Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 (nice name BTW!), That's great that you have cancelled the surgery. For future phone calls, Dr Ponseti is normally in his office on Mon/Wed/Fri. His email responses usually take at least a few days, via his secretary Joyce Roller. She is also very nice, has worked for Dr P for year and she can also help if he isn't in (I have a feeling she's also only there on Mon/Wed/Fri). Good luck! and www.clubfoot.co.za Update on Us I'm the one who joined this week, my son was supposed to have surgery tomorrow. Thanks to this group I cancelled the surgery and made an appointment with Dr. Mack at Shriner's Hospital in Springfield, MA. The appointment's not until late Sept. I hope that's not too late. Dr. Mack is listed on Dr. Ponseti's website as a qualified Ponseti doctor. Has anyone in this group seen him? What did you think of him? After waiting almost two days for an e-mail response from Dr. Ponseti I called his office today. I guess he won't be in until tomorrow and she said she'd have him call me. I'll be curious to see what he has to say. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 (nice name BTW!), That's great that you have cancelled the surgery. For future phone calls, Dr Ponseti is normally in his office on Mon/Wed/Fri. His email responses usually take at least a few days, via his secretary Joyce Roller. She is also very nice, has worked for Dr P for year and she can also help if he isn't in (I have a feeling she's also only there on Mon/Wed/Fri). Good luck! and www.clubfoot.co.za Update on Us I'm the one who joined this week, my son was supposed to have surgery tomorrow. Thanks to this group I cancelled the surgery and made an appointment with Dr. Mack at Shriner's Hospital in Springfield, MA. The appointment's not until late Sept. I hope that's not too late. Dr. Mack is listed on Dr. Ponseti's website as a qualified Ponseti doctor. Has anyone in this group seen him? What did you think of him? After waiting almost two days for an e-mail response from Dr. Ponseti I called his office today. I guess he won't be in until tomorrow and she said she'd have him call me. I'll be curious to see what he has to say. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 (nice name BTW!), That's great that you have cancelled the surgery. For future phone calls, Dr Ponseti is normally in his office on Mon/Wed/Fri. His email responses usually take at least a few days, via his secretary Joyce Roller. She is also very nice, has worked for Dr P for year and she can also help if he isn't in (I have a feeling she's also only there on Mon/Wed/Fri). Good luck! and www.clubfoot.co.za Update on Us I'm the one who joined this week, my son was supposed to have surgery tomorrow. Thanks to this group I cancelled the surgery and made an appointment with Dr. Mack at Shriner's Hospital in Springfield, MA. The appointment's not until late Sept. I hope that's not too late. Dr. Mack is listed on Dr. Ponseti's website as a qualified Ponseti doctor. Has anyone in this group seen him? What did you think of him? After waiting almost two days for an e-mail response from Dr. Ponseti I called his office today. I guess he won't be in until tomorrow and she said she'd have him call me. I'll be curious to see what he has to say. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 - I think you've made a great decision, in cancelling the surgery. I have a feeling Dr. P will tell you to come straight to Iowa but we'll have to wait and see. Please keep us posted. Sorry I have never heard of that doctor. > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Update on Us >Date: Thu, 02 Sep 2004 16:28:21 -0000 > >I'm the one who joined this week, my son was supposed to have surgery >tomorrow. Thanks to this group I cancelled the surgery and made an >appointment with Dr. Mack at Shriner's Hospital in Springfield, MA. >The appointment's not until late Sept. I hope that's not too late. >Dr. Mack is listed on Dr. Ponseti's website as a qualified Ponseti >doctor. Has anyone in this group seen him? What did you think of him? > >After waiting almost two days for an e-mail response from Dr. Ponseti >I called his office today. I guess he won't be in until tomorrow and >she said she'd have him call me. I'll be curious to see what he has >to say. > > > _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 - I think you've made a great decision, in cancelling the surgery. I have a feeling Dr. P will tell you to come straight to Iowa but we'll have to wait and see. Please keep us posted. Sorry I have never heard of that doctor. > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Update on Us >Date: Thu, 02 Sep 2004 16:28:21 -0000 > >I'm the one who joined this week, my son was supposed to have surgery >tomorrow. Thanks to this group I cancelled the surgery and made an >appointment with Dr. Mack at Shriner's Hospital in Springfield, MA. >The appointment's not until late Sept. I hope that's not too late. >Dr. Mack is listed on Dr. Ponseti's website as a qualified Ponseti >doctor. Has anyone in this group seen him? What did you think of him? > >After waiting almost two days for an e-mail response from Dr. Ponseti >I called his office today. I guess he won't be in until tomorrow and >she said she'd have him call me. I'll be curious to see what he has >to say. > > > _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 - I think you've made a great decision, in cancelling the surgery. I have a feeling Dr. P will tell you to come straight to Iowa but we'll have to wait and see. Please keep us posted. Sorry I have never heard of that doctor. > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Update on Us >Date: Thu, 02 Sep 2004 16:28:21 -0000 > >I'm the one who joined this week, my son was supposed to have surgery >tomorrow. Thanks to this group I cancelled the surgery and made an >appointment with Dr. Mack at Shriner's Hospital in Springfield, MA. >The appointment's not until late Sept. I hope that's not too late. >Dr. Mack is listed on Dr. Ponseti's website as a qualified Ponseti >doctor. Has anyone in this group seen him? What did you think of him? > >After waiting almost two days for an e-mail response from Dr. Ponseti >I called his office today. I guess he won't be in until tomorrow and >she said she'd have him call me. I'll be curious to see what he has >to say. > > > _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 , There haven't been too many families here who have posted about seeing Dr. Mack. I think I saw a referral for him on the database when I was in there this morning though. When Dr. Ponseti calls you tomorrow, he may or may not recommend seeing Dr. Mack. The reason that I would be concerned is that your son is " older " and in the interest of time, you'll want to see a doctor who is not only " qualified " but very " experienced " ...especially in treating " older clubfeet " . Were you able to talk to someone who works directly with Dr. Mack (his assistant or nurse) when scheduling your appointment? They might be able to get you in sooner than late September. I would recommend that you try calling the Shriner's (or hunt him down an another hospital if Dr. Mack works at multiple clinics/offices) and asking if you could talk to the doctor or his assistant about your son's case ahead of time, interview them on their use of the method, their successes in treating newborns as well as older infants...you should be able to talk to them ahead of time and not have to wait until your appointment to discuss your son's treatment and if you should be going there or elsewhere. (use the parent checklist on the http://pages.ivillage.com/ponseti_links to help you formulate some questions) I'm so very glad that you found our board! Keep us posted on your conversation with Dr. P and what you decide to do. Good luck!!!!! Regards, & (3-16-00) left clubfoot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 , There haven't been too many families here who have posted about seeing Dr. Mack. I think I saw a referral for him on the database when I was in there this morning though. When Dr. Ponseti calls you tomorrow, he may or may not recommend seeing Dr. Mack. The reason that I would be concerned is that your son is " older " and in the interest of time, you'll want to see a doctor who is not only " qualified " but very " experienced " ...especially in treating " older clubfeet " . Were you able to talk to someone who works directly with Dr. Mack (his assistant or nurse) when scheduling your appointment? They might be able to get you in sooner than late September. I would recommend that you try calling the Shriner's (or hunt him down an another hospital if Dr. Mack works at multiple clinics/offices) and asking if you could talk to the doctor or his assistant about your son's case ahead of time, interview them on their use of the method, their successes in treating newborns as well as older infants...you should be able to talk to them ahead of time and not have to wait until your appointment to discuss your son's treatment and if you should be going there or elsewhere. (use the parent checklist on the http://pages.ivillage.com/ponseti_links to help you formulate some questions) I'm so very glad that you found our board! Keep us posted on your conversation with Dr. P and what you decide to do. Good luck!!!!! Regards, & (3-16-00) left clubfoot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 , Call Shriner's back and ask to talk to this Dr's care coordinator. She/he should have information that indicates CF babies don't wait for appointments. Especially an older baby. Now I'm wondering if this doc has the experience necessary to treat your son properly. Not all Ponseti Dr's have the skills to take on older babies. The appointment should be for tomorrow or Tuesday next week. When we called Shriners the care coordinator got us in the next morning. Of course there's a possibility the care coordinator isn't as familiar with the protocol yet, they may still be new at this (another something to be cautious about though) but the Dr. will make sure you get in. I would call back and push this. At the very least you will get the initial consultation if Dr. P. tells you that you should see a different Dr. I'm sure Dr. P. will tell you the best course of action, and if Joyce says she'll have him call you... he will. It's a holiday weekend so don't worry if you don't hear from him. He might have something planned personally if he's not coming in on Friday which as far as I've heard is one of the normal work days for him. I know all this is crazy , but it'll work out. Be glad your little man isn't being cut open tomorrow. At minimum, you get to spend more time with him happy and pain free right now. Each time I think of you I am so happy that you came here and were willing to accept that there's a better option. I know your son will thank you for it. Talk about in the nick of time! hugs! >Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ At 09:28 AM 9/2/2004, you wrote: >I'm the one who joined this week, my son was supposed to have surgery >tomorrow. Thanks to this group I cancelled the surgery and made an >appointment with Dr. Mack at Shriner's Hospital in Springfield, MA. >The appointment's not until late Sept. I hope that's not too late. >Dr. Mack is listed on Dr. Ponseti's website as a qualified Ponseti >doctor. Has anyone in this group seen him? What did you think of him? > >After waiting almost two days for an e-mail response from Dr. Ponseti >I called his office today. I guess he won't be in until tomorrow and >she said she'd have him call me. I'll be curious to see what he has >to say. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 , Call Shriner's back and ask to talk to this Dr's care coordinator. She/he should have information that indicates CF babies don't wait for appointments. Especially an older baby. Now I'm wondering if this doc has the experience necessary to treat your son properly. Not all Ponseti Dr's have the skills to take on older babies. The appointment should be for tomorrow or Tuesday next week. When we called Shriners the care coordinator got us in the next morning. Of course there's a possibility the care coordinator isn't as familiar with the protocol yet, they may still be new at this (another something to be cautious about though) but the Dr. will make sure you get in. I would call back and push this. At the very least you will get the initial consultation if Dr. P. tells you that you should see a different Dr. I'm sure Dr. P. will tell you the best course of action, and if Joyce says she'll have him call you... he will. It's a holiday weekend so don't worry if you don't hear from him. He might have something planned personally if he's not coming in on Friday which as far as I've heard is one of the normal work days for him. I know all this is crazy , but it'll work out. Be glad your little man isn't being cut open tomorrow. At minimum, you get to spend more time with him happy and pain free right now. Each time I think of you I am so happy that you came here and were willing to accept that there's a better option. I know your son will thank you for it. Talk about in the nick of time! hugs! >Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ At 09:28 AM 9/2/2004, you wrote: >I'm the one who joined this week, my son was supposed to have surgery >tomorrow. Thanks to this group I cancelled the surgery and made an >appointment with Dr. Mack at Shriner's Hospital in Springfield, MA. >The appointment's not until late Sept. I hope that's not too late. >Dr. Mack is listed on Dr. Ponseti's website as a qualified Ponseti >doctor. Has anyone in this group seen him? What did you think of him? > >After waiting almost two days for an e-mail response from Dr. Ponseti >I called his office today. I guess he won't be in until tomorrow and >she said she'd have him call me. I'll be curious to see what he has >to say. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 , I noted the Swenson family's referral to Dr. Mack on the database and looked through the Dec. 2002/ Jan. 2003 posts for their story. Their daughter started seeing Dr. Mack at 8 months old (referred by Dr. P at the time) and she had had a prior tenotomy. The last post I saw was that she had had 4 casts w/ Dr. Mack, but he was concerned about the scar tissue from prior treatment and completing another tenotomy. Hopefully you can email them and they'll get back to you to tell you how treatment worked out for their daughter. Best wishes- & (3-16-00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 > , > There haven't been too many families here who have posted about > seeing Dr. Mack. I think I saw a referral for him on the database > when I was in there this morning though. When Dr. Ponseti calls you > tomorrow, he may or may not recommend seeing Dr. Mack. The reason > that I would be concerned is that your son is " older " and in the > interest of time, you'll want to see a doctor who is not > only " qualified " but very " experienced " ...especially in > treating " older clubfeet " . > Were you able to talk to someone who works directly with Dr. Mack > (his assistant or nurse) when scheduling your appointment? They > might be able to get you in sooner than late September. I would > recommend that you try calling the Shriner's (or hunt him down an > another hospital if Dr. Mack works at multiple clinics/offices) and > asking if you could talk to the doctor or his assistant about your > son's case ahead of time, interview them on their use of the method, > their successes in treating newborns as well as older infants...you > should be able to talk to them ahead of time and not have to wait > until your appointment to discuss your son's treatment and if you > should be going there or elsewhere. (use the parent checklist on the > http://pages.ivillage.com/ponseti_links to help you formulate some > questions) > I'm so very glad that you found our board! Keep us posted on your > conversation with Dr. P and what you decide to do. Good luck!!!!! > Regards, > & (3-16-00) > left clubfoot THanks for the excellent advice. I'll ask Dr. Ponseti all of these questions when he calls tomorrow. Then I'll call and see if I can ask these questions of Dr. Mack. If I have to go to Iowa I'm willing to go. I tried e-mailing the person who recommended Dr. Mack, but it came back. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 > , > > Call Shriner's back and ask to talk to this Dr's care coordinator. She/he > should have information that indicates CF babies don't wait for > appointments. Especially an older baby. Now I'm wondering if this doc has > the experience necessary to treat your son properly. Not all Ponseti Dr's > have the skills to take on older babies. The appointment should be for > tomorrow or Tuesday next week. When we called Shriners the care > coordinator got us in the next morning. Of course there's a possibility > the care coordinator isn't as familiar with the protocol yet, they may > still be new at this (another something to be cautious about though) but > the Dr. will make sure you get in. I would call back and push this. At > the very least you will get the initial consultation if Dr. P. tells you > that you should see a different Dr. I'm sure Dr. P. will tell you the best > course of action, and if Joyce says she'll have him call you... he > will. It's a holiday weekend so don't worry if you don't hear from > him. He might have something planned personally if he's not coming in on > Friday which as far as I've heard is one of the normal work days for him. > > I know all this is crazy , but it'll work out. Be glad your little > man isn't being cut open tomorrow. At minimum, you get to spend more time > with him happy and pain free right now. Each time I think of you I am so > happy that you came here and were willing to accept that there's a better > option. I know your son will thank you for it. Talk about in the nick of > time! > > hugs! > > > >Kori > > Mama of > Kenton 6/98 > Merek 3/00 > Darbi 3/03 - Rt. CF - DBB 12hr/day > (¨`·.·´¨) > `·.¸(¨`·.·´¨) > `·.¸.·´ I'm not sure who the person was who made the appointment. She may not know that I need an earlier appointment. I'll try getting an earlier appointment. It's hard to get the person who makes appointments on the phone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 > , > I noted the Swenson family's referral to Dr. Mack on the database and > looked through the Dec. 2002/ Jan. 2003 posts for their story. Their > daughter started seeing Dr. Mack at 8 months old (referred by Dr. P > at the time) and she had had a prior tenotomy. The last post I saw > was that she had had 4 casts w/ Dr. Mack, but he was concerned about > the scar tissue from prior treatment and completing another > tenotomy. Hopefully you can email them and they'll get back to you > to tell you how treatment worked out for their daughter. > Best wishes- > & (3-16-00) I did e-mail them, but it came back. It sounds like he does work with older babies. That's good to know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 , If that's what she said, I'm sure he'll call. Dr. P. is very good about getting right back to parents. Sometimes emails aren't answered right away because his secretary is the one who checks his email, not him, and she's not there every day. (He dictates email responses to her.) And he's not there every day either. Of course he will talk to you about the doctor you mentioned. I can't recall hearing much about him. I also would want to get in earlier than the end of the month. Have you gotten to the point of exploring the possibilty of going to Iowa (I know it's hard to fathom at first.. but it CAN be done, even having other children..) or to the docs in New York City, or Dr. Herzenberg in Baltimore? I wonder if it would be a possibilty for you to go to this symposium they are having in Baltimore that others have mentioned? There will be quite a gathering of prominent Ponseti method doctors.. maybe they would welcome the chance to have an older child, as yet uncorrected, as part of it.. just a thought.. This is all just from my gut feeling .. for your situation of a child of 9 months. Please keep us informed, and tell us what you hear from Dr. P tomorrow. Hang in there.. you're doing a great job.. Best, and Claire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 , If that's what she said, I'm sure he'll call. Dr. P. is very good about getting right back to parents. Sometimes emails aren't answered right away because his secretary is the one who checks his email, not him, and she's not there every day. (He dictates email responses to her.) And he's not there every day either. Of course he will talk to you about the doctor you mentioned. I can't recall hearing much about him. I also would want to get in earlier than the end of the month. Have you gotten to the point of exploring the possibilty of going to Iowa (I know it's hard to fathom at first.. but it CAN be done, even having other children..) or to the docs in New York City, or Dr. Herzenberg in Baltimore? I wonder if it would be a possibilty for you to go to this symposium they are having in Baltimore that others have mentioned? There will be quite a gathering of prominent Ponseti method doctors.. maybe they would welcome the chance to have an older child, as yet uncorrected, as part of it.. just a thought.. This is all just from my gut feeling .. for your situation of a child of 9 months. Please keep us informed, and tell us what you hear from Dr. P tomorrow. Hang in there.. you're doing a great job.. Best, and Claire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 , If that's what she said, I'm sure he'll call. Dr. P. is very good about getting right back to parents. Sometimes emails aren't answered right away because his secretary is the one who checks his email, not him, and she's not there every day. (He dictates email responses to her.) And he's not there every day either. Of course he will talk to you about the doctor you mentioned. I can't recall hearing much about him. I also would want to get in earlier than the end of the month. Have you gotten to the point of exploring the possibilty of going to Iowa (I know it's hard to fathom at first.. but it CAN be done, even having other children..) or to the docs in New York City, or Dr. Herzenberg in Baltimore? I wonder if it would be a possibilty for you to go to this symposium they are having in Baltimore that others have mentioned? There will be quite a gathering of prominent Ponseti method doctors.. maybe they would welcome the chance to have an older child, as yet uncorrected, as part of it.. just a thought.. This is all just from my gut feeling .. for your situation of a child of 9 months. Please keep us informed, and tell us what you hear from Dr. P tomorrow. Hang in there.. you're doing a great job.. Best, and Claire Quote Link to comment Share on other sites More sharing options...
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