Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 --- Claire Holyoake wrote: > hi claire, i felt relief right away in certain ways. i havent had a migraine since. just headaches, the tingling was immediatley gone. it is returning though 8 months later. my dr explained to me before the surgery that alot of stuff wont alleviate but the importance of the surgery is to stop progression. permanent paralysis and such things like that. i have terrible hearing loss and will never regain it. now my concern is needing more surgeries. i go aug 1st to find out the next step. i dont know what to say about you not feeling different only that i hope it at least stopped any further problems in the future. which we all no is no guarantee. please keep in touch and let me know how things are coming along. thanks, from Michigan Dear , > > I was diagnosed with ACM 1 a yesr sgo and like you > have suffered since my > childhood. (I am now 30- cringe!) > > I had a decompression in April and haven't yet felt > any improvement. It has > been a rollercoaster of emotions as I was hoping to > wake up pretty much pain > free!!! > > I am going to have another MRI in August to look for > possible scar tissue. > > I live near Bath in the UK. I get the impression you > Americans are much > better informed over there. I don't even know the > length of my herniation! > > It sounds like you have had some relief from > symptoms... did this take long? > Did you notice a difference soon after the op? > > Looking forward to hearing from you, > > Claire > > > > > Date: Tue, 23 Jul 2002 11:15:13 -0700 (PDT) > > To: chiari > > Subject: new to the group > > > > hi all, > > i just wanted to introduce myself. my name is > > > and I am from Michigan. I am 8 months post op. > growing > > up i was considered the hypocondriac of the area. > how > > could someone my age have so many problems/? just > to > > find out they are all symptomatic of chiari. name > it i > > have most likely experienced it. my biggest > question > > is, how many people out there have experienced a > > " relapse " since the surgery.? has anyone undergone > > multiple surgeries? i am becoming symptomatic > again > > lately so my surgeon wants me back in on august > first. > > these are symptoms that had alleviated after my > > surgery. why are they back? if anyone has > experienced > > this please let me know. thank you, NICOLE > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 Hey welcome to GBIC and I see you are up close to mom ( AKA Vitalady ) At least you don't have far to go to get your protein samples New to the group > Hi everyone. Just wanted to post and let y'all know I'm here. =) I > am having an open RNY with Dr. Oh in Federal Way, WA on Tuesday, > January 28th. I am SO excited...and nervous...and anxious...and > getting SCARED!!! Just being honest. I know this is going to be > worth it...but it's just the waiting. I am not scared of the surgery > itself...but worry about the pain afterwards. Also a bit concerned > with the rule of not lifting more than 5 pounds for 8 weeks. I have > an 11 month old daughter! That's going to be a tough one. Ok..I'll > quit rambling on now! Glad to be here!! > > > > > To Subscribe to 's monthly FREE Newsletter send an email to GBCookbook-subscribe@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Theresa, Welcome to the group! I don't think anyone else has mentioned this, but maybe you can try to desentenize your foot so that you can wear normal socks and possibly a shoe. What you need to do is start rubbing your foot with something like a towel, cotton balls, or other materials. At first, it will raise your pain levels a little bit, but only do it for a few minutes at a time, and if you can handle the feel of it gently, do it gently. If you can handle it roughly, do it roughly. Which ever you can handle the feel of.....gently or roughly, start that way, and work with it until you can handle the materials both ways. Most Physical and Occupational Therapy Places do the Desentization stuff.......but it's really easy to do at home yourself, and once you get past the first part of it, when you can handle the feel of the materials on your foot, you might even be able to handle light breezes and hot/cold temps a bit better also. I hope that some of this helps you some. Good luck, and if all else fails, try to find some Ballerina Slippers. I know someone else that can only wear those, and she swears by them! Tonia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 : Welcome to our group. I don't think that anyone here is not guilty of saying " Not Me " , it just takes some of us longer to realize it is us. I hope you are able to find a way to get medical attention soon. kevin williams wrote: Greetings, I just wanted to drop every one a line and introduce myself. My name is and as of about two weeks ago I have been living with IgA for half of my life. One would think that in 13 years I would have made an effort to find this website a little earlier. Unfortunately I'm the stubborn one who said " I won't let it effect me! " so I ignored it. I'm 26 now and have decided that it is time to deal with this condition. Unfortunately I've not got any insurance. My question to folks out there is does any one know of ways to get medical attention with out having to pay out of pocket to a physician or having insurance. Thanks, and I look forward to getting to know some of you out there. Cheers, --------------------------------- Celebrate Yahoo!'s 10th Birthday! Yahoo! Netrospective: 100 Moments of the Web Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 > DANNY- I too have the choking problem, I spit a mouthful of coffee all over my newspaper this morning, When eating you just have to cut everything in to smaller pieces and dont try to talk with food in your mouth,My pain is on the right side where this all started.JOHN B. > Hello: > The neroligist said I had this PLS over a year ago and I just > started having this choking feeling while I am eating but I am not > choking on the food but it seems like my throat is closing up and I > am not getting any air is anyone else having this problem. also I > have alot of left side pain too which I have had since day one does > any one else have this. Thanks Danny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Welcome to the family, it's a great group. I can eat fine but drinking liquids I get that. They are going to try electric stimulation if insurance okays it. Pain... I have it all over Percacet helps but most things I react negatively too... dale New to the group > > > Hello: > The neroligist said I had this PLS over a year ago and I just > started having this choking feeling while I am eating but I am not > choking on the food but it seems like my throat is closing up and I > am not getting any air is anyone else having this problem. also I > have alot of left side pain too which I have had since day one does > any one else have this. Thanks Danny > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Hi Danny, Welcome to our group, I too had trouble swallowing, some of the great people here told me to tuck my chin to my chest whenever I'm swallowing food or drink. It took me awhile to remember to do it, it works great. You are in the right place. Take care......jeannie in nj New to the group > > > Hello: > The neroligist said I had this PLS over a year ago and I just > started having this choking feeling while I am eating but I am not > choking on the food but it seems like my throat is closing up and I > am not getting any air is anyone else having this problem. also I > have alot of left side pain too which I have had since day one does > any one else have this. Thanks Danny > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Hi Danny, Welcome to the group! I choke all the time - feels like the whole process just somes to a screeching halt at the most crucial point. It is very sacry too. I've learned to take very small bites and tip my head forward if choking starts. From having a sore tooth i learned if i try to swallow on my 'better' side - right side is more affected so i try to let the left do most of the work - and it seems to be helping a little. Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2005 Report Share Posted April 1, 2005 Hi Tammy. IgA nephropathy is a kind of chronic glomerulonephritis (there are different kinds). Sometimes it's called IgA nephritis. It's all the same thing. Pierre New to the group > > > > Hi, I'm new to the group my 15 year old son was recently diagonised > with IGA Nephropathy. To make a long story short. The first doctor > we say diagonisis was Chronic Glomerulonephritis IGA Nephropathy. He > wrote both down for me. We took him for a 2nd opinion. The 2nd > doctor didn't mention Chronic Glomeulonephritis. Can anyone tell me > the difference? Of all the questions we wrote this is one I forgot. > Thanks for the help. I have been reading posting and found them very > helpful. > > Tammy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2005 Report Share Posted April 1, 2005 Hi Tammy, A very warm welcome to you and your son. I am sorry you needed to find your way here. We seem to have a number of new members that are mothers of young folks with IgAN as of late so you are in good company. IgAN is also referred to as glomerulonephnritis and also as Berger's disease. It can be overwhelming especially at first, and a good resource would be our sister site _www.igan.ca_ (http://www.igan.ca) if you have not yet had the chance to look through there. Welcome again! In a message dated 3/31/2005 9:06:33 P.M. Pacific Standard Time, tav110@... writes: Hi, I'm new to the group my 15 year old son was recently diagonised with IGA Nephropathy. To make a long story short. The first doctor we say diagonisis was Chronic Glomerulonephritis IGA Nephropathy. He wrote both down for me. We took him for a 2nd opinion. The 2nd doctor didn't mention Chronic Glomeulonephritis. Can anyone tell me the difference? Of all the questions we wrote this is one I forgot. Thanks for the help. I have been reading posting and found them very helpful. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Hi , Thanks again for just being here. So far Blake is handling this fairly well. He is taking his medication (althought his first day was friday 4-1-05) He is on envalapril 5mg once a day. And Blake is trying new vegatables, although he is complaining about that every step of the way. So far is seems as if the medication is making him more irritable, and tired. I'm hoping in time this will go away. Right now we're trying to take it one day at a time. The good thing is Blake kidney's are function good. I'm still learning all the levels from reading so I can be prepared if the need arises. Though how prepared to you really become. Blake is on spring break this week which has help out, he has things to keep him busy without worrying about school work. Blake likes this new neph, which is one of the reasons for that 2nd opinion as well. The first one he couldn't understand. This new neph sits and talks to Blake, which we are all happy with. Am I understand right that has had a transplant (tx)? Tammy > > > > Hi, I'm new to the group my 15 year old son was recently > diagonised > > with IGA Nephropathy. To make a long story short. The first > doctor > > we say diagonisis was Chronic Glomerulonephritis IGA Nephropathy. > He > > wrote both down for me. We took him for a 2nd opinion. The 2nd > > doctor didn't mention Chronic Glomeulonephritis. Can anyone tell > me > > the difference? Of all the questions we wrote this is one I > forgot. > > Thanks for the help. I have been reading posting and found them > very > > helpful. > > > > Tammy > > > > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely > supported by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2005 Report Share Posted April 3, 2005 Hi Tammy, No he has not had a kidney transplant, I am sorry if I confused you. I meant his medication treatment. There are times when the meds he is taking makes him irritable and very tired, some days its hard for him to get thru a school day. Did he have a kidney biopsy done yet? How high was his protein spill? Thanks, tav110 wrote: Hi , Thanks again for just being here. So far Blake is handling this fairly well. He is taking his medication (althought his first day was friday 4-1-05) He is on envalapril 5mg once a day. And Blake is trying new vegatables, although he is complaining about that every step of the way. So far is seems as if the medication is making him more irritable, and tired. I'm hoping in time this will go away. Right now we're trying to take it one day at a time. The good thing is Blake kidney's are function good. I'm still learning all the levels from reading so I can be prepared if the need arises. Though how prepared to you really become. Blake is on spring break this week which has help out, he has things to keep him busy without worrying about school work. Blake likes this new neph, which is one of the reasons for that 2nd opinion as well. The first one he couldn't understand. This new neph sits and talks to Blake, which we are all happy with. Am I understand right that has had a transplant (tx)? Tammy > > > > Hi, I'm new to the group my 15 year old son was recently > diagonised > > with IGA Nephropathy. To make a long story short. The first > doctor > > we say diagonisis was Chronic Glomerulonephritis IGA Nephropathy. > He > > wrote both down for me. We took him for a 2nd opinion. The 2nd > > doctor didn't mention Chronic Glomeulonephritis. Can anyone tell > me > > the difference? Of all the questions we wrote this is one I > forgot. > > Thanks for the help. I have been reading posting and found them > very > > helpful. > > > > Tammy > > > > > > > > > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The site is entirely > supported by donations. If you would like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 Thanks Cathy, I hope all goes well for Jennell on Thursday. Good luck! let me know how it goes. Cathy Waelty wrote:Good news on s spill. Tell him to keep up the good work, you and he must be doing something right, good for you and him Cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2006 Report Share Posted April 2, 2006 In a message dated 4/2/2006 12:14:52 A.M. Eastern Daylight Time, red_1_9_7_5@... writes: Hi...just a quick introduction. I have an 11 year old hard of hearing son, and am looking for other parents of hard of hearing children to get to know. Hey there, I'm Jill, mom to a 15-year-old D/HOH son with a moderate progressive loss. Ian is very oral, his hearing loss began after he had learned to speak. We learned of it when he was about 7. It's a long story which includes a couple bad doctors and misdiagnosis, but to make it much shorter, he was aided around age 9. Ian is now a mainstreamed sophomore in our local high school. He is just an average kid who happens to wear aids. Loves to hike climb, kayak ... anything outdoors. Current proof is now sitting in the laundry basket -- his muddied clothes from this weekend's adventures. Ian's new FM microphone has a new jack setup to link it into the TV/DVD/etc devices. And it took our boy only a day to figure out how to switch the jack over to his MP3 player. He can now play his MP3 in school without the telltale cord heading to the earphones. (MP3s are frowned upon in school). As we were driving the boys to the camp out, one of friends announced that he is officially jealous of Ian being deaf since he can't secretly listen to his MP3 but Ian can. I gave our son grief, reminding him that he too could have his MP3 confiscated if he gets caught. And if he misuses his technology and listens to the MP3 in class, I'll be the one throwing it away. (grin) He swears he only listens in between classes. Welcome to the group, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 Hi Tifani (and everyone who's new!). I'm Barbara - I have two boys, both have hearing loss. Tom is 13 with a severe/profound loss. He was recently implanted (Nov. 16) and activated about 4 months. He also wears a hearing aid on the non-implanted ear. Sam is 11 with a profound loss. He currently wears two hearing aids but will have his cochlear implant surgery May 10. We'll be Hanover's Most Wired Family I guess... I'm glad you found Listen-up - it's a wonderful, smart, caring place to be. Barbara Tifani Gercama wrote: > Hi...just a quick introduction. I have an 11 year old hard of hearing son, and am looking for other parents of hard of hearing children to get to know. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 Hi there! My name is Keisha with a 10 year old hard of hearing son! Its great to meet you. My son has a loss in his left ear and has been implanted just recently with a BAHA hearing device. WELCOME! I look forward to talking with you more and more. Tifani Gercama wrote: Hi...just a quick introduction. I have an 11 year old hard of hearing son, and am looking for other parents of hard of hearing children to get to know. --------------------------------- Enrich your life at Yahoo! Canada Finance Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 Barbara Mellert wrote: <<Sam is 11 with a profound loss. He currently wears two hearing aids but will have his cochlear implant surgery May 10. We'll be Hanover's Most Wired Family I guess...>> Wow! That's great news for Sam. Is he looking forward to it now that Tom can tell him what it's like? You guys have been busy. Hanover's going to be *the* place to be! We can't find a kid who wears aids in our neck of the woods (other than our own) let alone 2 kids in the same town with a CI. --------------------------------- How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 There actually is another family here with a second grader - I haven't met them. He's in the same school as Sam. When the boys were little, I used to get so many questions about their hearing loss. With Tom, his processor nearly matches his hair so unless you're looking for it, you really can't see it. Sam's hair is lighter than Tom's so I'm not sure what color we'll go with for him. I never would have thought that having two kids who couldn't hear would be a good thing - and sure, if asked I'd say I'd rather they could hear - but it's SO nice that they have each other. Tom's relishing being the trail blazer for Sam - and it's really helped a bunch. Johanna Lynch wrote: > Barbara Mellert wrote: <<Sam is 11 with a profound > loss. He currently wears two hearing aids but will have his cochlear > implant surgery May 10. We'll be Hanover's Most Wired Family I guess...>> > > Wow! That's great news for Sam. Is he looking forward to it now that Tom can tell him what it's like? You guys have been busy. > > Hanover's going to be *the* place to be! We can't find a kid who wears aids in our neck of the woods (other than our own) let alone 2 kids in the same town with a CI. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 Barbara, I missed the news about Sam in your earlier post -- that's really great! Wow, two guys with CIs! You ARE definitely wired for sound! Stefanie on 4/3/06 2:35 PM, Barbara Mellert at Barbara.T.Mellert@... wrote: > There actually is another family here with a second grader - I haven't > met them. He's in the same school as Sam. > > When the boys were little, I used to get so many questions about their > hearing loss. With Tom, his processor nearly matches his hair so unless > you're looking for it, you really can't see it. Sam's hair is lighter > than Tom's so I'm not sure what color we'll go with for him. > > I never would have thought that having two kids who couldn't hear would > be a good thing - and sure, if asked I'd say I'd rather they could hear > - but it's SO nice that they have each other. Tom's relishing being the > trail blazer for Sam - and it's really helped a bunch. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 We're excited - Sam's excited! Unlike Tom (my drama king), Sam's pretty stoic but really wants one now that he sees how well Tom's done with it. It's scheduled for May 10 - so much to do between now and then! Barbara Stefanie Cloutier wrote: > Barbara, I missed the news about Sam in your earlier post -- that's really > great! Wow, two guys with CIs! You ARE definitely wired for sound! > > Stefanie > > on 4/3/06 2:35 PM, Barbara Mellert at Barbara.T.Mellert@... wrote: > > >> There actually is another family here with a second grader - I haven't >> met them. He's in the same school as Sam. >> >> When the boys were little, I used to get so many questions about their >> hearing loss. With Tom, his processor nearly matches his hair so unless >> you're looking for it, you really can't see it. Sam's hair is lighter >> than Tom's so I'm not sure what color we'll go with for him. >> >> I never would have thought that having two kids who couldn't hear would >> be a good thing - and sure, if asked I'd say I'd rather they could hear >> - but it's SO nice that they have each other. Tom's relishing being the >> trail blazer for Sam - and it's really helped a bunch. >> >> > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 > > I just wanted to take a moment to introduce myself. My name is > Barbara, I am 36, married to a wonderful man and the mother of 3 > beautiful children. 2 days ago I was diagnosed with stage 3 breast > cancer and i am to start chemo in 2 days. Does anyone have any > advice? I am a very upbeat happy person and i know that myself, my > husband and my children can handle this as we have been through tough > things before and we see more to come. I guess the only questions i > have is what should i expect to happen with chemo? > Thanks for any replies. > Hugs & have a wonderful weekend > Barbara > hi i am 51 years old and was diagnosed with breast cancer.ihad a mastectomy in Aug and my hormone receptors were negative.So i dont have to have any chemo or radiation.iam pondering reconstruction surgery so if any one has had it i would like to hear from them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Barbara, what kind of chemo are you receiving? I did AC and Taxol. Had a hard time with AC. my friend who was going through it too had an easy time. She was really overwieght and I am skinny so I don't know, maybe this had something to do with it!!?? My advice is to eat very well ,that means organic foods, see a naturopathic doctor for real health advice, the chemo doctors and nurses know absolutley nothing about actual health, they will tell you to eat whatever. This advice should not be followed. Stay away from processed foods, sugar, salt, any animal products, dairy ets... Food is your biggest medicinal arsenal right now. Make sure you try to excersize if you can just walk, that's great. Drink buckets of water every day. Take the most expensive and best immune supplements possible, take saunas 3 days after the chemo if you are to recieve injections to quicker detox the crap from you body. the 2nd or 3rd day after chemo you can start detoxing the crap from your cells. This is when you start to feel the effects. Then it gets worse, like the 4th 5th 6th and 7th days are harsh. Usually the 3, 4 5 are the worst, and they make other days seem easy, but it is all perspective. The work the chemo does in killing the fast reproducing cells is done in the first 24-48 hours, after that your body is dying inside, literally, so it's important to get that crap OUT of your system ASAP. That is why we feel so bad. Chemo is poison. You oncologist knows this they just don't want to scare you. Look up the Gerson Therapy and other related non toxic cancer fighting therapies. It's all at your finger tips. If you want to take a personal interest in your own life, especially at stage 3 it's time to get serious, do the research. These therapies have saved terminal cancer patients. Terminal. they work. Integrating is a good idea if you have already gone for the chemo. It (chemo)sits in your tissues and bones for a long time after you finish and the effects can last years, if you live, so it's important to know what you're dealing with and be prepared. The optimum health institute in San diego is a great place also read anything by Dr. Weil. Thinking positively is good but it won't save your life and either will prayer, I have seen too many people die in lieu of these things. I am a firm believer in personal action. You have to be an active participant in your own cause, do not leave it up the the doctors or God. Chemo speeds up the death process for a lot of people. Be educated so you know when you need to make the right decisions about your own life. You will be empowered and have control where you feel there is no control. You can do it but you have to want to. Good luck and big hugs!! K > > > > I just wanted to take a moment to introduce myself. My name is > > Barbara, I am 36, married to a wonderful man and the mother of 3 > > beautiful children. 2 days ago I was diagnosed with stage 3 breast > > cancer and i am to start chemo in 2 days. Does anyone have any > > advice? I am a very upbeat happy person and i know that myself, my > > husband and my children can handle this as we have been through > tough > > things before and we see more to come. I guess the only questions i > > have is what should i expect to happen with chemo? > > Thanks for any replies. > > Hugs & have a wonderful weekend > > Barbara > > > hi i am 51 years old and was diagnosed with breast cancer.ihad a > mastectomy in Aug and my hormone receptors were negative.So i dont > have to have any chemo or radiation.iam pondering reconstruction > surgery so if any one has had it i would like to hear from them. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 First of all you CANNOT take all supplements if you are getting chemo. Some interact and cause problems. I know St Johs Wort is one of them. Oncs and their nurses spend YEARS going to school to because knowledgeable about treating patients. My onc told me to eat healthy. It is not true that everyone gets sick from chemo. I personally did not and neither did a lot of other ladies. I really feel you are going to scare the new ladies half to death with comments like after that your body is dying inside, literally and Thinking positively is good but it won't save your life and either will prayer, I have seen too many people die in lieu of these things. and have to be an active participant in your own cause, do not leave it up the the doctors or God I totally disagree that prayer and positive thinking will not help to cure you. Prayer is one of the most powerful things there are and there have been miracles. If it wern't for God and my docs and the many people that have and continued to pray for me, I would not be here. I had 3 freinds ALL with better diagnosis than mine that went to a supposed miracle cure and all 3 died within a year leaving 9 childern between them. Ladies, there are NO miracle cures out there. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Re: New to the group Barbara, what kind of chemo are you receiving? I did AC and Taxol. Had a hard time with AC. my friend who was going through it too had an easy time. She was really overwieght and I am skinny so I don't know, maybe this had something to do with it!!?? My advice is to eat very well ,that means organic foods, see a naturopathic doctor for real health advice, the chemo doctors and nurses know absolutley nothing about actual health, they will tell you to eat whatever. This advice should not be followed. Stay away from processed foods, sugar, salt, any animal products, dairy ets... Food is your biggest medicinal arsenal right now. Make sure you try to excersize if you can just walk, that's great. Drink buckets of water every day. Take the most expensive and best immune supplements possible, take saunas 3 days after the chemo if you are to recieve injections to quicker detox the crap from you body. the 2nd or 3rd day after chemo you can start detoxing the crap from your cells. This is when you start to feel the effects. Then it gets worse, like the 4th 5th 6th and 7th days are harsh. Usually the 3, 4 5 are the worst, and they make other days seem easy, but it is all perspective. The work the chemo does in killing the fast reproducing cells is done in the first 24-48 hours, after that your body is dying inside, literally, so it's important to get that crap OUT of your system ASAP. That is why we feel so bad. Chemo is poison. You oncologist knows this they just don't want to scare you. Look up the Gerson Therapy and other related non toxic cancer fighting therapies. It's all at your finger tips. If you want to take a personal interest in your own life, especially at stage 3 it's time to get serious, do the research. These therapies have saved terminal cancer patients. Terminal. they work. Integrating is a good idea if you have already gone for the chemo. It (chemo)sits in your tissues and bones for a long time after you finish and the effects can last years, if you live, so it's important to know what you're dealing with and be prepared. The optimum health institute in San diego is a great place also read anything by Dr. Weil. Thinking positively is good but it won't save your life and either will prayer, I have seen too many people die in lieu of these things. I am a firm believer in personal action. You have to be an active participant in your own cause, do not leave it up the the doctors or God. Chemo speeds up the death process for a lot of people. Be educated so you know when you need to make the right decisions about your own life. You will be empowered and have control where you feel there is no control. You can do it but you have to want to. Good luck and big hugs!! K > > > > I just wanted to take a moment to introduce myself. My name is > > Barbara, I am 36, married to a wonderful man and the mother of 3 > > beautiful children. 2 days ago I was diagnosed with stage 3 breast > > cancer and i am to start chemo in 2 days. Does anyone have any > > advice? I am a very upbeat happy person and i know that myself, my > > husband and my children can handle this as we have been through > tough > > things before and we see more to come. I guess the only questions i > > have is what should i expect to happen with chemo? > > Thanks for any replies. > > Hugs & have a wonderful weekend > > Barbara > > > hi i am 51 years old and was diagnosed with breast cancer.ihad a > mastectomy in Aug and my hormone receptors were negative.So i dont > have to have any chemo or radiation.iam pondering reconstruction > surgery so if any one has had it i would like to hear from them. > ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.12.13/463 - Release Date: 10/4/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Barbara, Welcome to the group. Its great to have a good outlook. Thats half the battle. Everyone responds to chemo differently. There are plenty of nausea meds should you get sick from it. I personally did not get sick. Talk to your onc and if one medicine doesn't work ask for something else. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Re: New to the group > > I just wanted to take a moment to introduce myself. My name is > Barbara, I am 36, married to a wonderful man and the mother of 3 > beautiful children. 2 days ago I was diagnosed with stage 3 breast > cancer and i am to start chemo in 2 days. Does anyone have any > advice? I am a very upbeat happy person and i know that myself, my > husband and my children can handle this as we have been through tough > things before and we see more to come. I guess the only questions i > have is what should i expect to happen with chemo? > Thanks for any replies. > Hugs & have a wonderful weekend > Barbara > hi i am 51 years old and was diagnosed with breast cancer.ihad a mastectomy in Aug and my hormone receptors were negative.So i dont have to have any chemo or radiation.iam pondering reconstruction surgery so if any one has had it i would like to hear from them. ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.12.12/462 - Release Date: 10/3/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Barbara, Read everything you can get your hands on about chem, there are so many different drugs and combinations. Get the specific info from your md. I had acyclovir,cisplatin and taxotere. My side effects included intense nausea, fatigue, joint/muscle pain, and hair loss, toenail loss (hair and nails returned). Go ahead and shop for bandannas, scarves, wigs while you feel good. The side effects pass....don't forget that! Let the drugs do their job. But read, read, read. cyclonelynn wrote: > > I just wanted to take a moment to introduce myself. My name is > Barbara, I am 36, married to a wonderful man and the mother of 3 > beautiful children. 2 days ago I was diagnosed with stage 3 breast > cancer and i am to start chemo in 2 days. Does anyone have any > advice? I am a very upbeat happy person and i know that myself, my > husband and my children can handle this as we have been through tough > things before and we see more to come. I guess the only questions i > have is what should i expect to happen with chemo? > Thanks for any replies. > Hugs & have a wonderful weekend > Barbara > hi i am 51 years old and was diagnosed with breast cancer.ihad a mastectomy in Aug and my hormone receptors were negative.So i dont have to have any chemo or radiation.iam pondering reconstruction surgery so if any one has had it i would like to hear from them. --------------------------------- All-new Yahoo! Mail - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
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