Guest guest Report post Posted May 21, 2011 Great story...Thanks for sharing your families week with us. It does get better, doesnt it. Good job momma. HRH > , my daughter Kylie 26 months just got her first cast on Tuesday. > Tuesday was challenging. All she wanted was to be held and it seemed like > finding a position that we were both comfortable in was tough. > I left the hospital at 11 pm on Tuesday as she finally was drifting to > sleep. (She stayed with Dad while I went to take our 10 month old who > still is nursing back to the hotel). It was so hard to leave her but when > I arrived at 7 the next morning, I arrived to a totally different girl. > She was up, changed and was so excited to see me and show her cast and how > she was walking. > > We had a 2 hour drive home and by the time we got home, she was beat (also > had a pretty good cough going) and I ended up giving her tylenol again as > she seemed uncomfortable. > > This morning she was not interested in eating or moving but I finally > convinced her to go to our play area and she wanted to play dress up. Once > we did that she seemed to perk up. She's being creative on how to get > around and play. Sometimes she's frustrated, other times she isn't. This > evening we took her to the park and she was incredible! I couldn't believe > how well she got around. Once we got home she is very tuckered out and > just wants to cuddle. > > I almost cried when she asked for a shower after the park but she accepted > our " no, not with the cast it can't get wet " answer. > > It does get better!!! > > Becky > > > Becky Stuckless, > Sign Language Interpreter > Doug Reimneitz > 519.818.3203 Quote Share this post Link to post Share on other sites
Guest guest Report post Posted January 9, 2012 Mehtas specialized EDF is a superior treatment for kiddos with scoli, early or late. Ive seen kiddos with curves in the 80's and over 2 yrs old experience outstanding results. It takes longer but is sooo worth it. Some may not get cured completely, but maintaining their alignment, reducing cosmetic deformity, increasing lung space, reducing the curve(s), leveling shoulders/pelvis, etc, etc etc non surgically is doable and worth every cast....My daughter had curves over 100 by age 2 and I know that it was 6.5 yrs of casting that enabled her to live the life she is living now. It helped her in so many ways. Please consider sharing your darlings journey as we need to inform the rest of the world that it works! Thanks Becky. HRH > You're right , but we were on the " late " side of Early Treatment > which made me nervous, thinking I might not get good results so for me - > this side by side xray also validates for these parents (or especially > DOCTORS!) who have kids that hit the age two mark and wonder if casting is > worth it - IT STILL IS!! > > Becky > (Mom to Kylie) > > Cast #1 26 months > Cast #2 29 1/2 months > Cast #3 31 months > Cast #4 34 months > > > On 2012-01-09, at 11:56 AM, heather@... wrote: > >> Seeing the before and after films side by side really validates Early >> Treatment! If there was ever any doubt, xrays can sure get rid of it! >> Great news on Kylies progress! >> HRH >> >> > What a GREAT result first cast! Happy new year to you all and glad >> > has shown her strength and reiliance!! >> > >> > Kylie just got her 4th cast on yesterday. It does get easier! It's >> been >> > interesting to watch her. She had a two week break without a cast, and >> in >> > that two weeks, she figured out how to climb into her high chair. >> (Seat >> > attachment on regular dining chair) Today she stood at the base of the >> > chair and said, Mom, It's hard to climb with the cast and hurts more >> when >> > I fall. YOU pick me up! I'm hoping she gets this one off for a short >> break >> > for her Birthday weekend (March 5th). We opted to not do an xray >> > yesterday. We may do one in a few weeks to see where she is, but I >> can't >> > get over the visible difference in four casts! >> > >> > Becky >> > >> > >> > On 2012-01-05, at 6:15 PM, ricardoperdigao wrote: >> > >> >> Hi everyone, >> >> >> >> Thank you for the help with information and support. was >> >> casted at Chicago Shriners right before Christmas. She was 46 degree >> >> outside the cast and 6 with the first cast. I try not to be over >> >> optimistic, but I am happy that she seems flexible. >> >> >> >> The team in Chicago was amazing! We had an awesome experience and >> they >> >> were extremely helful! >> >> >> >> did great on her initial days with the cast and now runs >> >> around everywhere as if it was not even there. We were concerned, but >> >> everything went well and better than our expectations. She took >> around >> >> 2-3 days to find a way of standing-up by herself and move around at >> >> night (in her crib). >> >> >> >> We extended our stay in Chicago by two days to make sure that the >> cast >> >> was properly trimmed and that was doing fine to fly. >> >> To date, the only maintenance we had to do was add some cotton >> >> (moleskin) between her belly and the cast. I bought the duct tape >> >> recommended, but did not have to use it yet. >> >> >> >> Showering her head became a great family time and we try to always do >> it >> >> together. Life is back to normal and we are very grateful to have >> found >> >> support, information and treatment. >> >> >> >> Happy New Year, >> >> >> >> Perdigao Family >> >> >> >> >> > >> > >> >> > > Quote Share this post Link to post Share on other sites
