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Ya, the big NO NO of removing them the night before - but this is exactly what

our very first club foot doctor advised us to do, and being ignorant parents, we

did that.

s.

Re: today

> > >

> > >

> > >

> > > They used the saw on anyone and everyone it seems.

Apparently it

> >only

> > > vibrates and she put it on her hand to prove this.

> > > r.

>

>

>

>

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Marilouise,

Poor ..and all the babies that go through that terrifying experience

with the saw. I am going to check with Dr. H before I soak. I hope he

thinks its ok…I will let you know what he says.

Are you going to the meeting on Saturday?

Mommy to 12/17/98

and Christian 1/30/04

_____

From: Marilouise Tozier

Sent: Saturday, August 28, 2004 9:48 PM

To: nosurgery4clubfoot

Subject: Re: today

Hi again ,

With 's first doc we soaked her casts off completely

ourselves at home the night before her appointments. Dr H said this

is a BIG no no. I know that is not the suggestion from the other

moms, they just suggest soaking it to soften right before you appt

but I would DEFINITELY okay that with Dr H before you do it. I know

you have a bit of a drive as do I and I asked him about taking it

off before coming and he said absolutley not. He may be okay with

softening it though. I'd like to know his response if you check

with him!

Marilouise

9/9/03, LCF, 3 week cast after tenotomy (17 days left)

Owen and 3/20/99

> > > When we started treatment with the non-Ponseti doctor, they

also

> >used the saw to remove infant casts. It was terrible and on two

> >occasion my son suffered a saw-burn on his skin where the blade

was

> >pushed through too deep.

> > >

> > > If these are plaster casts you probably know you could soak

them at

> >home prior to the visit so they would come off rather easily at

the

> >dr.'s office. Just a suggestion if the saw frightens your baby

too

> >much.

> > > s.

> > >

> > > Re: today

> > >

> > >

> > >

> > > They used the saw on anyone and everyone it seems.

Apparently it

> >only

> > > vibrates and she put it on her hand to prove this.

> > > r.

>

>

>

>

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Share on other sites

Marilouise,

Poor ..and all the babies that go through that terrifying experience

with the saw. I am going to check with Dr. H before I soak. I hope he

thinks its ok…I will let you know what he says.

Are you going to the meeting on Saturday?

Mommy to 12/17/98

and Christian 1/30/04

_____

From: Marilouise Tozier

Sent: Saturday, August 28, 2004 9:48 PM

To: nosurgery4clubfoot

Subject: Re: today

Hi again ,

With 's first doc we soaked her casts off completely

ourselves at home the night before her appointments. Dr H said this

is a BIG no no. I know that is not the suggestion from the other

moms, they just suggest soaking it to soften right before you appt

but I would DEFINITELY okay that with Dr H before you do it. I know

you have a bit of a drive as do I and I asked him about taking it

off before coming and he said absolutley not. He may be okay with

softening it though. I'd like to know his response if you check

with him!

Marilouise

9/9/03, LCF, 3 week cast after tenotomy (17 days left)

Owen and 3/20/99

> > > When we started treatment with the non-Ponseti doctor, they

also

> >used the saw to remove infant casts. It was terrible and on two

> >occasion my son suffered a saw-burn on his skin where the blade

was

> >pushed through too deep.

> > >

> > > If these are plaster casts you probably know you could soak

them at

> >home prior to the visit so they would come off rather easily at

the

> >dr.'s office. Just a suggestion if the saw frightens your baby

too

> >much.

> > > s.

> > >

> > > Re: today

> > >

> > >

> > >

> > > They used the saw on anyone and everyone it seems.

Apparently it

> >only

> > > vibrates and she put it on her hand to prove this.

> > > r.

>

>

>

>

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Hi ,

Please let me know what Dr. H says :)

We won't be there Saturday due to Dr H's respected request to not

bring children along if you were not invited for a demonstration.

Since still nurses frequently through the day (especially at

nap) I can't really leave her behind for the day.

Hope to meet up with you one time. Any chance Christian will have

an appt on the 13th?

Marilouise

9/9/03, LCF, 3 week cast after tenotomy (15 days left)

Owen and 3/20/99

> Marilouise,

>

>

>

> Poor ..and all the babies that go through that terrifying

experience

> with the saw. I am going to check with Dr. H before I soak. I

hope he

> thinks its ok…I will let you know what he says.

>

>

>

> Are you going to the meeting on Saturday?

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

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Havn't been able to check the board in awhile so I am a bit delayed

in my responses, but Tyler's doc used the saw after his first

casting and he was only a little over a week old. He always used

the saw to cut his casts off. Until I got on this board I thought

that was the only way there was to do it.

Tyler's mommy

bilateral atypical cf 1/14/03

tenotomy 8/19/04

> > We will be there again tomorrow. Just thought I would find out

if

> anyone

> > else was going this week too.

> >

> >

> >

> >

> >

> > Mommy to 12/17/98

> >

> > and Christian 1/30/04

> >

> >

> >

> >

> >

> >

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I forgot to add in my other post that whenever the doc would cut

Tyler's casts off when he was that young they would have me not feed

him for 1 feeding before we went in the have them cut off, then he

would drink his bottle cause he was hungry and the saw didn't really

seem to bother him. He kinda just got used to it.

Tyler's mommy

bilateral atypical cf 1/14/03

tenotomy 8/19/04

> > > > When we started treatment with the non-Ponseti doctor,

they

> also

> > >used the saw to remove infant casts. It was terrible and on

two

> > >occasion my son suffered a saw-burn on his skin where the

blade

> was

> > >pushed through too deep.

> > > >

> > > > If these are plaster casts you probably know you could

soak

> them at

> > >home prior to the visit so they would come off rather easily

at

> the

> > >dr.'s office. Just a suggestion if the saw frightens your

baby

> too

> > >much.

> > > > s.

> > > >

> > > > Re: today

> > > >

> > > >

> > > >

> > > > They used the saw on anyone and everyone it seems.

> Apparently it

> > >only

> > > > vibrates and she put it on her hand to prove this.

> > > > r.

> >

> >

> >

> >

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screams during the cast changing as well. And this is the 2nd time

around, when she was a newborn she cried every time until the very last

(or what we thought was the very last ) cast change. I think she was

finally used to it then. Now she is mad because we are doing this again.

She gets so worked up she throws up sometimes. Poor thing. As soon as it

is over, she is fine and a happy baby again. Either way, it doesn't make

it any easier for the parents.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

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Hey girl.

Sorry it's been so long. Sorry to hear Christian was so upset. Just remember

he won't remember any of it, unfortunately we do! :-) I hope he's doing much

better. Did I miss something though, I thought he was already in the DBB (done

w/casts)? I know you had changed doctors, did he need to be recasted? Hope you

and your family are doing well.

Gerace cgerace@...> wrote:

Christian had his first cast removed and his second cast applied. He was

screaming through the entire process. The sound from the machine they used

to cut the cast off started him off and then he wouldn't stop for anything.

Please tell me a lot of your children cried during this ordeal also..

Mommy to 12/17/98

and Christian 1/30/04

_____

From: Marilouise Tozier

Sent: Thursday, August 26, 2004 11:11 PM

To: nosurgery4clubfoot

Subject: Re: anybody have an appt. tomm. at Dr.

Herzenberg?

Hi ,

doesn't go back until 9/13 (a Monday) when her cast will be

removed. Have a good appt!! :)

Marilouise

9/9/03, LCF, 3 week cast after tenotomy (13 days left)

Owen and 3/20/99

> We will be there again tomorrow. Just thought I would find out if

anyone

> else was going this week too.

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

>

>

>

>

>

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I agree about the fibreglass strips being wonderful! Nearly all of Jasper's

casts were plaster

bandage to the knee, with a knob left at the end so that we could soak and

unroll them in

the bath - about 5mins per leg. On top of this a fibreglass casting tape made by

3M was

rolled to the groin which set hard, this unrolled easily when needed but stuck

fast until

then. This was breathable so the moisture from the plaster underneath could

escape. On

cast change mornings Jasper would end up in bed with us for his 5am feed during

which

time I'd unroll the fibreglass, then he'd get to kick his plasters around for a

while while I

woke up (to the rhythmic sound of 'clckety clack') which I figured gave his

thigh muscles

some exercise then into bath to wask that little bod and unwind the plaster and

off for the

next lot.

The hospital said that this product is great for little babies as it is much

much lighter than

the alternatives and is easy to remove quickly at home if needed for any reason

(such as

cut off circulation). It isn't used on older babies/toddlers much as it cannot

withstand the

bashing around that they do when walking - the plaster underneath would be

compromised. The 2 main reasons it isn't used is it's much higher cost then

plaster, and

lack of knowledge about it. Our tech throught that it was a bit mean to put

plaster on for

all that time when a lightweight alternative is available but babies are so

resilient - they

seem to adapt to all of their challenges - I wish I could be as strong!

Tamsin

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