Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 I've heard a lot of good things about throughout the years and I'm not even in that part of the country. -------------- Original message -------------- > We are in Stamford. Very close (15 minutes) to the NY border. > > Barbara Mellert wrote: Hi Ann Marie - you're > just down the road (well, a couple of hours) from > me - we live in western New Hampshire. Isquith is a > neuropsychologist here who's excellent with deaf/hard of hearing kids. > I have his email address at work and can send that to you. I know there > are neuropsychs at Boston Children's also - I'm sure others on this list > will have their names. Where in CT are you? > > Thanks > Barbara > > > Ann Marie on wrote: > > >Thanks everyone for your replies. WE live in Connecticut. receives > Teacher of the Deaf 1xweek, OT 2x month, PT 2x month, and will be (FINALLY!) > beginning with a speech therapist 1x week. She recently (Sept) had a > psychological as a part of an ELGAN (Extremely Low Gestational Age Newborn) > follow up. She did very well, no problems were observed. I did not have any > worries at that time. I am not impressed with the testing done by CT's Birth > to Three system. I am thinking I will pursue some additional testing privately. > I reallly don't think she is autistic. While she may demonstrate a few of the > symptoms, I don't think it is enough. Of course I am not a doc, but I am a > special ed teacher and have worked with many spectrum kids. I have had > suspicions of mosaic Down syndrome for a long time - although testing is normal, > she has many of the features. My worries were more along the lines of cognitive > issues. But I don't know. What kind of doc and what kind of testing > > should I look for? > > Thanks! > > Ann MArie > > > >Barbara Mellert wrote: > > HI Ann Marie - I know how hard this is for you! While her symptoms seem > >to look like other things, bottom line is you're worried so it merits > >further investigation. 's suggestion of having her tested further > >by a psychologist who's versed in hearing loss makes excellent sense. > >I'm sorry - I can't remember where you're located but if you let us > >know, maybe a list-mate can give you a name. > > > >Hugs, > >Barbara > > > >Ann Marie on wrote: > > > > > > > >>My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her > and her triplet sisters to preschool at our local Catholic school starting in > September-actually I think it starts the last week of Aug. . It is coming soon > and I am starting to get worried about how she will do. I don't know if any of > the things that worry me have to do with her hearing loss or not. But she seems > like she is so immature. She doesn't seem to " get it " in alot of situations. > She does alot of naughty things that her sisters do too, but when I give her > time out, she seems like she doesn't understand. It doesn't bother her. It > doesn't seem to sink in when I explain things to her about danger or destructive > behavior that her sisters seem to pick up on (not that they will never do the > behavior again, but I can tell they " get it " that it's not OK to do it). She > also seems to not " get it " about other things. Like she will look out the window > and say " raining outside " when it is sunn! > >>y. I will > >>say " Oh, , you remember it was raining outside yesterday, don't you? > Look, now it's sunny. No rain today! " She will say again " raining outside " . She > will continue to repeat it over and over and over. I continue to acknowledge > what she is saying, but try to tell her the correct information, that NO it is > NOT raining now. She doesn't seem to get it. Her sisters might say something > incorrect like that but when I tell them the correct information, like " I know > that looks a bit like a cow, but that is called a moose. " THey will stop saying > " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying > " cow, cow,cow " . > >> THe 3 of them go to a 2's program right now that is for children who receive > early intervention (although the early intervention program does not fund it). > is actualy the only one of my girls who receives services. There is a > circle time where the kids sit in little chairs. they have snack time and art > activities at a table. Those " sitting " times are very hard for her and she > seems so impulsive getting up constantly and needing to be directed back to her > seat. There are alot of adults in the room - basically ususally one-on-one with > the 8 children. I just can't imagine that in 7 months she will be able to sit > still for circle time on a rug without the physical boundaries of a chair to > help. I can imagine getting a call on the first day of school telling me that > she can't sit still, was climbing on the table and throwing food. (All things > she does - at home, at Grandma's , and at school.) Am I expecting too much > for a 2 1/2 year old? (I don't think so. Lots! > >> of > >>children know appropriate behavior at this age. However it is usually the > singletons I know who are better behaved. THe triplet dynamic can be difficult. > THey feed off each other and " entertain " each other with their inappropriate > behaviors. Alot of moms of triplets I know have some of the behavior problems > we have, but as with my other 2 girls, their children " get it " about when their > behavior is not OK. My concerns are not just that their behavior needs > improvement, but I don't think understands that what she does is not OK. > >> Could it be related to hearing loss? Or maybe it's due to developmental > delays... I just don't know. I just can't sleep at night worrying about > everything. > >> > >> > >>Ann Marie > >> > >>Mommy to , , & Grace > >>Born 7/6/03 > >> > >> > >> > >> > > > > > > > > > All messages posted to this list are private and confidential. Each post is the > intellectual property of the author and therefore subject to copyright > restrictions. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2006 Report Share Posted January 16, 2006 Did you just have the testing done?? A dear friend of mine is a nurse practitioner who does developmental follow up on preemies and she just moved to New Haven to work at Yale. I'm not sure if she has started working yet. Her name is Margaret. in GA Re: Getting worried > >My girls were born there and had the ELGAN follow up studies that I mentioned done there. I don't know anything about having other testing done there. If anyone knows of a dr there you would reccommend, please let me know. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2006 Report Share Posted January 16, 2006 I'm replying to my own post! I didn't see your earlier post where you said the testing was done in September. And I don't think Margaret has started working yet. Today is probably her first day. But she will be a great resource once she learns her way around the area. She is a champion of UNHS and really pioneered it in our area and our state. And she will be working with developmental follow up of NICU grads at Yale. She really pioneered developmental follow up in the NICU here. Her leaving is a great loss to our area. in GA Re: Getting worried >> >>My girls were born there and had the ELGAN follow up studies that I mentioned done there. I don't know anything about having other testing done there. If anyone knows of a dr there you would reccommend, please let me know. >> >> > > > > >All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
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