Re: Heels won't go down - Kori

[Guest guest]

A healing cast probably isn't a bad idea to get the sores healed up.

How well do his feet flex up? Do you think he needs a tenotomy? If

the shoes just won't work maybe you should look into the

shoes. If you can't get in today they make a blister banaid that

might work to cover the sores for the weekend. When dd got a

pressure sore it really helped her. Do your shoes have the heal

insert? Hang in there most of us have had this problem at one time

or another. We feel your pain.

[Guest guest]

A healing cast probably isn't a bad idea to get the sores healed up.

How well do his feet flex up? Do you think he needs a tenotomy? If

the shoes just won't work maybe you should look into the

shoes. If you can't get in today they make a blister banaid that

might work to cover the sores for the weekend. When dd got a

pressure sore it really helped her. Do your shoes have the heal

insert? Hang in there most of us have had this problem at one time

or another. We feel your pain.

[Guest guest]

,

I'm sorry~! How frustrating! It really sounds to me like the foot is not

corrected. I know Dr. Feldman is a good Ponseti Dr. but it sounds like he

miss something with your son. I would be really interested in seeing the

pics, can you send them to the CFPics list? Here's what I would do if I

were you... Take the damn shoes off! They will do not good if his foot is

lying sideways and the heel is up AND with SORES!!! Just forget them for

right now. Call the Dr. and demand further casting. Today. If you have

to, go there and stand in the front office and don't leave till you get

your child's foot on the way to being fixed. If the foot is corrected, and

the shoes applied properly (you are an expert now - you won't make any more

mistakes) they won't hurt his feet. But the sores MUST be healed well and

the heel needs to drop down before you try again. He didn't have the

tenotomy? Can you take a pic of you dorsiflexing his foot profile view

too? Something is funky if you can't even GET the heel down into the shoe.

LMK if you're not a member of CFPics, and I'll make sure to get you subbed

right away. You can fill out the form later. No biggie. Let's just get

this little boy's foot corrected. It's a long weekend, if you don't get

something done today it won't be till Tuesday next week and he'll

absolutely loose whatever correction he's got. But do NOT put those shoes

back on. Loosing correction is absolutely preferable to making those sores

hurt him more.

Let us know how it goes, I might go out on the island this weekend, but my

cell # is if you need. And the rest of the great parents are

here, I'm not the only expert on sores around here you know. Lots of us

have been through this, many who needed more correction (in fact most).

Hang in there, it WILL get better.

Kori

Mama of

Kenton 6/98

Merek 3/00

Darbi 3/03 - Rt. CF - DBB 12hr/day

(¨`·.·´¨)

`·.¸(¨`·.·´¨)

`·.¸.·´

At 05:43 AM 9/3/2004, you wrote:

>Thanks for the helpful information. I measured 's foot as you

>suggested, and realized that I am not only 1 or 2 mm off, but about

>10 or more! I marked on his leg where it should be, and thought I now

>had the answer. Well I am now totally beside myself, because I simply

>CANNOT get his foot to go down to where it should be. I found that

>his foot is lying sideways in the shoe, and when I get that sorted

>out, it goes down, but then no matter how much force of shoving the

>heel in, or pulling the strap tight (often do this with a helper to

>keep the foot in place) I find that once the strap is fastened and

>the laces tied, the heel is about 5 mm or more too high, moving

>quickly to even more. I have done it over and over and over, until I

>want to cry, but have had NO success in getting the heel so low.

>

>I am at my wits end now. now has two VERY horrible looking

>sores on his heels. They are both about the size of a nickle, white

>with a red ring around it, and one of them has a purple spot in the

>middle, which is just getting bigger.

>

>I have tried every single tip you have given, but just can't get this

>right. I thought I was so well read in how to get the shoes on that I

>would manage well, but now I am really despairing. I called the doc

>yesterday, and spoke to the nurse. She suggested I call the

>orthotist, and get the shoes adjusted. They were closed, so I am

>going to call today, but the receptionist is SOOO rude, that I'm sure

>she will only give me an appointment for next week - though I will

>fight for one today. However, I don't think that they will be able to

>do anything with the shoes, but I must try before I call them back.

>Now with the long weekend ahead, I am so stressed that I feel sick. I

>simply cannot put the boots back onto those tender little feet, but I

>know how quickly the feet relapse. I am thinking that perhaps he

>needs another cast. I sent an email together with a photo of

>'s feet to Dr. Feldman this morning, and will see what he

>says. However, another cast will not solve the problem of the boots.

>Once he is back into the boots, the problem will recur.

>

>Is there any hope??

> and 06/24/04 bc dbb 23h

>

>

>

>

>

[Guest guest]

,

I'm sorry~! How frustrating! It really sounds to me like the foot is not

corrected. I know Dr. Feldman is a good Ponseti Dr. but it sounds like he

miss something with your son. I would be really interested in seeing the

pics, can you send them to the CFPics list? Here's what I would do if I

were you... Take the damn shoes off! They will do not good if his foot is

lying sideways and the heel is up AND with SORES!!! Just forget them for

right now. Call the Dr. and demand further casting. Today. If you have

to, go there and stand in the front office and don't leave till you get

your child's foot on the way to being fixed. If the foot is corrected, and

the shoes applied properly (you are an expert now - you won't make any more

mistakes) they won't hurt his feet. But the sores MUST be healed well and

the heel needs to drop down before you try again. He didn't have the

tenotomy? Can you take a pic of you dorsiflexing his foot profile view

too? Something is funky if you can't even GET the heel down into the shoe.

LMK if you're not a member of CFPics, and I'll make sure to get you subbed

right away. You can fill out the form later. No biggie. Let's just get

this little boy's foot corrected. It's a long weekend, if you don't get

something done today it won't be till Tuesday next week and he'll

absolutely loose whatever correction he's got. But do NOT put those shoes

back on. Loosing correction is absolutely preferable to making those sores

hurt him more.

Let us know how it goes, I might go out on the island this weekend, but my

cell # is if you need. And the rest of the great parents are

here, I'm not the only expert on sores around here you know. Lots of us

have been through this, many who needed more correction (in fact most).

Hang in there, it WILL get better.

Kori

Mama of

Kenton 6/98

Merek 3/00

Darbi 3/03 - Rt. CF - DBB 12hr/day

(¨`·.·´¨)

`·.¸(¨`·.·´¨)

`·.¸.·´

At 05:43 AM 9/3/2004, you wrote:

>Thanks for the helpful information. I measured 's foot as you

>suggested, and realized that I am not only 1 or 2 mm off, but about

>10 or more! I marked on his leg where it should be, and thought I now

>had the answer. Well I am now totally beside myself, because I simply

>CANNOT get his foot to go down to where it should be. I found that

>his foot is lying sideways in the shoe, and when I get that sorted

>out, it goes down, but then no matter how much force of shoving the

>heel in, or pulling the strap tight (often do this with a helper to

>keep the foot in place) I find that once the strap is fastened and

>the laces tied, the heel is about 5 mm or more too high, moving

>quickly to even more. I have done it over and over and over, until I

>want to cry, but have had NO success in getting the heel so low.

>

>I am at my wits end now. now has two VERY horrible looking

>sores on his heels. They are both about the size of a nickle, white

>with a red ring around it, and one of them has a purple spot in the

>middle, which is just getting bigger.

>

>I have tried every single tip you have given, but just can't get this

>right. I thought I was so well read in how to get the shoes on that I

>would manage well, but now I am really despairing. I called the doc

>yesterday, and spoke to the nurse. She suggested I call the

>orthotist, and get the shoes adjusted. They were closed, so I am

>going to call today, but the receptionist is SOOO rude, that I'm sure

>she will only give me an appointment for next week - though I will

>fight for one today. However, I don't think that they will be able to

>do anything with the shoes, but I must try before I call them back.

>Now with the long weekend ahead, I am so stressed that I feel sick. I

>simply cannot put the boots back onto those tender little feet, but I

>know how quickly the feet relapse. I am thinking that perhaps he

>needs another cast. I sent an email together with a photo of

>'s feet to Dr. Feldman this morning, and will see what he

>says. However, another cast will not solve the problem of the boots.

>Once he is back into the boots, the problem will recur.

>

>Is there any hope??

> and 06/24/04 bc dbb 23h

>

>

>

>

>

[Guest guest]

I hate to hear when there is a distinctively similar story to ours!

Addisyn had the exact same experience as . She was in her

shoes starting last Thurs. to that Sat and had gotten nickel size

pressure sores on her heels as well. One of them opened up

immediately and the other just opened up yesterday, a whole week

later! They take forever to heal it seems like. After our ordeal

is when I made the call to Dr Ponseti and he diagnosed her with the

Atypical syndrome. Have you talked with him yet to see his feeling

on the situation? He was very helpful to me and made me realize

that we have expended our treatment options here with our current

doctor so we are going to head out to Iowa and see the man himself.

Let me know if there is any info I can help you with, as I have been

the crazy woman trying to find more out about Atypical syndrome!!

Mia

>

> >Thanks for the helpful information. I measured 's foot as

you

> >suggested, and realized that I am not only 1 or 2 mm off, but

about

> >10 or more! I marked on his leg where it should be, and thought I

now

> >had the answer. Well I am now totally beside myself, because I

simply

> >CANNOT get his foot to go down to where it should be. I found that

> >his foot is lying sideways in the shoe, and when I get that sorted

> >out, it goes down, but then no matter how much force of shoving

the

> >heel in, or pulling the strap tight (often do this with a helper

to

> >keep the foot in place) I find that once the strap is fastened and

> >the laces tied, the heel is about 5 mm or more too high, moving

> >quickly to even more. I have done it over and over and over,

until I

> >want to cry, but have had NO success in getting the heel so low.

> >

> >I am at my wits end now. now has two VERY horrible

looking

> >sores on his heels. They are both about the size of a nickle,

white

> >with a red ring around it, and one of them has a purple spot in

the

> >middle, which is just getting bigger.

> >

> >I have tried every single tip you have given, but just can't get

this

> >right. I thought I was so well read in how to get the shoes on

that I

> >would manage well, but now I am really despairing. I called the

doc

> >yesterday, and spoke to the nurse. She suggested I call the

> >orthotist, and get the shoes adjusted. They were closed, so I am

> >going to call today, but the receptionist is SOOO rude, that I'm

sure

> >she will only give me an appointment for next week - though I will

> >fight for one today. However, I don't think that they will be

able to

> >do anything with the shoes, but I must try before I call them

back.

> >Now with the long weekend ahead, I am so stressed that I feel

sick. I

> >simply cannot put the boots back onto those tender little feet,

but I

> >know how quickly the feet relapse. I am thinking that perhaps he

> >needs another cast. I sent an email together with a photo of

> >'s feet to Dr. Feldman this morning, and will see what he

> >says. However, another cast will not solve the problem of the

boots.

> >Once he is back into the boots, the problem will recur.

> >

> >Is there any hope??

> > and 06/24/04 bc dbb 23h

> >

> >

> >

> >

> >

[Guest guest]

I agree, take the shoes off. The sores will just get worse and then take

longer to heal if you leave them on. Get in with the Dr. ASAP. It does sound

like the foot is not fully corrected if you can't get the heel flat no matter

what you try and if it is twisted inside the shoes. We did stretching

excersises when Kaitlin's foot was out of the brace because of sores, you might

try

that. We were told to do them 10 times/hour awake IIRC.

I remember being stressed about relapsing until we got in with the doctor.

It will be okay even if a slight relapse does occur. It is better than painful

sores that take forever to heal. You are likely looking at another cast

anyways to let the sores heal. So, if you didn't get into see the doctor today,

try

not to feel too bad. You are doing all that you can. It is not your fault

that the shoes aren't working properly.

My heart is with you because I know that no matter how much you try to

prepare for something like this, you can't and that sucks.

Freeman