Going Hypo-please some answers

[Guest guest]

I will probably have my RAI next month-will know after seeing

Radiation Oncologist on tues, I hope.

Can someone kind of go through just what happens to one's

body and mindstarting with the first day off cytomel? What is a

typical day to day scenario starting with day 1 and ending with the

ablation? Can one function normally? Do you feel totally

different? Can you go out as usual and drive? Can you spend a

normal day if you don't work outside the home anyway, and only

parttime at home?

Please help.

[Guest guest]

Hey ,

I have been reading the posts and from what I can tell it's like

being pregnant each one has their on syntems so you will probably

have to wait and see. Mine were that the first week didn't feel all

that bad except for gaining weight By the time I took my RAI however

I tired very easly was winded just from doing normal stuff . I had

some nasuea before and after my RAI . I also had acking muscles but

that was about all . Alot of people have alot worse syntems than me

and some weren't as bad as mine . So that is why I say you have to

wait and see. Good luck and hope your sytems are no worse than

mine .I just went back on my levoxyal Sat. I am still hypo but look

forward to being better

Anne

In Thyca , " mrudens " <mrudens@y...> wrote:

> I will probably have my RAI next month-will know after seeing

> Radiation Oncologist on tues, I hope.

> Can someone kind of go through just what happens to one's

> body and mindstarting with the first day off cytomel? What is a

> typical day to day scenario starting with day 1 and ending with the

> ablation? Can one function normally? Do you feel totally

> different? Can you go out as usual and drive? Can you spend a

> normal day if you don't work outside the home anyway, and only

> parttime at home?

> Please help.

[Guest guest]

Hey ,

I have been reading the posts and from what I can tell it's like

being pregnant each one has their on syntems so you will probably

have to wait and see. Mine were that the first week didn't feel all

that bad except for gaining weight By the time I took my RAI however

I tired very easly was winded just from doing normal stuff . I had

some nasuea before and after my RAI . I also had acking muscles but

that was about all . Alot of people have alot worse syntems than me

and some weren't as bad as mine . So that is why I say you have to

wait and see. Good luck and hope your sytems are no worse than

mine .I just went back on my levoxyal Sat. I am still hypo but look

forward to being better

Anne

In Thyca , " mrudens " <mrudens@y...> wrote:

> I will probably have my RAI next month-will know after seeing

> Radiation Oncologist on tues, I hope.

> Can someone kind of go through just what happens to one's

> body and mindstarting with the first day off cytomel? What is a

> typical day to day scenario starting with day 1 and ending with the

> ablation? Can one function normally? Do you feel totally

> different? Can you go out as usual and drive? Can you spend a

> normal day if you don't work outside the home anyway, and only

> parttime at home?

> Please help.

[Guest guest]

Hi ,\

Oh I forgot I also had very very very vivid dreams .

Anne

In Thyca , " mrudens " <mrudens@y...> wrote:

> I will probably have my RAI next month-will know after seeing

> Radiation Oncologist on tues, I hope.

> Can someone kind of go through just what happens to one's

> body and mindstarting with the first day off cytomel? What is a

> typical day to day scenario starting with day 1 and ending with the

> ablation? Can one function normally? Do you feel totally

> different? Can you go out as usual and drive? Can you spend a

> normal day if you don't work outside the home anyway, and only

> parttime at home?

> Please help.

[Guest guest]

Hi ,\

Oh I forgot I also had very very very vivid dreams .

Anne

In Thyca , " mrudens " <mrudens@y...> wrote:

> I will probably have my RAI next month-will know after seeing

> Radiation Oncologist on tues, I hope.

> Can someone kind of go through just what happens to one's

> body and mindstarting with the first day off cytomel? What is a

> typical day to day scenario starting with day 1 and ending with the

> ablation? Can one function normally? Do you feel totally

> different? Can you go out as usual and drive? Can you spend a

> normal day if you don't work outside the home anyway, and only

> parttime at home?

> Please help.

[Guest guest]

Hi ,\

Oh I forgot I also had very very very vivid dreams .

Anne

In Thyca , " mrudens " <mrudens@y...> wrote:

> I will probably have my RAI next month-will know after seeing

> Radiation Oncologist on tues, I hope.

> Can someone kind of go through just what happens to one's

> body and mindstarting with the first day off cytomel? What is a

> typical day to day scenario starting with day 1 and ending with the

> ablation? Can one function normally? Do you feel totally

> different? Can you go out as usual and drive? Can you spend a

> normal day if you don't work outside the home anyway, and only

> parttime at home?

> Please help.

[Guest guest]

> I will probably have my RAI next month-will know after seeing

> Radiation Oncologist on tues, I hope.

> Can someone kind of go through just what happens to one's

> body and mindstarting with the first day off cytomel? What is a

> typical day to day scenario starting with day 1 and ending with the

> ablation? Can one function normally? Do you feel totally

> different? Can you go out as usual and drive? Can you spend a

> normal day if you don't work outside the home anyway, and only

> parttime at home?

> Please help.

This is REALLY hard to answer, because we are all SO different. A

small percent of people function so completely normally that they

think they must not be hypo, and another small percent become almost

nonfunctional. The rest of us are somewhere in the middle. And it

can be different from one hypo time to another. I found I got more

tired as the days went on, my brain didn't function as well (typical:

need something from kitchen, go in kitchen, forget what I needed, go

back out, remember, go back in, forget again :-)). I stumbled over my

words - things seemed kind of slurred..which went nicely with the lack

of brain power. I also alternated between getting really grumpy and

really giddy and silly.

My second hypo period, I got to a TSH that was about 3 times that of

my post TT hypo (high being close to 100), and then I got to a point

where I couldn't walk straight ( if I'd been stupid enough to drive,

and been pulled over, I would never have passed the drinking and

driving test). I would actually tilt over to the side a bit as I

walked. Weird. Had headaches from time to time where it felt like my

head would implode.

Which leads me to: I would absolutely, positively, suggest you NOT

drive while off meds - you are as much a danger to yourself and others

as someone who's had some drinks (even if you think you're fine, your

reflexes are slowed down). Here are a few posts to read on this:

Hypo Hell On Wheels - combo of letters from Dr Ain

http://groups.yahoo.com/group/Thyca/message/11724

More on not driving hypo - Sus

http://groups.yahoo.com/group/Thyca/message/20825

Now, all that said, I continued to work through both hypodoms (I work

at home on the computer), though slower (I did have some trouble when

one client had me doing some ordering of products for him...trying to

deal with rows and columns of numbers had my head spinning :-)). I

wouldn't say I functioned normally, but at at a reduced pace. I

definitely went out (with hubby driving) to meetings, parties,

people's homes. I just took my own food along while on the LID. I

was probably a great source of amusement for people :-).

Chances are that you will at the least be more tired than normal - get

rest, exercise but don't push yourself, let the housework go (trust

me..dirt keeps), make easy meals that don't involve a lot of work (tv

dinners for the rest of the family will NOT kill them - my hubby ate a

lot of Healthy Choice meals). And you will likely be the MOST tired

AFTER the RAI, since you'll have been off meds the longest, and will

be most hypo then.

Before you know it (though it seems like forever while you're going

through it), you'll start feeling more and more normal.

My middle 2 posts below tell a bit more about my first LID/RAI

experiences.

Cheers,

Alisa

Currently - TSH 0.09, 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: 100 mCi RAI

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID stuff - http://groups.yahoo.com/group/Thyca/message/25430

[Guest guest]

> I will probably have my RAI next month-will know after seeing

> Radiation Oncologist on tues, I hope.

> Can someone kind of go through just what happens to one's

> body and mindstarting with the first day off cytomel? What is a

> typical day to day scenario starting with day 1 and ending with the

> ablation? Can one function normally? Do you feel totally

> different? Can you go out as usual and drive? Can you spend a

> normal day if you don't work outside the home anyway, and only

> parttime at home?

> Please help.

This is REALLY hard to answer, because we are all SO different. A

small percent of people function so completely normally that they

think they must not be hypo, and another small percent become almost

nonfunctional. The rest of us are somewhere in the middle. And it

can be different from one hypo time to another. I found I got more

tired as the days went on, my brain didn't function as well (typical:

need something from kitchen, go in kitchen, forget what I needed, go

back out, remember, go back in, forget again :-)). I stumbled over my

words - things seemed kind of slurred..which went nicely with the lack

of brain power. I also alternated between getting really grumpy and

really giddy and silly.

My second hypo period, I got to a TSH that was about 3 times that of

my post TT hypo (high being close to 100), and then I got to a point

where I couldn't walk straight ( if I'd been stupid enough to drive,

and been pulled over, I would never have passed the drinking and

driving test). I would actually tilt over to the side a bit as I

walked. Weird. Had headaches from time to time where it felt like my

head would implode.

Which leads me to: I would absolutely, positively, suggest you NOT

drive while off meds - you are as much a danger to yourself and others

as someone who's had some drinks (even if you think you're fine, your

reflexes are slowed down). Here are a few posts to read on this:

Hypo Hell On Wheels - combo of letters from Dr Ain

http://groups.yahoo.com/group/Thyca/message/11724

More on not driving hypo - Sus

http://groups.yahoo.com/group/Thyca/message/20825

Now, all that said, I continued to work through both hypodoms (I work

at home on the computer), though slower (I did have some trouble when

one client had me doing some ordering of products for him...trying to

deal with rows and columns of numbers had my head spinning :-)). I

wouldn't say I functioned normally, but at at a reduced pace. I

definitely went out (with hubby driving) to meetings, parties,

people's homes. I just took my own food along while on the LID. I

was probably a great source of amusement for people :-).

Chances are that you will at the least be more tired than normal - get

rest, exercise but don't push yourself, let the housework go (trust

me..dirt keeps), make easy meals that don't involve a lot of work (tv

dinners for the rest of the family will NOT kill them - my hubby ate a

lot of Healthy Choice meals). And you will likely be the MOST tired

AFTER the RAI, since you'll have been off meds the longest, and will

be most hypo then.

Before you know it (though it seems like forever while you're going

through it), you'll start feeling more and more normal.

My middle 2 posts below tell a bit more about my first LID/RAI

experiences.

Cheers,

Alisa

Currently - TSH 0.09, 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: 100 mCi RAI

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID stuff - http://groups.yahoo.com/group/Thyca/message/25430

[Guest guest]

> I will probably have my RAI next month-will know after seeing

> Radiation Oncologist on tues, I hope.

> Can someone kind of go through just what happens to one's

> body and mindstarting with the first day off cytomel? What is a

> typical day to day scenario starting with day 1 and ending with the

> ablation? Can one function normally? Do you feel totally

> different? Can you go out as usual and drive? Can you spend a

> normal day if you don't work outside the home anyway, and only

> parttime at home?

> Please help.

This is REALLY hard to answer, because we are all SO different. A

small percent of people function so completely normally that they

think they must not be hypo, and another small percent become almost

nonfunctional. The rest of us are somewhere in the middle. And it

can be different from one hypo time to another. I found I got more

tired as the days went on, my brain didn't function as well (typical:

need something from kitchen, go in kitchen, forget what I needed, go

back out, remember, go back in, forget again :-)). I stumbled over my

words - things seemed kind of slurred..which went nicely with the lack

of brain power. I also alternated between getting really grumpy and

really giddy and silly.

My second hypo period, I got to a TSH that was about 3 times that of

my post TT hypo (high being close to 100), and then I got to a point

where I couldn't walk straight ( if I'd been stupid enough to drive,

and been pulled over, I would never have passed the drinking and

driving test). I would actually tilt over to the side a bit as I

walked. Weird. Had headaches from time to time where it felt like my

head would implode.

Which leads me to: I would absolutely, positively, suggest you NOT

drive while off meds - you are as much a danger to yourself and others

as someone who's had some drinks (even if you think you're fine, your

reflexes are slowed down). Here are a few posts to read on this:

Hypo Hell On Wheels - combo of letters from Dr Ain

http://groups.yahoo.com/group/Thyca/message/11724

More on not driving hypo - Sus

http://groups.yahoo.com/group/Thyca/message/20825

Now, all that said, I continued to work through both hypodoms (I work

at home on the computer), though slower (I did have some trouble when

one client had me doing some ordering of products for him...trying to

deal with rows and columns of numbers had my head spinning :-)). I

wouldn't say I functioned normally, but at at a reduced pace. I

definitely went out (with hubby driving) to meetings, parties,

people's homes. I just took my own food along while on the LID. I

was probably a great source of amusement for people :-).

Chances are that you will at the least be more tired than normal - get

rest, exercise but don't push yourself, let the housework go (trust

me..dirt keeps), make easy meals that don't involve a lot of work (tv

dinners for the rest of the family will NOT kill them - my hubby ate a

lot of Healthy Choice meals). And you will likely be the MOST tired

AFTER the RAI, since you'll have been off meds the longest, and will

be most hypo then.

Before you know it (though it seems like forever while you're going

through it), you'll start feeling more and more normal.

My middle 2 posts below tell a bit more about my first LID/RAI

experiences.

Cheers,

Alisa

Currently - TSH 0.09, 140mcg Levoxyl

2/15/2002: Nodule found 2/27/2002: FNA

3/4/2002: Hysterectomy/oopherectomy-possible ovarian cancer - BENIGN!!

4/9/2002: TT - Stage 2 pap 2.5 x 2 x 1.6 cm nodule, dx Hashimotos

5/28/2002: 100 mCi RAI

12/16/02: WBS (5 mCi): clean scan - no thyroid tissue in body!!!

Age: 49 -- Location: near Seattle WA --- Check out my posts:

Radioactive Girl - http://groups.yahoo.com/group/Thyca/message/19472

My LID - http://groups.yahoo.com/group/Thyca/message/15872

My RAI - http://groups.yahoo.com/group/Thyca/message/15873

LID stuff - http://groups.yahoo.com/group/Thyca/message/25430

[Guest guest]

I think I'm one of the unlucky ones, but I'm already feeling symptoms

while I'm still on cytomel -- I've got energy just fine right after I take

it, but in the middle of the day I just need to lie down for an hour or

two. I'm also having back pain. So far my symptoms are strictly physical

-- no brain fog yet.

********************************+

+ Bronstein +

+Associate Professor of History +

+New Mexico State University +

+Las Cruces, NM USA**************

[Guest guest]

>I'm still on cytomel -- I've got energy just fine right after I take

> it, but in the middle of the day I just need to lie down for an

hour or

> two.

, how much cytomel are you taking? Do you take it all at once?

You can split your dose and take it through the day, as long as you

don't exceed your total daily dosage.

When I took it, I started with two doses of 25mcg each, 12 hours

apart. I found that 12 hours was far too long to wait and I was

exhausted by 2:00 in the afternoon. So I started taking the second

dose around noon to 1:00, and did much better. Some people even split

it into more doses to feel more level through the day.

Be careful about taking it too late in the day, or you might be up

all night knitting or plotting your takeover of the world. :-}

Joanne