Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Ann Marie, I have triplets just ahead of your three (my trio will turn 3 on Feb 27). My girls (both mild/mod SNHL) attend a group speech class paid for thru EI, as well as receive individual in-home speech tx. My girls (and my full-hearing son) seem to 'get it' as you describe and I don't see them stirring each other up at sessions, etc. (not to say at home during the regular day they don't incite each other!). I can only speak for my kids and also witness other trips/quads we pal around with...I haven't seen this kind of disruptive behavior, especially in girls. I feel my girls hear what I am saying...any inappropriate behavior they have is NOT a result of hearing loss or frustration around that...it's simply that they are 2 years old, etc. The behavior you have described for sounds a lot like some version of Autism. I am not a doc, for sure, but there is a little boy in our group speech class, who has similar behavior. From what his mom tells us, the docs didn't really want to diagnose Autism until he was closer to 3 yo. He just turned three this week. Once it was officially diagnosed, the mom started putting the puzzle together, and his therapies (OT, DT, Speech) got much more focused around his autism needs. I'm certainly NOT trying to diagnose here, but just share that I've seen similar behavior with this boy, and that my kids (while not angels by any stretch) are pretty clued in to norms in behavior, etc. Best wishes in finding answers to s's concerns. Feel free to contact me offlist if you want to talk further or want to connect to the boy's mom. Edith etarter@... mom to Lidy, Mimi and Owen Getting worried My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunny. I will say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots of children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. Ann Marie Mommy to , , & Grace Born 7/6/03 --------------------------------- Yahoo! Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Ann Marie, I have triplets just ahead of your three (my trio will turn 3 on Feb 27). My girls (both mild/mod SNHL) attend a group speech class paid for thru EI, as well as receive individual in-home speech tx. My girls (and my full-hearing son) seem to 'get it' as you describe and I don't see them stirring each other up at sessions, etc. (not to say at home during the regular day they don't incite each other!). I can only speak for my kids and also witness other trips/quads we pal around with...I haven't seen this kind of disruptive behavior, especially in girls. I feel my girls hear what I am saying...any inappropriate behavior they have is NOT a result of hearing loss or frustration around that...it's simply that they are 2 years old, etc. The behavior you have described for sounds a lot like some version of Autism. I am not a doc, for sure, but there is a little boy in our group speech class, who has similar behavior. From what his mom tells us, the docs didn't really want to diagnose Autism until he was closer to 3 yo. He just turned three this week. Once it was officially diagnosed, the mom started putting the puzzle together, and his therapies (OT, DT, Speech) got much more focused around his autism needs. I'm certainly NOT trying to diagnose here, but just share that I've seen similar behavior with this boy, and that my kids (while not angels by any stretch) are pretty clued in to norms in behavior, etc. Best wishes in finding answers to s's concerns. Feel free to contact me offlist if you want to talk further or want to connect to the boy's mom. Edith etarter@... mom to Lidy, Mimi and Owen Getting worried My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunny. I will say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots of children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. Ann Marie Mommy to , , & Grace Born 7/6/03 --------------------------------- Yahoo! Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Ann Marie, I have triplets just ahead of your three (my trio will turn 3 on Feb 27). My girls (both mild/mod SNHL) attend a group speech class paid for thru EI, as well as receive individual in-home speech tx. My girls (and my full-hearing son) seem to 'get it' as you describe and I don't see them stirring each other up at sessions, etc. (not to say at home during the regular day they don't incite each other!). I can only speak for my kids and also witness other trips/quads we pal around with...I haven't seen this kind of disruptive behavior, especially in girls. I feel my girls hear what I am saying...any inappropriate behavior they have is NOT a result of hearing loss or frustration around that...it's simply that they are 2 years old, etc. The behavior you have described for sounds a lot like some version of Autism. I am not a doc, for sure, but there is a little boy in our group speech class, who has similar behavior. From what his mom tells us, the docs didn't really want to diagnose Autism until he was closer to 3 yo. He just turned three this week. Once it was officially diagnosed, the mom started putting the puzzle together, and his therapies (OT, DT, Speech) got much more focused around his autism needs. I'm certainly NOT trying to diagnose here, but just share that I've seen similar behavior with this boy, and that my kids (while not angels by any stretch) are pretty clued in to norms in behavior, etc. Best wishes in finding answers to s's concerns. Feel free to contact me offlist if you want to talk further or want to connect to the boy's mom. Edith etarter@... mom to Lidy, Mimi and Owen Getting worried My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunny. I will say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots of children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. Ann Marie Mommy to , , & Grace Born 7/6/03 --------------------------------- Yahoo! Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Significant hearing loss will usually result in language delays which will cause immature behavior, misunderstanding, noncompliance. In fact, the child can look autistic. Have you had any kind of psychological/educational/language assessments done yet? If not, I'd get it done ASAP, especially the speech/language. From the little I have heard, it sounds like your child isn't hearing well enough to understand what is said. Your child may need special placement and/or supports due to the hearing loss and the longer you wait, the harder it is to makeup because the younger a child is when undergoing remediation for any kind of problem, the more plastic their brain is. If you can't hear what's being said, it's hard to tie the words with the meaning. If you can't tie what you hear with the meaning, you can't understand the concept. If you can't understand the concept, you can't act appropriately and explanations are just a bunch of word sounds with no meaning. My guy is 15 and he still sometimes doesn't get what is obvious to most hearing children, yet he has very high level critical thinking and language skills. He doesn't get the benefit of the incidental learning that you get from overhearing other kids talk, your parents talking at the table etc. A lot of life is learned from observing around you. But, if those observations are not accompanied by the words/sounds that go with them, much of the message is missed or understood. I'm typing this with a migraine so I hope it made sense. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 In a message dated 1/15/2006 1:36:31 A.M. Eastern Standard Time, semesky@... writes: Significant hearing loss will usually result in language delays which will cause immature behavior, misunderstanding, noncompliance. In fact, the child can look autistic. I can speak to the truth of this! When our son was initially diagnosed and tested, the results showed emotional immaturity that we (parents) knew did not exist. Yes, Ian was one of the youngest kids in his grade (a fall birthday) so a slight delay might be expected, but the level of delay was exacerbated by his unaddressed hearing loss. It was based on observational testing as well as participatory testing -- all done when the child had no appropriate services and the school refused to perform the tests in a fashion to accommodate his hearing loss. Subsequent testing, done properly, yielded appropriate results. best -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 We didn't deal with neuro-psychologists, but we did have a great experience when dealing with Columbia Presbyterian's Babies Hospital in NYC. The ENTs there were/are fabulous. Out ENT has an office in Mt. Kisco where he sees patients. We've also dealt with Montefiore, but that was the geneticist and cranio-facial specialists. Are you willing to go into NYC? If so, I could call and ask Dr. Keller's office for a recommendation. best -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Hi! I don't post here often but I do read everything. I'm on the CICircle group more often because my 3.9yo daughter has a cochlear implant. My daughter Grace was just learning words and understood us, it appeared, and then around age 2-2.5 her words slowly disappeared. Last summer (age 3.5) she was diagnosed as severe/profoundly deaf in both ears and has auditory neuropathy (AN). AN is diagnosed by doing an Auditory Brainstem Response (ABR) test. Has had this test done? Also, in reading about Kay's child who may have an issue with the nerve carrying the signal to the brain, have you had an ABR test done?? I'm not sure if an ABR is a normal screening tool. It's an easy test that is done while the child is sedated. Auditory Neuropathy is a type of hearing loss where the signal to the brain doesn't get there properly. Even with hearing aids, what Grace was hearing probably sounded like static from a radio. She could not understand what we were saying and her speech suffered greatly. She started preschool when she was 2.5 at a one-day-a-week program and I remember telling them that her speech was just not coming along and what should I do about it. They said " let's give it a few months and see what happens " . And one day the teacher told me that she had to get Grace in trouble for not throwing her trash away after snack time. I was shocked because Grace throws trash away at home and usually listens to that request. So the teacher told Grace that if she didn't throw her trash away, she will miss recess. And all the other kids were asking Grace to throw her trash away so she could go with them. And there was poor Grace sitting there with all these people talking to her and she probably couldn't understand anything that was being said to her but the attention was enough to make her just freeze - like a deer in headlights! So she missed recess!! Looking back on this, I realize she had lost her hearing by this time. We were so used to dealing with a 'stubborn' child at home who would not listen, and for giving visual instructions because she seemed to understand those better (DUH!) that we didn't realize she was deaf. And I kept telling the teacher that she 'listened' to us at home when we made simple requests. I guess my point in all this is " Have you ruled out Auditory Neuropathy? " Just because it may appear that they can detect sound and your voice, they may not be able to comprehend the words. A cochlear implant has been shown to help these kids and Grace just got a CI in December. Sorry for rambling. We've been through every test known to man with Grace, including genetics, and I'm glad we're finally now able to settle into a therapy routine and get Grace on her way to language. Cherie , 6, hearing, and Grace, 3.9, severe/profound with AN, Advanced Bionics Hi-Res Auria activated on 1/9/06 > > Significant hearing loss will usually result in language delays which will cause immature behavior, misunderstanding, noncompliance. In fact, the child can look autistic. Have you had any kind of psychological/educational/language assessments done yet? If not, I'd get it done ASAP, especially the speech/language. From the little I have heard, it sounds like your child isn't hearing well enough to understand what is said. Your child may need special placement and/or supports due to the hearing loss and the longer you wait, the harder it is to makeup because the younger a child is when undergoing remediation for any kind of problem, the more plastic their brain is. If you can't hear what's being said, it's hard to tie the words with the meaning. If you can't tie what you hear with the meaning, you can't understand the concept. If you can't understand the concept, you can't act appropriately and explanations are just a bunch of word sounds with no meaning. My guy is 15 and he still sometimes doesn't get what is obvious to most hearing children, yet he has very high level critical thinking and language skills. He doesn't get the benefit of the incidental learning that you get from overhearing other kids talk, your parents talking at the table etc. A lot of life is learned from observing around you. But, if those observations are not accompanied by the words/sounds that go with them, much of the message is missed or understood. > > I'm typing this with a migraine so I hope it made sense. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Hi! I don't post here often but I do read everything. I'm on the CICircle group more often because my 3.9yo daughter has a cochlear implant. My daughter Grace was just learning words and understood us, it appeared, and then around age 2-2.5 her words slowly disappeared. Last summer (age 3.5) she was diagnosed as severe/profoundly deaf in both ears and has auditory neuropathy (AN). AN is diagnosed by doing an Auditory Brainstem Response (ABR) test. Has had this test done? Also, in reading about Kay's child who may have an issue with the nerve carrying the signal to the brain, have you had an ABR test done?? I'm not sure if an ABR is a normal screening tool. It's an easy test that is done while the child is sedated. Auditory Neuropathy is a type of hearing loss where the signal to the brain doesn't get there properly. Even with hearing aids, what Grace was hearing probably sounded like static from a radio. She could not understand what we were saying and her speech suffered greatly. She started preschool when she was 2.5 at a one-day-a-week program and I remember telling them that her speech was just not coming along and what should I do about it. They said " let's give it a few months and see what happens " . And one day the teacher told me that she had to get Grace in trouble for not throwing her trash away after snack time. I was shocked because Grace throws trash away at home and usually listens to that request. So the teacher told Grace that if she didn't throw her trash away, she will miss recess. And all the other kids were asking Grace to throw her trash away so she could go with them. And there was poor Grace sitting there with all these people talking to her and she probably couldn't understand anything that was being said to her but the attention was enough to make her just freeze - like a deer in headlights! So she missed recess!! Looking back on this, I realize she had lost her hearing by this time. We were so used to dealing with a 'stubborn' child at home who would not listen, and for giving visual instructions because she seemed to understand those better (DUH!) that we didn't realize she was deaf. And I kept telling the teacher that she 'listened' to us at home when we made simple requests. I guess my point in all this is " Have you ruled out Auditory Neuropathy? " Just because it may appear that they can detect sound and your voice, they may not be able to comprehend the words. A cochlear implant has been shown to help these kids and Grace just got a CI in December. Sorry for rambling. We've been through every test known to man with Grace, including genetics, and I'm glad we're finally now able to settle into a therapy routine and get Grace on her way to language. Cherie , 6, hearing, and Grace, 3.9, severe/profound with AN, Advanced Bionics Hi-Res Auria activated on 1/9/06 > > Significant hearing loss will usually result in language delays which will cause immature behavior, misunderstanding, noncompliance. In fact, the child can look autistic. Have you had any kind of psychological/educational/language assessments done yet? If not, I'd get it done ASAP, especially the speech/language. From the little I have heard, it sounds like your child isn't hearing well enough to understand what is said. Your child may need special placement and/or supports due to the hearing loss and the longer you wait, the harder it is to makeup because the younger a child is when undergoing remediation for any kind of problem, the more plastic their brain is. If you can't hear what's being said, it's hard to tie the words with the meaning. If you can't tie what you hear with the meaning, you can't understand the concept. If you can't understand the concept, you can't act appropriately and explanations are just a bunch of word sounds with no meaning. My guy is 15 and he still sometimes doesn't get what is obvious to most hearing children, yet he has very high level critical thinking and language skills. He doesn't get the benefit of the incidental learning that you get from overhearing other kids talk, your parents talking at the table etc. A lot of life is learned from observing around you. But, if those observations are not accompanied by the words/sounds that go with them, much of the message is missed or understood. > > I'm typing this with a migraine so I hope it made sense. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Hi! I don't post here often but I do read everything. I'm on the CICircle group more often because my 3.9yo daughter has a cochlear implant. My daughter Grace was just learning words and understood us, it appeared, and then around age 2-2.5 her words slowly disappeared. Last summer (age 3.5) she was diagnosed as severe/profoundly deaf in both ears and has auditory neuropathy (AN). AN is diagnosed by doing an Auditory Brainstem Response (ABR) test. Has had this test done? Also, in reading about Kay's child who may have an issue with the nerve carrying the signal to the brain, have you had an ABR test done?? I'm not sure if an ABR is a normal screening tool. It's an easy test that is done while the child is sedated. Auditory Neuropathy is a type of hearing loss where the signal to the brain doesn't get there properly. Even with hearing aids, what Grace was hearing probably sounded like static from a radio. She could not understand what we were saying and her speech suffered greatly. She started preschool when she was 2.5 at a one-day-a-week program and I remember telling them that her speech was just not coming along and what should I do about it. They said " let's give it a few months and see what happens " . And one day the teacher told me that she had to get Grace in trouble for not throwing her trash away after snack time. I was shocked because Grace throws trash away at home and usually listens to that request. So the teacher told Grace that if she didn't throw her trash away, she will miss recess. And all the other kids were asking Grace to throw her trash away so she could go with them. And there was poor Grace sitting there with all these people talking to her and she probably couldn't understand anything that was being said to her but the attention was enough to make her just freeze - like a deer in headlights! So she missed recess!! Looking back on this, I realize she had lost her hearing by this time. We were so used to dealing with a 'stubborn' child at home who would not listen, and for giving visual instructions because she seemed to understand those better (DUH!) that we didn't realize she was deaf. And I kept telling the teacher that she 'listened' to us at home when we made simple requests. I guess my point in all this is " Have you ruled out Auditory Neuropathy? " Just because it may appear that they can detect sound and your voice, they may not be able to comprehend the words. A cochlear implant has been shown to help these kids and Grace just got a CI in December. Sorry for rambling. We've been through every test known to man with Grace, including genetics, and I'm glad we're finally now able to settle into a therapy routine and get Grace on her way to language. Cherie , 6, hearing, and Grace, 3.9, severe/profound with AN, Advanced Bionics Hi-Res Auria activated on 1/9/06 > > Significant hearing loss will usually result in language delays which will cause immature behavior, misunderstanding, noncompliance. In fact, the child can look autistic. Have you had any kind of psychological/educational/language assessments done yet? If not, I'd get it done ASAP, especially the speech/language. From the little I have heard, it sounds like your child isn't hearing well enough to understand what is said. Your child may need special placement and/or supports due to the hearing loss and the longer you wait, the harder it is to makeup because the younger a child is when undergoing remediation for any kind of problem, the more plastic their brain is. If you can't hear what's being said, it's hard to tie the words with the meaning. If you can't tie what you hear with the meaning, you can't understand the concept. If you can't understand the concept, you can't act appropriately and explanations are just a bunch of word sounds with no meaning. My guy is 15 and he still sometimes doesn't get what is obvious to most hearing children, yet he has very high level critical thinking and language skills. He doesn't get the benefit of the incidental learning that you get from overhearing other kids talk, your parents talking at the table etc. A lot of life is learned from observing around you. But, if those observations are not accompanied by the words/sounds that go with them, much of the message is missed or understood. > > I'm typing this with a migraine so I hope it made sense. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 HI Ann Marie - I know how hard this is for you! While her symptoms seem to look like other things, bottom line is you're worried so it merits further investigation. 's suggestion of having her tested further by a psychologist who's versed in hearing loss makes excellent sense. I'm sorry - I can't remember where you're located but if you let us know, maybe a list-mate can give you a name. Hugs, Barbara Ann Marie on wrote: >My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunn! > y. I will > say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . > THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots! > of > children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. > Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. > > >Ann Marie > >Mommy to , , & Grace >Born 7/6/03 > > > >--------------------------------- >Yahoo! Photos > Got holiday prints? See all the ways to get quality prints in your hands ASAP. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Thanks everyone for your replies. WE live in Connecticut. receives Teacher of the Deaf 1xweek, OT 2x month, PT 2x month, and will be (FINALLY!) beginning with a speech therapist 1x week. She recently (Sept) had a psychological as a part of an ELGAN (Extremely Low Gestational Age Newborn) follow up. She did very well, no problems were observed. I did not have any worries at that time. I am not impressed with the testing done by CT's Birth to Three system. I am thinking I will pursue some additional testing privately. I reallly don't think she is autistic. While she may demonstrate a few of the symptoms, I don't think it is enough. Of course I am not a doc, but I am a special ed teacher and have worked with many spectrum kids. I have had suspicions of mosaic Down syndrome for a long time - although testing is normal, she has many of the features. My worries were more along the lines of cognitive issues. But I don't know. What kind of doc and what kind of testing should I look for? Thanks! Ann MArie Barbara Mellert wrote: HI Ann Marie - I know how hard this is for you! While her symptoms seem to look like other things, bottom line is you're worried so it merits further investigation. 's suggestion of having her tested further by a psychologist who's versed in hearing loss makes excellent sense. I'm sorry - I can't remember where you're located but if you let us know, maybe a list-mate can give you a name. Hugs, Barbara Ann Marie on wrote: >My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunn! > y. I will > say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . > THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots! > of > children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. > Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. > > >Ann Marie > >Mommy to , , & Grace >Born 7/6/03 > > > >--------------------------------- >Yahoo! Photos > Got holiday prints? See all the ways to get quality prints in your hands ASAP. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Thanks everyone for your replies. WE live in Connecticut. receives Teacher of the Deaf 1xweek, OT 2x month, PT 2x month, and will be (FINALLY!) beginning with a speech therapist 1x week. She recently (Sept) had a psychological as a part of an ELGAN (Extremely Low Gestational Age Newborn) follow up. She did very well, no problems were observed. I did not have any worries at that time. I am not impressed with the testing done by CT's Birth to Three system. I am thinking I will pursue some additional testing privately. I reallly don't think she is autistic. While she may demonstrate a few of the symptoms, I don't think it is enough. Of course I am not a doc, but I am a special ed teacher and have worked with many spectrum kids. I have had suspicions of mosaic Down syndrome for a long time - although testing is normal, she has many of the features. My worries were more along the lines of cognitive issues. But I don't know. What kind of doc and what kind of testing should I look for? Thanks! Ann MArie Barbara Mellert wrote: HI Ann Marie - I know how hard this is for you! While her symptoms seem to look like other things, bottom line is you're worried so it merits further investigation. 's suggestion of having her tested further by a psychologist who's versed in hearing loss makes excellent sense. I'm sorry - I can't remember where you're located but if you let us know, maybe a list-mate can give you a name. Hugs, Barbara Ann Marie on wrote: >My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunn! > y. I will > say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . > THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots! > of > children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. > Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. > > >Ann Marie > >Mommy to , , & Grace >Born 7/6/03 > > > >--------------------------------- >Yahoo! Photos > Got holiday prints? See all the ways to get quality prints in your hands ASAP. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Thanks everyone for your replies. WE live in Connecticut. receives Teacher of the Deaf 1xweek, OT 2x month, PT 2x month, and will be (FINALLY!) beginning with a speech therapist 1x week. She recently (Sept) had a psychological as a part of an ELGAN (Extremely Low Gestational Age Newborn) follow up. She did very well, no problems were observed. I did not have any worries at that time. I am not impressed with the testing done by CT's Birth to Three system. I am thinking I will pursue some additional testing privately. I reallly don't think she is autistic. While she may demonstrate a few of the symptoms, I don't think it is enough. Of course I am not a doc, but I am a special ed teacher and have worked with many spectrum kids. I have had suspicions of mosaic Down syndrome for a long time - although testing is normal, she has many of the features. My worries were more along the lines of cognitive issues. But I don't know. What kind of doc and what kind of testing should I look for? Thanks! Ann MArie Barbara Mellert wrote: HI Ann Marie - I know how hard this is for you! While her symptoms seem to look like other things, bottom line is you're worried so it merits further investigation. 's suggestion of having her tested further by a psychologist who's versed in hearing loss makes excellent sense. I'm sorry - I can't remember where you're located but if you let us know, maybe a list-mate can give you a name. Hugs, Barbara Ann Marie on wrote: >My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunn! > y. I will > say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . > THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots! > of > children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. > Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. > > >Ann Marie > >Mommy to , , & Grace >Born 7/6/03 > > > >--------------------------------- >Yahoo! Photos > Got holiday prints? See all the ways to get quality prints in your hands ASAP. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Hi Ann Marie - you're just down the road (well, a couple of hours) from me - we live in western New Hampshire. Isquith is a neuropsychologist here who's excellent with deaf/hard of hearing kids. I have his email address at work and can send that to you. I know there are neuropsychs at Boston Children's also - I'm sure others on this list will have their names. Where in CT are you? Thanks Barbara Ann Marie on wrote: >Thanks everyone for your replies. WE live in Connecticut. receives Teacher of the Deaf 1xweek, OT 2x month, PT 2x month, and will be (FINALLY!) beginning with a speech therapist 1x week. She recently (Sept) had a psychological as a part of an ELGAN (Extremely Low Gestational Age Newborn) follow up. She did very well, no problems were observed. I did not have any worries at that time. I am not impressed with the testing done by CT's Birth to Three system. I am thinking I will pursue some additional testing privately. I reallly don't think she is autistic. While she may demonstrate a few of the symptoms, I don't think it is enough. Of course I am not a doc, but I am a special ed teacher and have worked with many spectrum kids. I have had suspicions of mosaic Down syndrome for a long time - although testing is normal, she has many of the features. My worries were more along the lines of cognitive issues. But I don't know. What kind of doc and what kind of testing > should I look for? > Thanks! > Ann MArie > >Barbara Mellert wrote: > HI Ann Marie - I know how hard this is for you! While her symptoms seem >to look like other things, bottom line is you're worried so it merits >further investigation. 's suggestion of having her tested further >by a psychologist who's versed in hearing loss makes excellent sense. >I'm sorry - I can't remember where you're located but if you let us >know, maybe a list-mate can give you a name. > >Hugs, >Barbara > >Ann Marie on wrote: > > > >>My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunn! >>y. I will >>say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . >> THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots! >> of >>children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. >> Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. >> >> >>Ann Marie >> >>Mommy to , , & Grace >>Born 7/6/03 >> >> >> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Hi Ann Marie - you're just down the road (well, a couple of hours) from me - we live in western New Hampshire. Isquith is a neuropsychologist here who's excellent with deaf/hard of hearing kids. I have his email address at work and can send that to you. I know there are neuropsychs at Boston Children's also - I'm sure others on this list will have their names. Where in CT are you? Thanks Barbara Ann Marie on wrote: >Thanks everyone for your replies. WE live in Connecticut. receives Teacher of the Deaf 1xweek, OT 2x month, PT 2x month, and will be (FINALLY!) beginning with a speech therapist 1x week. She recently (Sept) had a psychological as a part of an ELGAN (Extremely Low Gestational Age Newborn) follow up. She did very well, no problems were observed. I did not have any worries at that time. I am not impressed with the testing done by CT's Birth to Three system. I am thinking I will pursue some additional testing privately. I reallly don't think she is autistic. While she may demonstrate a few of the symptoms, I don't think it is enough. Of course I am not a doc, but I am a special ed teacher and have worked with many spectrum kids. I have had suspicions of mosaic Down syndrome for a long time - although testing is normal, she has many of the features. My worries were more along the lines of cognitive issues. But I don't know. What kind of doc and what kind of testing > should I look for? > Thanks! > Ann MArie > >Barbara Mellert wrote: > HI Ann Marie - I know how hard this is for you! While her symptoms seem >to look like other things, bottom line is you're worried so it merits >further investigation. 's suggestion of having her tested further >by a psychologist who's versed in hearing loss makes excellent sense. >I'm sorry - I can't remember where you're located but if you let us >know, maybe a list-mate can give you a name. > >Hugs, >Barbara > >Ann Marie on wrote: > > > >>My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunn! >>y. I will >>say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . >> THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots! >> of >>children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. >> Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. >> >> >>Ann Marie >> >>Mommy to , , & Grace >>Born 7/6/03 >> >> >> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 We are in Stamford. Very close (15 minutes) to the NY border. Barbara Mellert wrote: Hi Ann Marie - you're just down the road (well, a couple of hours) from me - we live in western New Hampshire. Isquith is a neuropsychologist here who's excellent with deaf/hard of hearing kids. I have his email address at work and can send that to you. I know there are neuropsychs at Boston Children's also - I'm sure others on this list will have their names. Where in CT are you? Thanks Barbara Ann Marie on wrote: >Thanks everyone for your replies. WE live in Connecticut. receives Teacher of the Deaf 1xweek, OT 2x month, PT 2x month, and will be (FINALLY!) beginning with a speech therapist 1x week. She recently (Sept) had a psychological as a part of an ELGAN (Extremely Low Gestational Age Newborn) follow up. She did very well, no problems were observed. I did not have any worries at that time. I am not impressed with the testing done by CT's Birth to Three system. I am thinking I will pursue some additional testing privately. I reallly don't think she is autistic. While she may demonstrate a few of the symptoms, I don't think it is enough. Of course I am not a doc, but I am a special ed teacher and have worked with many spectrum kids. I have had suspicions of mosaic Down syndrome for a long time - although testing is normal, she has many of the features. My worries were more along the lines of cognitive issues. But I don't know. What kind of doc and what kind of testing > should I look for? > Thanks! > Ann MArie > >Barbara Mellert wrote: > HI Ann Marie - I know how hard this is for you! While her symptoms seem >to look like other things, bottom line is you're worried so it merits >further investigation. 's suggestion of having her tested further >by a psychologist who's versed in hearing loss makes excellent sense. >I'm sorry - I can't remember where you're located but if you let us >know, maybe a list-mate can give you a name. > >Hugs, >Barbara > >Ann Marie on wrote: > > > >>My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunn! >>y. I will >>say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . >> THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots! >> of >>children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. >> Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. >> >> >>Ann Marie >> >>Mommy to , , & Grace >>Born 7/6/03 >> >> >> >> > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 I don't know the names of any doctors, but what about Yale-New Haven as a place to look? Re: Getting worried We are in Stamford. Very close (15 minutes) to the NY border. Barbara Mellert wrote: Hi Ann Marie - you're just down the road (well, a couple of hours) from me - we live in western New Hampshire. Isquith is a neuropsychologist here who's excellent with deaf/hard of hearing kids. I have his email address at work and can send that to you. I know there are neuropsychs at Boston Children's also - I'm sure others on this list will have their names. Where in CT are you? Thanks Barbara Ann Marie on wrote: >Thanks everyone for your replies. WE live in Connecticut. receives Teacher of the Deaf 1xweek, OT 2x month, PT 2x month, and will be (FINALLY!) beginning with a speech therapist 1x week. She recently (Sept) had a psychological as a part of an ELGAN (Extremely Low Gestational Age Newborn) follow up. She did very well, no problems were observed. I did not have any worries at that time. I am not impressed with the testing done by CT's Birth to Three system. I am thinking I will pursue some additional testing privately. I reallly don't think she is autistic. While she may demonstrate a few of the symptoms, I don't think it is enough. Of course I am not a doc, but I am a special ed teacher and have worked with many spectrum kids. I have had suspicions of mosaic Down syndrome for a long time - although testing is normal, she has many of the features. My worries were more along the lines of cognitive issues. But I don't know. What kind of doc and what kind of testing > should I look for? > Thanks! > Ann MArie > >Barbara Mellert wrote: > HI Ann Marie - I know how hard this is for you! While her symptoms seem >to look like other things, bottom line is you're worried so it merits >further investigation. 's suggestion of having her tested further >by a psychologist who's versed in hearing loss makes excellent sense. >I'm sorry - I can't remember where you're located but if you let us >know, maybe a list-mate can give you a name. > >Hugs, >Barbara > >Ann Marie on wrote: > > > >>My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunn! >>y. I will >>say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . >> THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots! >> of >>children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. >> Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. >> >> >>Ann Marie >> >>Mommy to , , & Grace >>Born 7/6/03 >> >> >> >> > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 My girls were born there and had the ELGAN follow up studies that I mentioned done there. I don't know anything about having other testing done there. If anyone knows of a dr there you would reccommend, please let me know. Would I be looking just for pediatric neuropsychologists with experiences with deaf/hoh kids? What about developmental pediatricians? I am not sure what kind of specialist to see.... stromms@... wrote: I don't know the names of any doctors, but what about Yale-New Haven as a place to look? Re: Getting worried We are in Stamford. Very close (15 minutes) to the NY border. Barbara Mellert wrote: Hi Ann Marie - you're just down the road (well, a couple of hours) from me - we live in western New Hampshire. Isquith is a neuropsychologist here who's excellent with deaf/hard of hearing kids. I have his email address at work and can send that to you. I know there are neuropsychs at Boston Children's also - I'm sure others on this list will have their names. Where in CT are you? Thanks Barbara Ann Marie on wrote: >Thanks everyone for your replies. WE live in Connecticut. receives Teacher of the Deaf 1xweek, OT 2x month, PT 2x month, and will be (FINALLY!) beginning with a speech therapist 1x week. She recently (Sept) had a psychological as a part of an ELGAN (Extremely Low Gestational Age Newborn) follow up. She did very well, no problems were observed. I did not have any worries at that time. I am not impressed with the testing done by CT's Birth to Three system. I am thinking I will pursue some additional testing privately. I reallly don't think she is autistic. While she may demonstrate a few of the symptoms, I don't think it is enough. Of course I am not a doc, but I am a special ed teacher and have worked with many spectrum kids. I have had suspicions of mosaic Down syndrome for a long time - although testing is normal, she has many of the features. My worries were more along the lines of cognitive issues. But I don't know. What kind of doc and what kind of testing > should I look for? > Thanks! > Ann MArie > >Barbara Mellert wrote: > HI Ann Marie - I know how hard this is for you! While her symptoms seem >to look like other things, bottom line is you're worried so it merits >further investigation. 's suggestion of having her tested further >by a psychologist who's versed in hearing loss makes excellent sense. >I'm sorry - I can't remember where you're located but if you let us >know, maybe a list-mate can give you a name. > >Hugs, >Barbara > >Ann Marie on wrote: > > > >>My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunn! >>y. I will >>say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . >> THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots! >> of >>children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. >> Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. >> >> >>Ann Marie >> >>Mommy to , , & Grace >>Born 7/6/03 >> >> >> >> > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 I am NOT a doctor but just telling you some experiences I've had. My neice has something called Ausberger's Syndrome which is a very mild form of autism. She is described as just " not getting it " . She has very little knowledge of social right and wrongs and it is very hard to correct her. She doesn't comprehend that when she is punished it is because the behavior is wrong and that the behavior needs to change. She also continued to wet and dirty her panties in class (when she was 8) because she just didn't know that doing that was wrong. She also hates to have anything changed. She has to stick to a schedule and just gets very upset when things change. It took A LOT to get her diagnosed since Ausbergers is so mild (they thought she just had a behavior problem) but once she was diagnose she has improved TREMEDOUSLY! I don't know if this sounds like your little girl, but just telling a story of a child with a mild form of autism. I also have concerns about my daughter's behavior and am begining to wonder if she is ADHD. Although they tell me she is wonderful in school, I just don't feel like she understands that some things just aren't acceptable. And she is non-stop. All day long. Not only does it seem like she doesn't stop to take a breath when she is talking, but she is just go, go, go, go. However, I do think that some of her issues are direclty related to her hearing loss. I don't think she has been able to develop what is right and wrong simply because she has not heard me correct her for the past 4 years. BUt anyway, just my story. Getting worried My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunny. I will say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots of children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. Ann Marie Mommy to , , & Grace Born 7/6/03 --------------------------------- Yahoo! Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 I am NOT a doctor but just telling you some experiences I've had. My neice has something called Ausberger's Syndrome which is a very mild form of autism. She is described as just " not getting it " . She has very little knowledge of social right and wrongs and it is very hard to correct her. She doesn't comprehend that when she is punished it is because the behavior is wrong and that the behavior needs to change. She also continued to wet and dirty her panties in class (when she was 8) because she just didn't know that doing that was wrong. She also hates to have anything changed. She has to stick to a schedule and just gets very upset when things change. It took A LOT to get her diagnosed since Ausbergers is so mild (they thought she just had a behavior problem) but once she was diagnose she has improved TREMEDOUSLY! I don't know if this sounds like your little girl, but just telling a story of a child with a mild form of autism. I also have concerns about my daughter's behavior and am begining to wonder if she is ADHD. Although they tell me she is wonderful in school, I just don't feel like she understands that some things just aren't acceptable. And she is non-stop. All day long. Not only does it seem like she doesn't stop to take a breath when she is talking, but she is just go, go, go, go. However, I do think that some of her issues are direclty related to her hearing loss. I don't think she has been able to develop what is right and wrong simply because she has not heard me correct her for the past 4 years. BUt anyway, just my story. Getting worried My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunny. I will say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots of children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. Ann Marie Mommy to , , & Grace Born 7/6/03 --------------------------------- Yahoo! Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Yes I would be wiling to go to NYC. Do you know what kind of specialist we should see? JillcWood@... wrote: We didn't deal with neuro-psychologists, but we did have a great experience when dealing with Columbia Presbyterian's Babies Hospital in NYC. The ENTs there were/are fabulous. Out ENT has an office in Mt. Kisco where he sees patients. We've also dealt with Montefiore, but that was the geneticist and cranio-facial specialists. Are you willing to go into NYC? If so, I could call and ask Dr. Keller's office for a recommendation. best -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 , I know exactly what you go through, as both of my kids are the kind that have no idea what it is to " sit and listen " . I've learned to avoid certain situations with them where they are expected to not be so impulsive. I think we've only visited library story time once....small disaster. It also use to be very difficult to go to deaf/hoh group things when was younger because I was constantly chasing after him and . It left little time to talk to other parents. Now that they are a little older, I can choose events that are more suited to just letting the kids go, or ones that have supervision for them. My favorite story about being over active was a discussion I was having with my mom. I was starting a part time job when was 1 year old and my mom was going to watch for me a few times during the week. I explained to my mom that never stops moving, that she's always grabing for something that she's not suppose to have, etc, etc. My mom, thinking that I was just not use to having a mobile child, with being my first, told me that " All kids move a lot and get into things, you just have to teach them what not to touch " . I agreed that that was true for most kids, but was different she just goes and goes and doesn't pay attention to what I tell her not to touch. My mom just laughed (in the patornizing way) and let the topic die. Well when I went to pick up after my mom's first time of watching her for 4 hours, she met me at the door and said " Oh my God, I never dreamt that a child that young could have that much energy...never stopping once! " She agreed with me that was definately more " charged " than the other grandkids or than we had ever been. In fact all of my sisters and friends will agree. Of course as it turns out, I not only got one highly energized kid, but two (and people wonder why I wasn't trying for a third!). As an added bonus with , I got a climber with high energy. So know that you aren't alone in having energetic kids. Debbie, mom to , 6, moderate SNHL and , 3,hearing Kearns wrote: My husband and I are constantly amazed when we see infants and toddlers who just sit still on their parents laps or sit quietly in a waiting room. We never had that. Our boys were always squirming, always demanding attention, always moving! Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Yahoo! Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Ann Marie, There is something to be said for " mommy gut " . If you think that maybe something is not quite right then certainly follow the suggestions the other moms have given you. It can't hurt to rule out things and know what you are truly dealing with. That said, I believe that you described . My 3 year old that doesn't have a hearing loss. He is the most stubborned and determined child I know. If he doesn't like what you've told him, he will ignore you until he hears what he wants to hear. Last summer, I wasn't so sure that we were going to send him to preschool. The one that I had checked into was a little too pricey for us and I knew that I could teach him the things that he needed to know. Well, about the end of July, was getting worse and worse about following directions. If I asked him to sit, he would stand. If I asked him to slow down...he would start to run. If I asked him to speak quieter...he would yell. We decided that no matter the cost, he HAD to go to preschool, even if it was only two days. Well, the first two months were bad. He wouldn't sit in class when he was suppose to. He wouldn't play nice with the other kids. He would often run around the class when he was suppose to be sitting. The children who had behaved during class would get a sticker at the end. Well, he never got a sticker and it really didn't' seem to phase him. But then it clicked. He started behaving, helping and listening to directions at school. Oh sure, he still has bad days....he wouldn't be if he didn't. But we never had to worry about it being related to a hearing loss with him. on the other hand, had a hard time staying focused when she started preschool. She was eager enough to please, but she had to understand what you wanted. If order for her to know what you wanted she needed to pay attention. It was her own little vicious circle. One of the goals on her first IEP was for to attend to circle time for first 2 minutes and then 5 minutes. It took a long time to reach the 2 minutes goal. never understood time out and would only stay there if I sat with her. After she turned 4, she got it, and then would want to put me in time out for making her unhappy ;o) is still what I would call socially inept. It's not uncommon for deaf/hoh kids. She does ok one on one with some kids, but if she's in a group....it's awful. She tends to be so " in your face " with some of the kids. We try and work on it, but we've not seen a lot of improvement. I'm constantly telling her to " calm down! " I think sometimes she scares the other kids. Every kid is different. And when one of those kids has a hearing loss it makes it that much more difficult to understand them and their needs. So if you think that testing would be a benefit to helping understand what is going on, then you should look into it. Debbie, mom to , 6, moderate SNHL and , 3, hearing Ann Marie on wrote: My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Yahoo! Photos – Showcase holiday pictures in hardcover Photo Books. You design it and we’ll bind it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Thanks . My girls are very energetic too. I know exactly what you mean about watching other toddlers sit nicely on laps in waiting rooms. Mine would never do that!!!! I tried a toddler story hour at the library that wasn't really stories, more singing, fingerplays and movement activities but it was very diificult for all 3 of my girls. It was for 18months to 30 months and they were alot closer to the 30 months thatn many of the other kids, but they are just not the type to sit nicely and follow along. Not when there was so much to explore and climb on! We don't do any other stuff like that - music, gym etc. Just the school program which they love. THey just dn't love the sitting part. THe other 2 have learned to sit (at least fairly well) and maybe just nedds a bit more time. I would love to do more one on one with (with all of them, actually) but don't have any help. When my husband comes home there is not alot of time before bed and one of the girls falls apart if I am not with her (she's not like that all day, just when its that last hour or so before bed). I would like to try to do something with her alone on the weekend, but it always seems like life gets in the way. Errands, sick kids, etc. I really want to make more effort to fit it in. Thanks for sharing your story and ideas. Ann Marie Kearns wrote: Ann Marie, I had to chime in and tell you I had some of the same issues with my boys, especially my son, . He's five years old now and there are still days when I wonder if he " gets it. " He doesn't get confused about language issues but he will continue doing the same thing over and over again even after it being explained as inappropriate or being reprimanded. He seems not to care often, but he does know the rules. He's very energetic and impulsive. Your daughter is still very young and while you see others her age as " behaving " it may just be the other kids' temperament. They may not totally understand the rules or the reasons for not doing things but they may just be more passive. There are definately different personality types. My husband and I are constantly amazed when we see infants and toddlers who just sit still on their parents laps or sit quietly in a waiting room. We never had that. Our boys were always squirming, always demanding attention, always moving! I also worried how they would manage in a classroom setting. , my oldest and deaf with CI, started in a special ed program. Yes, he had problems with staying in circle time, sitting still, keeping his hands to himself. I couldn't change that but it did worry me. The teachers worked on it with him. It took time and different techniques. Both my boys didn't go to preschool until they were three. I just didn't think they'd be ready at two and I didn't want to push it. I felt they could have the time home with me to keep learning. I did try some moms groups and " my gym " classes but it was tough. I ended up chasing them around most of the time and redirecting them. I could not talk to any other mom so it kind of defeated the purpose for me personally. As far at the gymboree classes, music class or my gym activities they always had a structured circle time thing or group activity and this was a big, big pain for me. I would have to keep chasing my boys around to get them to stay with the group activity and it took a lot of physical and emotional strength to do it. They weren't having any fun because they would cry and protest as I'd try to get them to sit down or do what the teacher was instructing. No fun for any of us. In those cases I don't think it's worth pursuing just because one thinks the child should learn to do it or get used to it. My boys did not conform. They just weren't ready. My younger son, , is three years old. He hears but has verbal apraxia so he has difficulty speaking. I find that he says things that don't necessarily make sense sometime or says the same thing over even if I correct him. It seems strange to me. My only theory is that he wants to be able to say something he knows how to pronounce or that someone will understand. Maybe with , since it's more of a challenge for her to listen and speak she is sticking with what she is familiar with. I wonder if time one on one with her just doing some favorite fun things would be beneficial rather than always with the sisters or a bunch of kids. can be so exhausting and irritating but at the same time I love his zest for life. He's so excited about everything! He is very bright and quick to catch on, which I know has helped him in learning to listen and speak. He is really determined and strongwilled, also qualities that can be difficult to deal with but also positives in some respects. He talks non stop and asks questions constantly. Again something that can be exhausting but at the same time I know he learns so much from it. K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2006 Report Share Posted January 15, 2006 Thanks Sara. I really don't think my has Asperger's. She might have 1 or 2 of the characteristics but not enough for that kind of diagnosis. I am truly thinking now that she just needs a little more time to catch up to her sisters and peers. She did have a significant history of delays (she was more than 12 weeks premature) in all areas of development and has always been the last of the 3 to do everything (crawl, walk, talk). I will talk to her pedi this week and perhaps pursue more testing, but I am not feeling so worried anymore. Thanks for sharing your story! Ann MArie Sara Chaddock wrote: I am NOT a doctor but just telling you some experiences I've had. My neice has something called Ausberger's Syndrome which is a very mild form of autism. She is described as just " not getting it " . She has very little knowledge of social right and wrongs and it is very hard to correct her. She doesn't comprehend that when she is punished it is because the behavior is wrong and that the behavior needs to change. She also continued to wet and dirty her panties in class (when she was 8) because she just didn't know that doing that was wrong. She also hates to have anything changed. She has to stick to a schedule and just gets very upset when things change. It took A LOT to get her diagnosed since Ausbergers is so mild (they thought she just had a behavior problem) but once she was diagnose she has improved TREMEDOUSLY! I don't know if this sounds like your little girl, but just telling a story of a child with a mild form of autism. I also have concerns about my daughter's behavior and am begining to wonder if she is ADHD. Although they tell me she is wonderful in school, I just don't feel like she understands that some things just aren't acceptable. And she is non-stop. All day long. Not only does it seem like she doesn't stop to take a breath when she is talking, but she is just go, go, go, go. However, I do think that some of her issues are direclty related to her hearing loss. I don't think she has been able to develop what is right and wrong simply because she has not heard me correct her for the past 4 years. BUt anyway, just my story. Getting worried My is now 2 1/2 and has a mild-moderate SNHL. We have plans to send her and her triplet sisters to preschool at our local Catholic school starting in September-actually I think it starts the last week of Aug. . It is coming soon and I am starting to get worried about how she will do. I don't know if any of the things that worry me have to do with her hearing loss or not. But she seems like she is so immature. She doesn't seem to " get it " in alot of situations. She does alot of naughty things that her sisters do too, but when I give her time out, she seems like she doesn't understand. It doesn't bother her. It doesn't seem to sink in when I explain things to her about danger or destructive behavior that her sisters seem to pick up on (not that they will never do the behavior again, but I can tell they " get it " that it's not OK to do it). She also seems to not " get it " about other things. Like she will look out the window and say " raining outside " when it is sunny. I will say " Oh, , you remember it was raining outside yesterday, don't you? Look, now it's sunny. No rain today! " She will say again " raining outside " . She will continue to repeat it over and over and over. I continue to acknowledge what she is saying, but try to tell her the correct information, that NO it is NOT raining now. She doesn't seem to get it. Her sisters might say something incorrect like that but when I tell them the correct information, like " I know that looks a bit like a cow, but that is called a moose. " THey will stop saying " cow,cow cow " and say " Mooose. That's a moose " . will just keep saying " cow, cow,cow " . THe 3 of them go to a 2's program right now that is for children who receive early intervention (although the early intervention program does not fund it). is actualy the only one of my girls who receives services. There is a circle time where the kids sit in little chairs. they have snack time and art activities at a table. Those " sitting " times are very hard for her and she seems so impulsive getting up constantly and needing to be directed back to her seat. There are alot of adults in the room - basically ususally one-on-one with the 8 children. I just can't imagine that in 7 months she will be able to sit still for circle time on a rug without the physical boundaries of a chair to help. I can imagine getting a call on the first day of school telling me that she can't sit still, was climbing on the table and throwing food. (All things she does - at home, at Grandma's , and at school.) Am I expecting too much for a 2 1/2 year old? (I don't think so. Lots of children know appropriate behavior at this age. However it is usually the singletons I know who are better behaved. THe triplet dynamic can be difficult. THey feed off each other and " entertain " each other with their inappropriate behaviors. Alot of moms of triplets I know have some of the behavior problems we have, but as with my other 2 girls, their children " get it " about when their behavior is not OK. My concerns are not just that their behavior needs improvement, but I don't think understands that what she does is not OK. Could it be related to hearing loss? Or maybe it's due to developmental delays... I just don't know. I just can't sleep at night worrying about everything. Ann Marie Mommy to , , & Grace Born 7/6/03 --------------------------------- Yahoo! Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.