Re: Re: Good News

March 27, 2004

Hi :

Whenever there's any commercial interest at stake, there's bound to be

competing advertising. That inevitably leads to confusion in the mind of the

potential consumer, i.e. you. You need to focus on the science of surface

replacement

and the track record of the surgeon. That's the way out of the confusion.

All anyone in this group can honestly do, aside from the physicians and

engineers among us, is report their own experience. It's up to you to decide

what

to believe from the surgeon and whether to believe in them.

We all have our own stories and points of view. Ultimately it's your decision

whom you choose to change your life.

Best of luck with your choice. We all took the plunge using this same thought

process.

Des Tuck

Bilateral BHR - Treacy

In a message dated 3/27/2004 10:55:48 AM Pacific Standard Time,

rickn27@... writes:

I'm a little concerned about the very different conclusions about

the BHR voiced by Dr. Amstutz in this link, vs. the excellent

results of the BHR reported elsewhere, and the good statistics from

DeSmet. Seems we have strong disagreement between two of the titans

of surface replacement.

March 27, 2004

I am 34 years old and have been unable to do any physical activity,

aside from walking, for the last 5 years. I live in Canada and have had

a terrible time with the doctors here. They first told me I was too

young for a THR and had to get by with med. After two years of taking

Vioxx and developing a nice addiction to my pain meds I found out about

resurfacing. At this time it was not performed in Canada. I

investigated going overseas to have it done but was unable to because of

the cost. I started saving at once. Two years later my OS went to

England and was trained by McMinn. The local Health dept. approved 75

procedures the first year. I was number 32. The Health dept. made him

stop at 11. By this time I was to the point of barely able to pick-up

my youngest daughter for fear of falling. Just after Christmas I was

taking both of my children to the babysitter when I was going to some

stairs and fell with her in my arms. Nobody was hurt, but that was it

for me. I'm scheduled to have a BHR on April 28th with Dr. De Smet. My

kids will have to pay for College themselves now but that's okay. I

don't care about the disaggrements between the two camps all I now is

that if had a THR I was told no running, no lifting and so on, which to

me means no life. I know a gentleman here who had a BHR with Dr.

Treacey and just got back from 2 weeks of heli skiing in Blue River BC.

Even if this only lasts 10 years I will be extremely grateful. The

government in Canada and the US will probabley do the right thing in the

end and approve this new technology, but I don't have time to wait. I

will be posting how things go for me and will be focusing my attention

on bringing this technology to Canada.

Kent

Re: Re: Good news

Hi :

Whenever there's any commercial interest at stake, there's bound to be

competing advertising. That inevitably leads to confusion in the mind of

the

potential consumer, i.e. you. You need to focus on the science of

surface replacement

and the track record of the surgeon. That's the way out of the

confusion.

All anyone in this group can honestly do, aside from the physicians and

engineers among us, is report their own experience. It's up to you to

decide what

to believe from the surgeon and whether to believe in them.

We all have our own stories and points of view. Ultimately it's your

decision

whom you choose to change your life.

Best of luck with your choice. We all took the plunge using this same

thought

process.

Des Tuck

Bilateral BHR - Treacy

In a message dated 3/27/2004 10:55:48 AM Pacific Standard Time,

rickn27@... writes:

I'm a little concerned about the very different conclusions about

the BHR voiced by Dr. Amstutz in this link, vs. the excellent

results of the BHR reported elsewhere, and the good statistics from

DeSmet. Seems we have strong disagreement between two of the titans

of surface replacement.

March 27, 2004

Kent-

All the best to you. You have picked a fine surgeon. Believe me- your

daughters would much rather have a happy, pain free dad.

Kind Regards,

Rock climbin' Jude

LBHR De Smet 09/11/02

Re: Re: Good news

Hi :

Whenever there's any commercial interest at stake, there's bound to be

competing advertising. That inevitably leads to confusion in the mind of

the

potential consumer, i.e. you. You need to focus on the science of

surface replacement

and the track record of the surgeon. That's the way out of the

confusion.

All anyone in this group can honestly do, aside from the physicians and

engineers among us, is report their own experience. It's up to you to

decide what

to believe from the surgeon and whether to believe in them.

We all have our own stories and points of view. Ultimately it's your

decision

whom you choose to change your life.

Best of luck with your choice. We all took the plunge using this same

thought

process.

Des Tuck

Bilateral BHR - Treacy

In a message dated 3/27/2004 10:55:48 AM Pacific Standard Time,

rickn27@... writes:

I'm a little concerned about the very different conclusions about

the BHR voiced by Dr. Amstutz in this link, vs. the excellent

results of the BHR reported elsewhere, and the good statistics from

DeSmet. Seems we have strong disagreement between two of the titans

of surface replacement.

March 27, 2004

Hi Kent,

A BHR is the spring. How lucky can you get! Yours is an incredible story.

Wish you the very best!

K. r/BHR De Smet Feb 3rd, 04

> am 34 years old and have been unable to do any physical activity,

> aside from walking, for the last 5 years. I live in Canada and have had

> a terrible time with the doctors here. They first told me I was too

> young for a THR and had to get by with med. After two years of taking

> Vioxx and developing a nice addiction to my pain meds I found out about

> resurfacing. At this time it was not performed in Canada. I

> investigated going overseas to have it done but was unable to because of

> the cost. I started saving at once. Two years later my OS went to

> England and was trained by McMinn. The local Health dept. approved 75

> procedures the first year. I was number 32. The Health dept. made him

> stop at 11. By this time I was to the point of barely able to pick-up

> my youngest daughter for fear of falling. Just after Christmas I was

> taking both of my children to the babysitter when I was going to some

> stairs and fell with her in my arms. Nobody was hurt, but that was it

> for me. I'm scheduled to have a BHR on April 28th with Dr. De Smet. My

> kids will have to pay for College themselves now but that's okay. I

> don't care about the disaggrements between the two camps all I now is

> that if had a THR I was told no running, no lifting and so on, which to

> me means no life. I know a gentleman here who had a BHR with Dr.

> Treacey and just got back from 2 weeks of heli skiing in Blue River BC.

> Even if this only lasts 10 years I will be extremely grateful. The

> government in Canada and the US will probabley do the right thing in the

> end and approve this new technology, but I don't have time to wait. I

> will be posting how things go for me and will be focusing my attention

> on bringing this technology to Canada.

>

> Kent

>

> Re: Re: Good news

>

> Hi :

>

> Whenever there's any commercial interest at stake, there's bound to be

> competing advertising. That inevitably leads to confusion in the mind of

> the

> potential consumer, i.e. you. You need to focus on the science of

> surface replacement

> and the track record of the surgeon. That's the way out of the

> confusion.

>

> All anyone in this group can honestly do, aside from the physicians and

> engineers among us, is report their own experience. It's up to you to

> decide what

> to believe from the surgeon and whether to believe in them.

>

> We all have our own stories and points of view. Ultimately it's your

> decision

> whom you choose to change your life.

>

> Best of luck with your choice. We all took the plunge using this same

> thought

> process.

>

> Des Tuck

> Bilateral BHR - Treacy

>

> In a message dated 3/27/2004 10:55:48 AM Pacific Standard Time,

> rickn27@... writes:

> I'm a little concerned about the very different conclusions about

> the BHR voiced by Dr. Amstutz in this link, vs. the excellent

> results of the BHR reported elsewhere, and the good statistics from

> DeSmet. Seems we have strong disagreement between two of the titans

> of surface replacement.

>

March 27, 2004

Good for you, Kent! It's a good move. The right move. Let us know how you get

on.... Joyce (Dr Gross, LHR, 2/2/02)

August 21, 2004

Regarding , I'm not sure what to say. I think I may email Dr. Ponseti to

discuss it further. You know he's not going to say anything poor about Dr.

Dietz, and I don't expect him to, but by the same token, with a room full of

people and a doctor in training as we talked I " m not sure I got the full

picture...... I don't know if 's feet were such that the ATTT just

couldn't succeed, ya know? He does have issues with his feet; they are very

stiff and mobility is a problem - try to imagine running around on ankles that

hardly bend and a heel cord with no stretch in it.

s.

Re: Good News

Hi there,

You and your boys are troopers! That is a long trip, I would do it

too! Great news about Everett. I bet those extra hours out of the

bar are going to be awesome.

I am sorry that Dr. P didn't feel there is anything he can do to help

's feet more. How is his mobility with it? Are there any

exercises that might help?

Louisa

6-27-99

Zoe 2-22-04 RCF

> Hello,

> we made it to Iowa and back! Eleven hours up and twelve hours back

(several traffic jams around Kansas City). Dr. Ponseti was so

thrilled with Everett's progress! He just grinned ear to ear and

kept talking about how happy he was. Everett showed off pushing the

stool (on wheels) around the hall way. He reduced the braces to 60

degrees rather than 70, and reduced our hours down to the 12 - 14

per day range! Woo Hooo! We got our new shoes; the design

is slightly different now but nothing major.

>

> As for 's check up - hmm, I'm not sure what to say.

had the tendon-transfer surgery four years ago by Dr. Dietz. His

feet are very stiff, etc. and Dr. Ponseti said they are OK but the

look on his face and the tone of his voice said other wise......he

spent a great deal of time handling the feet, and he just didn't seem

happy with what he found but told me they were basically as good as

they were going to get. He only has 15 degrees of rotation on one

foot and 10 degrees on the other., almost zero range going up and

down and some other things he said I didn't quite catch because he

was talking to a doctor in training from Brazil. He asked me if

Dietz has seen since he was three yr. old and I said no (he's

never been around when we came back for check ups). Ponseti wanted

Dietz to look at and asked a nurse to get him but he never did

come look although I saw him n the hall a couple times. But Ponseti

kept saying stuff like, " I think Dr. Dietz should look at these

feet. " in such a way as he was displeased and wanted Dietz to see the

feet with his own two eyes. Maybe I'm making more of it than there

was and I certainly mean no disrespect to Dr. Dietz but I was left

feeling unsettled by it all. I've worried a lot about 's feet

and I guess i was hoping to find out maybe I was worried over nothing

but it seems his tendon transfer results or something anyway are not

up to par and there's nothing left to be done about it.

>

> s.

>

August 21, 2004

Well like I said, I really hesitate to say anything bad about Dietz - just the

whole visit regarding has left me feeling uneasy. I emailed Dr. Ponseti

and asked what a normal range would be since 's is at 10 and 15; and I

asked if there were anything I could do at home to improve the situation.

s.

Re: Good News

I'm glad you got good news on Everett's feet. But sorry to hear that

the news did not seem to be as good for . You would have

thought that Dr. Dietz would have came in and at least taken a quick

look. You do have to make an eleven hour trip after all.

Pam and (8-12-01)