Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 Diane Sad you need us, but glad you found us. When I was first diagnosed in March 2006, i thought i had one year left. I like to garden, but wouldn't plant anything that would take a long time to bloom, since i didn't know if i would be here to see the flowers. I'm still here and still planting. Although i did make the garden in the front of my house easy care, just in case i have a transplant and can't work in the garden. I hope your doctor recommends pulmonary rehab. Learning about the diseases and staying in shape are very important aspects of dealing with this disease.Pink Joyce IPF 3/06 Pennsylvania Subject: questionsTo: Breathe-Support Date: Friday, October 24, 2008, 10:54 AM Hi- I have never been involved in a support group before and I'm not sure what to do. I want to know things like the natural progression of the disease, how long life expectancy is and if others "feel" their hardness in their lungs like I do. The doctors tell me I can't feel things as the lungs have no feelings but I beg to differ. I don't have a lot of family support and my husband just can't believe I have such a short time left. I have polymyositis and other things going on as well making it hard for me to keep up with things. And how do you keep a positive attitude when things look so bleak and you are constantly fatigued? Thank you for your support-Diane Quote Link to comment Share on other sites More sharing options...
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