the " fibro fog " , because my job requires a lot of concentration and there is no room for mistakes. Also, my memory is like swiss cheese. I don't know if he included the depression, but I've been taking medication for that since I had cancer, which was before I was diagnosed with fibro. A support group in this area would be a great idea. So many people wrote, I'm not sure who suggested that. Thank you to all of you who wrote tonight. I'm not going to be sleeping much tonight (I also have sleep apnea), but your posts were a lot of help to me psychologically. Thank you so much, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 Please don't be sorry, . Many of us feel that way from time to time, alone that is. I don't post much, either, as I am recovering from pancreatitis, not reelated to the fibro. Is there a university near you? If so, find out about their pain clinic and see if you can get an appointment. And there really are physicians who believe in treating pain, unfortunately you just have to try to find them by hit and miss. Unless you can get a good reference from someone else. Take care....we are going to have a group pity party here one of these days. S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 , Here I go again. :-)) What part of Texas are you from? I am having a bad time with the peripheral neurophy. The pain I get from my legs is sometimes more than I can stand. I surely do understand what you are going through there. As you have probably read, I have just been diagnosed with diabetes so I need to learn what problems I will have there. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 , Here I go again. :-)) What part of Texas are you from? I am having a bad time with the peripheral neurophy. The pain I get from my legs is sometimes more than I can stand. I surely do understand what you are going through there. As you have probably read, I have just been diagnosed with diabetes so I need to learn what problems I will have there. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 < The neurophy has damaged the nerves in my feet, hands and bladder. I had cancer and was on chemotherapy for that, and they think the chemo may have contributed to the nerve damage. It could also be the diabetes. My hands and feet have that burning sensation as if they've been asleep and are getting better, only the burning never goes away. I feel like I'm walking with stones in my shoes, and I fall because I can't feel where my feet are. Neurontin helped, but for some reason they had to stop that when I developed the heart problems >> I certainly can't complain about my neurophy as it is in my legs. That is the only place. Unfortunately I did it to myself. I am a recovering alcoholic. The many years I drank did damage to the nerves in my legs that can never be changed. I drink no longer and haven't for about 6 years but the pain is still in my legs to remind me that I once did. My doctor wants to start me on Neurontin and I think that we will have to discuss it more thoroughly next time in. Thanks for the information about Neurontin. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2001 Report Share Posted December 30, 2001 < The neurophy has damaged the nerves in my feet, hands and bladder. I had cancer and was on chemotherapy for that, and they think the chemo may have contributed to the nerve damage. It could also be the diabetes. My hands and feet have that burning sensation as if they've been asleep and are getting better, only the burning never goes away. I feel like I'm walking with stones in my shoes, and I fall because I can't feel where my feet are. Neurontin helped, but for some reason they had to stop that when I developed the heart problems >> I certainly can't complain about my neurophy as it is in my legs. That is the only place. Unfortunately I did it to myself. I am a recovering alcoholic. The many years I drank did damage to the nerves in my legs that can never be changed. I drink no longer and haven't for about 6 years but the pain is still in my legs to remind me that I once did. My doctor wants to start me on Neurontin and I think that we will have to discuss it more thoroughly next time in. Thanks for the information about Neurontin. Take care, Irene Books may well be the only true magic Alice Hoffman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 ...were are you living in Texas? I am in Dallas. I have a great Neurologist that I see for FM. Let me know if you'd like his info. Anne > Hi, again, > > I'm sorry for my earlier post today. I'm really, really hurting (physically > and emotionally), and everyone knows what that's like. So, I'm having my own > pity party and taking it out on everyone else. I apologize for what I wrote. > > > It does help me to read what everyone else is going through and how they > cope, because many times I'm having similar problems. I shouldn't have > expections of anyone here to meet my needs. > > Review of my intro: I'm 50, just moved to Texas to be closer to my family. > I have a grown son. I'm on SSDI for fibro, CFS, diabetes, peripheral > neuropathy, numerous other neurological problems, heart problems, and > obviously, depression. The doctors think my nervous and cardiac system were > damaged by the chemotherapy I received for cancer, as well as possible damage > from the diabetes. Some days the pain is just more than I can handle, and I > can't find a doctor in Texas who will treat it. I just get the " another drug > seeker " look. Where does anyone in this state go? I would even go to New > Mexico or Oklahoma if I could find a doctor. > > Again, I'm sorry for what I wrote. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 ...were are you living in Texas? I am in Dallas. I have a great Neurologist that I see for FM. Let me know if you'd like his info. Anne > Hi, again, > > I'm sorry for my earlier post today. I'm really, really hurting (physically > and emotionally), and everyone knows what that's like. So, I'm having my own > pity party and taking it out on everyone else. I apologize for what I wrote. > > > It does help me to read what everyone else is going through and how they > cope, because many times I'm having similar problems. I shouldn't have > expections of anyone here to meet my needs. > > Review of my intro: I'm 50, just moved to Texas to be closer to my family. > I have a grown son. I'm on SSDI for fibro, CFS, diabetes, peripheral > neuropathy, numerous other neurological problems, heart problems, and > obviously, depression. The doctors think my nervous and cardiac system were > damaged by the chemotherapy I received for cancer, as well as possible damage > from the diabetes. Some days the pain is just more than I can handle, and I > can't find a doctor in Texas who will treat it. I just get the " another drug > seeker " look. Where does anyone in this state go? I would even go to New > Mexico or Oklahoma if I could find a doctor. > > Again, I'm sorry for what I wrote. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 ...were are you living in Texas? I am in Dallas. I have a great Neurologist that I see for FM. Let me know if you'd like his info. Anne > Hi, again, > > I'm sorry for my earlier post today. I'm really, really hurting (physically > and emotionally), and everyone knows what that's like. So, I'm having my own > pity party and taking it out on everyone else. I apologize for what I wrote. > > > It does help me to read what everyone else is going through and how they > cope, because many times I'm having similar problems. I shouldn't have > expections of anyone here to meet my needs. > > Review of my intro: I'm 50, just moved to Texas to be closer to my family. > I have a grown son. I'm on SSDI for fibro, CFS, diabetes, peripheral > neuropathy, numerous other neurological problems, heart problems, and > obviously, depression. The doctors think my nervous and cardiac system were > damaged by the chemotherapy I received for cancer, as well as possible damage > from the diabetes. Some days the pain is just more than I can handle, and I > can't find a doctor in Texas who will treat it. I just get the " another drug > seeker " look. Where does anyone in this state go? I would even go to New > Mexico or Oklahoma if I could find a doctor. > > Again, I'm sorry for what I wrote. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2009 Report Share Posted February 6, 2009 Sorry on my last post I forgot to change the subject line anyway to change that now??? - Chris Quote Link to comment Share on other sites More sharing options...
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