Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Hi everyone-does anyone know how big the shoes for the DBB go up to? I have been on the phone several times last week and today trying to get a prescription for my son faxed to the prosthetic lab. I was told that I could just go in and pick them up without my son-now I am told he has to be with me. Also, the lab said that they don't think that the shoes go above a size 5, which is what my son is in now. Do they? I thought I read on here that some people have their DBB and shoes mailed to them. Is this correct, and if so, where do you get them from? Our dr. said that our son could be out of the shoes by now (he's almost 2 1/2) and that he wouldn't have to see him for another 2 years, but I am would still really like him to be in them. I think that is why I had such a hard time getting the prescrip. They don't bother him and I think " better safe, than sorry " . I don't want to have gone through this much only to have him regress. Sorry this is kind of confusing, but I am confused as to why bigger shoes wouldn't be available. Thanks, Kim and Jaren ucf (4-18-02) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Hi, Kim! You're right. The Markell shoes are now available up to size 8. If you go to this link: http://www.markellshoe.com/ponsetiflyer.pdf on page 2 of the flyer is a shoe chart that you can print off and use to size Jaren's next shoes. You are exactly right to try to keep him in them as long as he is willing. We have had a few families post recently whose children have relapsed after being out of the brace at age 3. If you want more motivation to keep him in the shoes, you just need to read the posts from Zevi's and Kavan's families this summer- they posted their stories as a " warning " to others. The risk of relapse gradually decreases with age, but if you can keep him in the shoes until at least age 4- that's the best bet. If your doctor wants to let him out of the brace at age 2.5, then maybe you should suggest that your doctor contact Dr. Morcuende at the U of Iowa to discuss Dr. Morcuende's recent findings regarding rates of relapse. He presented the information at a POSNA meeting this year also, though I haven't seen a published paper w/ the results as of yet. I believe that you could order the shoes direct from Jay at Markell Shoe Company. I don't know where you would order the bar from if you needed a larger one though. The supplier information (for the bar) is at this site: http://pages.ivillage.com/ponseti_links under the bracing information section, but I don't know if you can order direct from that company. Hope this helps! & (3-16-00) left clubfoot, switched to Ponseti method at 4 mo. old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Dear Kim & Jaren, Good News! We now make the straight last boots for the DBB up to size 9. We added sizes 8.5 and 9 a few months ago in response to modification of the Ponseti Protocol and demand from parents. The only shoe that is only made up to size 5 is our reverse last open-toe boot. That model is not used as commonly on patients being treated by the Ponseti Method. I hope this helps you! Best of Luck! Jay Markell- Markell Shoe Co. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Looks like you can order the bar from Markell Shoe Co. also per that flyer. I don't know if you'll need a prescription or not. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 WOW!! Thanks Jay!! It is great to hear that the shoes are now coming in larger sizes. Becky is now in a 5 and I was starting to wonder what we were going to do next. , mom to Becky 11/12/01 bilateral clubfoot > Dear Kim & Jaren, > > Good News! We now make the straight last boots for the DBB up to size > 9. > We added sizes 8.5 and 9 a few months ago in response to modification > of the Ponseti Protocol and demand from parents. The only shoe that is > only > made up to size 5 is our reverse last open-toe boot. That model is not > used as commonly on patients being treated by the Ponseti Method. > > I hope this helps you! > > Best of Luck! > > Jay Markell- Markell Shoe Co. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Hi Kim- My son is in a 6 1/2 and I believe they make them up to size 8 right now. We order ours without a prescription from Ease Distributers . You have to leave a message and then they will call you back. They charge you for shipping and ship them to your house directly. > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: bigger shoes? >Date: Mon, 13 Sep 2004 20:36:46 -0000 > >Hi everyone-does anyone know how big the shoes for the DBB go up to? >I have been on the phone several times last week and today trying to >get a prescription for my son faxed to the prosthetic lab. I was >told that I could just go in and pick them up without my son-now I am >told he has to be with me. Also, the lab said that they don't think >that the shoes go above a size 5, which is what my son is in now. Do >they? I thought I read on here that some people have their DBB and >shoes mailed to them. Is this correct, and if so, where do you get >them from? Our dr. said that our son could be out of the shoes by >now (he's almost 2 1/2) and that he wouldn't have to see him for >another 2 years, but I am would still really like him to be in them. >I think that is why I had such a hard time getting the prescrip. They >don't bother him and I think " better safe, than sorry " . I don't want >to have gone through this much only to have him regress. >Sorry this is kind of confusing, but I am confused as to why bigger >shoes wouldn't be available. >Thanks, >Kim and Jaren ucf (4-18-02) > _________________________________________________________________ Get ready for school! Find articles, homework help and more in the Back to School Guide! http://special.msn.com/network/04backtoschool.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Kim, Someone has probably answered your questions by now, but I'm on digest version, so Iget groups of messages about every 12 hours... thus the delay... So, to answer your question, the Markell shoes now come in size 9! Jay Markell showed me the size 9s at the symposium in Baltimore. I thought Zoe was going to need them, but Dr. Herzenberg decided she was ready to stop wearing the shoes early at age 3 years 4 months. she was really having a hard time sleeping and the size 9s weren't going to be available for awhile, so she was released. The first time we met Dr. Herzenberg, he really stressed that they need to wear the shoes for as long as possible, especially if they're still tolerating them ok. So, the answer to your second question is that you are right, your child should continue to wear the shoes for a lot longer than 2 1/2 years! this is another very bad deviation that doctors are making to the method. The chance of recurrence (relapse) is greatest between 2 and 2 1/2 years old because of discontinuing with the brace too early. Something like 87% of relapses... This is why we switched from doctor number 2 to doctor herzenberg. Our second doc said it was ridiculous how long Dr. Ponseti makes them wear the shoes. Where is her 50+ years of research to back up that claim when our daughter was her first Ponseti patient? That's what I want to know. Just my 3 cents... Best, Joanne W. mom to Zoe (3-25-01, right clubfoot) www.geocities.com/joannewalton2003/clubfootstory.html Message: 19 Date: Mon, 13 Sep 2004 20:36:46 -0000 Subject: bigger shoes? Hi everyone-does anyone know how big the shoes for the DBB go up to? I have been on the phone several times last week and today trying to get a prescription for my son faxed to the prosthetic lab. I was told that I could just go in and pick them up without my son-now I am told he has to be with me. Also, the lab said that they don't think that the shoes go above a size 5, which is what my son is in now. Do they? I thought I read on here that some people have their DBB and shoes mailed to them. Is this correct, and if so, where do you get them from? Our dr. said that our son could be out of the shoes by now (he's almost 2 1/2) and that he wouldn't have to see him for another 2 years, but I am would still really like him to be in them. I think that is why I had such a hard time getting the prescrip. They don't bother him and I think " better safe, than sorry " . I don't want to have gone through this much only to have him regress. Sorry this is kind of confusing, but I am confused as to why bigger shoes wouldn't be available. Thanks, Kim and Jaren ucf (4-18-02) _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 The doctor that we dumped said would only have to wear the shoes and bar until 1 year old. Whew! I am so glad we got rid of him! Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.