RE: having problems sleeping in crib with bar

September 3, 2004

Hi,

Someone in here will have some good advice for you....I want to ask about

the 12 " bar...that sounds a little to long for a 6 month old.Am I wrong?

That width might be uncomfortable for her. My son is 7 months and we are on

our second go round with the casting so I am not so experienced with the

bar. He only used it for a few months before the casts came back.

Mommy to 12/17/98

and Christian 1/30/04

_____

From: maurdouc

Sent: Thursday, September 02, 2004 6:52 PM

To: nosurgery4clubfoot

Subject: having problems sleeping in crib with bar

hi there!

i am so excited to have found this site - i live in saskatchewan and

have not been able to find any sort of support group - it seems like

no one wants to talk about it!

my daughter naomi is 6 months old and was born with both feet turned

in (very floppy, could be bent right back into shape with no problem

but would turn back in when the foot was let go) - one doctor told us

it was positional and another told us it was clubfeet. since she was

four days old, she was in casts changed weekly for nine weeks and then

she had her heel cords cut (casts for three weeks straight after

that)... she then had to wear boots and bar full time (23 hours a day)

for three months and now she's wearing them at night (the orthopedic

surgeon said for possibly three years). is our experience similar to

yours??

my question is: how do we get naomi to sleep throughout the night in

her crib?? she was ok with the 10 inch bar and smaller shoes, but

she's now into the 12 inch bar and larger shoes... she can't roll over

without catching her boot on the side of the crib... this wakes her up

and really disturbs her sleep.

any suggestions???

maureen

September 3, 2004

HI Maureen,

Welcome to the group! Your story sounds like ours only we had 5 casts

before the tenotomy. We have not changed bar or shoes yet, so not

sure what would be causing the problem. I am sure others will write.

Just wanted to welcome you!!!

Louisa

6-27-99

Zoe 2-22-04 RCF FAB 18/7

> hi there!

>

> i am so excited to have found this site - i live in saskatchewan and

> have not been able to find any sort of support group - it seems like

> no one wants to talk about it!

>

> my daughter naomi is 6 months old and was born with both feet turned

> in (very floppy, could be bent right back into shape with no problem

> but would turn back in when the foot was let go) - one doctor told

us

> it was positional and another told us it was clubfeet. since she was

> four days old, she was in casts changed weekly for nine weeks and

then

> she had her heel cords cut (casts for three weeks straight after

> that)... she then had to wear boots and bar full time (23 hours a

day)

> for three months and now she's wearing them at night (the orthopedic

> surgeon said for possibly three years). is our experience similar to

> yours??

>

> my question is: how do we get naomi to sleep throughout the night in

> her crib?? she was ok with the 10 inch bar and smaller shoes, but

> she's now into the 12 inch bar and larger shoes... she can't roll

over

> without catching her boot on the side of the crib... this wakes her

up

> and really disturbs her sleep.

>

> any suggestions???

>

> maureen

September 3, 2004

I am already anticipating this problem as Tommy is a terrible sleeper

and sometimes gets his casted foot stuck in the crib bars. I saw

this crib shield bumper thing in the one step ahead catalog. It is a

mesh netting that velcros around the sides of the crib. It is a bit

pricey at $34.95 but I am thinking of trying it. You can go to

onstepahead.com and search crib bumper to see it.

Good Luck,

> hi there!

>

> i am so excited to have found this site - i live in saskatchewan and

> have not been able to find any sort of support group - it seems like

> no one wants to talk about it!

>

> my daughter naomi is 6 months old and was born with both feet turned

> in (very floppy, could be bent right back into shape with no problem

> but would turn back in when the foot was let go) - one doctor told

us

> it was positional and another told us it was clubfeet. since she was

> four days old, she was in casts changed weekly for nine weeks and

then

> she had her heel cords cut (casts for three weeks straight after

> that)... she then had to wear boots and bar full time (23 hours a

day)

> for three months and now she's wearing them at night (the orthopedic

> surgeon said for possibly three years). is our experience similar to

> yours??

>

> my question is: how do we get naomi to sleep throughout the night in

> her crib?? she was ok with the 10 inch bar and smaller shoes, but

> she's now into the 12 inch bar and larger shoes... she can't roll

over

> without catching her boot on the side of the crib... this wakes her

up

> and really disturbs her sleep.

>

> any suggestions???

>

> maureen

September 3, 2004

hi!

naomi's a big baby - at her 6 month check up she was 21 pounds, 27.5

inches... the dr suggested trying a bigger bar because of her size and

because she was getting out of her right boot all the time and had

really bad blisters.

i have another question - her right foot seems to be 'floppier' than

her left - she seems to hold it in a more dropped fashion. is this

normal or something i should be worried about!

wow! am i glad to have found this site!!!

thanks,

maureen

> Hi,

>

> Someone in here will have some good advice for you....I want to ask

about

> the 12 " bar...that sounds a little to long for a 6 month old.Am I wrong?

> That width might be uncomfortable for her. My son is 7 months and

we are on

> our second go round with the casting so I am not so experienced with the

> bar. He only used it for a few months before the casts came back.

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

> _____

>

> From: maurdouc [mailto:reenmd@s...]

> Sent: Thursday, September 02, 2004 6:52 PM

> To: nosurgery4clubfoot

> Subject: having problems sleeping in crib with bar

>

> hi there!

>

> i am so excited to have found this site - i live in saskatchewan and

> have not been able to find any sort of support group - it seems like

> no one wants to talk about it!

>

> my daughter naomi is 6 months old and was born with both feet turned

> in (very floppy, could be bent right back into shape with no problem

> but would turn back in when the foot was let go) - one doctor told us

> it was positional and another told us it was clubfeet. since she was

> four days old, she was in casts changed weekly for nine weeks and then

> she had her heel cords cut (casts for three weeks straight after

> that)... she then had to wear boots and bar full time (23 hours a day)

> for three months and now she's wearing them at night (the orthopedic

> surgeon said for possibly three years). is our experience similar to

> yours??

>

> my question is: how do we get naomi to sleep throughout the night in

> her crib?? she was ok with the 10 inch bar and smaller shoes, but

> she's now into the 12 inch bar and larger shoes... she can't roll over

> without catching her boot on the side of the crib... this wakes her up

> and really disturbs her sleep.

>

> any suggestions???

>

> maureen

>

September 3, 2004

Hi, I agree about the 12 " bar seeming wrong. is almost one

year (9/9/03) and she was wearing an 8 " bar until July when we

started the casting again. Our doc said to do the 10 " bar this time

but when it came two days ago, it looks HUGE!!! I put it against

's shoulders and it easily hangs 1+ " past each shoulder. I'm

not positive about how to measure for the correct length bar but I

will be taking the 8 " and 10 " to her cast removal so Dr. H can

figure out which one is right.

I would ask your doc to recheck the bar length -- I can only imagine

that if it's too long, your daughter can't be comfortable in it.

I hope someone esle can give you a little more guidance (and me

too!).

Marilouise

9/9/03, LCF, 3 weeks cast after 2nd tenotomy (10 days left)

Owen and 3/20/99

> Hi,

>

> Someone in here will have some good advice for you....I want to

ask about

> the 12 " bar...that sounds a little to long for a 6 month old.Am I

wrong?

> That width might be uncomfortable for her. My son is 7 months and

we are on

> our second go round with the casting so I am not so experienced

with the

> bar. He only used it for a few months before the casts came back.

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

> _____

>

> From: maurdouc [mailto:reenmd@s...]

> Sent: Thursday, September 02, 2004 6:52 PM

> To: nosurgery4clubfoot

> Subject: having problems sleeping in crib

with bar

>

> hi there!

>

> i am so excited to have found this site - i live in saskatchewan

and

> have not been able to find any sort of support group - it seems

like

> no one wants to talk about it!

>

> my daughter naomi is 6 months old and was born with both feet

turned

> in (very floppy, could be bent right back into shape with no

problem

> but would turn back in when the foot was let go) - one doctor told

us

> it was positional and another told us it was clubfeet. since she

was

> four days old, she was in casts changed weekly for nine weeks and

then

> she had her heel cords cut (casts for three weeks straight after

> that)... she then had to wear boots and bar full time (23 hours a

day)

> for three months and now she's wearing them at night (the

orthopedic

> surgeon said for possibly three years). is our experience similar

to

> yours??

>

> my question is: how do we get naomi to sleep throughout the night

in

> her crib?? she was ok with the 10 inch bar and smaller shoes, but

> she's now into the 12 inch bar and larger shoes... she can't roll

over

> without catching her boot on the side of the crib... this wakes

her up

> and really disturbs her sleep.

>

> any suggestions???

>

> maureen

>

September 3, 2004

hi!

i just measure the actual distance - it's just ove 1.5 inches from her

shoulder to each center of the boot. her boot heels are right at her

shoulder level.

that's what i thought - that it would be harder on her if the bar was

too long, but we were told that it is better for them to be long than

too short - too short causes blisters and leg cramps?!? anyone hear

the same thing?

> > Hi,

> >

> > Someone in here will have some good advice for you....I want to

> ask about

> > the 12 " bar...that sounds a little to long for a 6 month old.Am I

> wrong?

> > That width might be uncomfortable for her. My son is 7 months and

> we are on

> > our second go round with the casting so I am not so experienced

> with the

> > bar. He only used it for a few months before the casts came back.

> >

> > Mommy to 12/17/98

> >

> > and Christian 1/30/04

> >

> > _____

> >

> > From: maurdouc [mailto:reenmd@s...]

> > Sent: Thursday, September 02, 2004 6:52 PM

> > To: nosurgery4clubfoot

> > Subject: having problems sleeping in crib

> with bar

> >

> > hi there!

> >

> > i am so excited to have found this site - i live in saskatchewan

> and

> > have not been able to find any sort of support group - it seems

> like

> > no one wants to talk about it!

> >

> > my daughter naomi is 6 months old and was born with both feet

> turned

> > in (very floppy, could be bent right back into shape with no

> problem

> > but would turn back in when the foot was let go) - one doctor told

> us

> > it was positional and another told us it was clubfeet. since she

> was

> > four days old, she was in casts changed weekly for nine weeks and

> then

> > she had her heel cords cut (casts for three weeks straight after

> > that)... she then had to wear boots and bar full time (23 hours a

> day)

> > for three months and now she's wearing them at night (the

> orthopedic

> > surgeon said for possibly three years). is our experience similar

> to

> > yours??

> >

> > my question is: how do we get naomi to sleep throughout the night

> in

> > her crib?? she was ok with the 10 inch bar and smaller shoes, but

> > she's now into the 12 inch bar and larger shoes... she can't roll

> over

> > without catching her boot on the side of the crib... this wakes

> her up

> > and really disturbs her sleep.

> >

> > any suggestions???

> >

> > maureen

> >

September 3, 2004

The inside edges of the heels of the shoes should be at a distance

equal to the width of the child's shoulders. Don't measure from the

center bolts (even though it says this in the FAB set-up documents

that we have in the files section, I've always been told to use the

inside edges of the heels of the shoes, not center bolts). You can

see a reference picture of how to " eyeball " this measurement at this

site: http://pages.ivillage.com/ponseti_links under the bracing

section.

Another thought- once you've ruled out comfort issues with the brace-

my kids would often get restless at night when they were going

through major growth spurts and milestone changes (i.e. learning to

crawl, learning to walk etc.). They'd sleep through the night for

months, and then all of the sudden they'd be waking up for no

apparent reason. I think I read somewhere that this happened because

of their brain activity going into overdrive as they're " mentally

practicing " their new tricks during the sleeping hours. Oh, and of

course, teething wreaked havoc on the little ones at night too!

& (3-16-00)

left clubfoot

http://ponseticlubfoot.freeservers.com/

September 3, 2004

Just to throw it out there, someone mentioned that Dr. Ponseti says to

measure from the heel center bolts and my son was acutally more comfortable

measuring from there. I tried going with the inside edges of the heels and

he screamed and cried with it like that so I had to move it back to the bolt

holes. I would go with whatever measurement the child is most comfortable

with.

and

BCF 03/25/2004

DBB 23/7

On 9/3/2004 5:07:19 PM, nosurgery4clubfoot wrote:

> The inside edges of the heels of the shoes should be at a distance

> equal to the width of the child's shoulders. Don't measure from the

> center bolts (even though it says this in the FAB set-up documents

> that we have in the files section,

> I've always been told to use the

> inside edges of the heels of the shoes, not center bolts). You can

> see a reference picture of how to " eyeball " this measurement at this

> site: http://pages.ivillage.com/ponseti_links under the bracing

> section.

>

> Another thought- once you've

> ruled out comfort issues with the brace-

> my kids would often get restless at night when they were going

> through major growth spurts and milestone changes (i.e. learning to

> crawl, learning to walk etc.).

> They'd sleep through the night for

> months, and then all of the sudden they'd

> be waking up for no

> apparent reason. I think I read somewhere that this happened because

> of their brain activity going into overdrive as they're " mentally

> practicing " their new tricks during the sleeping hours. Oh, and of

> course, teething wreaked havoc on the little ones at night too!

>

> & (3-16-00)

> left clubfoot

> http://ponseticlubfoot.free

September 3, 2004

I agree with about incorrect bar width, achieving milestones and

teething interrupting sleep. However, we had the same problems with

once he started doing 'aerobics' with his bar in the crib. He

likes to flip his one foot up and lie sideways, leaning it against the

side of the crib. The bar was always getting stuck sometime in the night

and his sleep was disturbed. Our solution was to transfer him

permanently to a " pack & play " type travel crib (the mattress can be a

little thin, so we added another one to make it more comfy and

supportive. What's great about this type of crib is the soft netting

sides, which means he can lean his shoe against it very comfortably.

Maybe this will work for you too. He is 19 months now and still sleeps

in it, but we will make the move to a big bed sometime soon.

Good luck

and

24 Jan 2003, bilateral cf

treated by Dr Ponseti

www.clubfoot.co.za

Re: having problems sleeping in crib with

bar