Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Hi One suggestion for the swelling is to prop Kody's legs up a little when laying down. Don't massage too much since that can overstimulate. Like Louisa said their little legs are very sensitive since they have been in casts for so long. Warm baths help as well, it takes a few weeks for the swelling to noticeably go down. Glad things are going well!! Mia Addisyn (bilateral atypical cf 6/24/04) Cody 2/6/01 loulee3412 loulee3412@...> wrote: Hi , I am so glad Kody is doing well and I am sure you were very relieved when they told you his previous dr. was doing a good job. I would not recommend putting any lotion on them now, just let them be. Also, after casting etc. the leg/foot can be very senstive. I know it is normal for them to be swollen, but not sure how long is too long. I bet it was great seeing him splashing around. Louisa 6-27-99 Zoe 2-22-04 RCF FAB 18/7 > Hi, > I haven't had time to check the postings or even post something for > a while. > Just to remind you: > Kody was born Feb 1 2004 with rt atypical CF. That it is an atypical > one we know only for a short time after I contacted Dr. P. > Kody is Dr. Kings patient in Tarzana. Since Dr. P recommended us to > go and see Dr Colburn we did so 3 weeks ago. It was a very nice trip. > Dr Colburn was very nice and the first Dr who really explained to us > everything just because of that it was already worth it! But the > good thing was that he said that Dr King was doing a good job and > that made me feel very relieved! He put on a new cast and said Kody > is going to be ready for his shoes. So he contacted > for us and ordered them. Last sunday we started putting Kody in the > shoes and it is not easy to deal with them eventhough there are > shoes and there are suppose to be much easier. > We can not get the heel where it belongs. I get it down but not in > the back of the shoe because his leg is so swollen! So it happened > already several times that his foot slipped out. I tried to make it > more tight and that helps but still the heel is lifting from the > bottom. Does anybody know how to get rid of the swollen leg (I tried > already to massage it with some lotion)? > I think if the swelling goes away the shoe will stay in its place. > Anyway I just wanted everybody to know that he is very happy now > (without the cast)! We went to the swimming pool after taking it off > and you guys should have seen that happy face!!! > He already adjusted to the shoes and the bar he knows how to roll > with it and I'm sure he will learn a lot more things! > Thanks for keeping this site up and for all the helpful tips > > Kody 2/1/04 rt atyp CF > Serendy 6/29/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Hi One suggestion for the swelling is to prop Kody's legs up a little when laying down. Don't massage too much since that can overstimulate. Like Louisa said their little legs are very sensitive since they have been in casts for so long. Warm baths help as well, it takes a few weeks for the swelling to noticeably go down. Glad things are going well!! Mia Addisyn (bilateral atypical cf 6/24/04) Cody 2/6/01 loulee3412 loulee3412@...> wrote: Hi , I am so glad Kody is doing well and I am sure you were very relieved when they told you his previous dr. was doing a good job. I would not recommend putting any lotion on them now, just let them be. Also, after casting etc. the leg/foot can be very senstive. I know it is normal for them to be swollen, but not sure how long is too long. I bet it was great seeing him splashing around. Louisa 6-27-99 Zoe 2-22-04 RCF FAB 18/7 > Hi, > I haven't had time to check the postings or even post something for > a while. > Just to remind you: > Kody was born Feb 1 2004 with rt atypical CF. That it is an atypical > one we know only for a short time after I contacted Dr. P. > Kody is Dr. Kings patient in Tarzana. Since Dr. P recommended us to > go and see Dr Colburn we did so 3 weeks ago. It was a very nice trip. > Dr Colburn was very nice and the first Dr who really explained to us > everything just because of that it was already worth it! But the > good thing was that he said that Dr King was doing a good job and > that made me feel very relieved! He put on a new cast and said Kody > is going to be ready for his shoes. So he contacted > for us and ordered them. Last sunday we started putting Kody in the > shoes and it is not easy to deal with them eventhough there are > shoes and there are suppose to be much easier. > We can not get the heel where it belongs. I get it down but not in > the back of the shoe because his leg is so swollen! So it happened > already several times that his foot slipped out. I tried to make it > more tight and that helps but still the heel is lifting from the > bottom. Does anybody know how to get rid of the swollen leg (I tried > already to massage it with some lotion)? > I think if the swelling goes away the shoe will stay in its place. > Anyway I just wanted everybody to know that he is very happy now > (without the cast)! We went to the swimming pool after taking it off > and you guys should have seen that happy face!!! > He already adjusted to the shoes and the bar he knows how to roll > with it and I'm sure he will learn a lot more things! > Thanks for keeping this site up and for all the helpful tips > > Kody 2/1/04 rt atyp CF > Serendy 6/29/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Hi One suggestion for the swelling is to prop Kody's legs up a little when laying down. Don't massage too much since that can overstimulate. Like Louisa said their little legs are very sensitive since they have been in casts for so long. Warm baths help as well, it takes a few weeks for the swelling to noticeably go down. Glad things are going well!! Mia Addisyn (bilateral atypical cf 6/24/04) Cody 2/6/01 loulee3412 loulee3412@...> wrote: Hi , I am so glad Kody is doing well and I am sure you were very relieved when they told you his previous dr. was doing a good job. I would not recommend putting any lotion on them now, just let them be. Also, after casting etc. the leg/foot can be very senstive. I know it is normal for them to be swollen, but not sure how long is too long. I bet it was great seeing him splashing around. Louisa 6-27-99 Zoe 2-22-04 RCF FAB 18/7 > Hi, > I haven't had time to check the postings or even post something for > a while. > Just to remind you: > Kody was born Feb 1 2004 with rt atypical CF. That it is an atypical > one we know only for a short time after I contacted Dr. P. > Kody is Dr. Kings patient in Tarzana. Since Dr. P recommended us to > go and see Dr Colburn we did so 3 weeks ago. It was a very nice trip. > Dr Colburn was very nice and the first Dr who really explained to us > everything just because of that it was already worth it! But the > good thing was that he said that Dr King was doing a good job and > that made me feel very relieved! He put on a new cast and said Kody > is going to be ready for his shoes. So he contacted > for us and ordered them. Last sunday we started putting Kody in the > shoes and it is not easy to deal with them eventhough there are > shoes and there are suppose to be much easier. > We can not get the heel where it belongs. I get it down but not in > the back of the shoe because his leg is so swollen! So it happened > already several times that his foot slipped out. I tried to make it > more tight and that helps but still the heel is lifting from the > bottom. Does anybody know how to get rid of the swollen leg (I tried > already to massage it with some lotion)? > I think if the swelling goes away the shoe will stay in its place. > Anyway I just wanted everybody to know that he is very happy now > (without the cast)! We went to the swimming pool after taking it off > and you guys should have seen that happy face!!! > He already adjusted to the shoes and the bar he knows how to roll > with it and I'm sure he will learn a lot more things! > Thanks for keeping this site up and for all the helpful tips > > Kody 2/1/04 rt atyp CF > Serendy 6/29/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 I don't use the non-skid socks with our shoes, never had the need for them. Regarding the heel pocket though, since we got this 2nd pair in August (almost one month ago? seems longer!) I've noticed at first his foot didn't go down in much but now it does, the leather has softened up quite a bit so they buckle around his foot more snug and even though in a sitting position the heel eases up a tad bit, standing up his heel is all the way down in. s. Re: Update on Kody Dd is in the shoes and we just got back from seeing Dr Ponseti. When we were there put the shoes on Tori and the heal was not completely down and I had also been having that problem so I asked about it. Both Dr Ponseti and said that even if the heal is not completely down that was ok. That it had a deep heal base for the heal to grow into. She hasn't kicked them off yet but did the Markell shoes and her casts. Do you use the gripper socks? I strap the middle strap then flex her toes up with her knee bent and strap the top then go back and retighten the middle strap then do the toe strap. HTH a little. Tori atypical bilateral cf brace 18 hrs a day 12/7/01 non cf Quote Link to comment Share on other sites More sharing options...
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