Re: Sleeping with the cast

[Guest guest]

Hi ,

Can you tell if his cry is pain or just mad? I noticed with Ava she

would wake in the night with her casts on with the first doc due to

pain she would cry so hard then pass out from pain. It was horrible!

Then we switched docs and she would wake once or twice but she had an

angry cry and would drift back of to sleep. It was as if she was just

expressing her dislike to them. I know when we see Dr. Ponseti he

will recast her and I wonder if she will react diffrently due to be

older and just getting use to the DBB and having the casts put back

on.

KK

Olivia 01/03

Ava 05/04 BCF/DBB 2wks Seeing Ponseti, for 2nd opinion

> Christian was a great sleeper until three weeks ago when he started

waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and drifts

back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

Hi ,

's sleep became more disturbed when she started the casting

again too. Since her tenotomy, it's been REALLY bad. I finally had

her weaned from nursing in th middle of the night but now we are

back to nursing 2-3 times every night because I can't listen to her

crying either Uggh, the mommy guilt! I am excited to get her

cast off on Monday but am also VERY worried about how she will

readjust to the DBB.

Don't think I was much help but I wanted to empathize!

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 dyas left!)

Owen and 3/20/99

> Christian was a great sleeper until three weeks ago when he

started waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and

drifts back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

,

Sometimes I fold up a baby blanket or put a thin pillow under

Collin's cast while he sleeps I think the elevation seems to make

him more comfortable. I hope this helps a little.

Michele

Collin 8-24-01

[Guest guest]

Your son has the same birthday as my daughter. I can't believe how

fast she is growing.

Anyway…are you putting a blanket or rolled towel under his knees?

Sometimes that helps. I would let him cry for 5 minutes then go in

and console him. The next time he gets up let him cry for 7 minutes

ect. How many times a night is he waking up? DD has never been a

great sleeper and sleeps from 9-6 but gets up a couple of times in

between. When she gets up before 6 I let her cry a few minutes then

get up and giver her a pacifier. Does he take a pacifier? You could

also try to just give water in the bottle so you don't start any bad

habits of needing the formula in the night for when the cast come

back off. HTH.

Tori 1/30/04 bilateral atypical cf brace 18 hrs

12/7/01 non cf

[Guest guest]

Ive been meaning to ask a somewhat related question to the group. Was

Christian given any type of pain reliever for casting? We were

giving Tylenol w/ Codeine for Elijah to be given one hour before

casting if needed. He's 5 months old and has never really slept thru

the night. A normal night starts w/ him taking a power nap at 7PM,

then hes up for a couple hours, screams til midnight or 1AM. Then hes

up at 0300, 0500, 0700 and between 0900 and 1000. Its not been until

the last four nights that we've gotten any sleep at all and I only

managed to sleep then b/c Ive given him his pain meds before bed.

Its the first time in over 7 months that Ive gotten 6 hours of

straight sleep.

As you can see, I have no advice to offer (outside of giving him a

pain reliever to help w/ discomfort) b/c we're dealing w/ a similiar

issue.

How many parents have been given a Rx pain reliever for their

children for pain management?

Lori

and Elijah 3.26.04 RCF (Plantaris) Serial casting, surgery

tomorrow.

> Christian was a great sleeper until three weeks ago when he started

waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and drifts

back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

Ive been meaning to ask a somewhat related question to the group. Was

Christian given any type of pain reliever for casting? We were

giving Tylenol w/ Codeine for Elijah to be given one hour before

casting if needed. He's 5 months old and has never really slept thru

the night. A normal night starts w/ him taking a power nap at 7PM,

then hes up for a couple hours, screams til midnight or 1AM. Then hes

up at 0300, 0500, 0700 and between 0900 and 1000. Its not been until

the last four nights that we've gotten any sleep at all and I only

managed to sleep then b/c Ive given him his pain meds before bed.

Its the first time in over 7 months that Ive gotten 6 hours of

straight sleep.

As you can see, I have no advice to offer (outside of giving him a

pain reliever to help w/ discomfort) b/c we're dealing w/ a similiar

issue.

How many parents have been given a Rx pain reliever for their

children for pain management?

Lori

and Elijah 3.26.04 RCF (Plantaris) Serial casting, surgery

tomorrow.

> Christian was a great sleeper until three weeks ago when he started

waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and drifts

back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

forgot to mention in my last post....

Ive tried letting him cry it out and it works during the day for nap

times. However, at night, I swear he could cry for 3 hours and still

have enough wind for the rest of the night.

Lori

and Elijah 3.26.04 RCF (plantaris) serial casting pending surgery

tomorrow.

[Guest guest]

forgot to mention in my last post....

Ive tried letting him cry it out and it works during the day for nap

times. However, at night, I swear he could cry for 3 hours and still

have enough wind for the rest of the night.

Lori

and Elijah 3.26.04 RCF (plantaris) serial casting pending surgery

tomorrow.

[Guest guest]

forgot to mention in my last post....

Ive tried letting him cry it out and it works during the day for nap

times. However, at night, I swear he could cry for 3 hours and still

have enough wind for the rest of the night.

Lori

and Elijah 3.26.04 RCF (plantaris) serial casting pending surgery

tomorrow.

[Guest guest]

Lori,

Tylenol w/ codiene is a pretty strong pain reliever. We never gave

any medication (nor did she need any) for the casting

sessions. They weren't painful at all and she was never fussy. The

only time we gave her pain medication was for the tenotomy procedure,

and then we just gave her 2 doses of regular infant tylenol, one

before and one after the procedure as a precautionary measure. I

don't remember her being particularly fussy after that procedure

either.

Does your doctor prescribe Tylenol w/ codiene for all her clubfoot

patients or just for Elijah?

Just my 2 cents, but it seems a little strong.

But then, I'm not sure what kind of manipulations she's using at each

casting session for him either-perhaps it's causing more discomfort

than the traditional Ponseti method techniques.

Best wishes for a successful surgery tomorrow. Please keep us posted.

& (3-16-00)

[Guest guest]

Lori,

Tylenol w/ codiene is a pretty strong pain reliever. We never gave

any medication (nor did she need any) for the casting

sessions. They weren't painful at all and she was never fussy. The

only time we gave her pain medication was for the tenotomy procedure,

and then we just gave her 2 doses of regular infant tylenol, one

before and one after the procedure as a precautionary measure. I

don't remember her being particularly fussy after that procedure

either.

Does your doctor prescribe Tylenol w/ codiene for all her clubfoot

patients or just for Elijah?

Just my 2 cents, but it seems a little strong.

But then, I'm not sure what kind of manipulations she's using at each

casting session for him either-perhaps it's causing more discomfort

than the traditional Ponseti method techniques.

Best wishes for a successful surgery tomorrow. Please keep us posted.

& (3-16-00)

[Guest guest]

Lori,

Tylenol w/ codiene is a pretty strong pain reliever. We never gave

any medication (nor did she need any) for the casting

sessions. They weren't painful at all and she was never fussy. The

only time we gave her pain medication was for the tenotomy procedure,

and then we just gave her 2 doses of regular infant tylenol, one

before and one after the procedure as a precautionary measure. I

don't remember her being particularly fussy after that procedure

either.

Does your doctor prescribe Tylenol w/ codiene for all her clubfoot

patients or just for Elijah?

Just my 2 cents, but it seems a little strong.

But then, I'm not sure what kind of manipulations she's using at each

casting session for him either-perhaps it's causing more discomfort

than the traditional Ponseti method techniques.

Best wishes for a successful surgery tomorrow. Please keep us posted.

& (3-16-00)

[Guest guest]

I think kids just go through spurts like that. He propably is a little

frustrated over the weight of the cast as well.

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot >

>Subject: Sleeping with the cast

>Date: Wed, 8 Sep 2004 09:15:48 -0400

>

>Christian was a great sleeper until three weeks ago when he started waking

>up 2 times a night (which by the way is when he started being casted

>again)!

>I know he isn't hungry because he takes a sip of formula and drifts back to

>sleep in moments. If he didn't have the cast on I think I could let him

>cry

>easier. I am not sure what the problem is.Is the cast bothering him..you

>think? Should I let him cry it out?

>

>

>

>

>

>Mommy to 12/17/98

>

>and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

it sounds like maybe there is too much manipulation. I wouldn't

recommend giving that strong of a drug either, it sounds way too strong for a

little one. If the casting is done correctly it shouldn't hurt that much to

begin with. Sorry you guys are having such a hard time, hopefully it will get

better soon!

Mia

Addisyn (bilat atypical cf 6/24/04)

Cody 2/6/04

Marilouise Tozier verylittlebrain@...> wrote:

Hi ,

's sleep became more disturbed when she started the casting

again too. Since her tenotomy, it's been REALLY bad. I finally had

her weaned from nursing in th middle of the night but now we are

back to nursing 2-3 times every night because I can't listen to her

crying either Uggh, the mommy guilt! I am excited to get her

cast off on Monday but am also VERY worried about how she will

readjust to the DBB.

Don't think I was much help but I wanted to empathize!

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 dyas left!)

Owen and 3/20/99

> Christian was a great sleeper until three weeks ago when he

started waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and

drifts back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

it sounds like maybe there is too much manipulation. I wouldn't

recommend giving that strong of a drug either, it sounds way too strong for a

little one. If the casting is done correctly it shouldn't hurt that much to

begin with. Sorry you guys are having such a hard time, hopefully it will get

better soon!

Mia

Addisyn (bilat atypical cf 6/24/04)

Cody 2/6/04

Marilouise Tozier verylittlebrain@...> wrote:

Hi ,

's sleep became more disturbed when she started the casting

again too. Since her tenotomy, it's been REALLY bad. I finally had

her weaned from nursing in th middle of the night but now we are

back to nursing 2-3 times every night because I can't listen to her

crying either Uggh, the mommy guilt! I am excited to get her

cast off on Monday but am also VERY worried about how she will

readjust to the DBB.

Don't think I was much help but I wanted to empathize!

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 dyas left!)

Owen and 3/20/99

> Christian was a great sleeper until three weeks ago when he

started waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and

drifts back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

Well, here's the thing, I am not sure if it is his cast. He sleeps great

for naps and in the morning he wakes up singing. Tonight I will try and put

a blanket under his knees to elevate them. When he wakes up, I will give

him water and I am not going to run in when he starts crying. We'll see

where that gets me.

Mommy to 12/17/98

and Christian 1/30/04

_____

From:

Sent: Wednesday, September 08, 2004 10:47 AM

To: nosurgery4clubfoot

Subject: Re: Sleeping with the cast

Your son has the same birthday as my daughter. I can't believe how

fast she is growing.

Anyway.are you putting a blanket or rolled towel under his knees?

Sometimes that helps. I would let him cry for 5 minutes then go in

and console him. The next time he gets up let him cry for 7 minutes

ect. How many times a night is he waking up? DD has never been a

great sleeper and sleeps from 9-6 but gets up a couple of times in

between. When she gets up before 6 I let her cry a few minutes then

get up and giver her a pacifier. Does he take a pacifier? You could

also try to just give water in the bottle so you don't start any bad

habits of needing the formula in the night for when the cast come

back off. HTH.

Tori 1/30/04 bilateral atypical cf brace 18 hrs

12/7/01 non cf

[Guest guest]

Well, here's the thing, I am not sure if it is his cast. He sleeps great

for naps and in the morning he wakes up singing. Tonight I will try and put

a blanket under his knees to elevate them. When he wakes up, I will give

him water and I am not going to run in when he starts crying. We'll see

where that gets me.

Mommy to 12/17/98

and Christian 1/30/04

_____

From:

Sent: Wednesday, September 08, 2004 10:47 AM

To: nosurgery4clubfoot

Subject: Re: Sleeping with the cast

Your son has the same birthday as my daughter. I can't believe how

fast she is growing.

Anyway.are you putting a blanket or rolled towel under his knees?

Sometimes that helps. I would let him cry for 5 minutes then go in

and console him. The next time he gets up let him cry for 7 minutes

ect. How many times a night is he waking up? DD has never been a

great sleeper and sleeps from 9-6 but gets up a couple of times in

between. When she gets up before 6 I let her cry a few minutes then

get up and giver her a pacifier. Does he take a pacifier? You could

also try to just give water in the bottle so you don't start any bad

habits of needing the formula in the night for when the cast come

back off. HTH.

Tori 1/30/04 bilateral atypical cf brace 18 hrs

12/7/01 non cf

[Guest guest]

Well, here's the thing, I am not sure if it is his cast. He sleeps great

for naps and in the morning he wakes up singing. Tonight I will try and put

a blanket under his knees to elevate them. When he wakes up, I will give

him water and I am not going to run in when he starts crying. We'll see

where that gets me.

Mommy to 12/17/98

and Christian 1/30/04

_____

From:

Sent: Wednesday, September 08, 2004 10:47 AM

To: nosurgery4clubfoot

Subject: Re: Sleeping with the cast

Your son has the same birthday as my daughter. I can't believe how

fast she is growing.

Anyway.are you putting a blanket or rolled towel under his knees?

Sometimes that helps. I would let him cry for 5 minutes then go in

and console him. The next time he gets up let him cry for 7 minutes

ect. How many times a night is he waking up? DD has never been a

great sleeper and sleeps from 9-6 but gets up a couple of times in

between. When she gets up before 6 I let her cry a few minutes then

get up and giver her a pacifier. Does he take a pacifier? You could

also try to just give water in the bottle so you don't start any bad

habits of needing the formula in the night for when the cast come

back off. HTH.

Tori 1/30/04 bilateral atypical cf brace 18 hrs

12/7/01 non cf

[Guest guest]

Lori,

OMG!! Christian hasn't been that bad since he was first born and boy can I

sympathize with you. You poor thing!! My son can't stay up past 7pm and

then he's out until about 1 or 2. After that he'll get up at 4:30 or 5:00

and then I can get him to sleep again until 6:30. Before the cast he was

able to go to sleep at 7pm and wake up about 6 or 7 the next morning.

We were never told to give him Tylenol or any other kind of pain reliever.

I was under the impression that the manipulation and casting were painless

but now I am wondering. I thought that his discomfort was deriving from the

inability to move about freely, flex his foot and/or lift that heavy cast.

I could be VERY wrong.

Mommy to 12/17/98

and Christian 1/30/04

_____

From: Lori

Sent: Wednesday, September 08, 2004 2:37 PM

To: nosurgery4clubfoot

Subject: Re: Sleeping with the cast

Ive been meaning to ask a somewhat related question to the group. Was

Christian given any type of pain reliever for casting? We were

giving Tylenol w/ Codeine for Elijah to be given one hour before

casting if needed. He's 5 months old and has never really slept thru

the night. A normal night starts w/ him taking a power nap at 7PM,

then hes up for a couple hours, screams til midnight or 1AM. Then hes

up at 0300, 0500, 0700 and between 0900 and 1000. Its not been until

the last four nights that we've gotten any sleep at all and I only

managed to sleep then b/c Ive given him his pain meds before bed.

Its the first time in over 7 months that Ive gotten 6 hours of

straight sleep.

As you can see, I have no advice to offer (outside of giving him a

pain reliever to help w/ discomfort) b/c we're dealing w/ a similiar

issue.

How many parents have been given a Rx pain reliever for their

children for pain management?

Lori

and Elijah 3.26.04 RCF (Plantaris) Serial casting, surgery

tomorrow.

> Christian was a great sleeper until three weeks ago when he started

waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and drifts

back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

Lori,

OMG!! Christian hasn't been that bad since he was first born and boy can I

sympathize with you. You poor thing!! My son can't stay up past 7pm and

then he's out until about 1 or 2. After that he'll get up at 4:30 or 5:00

and then I can get him to sleep again until 6:30. Before the cast he was

able to go to sleep at 7pm and wake up about 6 or 7 the next morning.

We were never told to give him Tylenol or any other kind of pain reliever.

I was under the impression that the manipulation and casting were painless

but now I am wondering. I thought that his discomfort was deriving from the

inability to move about freely, flex his foot and/or lift that heavy cast.

I could be VERY wrong.

Mommy to 12/17/98

and Christian 1/30/04

_____

From: Lori

Sent: Wednesday, September 08, 2004 2:37 PM

To: nosurgery4clubfoot

Subject: Re: Sleeping with the cast

Ive been meaning to ask a somewhat related question to the group. Was

Christian given any type of pain reliever for casting? We were

giving Tylenol w/ Codeine for Elijah to be given one hour before

casting if needed. He's 5 months old and has never really slept thru

the night. A normal night starts w/ him taking a power nap at 7PM,

then hes up for a couple hours, screams til midnight or 1AM. Then hes

up at 0300, 0500, 0700 and between 0900 and 1000. Its not been until

the last four nights that we've gotten any sleep at all and I only

managed to sleep then b/c Ive given him his pain meds before bed.

Its the first time in over 7 months that Ive gotten 6 hours of

straight sleep.

As you can see, I have no advice to offer (outside of giving him a

pain reliever to help w/ discomfort) b/c we're dealing w/ a similiar

issue.

How many parents have been given a Rx pain reliever for their

children for pain management?

Lori

and Elijah 3.26.04 RCF (Plantaris) Serial casting, surgery

tomorrow.

> Christian was a great sleeper until three weeks ago when he started

waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and drifts

back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

Lori,

OMG!! Christian hasn't been that bad since he was first born and boy can I

sympathize with you. You poor thing!! My son can't stay up past 7pm and

then he's out until about 1 or 2. After that he'll get up at 4:30 or 5:00

and then I can get him to sleep again until 6:30. Before the cast he was

able to go to sleep at 7pm and wake up about 6 or 7 the next morning.

We were never told to give him Tylenol or any other kind of pain reliever.

I was under the impression that the manipulation and casting were painless

but now I am wondering. I thought that his discomfort was deriving from the

inability to move about freely, flex his foot and/or lift that heavy cast.

I could be VERY wrong.

Mommy to 12/17/98

and Christian 1/30/04

_____

From: Lori

Sent: Wednesday, September 08, 2004 2:37 PM

To: nosurgery4clubfoot

Subject: Re: Sleeping with the cast

Ive been meaning to ask a somewhat related question to the group. Was

Christian given any type of pain reliever for casting? We were

giving Tylenol w/ Codeine for Elijah to be given one hour before

casting if needed. He's 5 months old and has never really slept thru

the night. A normal night starts w/ him taking a power nap at 7PM,

then hes up for a couple hours, screams til midnight or 1AM. Then hes

up at 0300, 0500, 0700 and between 0900 and 1000. Its not been until

the last four nights that we've gotten any sleep at all and I only

managed to sleep then b/c Ive given him his pain meds before bed.

Its the first time in over 7 months that Ive gotten 6 hours of

straight sleep.

As you can see, I have no advice to offer (outside of giving him a

pain reliever to help w/ discomfort) b/c we're dealing w/ a similiar

issue.

How many parents have been given a Rx pain reliever for their

children for pain management?

Lori

and Elijah 3.26.04 RCF (Plantaris) Serial casting, surgery

tomorrow.

> Christian was a great sleeper until three weeks ago when he started

waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and drifts

back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

As for lack of sleep and a screaming baby all night all I know to say is that

for the first 4 months of Everett's life all he did was scream. All day. Every

day. No matter what. There was a 2 week stretch where I never saw my own bed,

no lie. I'd be up on the sofa with him all night, walking the floors, whatever,

night after bloody night after bloody night my God it was the worst time of my

life and my dh would find me asleep in some of the weirdest positions where I

crashed holding on to the baby and there he'd be, still crying and me asleep

holding him for a moment. Sometimes if I turned on my breast pump the gentle

sound of it's motor would lull him to sleep a while, other times the swing

worked, but mostly he didn't sleep, he screamed until we all cried with him. We

went to doctors for him, " what is wrong? " and they'd tell us, " he's a

baby " ......... He turns a year old in a few days, and it seems like he cannot

be a year old. Basically we lost those first 4 months, we didn't get a baby

until he was 4 months old if that makes sense. He still wakes up a lot at

night, but it's nothing like it used to be.

s.

Re: Sleeping with the cast

Lori,

Tylenol w/ codiene is a pretty strong pain reliever. We never gave

any medication (nor did she need any) for the casting

sessions. They weren't painful at all and she was never fussy. The

only time we gave her pain medication was for the tenotomy procedure,

and then we just gave her 2 doses of regular infant tylenol, one

before and one after the procedure as a precautionary measure. I

don't remember her being particularly fussy after that procedure

either.

Does your doctor prescribe Tylenol w/ codiene for all her clubfoot

patients or just for Elijah?

Just my 2 cents, but it seems a little strong.

But then, I'm not sure what kind of manipulations she's using at each

casting session for him either-perhaps it's causing more discomfort

than the traditional Ponseti method techniques.

Best wishes for a successful surgery tomorrow. Please keep us posted.

& (3-16-00)

[Guest guest]

As for lack of sleep and a screaming baby all night all I know to say is that

for the first 4 months of Everett's life all he did was scream. All day. Every

day. No matter what. There was a 2 week stretch where I never saw my own bed,

no lie. I'd be up on the sofa with him all night, walking the floors, whatever,

night after bloody night after bloody night my God it was the worst time of my

life and my dh would find me asleep in some of the weirdest positions where I

crashed holding on to the baby and there he'd be, still crying and me asleep

holding him for a moment. Sometimes if I turned on my breast pump the gentle

sound of it's motor would lull him to sleep a while, other times the swing

worked, but mostly he didn't sleep, he screamed until we all cried with him. We

went to doctors for him, " what is wrong? " and they'd tell us, " he's a

baby " ......... He turns a year old in a few days, and it seems like he cannot

be a year old. Basically we lost those first 4 months, we didn't get a baby

until he was 4 months old if that makes sense. He still wakes up a lot at

night, but it's nothing like it used to be.

s.

Re: Sleeping with the cast

Lori,

Tylenol w/ codiene is a pretty strong pain reliever. We never gave

any medication (nor did she need any) for the casting

sessions. They weren't painful at all and she was never fussy. The

only time we gave her pain medication was for the tenotomy procedure,

and then we just gave her 2 doses of regular infant tylenol, one

before and one after the procedure as a precautionary measure. I

don't remember her being particularly fussy after that procedure

either.

Does your doctor prescribe Tylenol w/ codiene for all her clubfoot

patients or just for Elijah?

Just my 2 cents, but it seems a little strong.

But then, I'm not sure what kind of manipulations she's using at each

casting session for him either-perhaps it's causing more discomfort

than the traditional Ponseti method techniques.

Best wishes for a successful surgery tomorrow. Please keep us posted.

& (3-16-00)

[Guest guest]

We never had pain issues with Dr Ponseti casts but lots of pain issues with

non-ponseti method casting.

s.

Re: Re: Sleeping with the cast

it sounds like maybe there is too much manipulation. I wouldn't

recommend giving that strong of a drug either, it sounds way too strong for a

little one. If the casting is done correctly it shouldn't hurt that much to

begin with. Sorry you guys are having such a hard time, hopefully it will get

better soon!

Mia

Addisyn (bilat atypical cf 6/24/04)

Cody 2/6/04

Marilouise Tozier verylittlebrain@...> wrote:

Hi ,

's sleep became more disturbed when she started the casting

again too. Since her tenotomy, it's been REALLY bad. I finally had

her weaned from nursing in th middle of the night but now we are

back to nursing 2-3 times every night because I can't listen to her

crying either Uggh, the mommy guilt! I am excited to get her

cast off on Monday but am also VERY worried about how she will

readjust to the DBB.

Don't think I was much help but I wanted to empathize!

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 dyas left!)

Owen and 3/20/99

> Christian was a great sleeper until three weeks ago when he

started waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and

drifts back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

[Guest guest]

We never had pain issues with Dr Ponseti casts but lots of pain issues with

non-ponseti method casting.

s.

Re: Re: Sleeping with the cast

it sounds like maybe there is too much manipulation. I wouldn't

recommend giving that strong of a drug either, it sounds way too strong for a

little one. If the casting is done correctly it shouldn't hurt that much to

begin with. Sorry you guys are having such a hard time, hopefully it will get

better soon!

Mia

Addisyn (bilat atypical cf 6/24/04)

Cody 2/6/04

Marilouise Tozier verylittlebrain@...> wrote:

Hi ,

's sleep became more disturbed when she started the casting

again too. Since her tenotomy, it's been REALLY bad. I finally had

her weaned from nursing in th middle of the night but now we are

back to nursing 2-3 times every night because I can't listen to her

crying either Uggh, the mommy guilt! I am excited to get her

cast off on Monday but am also VERY worried about how she will

readjust to the DBB.

Don't think I was much help but I wanted to empathize!

Marilouise

9/9/03, LCF, 3 week cast after 2nd tenotomy (5 dyas left!)

Owen and 3/20/99

> Christian was a great sleeper until three weeks ago when he

started waking

> up 2 times a night (which by the way is when he started being

casted again)!

> I know he isn't hungry because he takes a sip of formula and

drifts back to

> sleep in moments. If he didn't have the cast on I think I could

let him cry

> easier. I am not sure what the problem is.Is the cast bothering

him..you

> think? Should I let him cry it out?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>