Guest guest Posted August 21, 2004 Report Share Posted August 21, 2004 Hi, I think I met you and your husband in the waiting room in Iowa City? I've been reading some of the messages here and you seem to fit the description of the folks I met Friday a.m. We had a 9:30 appointment with Dr. Ponseti. I was there with my daughter (sitting across the room reading) and my son who turns 3 next week. In any case, assuming it was you, I'm happy you received good news for your younger one. I know the news for must be frustrating and that you are not sure what to think. The good thing about Dr. Ponseti, I think, is that he doesn't sugar coat things. I suspect he wanted the other doc to look at the feet just because the other doc performed the surgery--kind of as a case experience. Does notice the stiffness in his feet? Does he complain? Is he able to run, play sports, etc.? Jen P.S. I was reading through some old messages on this website and I loved your quote of " God don't make no junk! " I agree 200%. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 Ya Jen, that was me and my boys. Your kids were so cute and well behaved. Sadly 's feet are very stiff and they tire out quickly. I try not to pamper him too much figuring the more he uses his feet the more limber they will remain, and they will stay strong but when he runs there is definite difficulty. The saddest thing is what happened at t-ball this summer, he was running between bases and was tagged " out " . A man watching the game said he coached t-ball for ten years and seeing them tag out that " crippled boy " really made him mad. " When I was coaching we always let the little crippled kids make it home. " Oh well, we'll just keep chugging along - do the best we can with what we have. On the up side he's one heck of a bicycle rider! s. To ee (number 23) Hi, I think I met you and your husband in the waiting room in Iowa City? I've been reading some of the messages here and you seem to fit the description of the folks I met Friday a.m. We had a 9:30 appointment with Dr. Ponseti. I was there with my daughter (sitting across the room reading) and my son who turns 3 next week. In any case, assuming it was you, I'm happy you received good news for your younger one. I know the news for must be frustrating and that you are not sure what to think. The good thing about Dr. Ponseti, I think, is that he doesn't sugar coat things. I suspect he wanted the other doc to look at the feet just because the other doc performed the surgery--kind of as a case experience. Does notice the stiffness in his feet? Does he complain? Is he able to run, play sports, etc.? Jen P.S. I was reading through some old messages on this website and I loved your quote of " God don't make no junk! " I agree 200%. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 At 06:31 AM 8/22/2004, you wrote: >Ya Jen, that was me and my boys. Your kids were so cute and well behaved. > > Sadly 's feet are very stiff and they tire out quickly. I try > not to pamper him too much figuring the more he uses his feet the more > limber they will remain, and they will stay strong but when he runs there > is definite difficulty. The saddest thing is what happened at t-ball > this summer, he was running between bases and was tagged " out " . A man > watching the game said he coached t-ball for ten years and seeing them > tag out that " crippled boy " really made him mad. " When I was coaching we > always let the little crippled kids make it home. " Apparently this guy didn't know you were his mother? Ugh, that's a hard one. Should he be given a little extra in situations like this so he doesn't feel like he can't do things or should he be treated the same as the kids who'se feet work like they should? How do you know when to give a little so he can feel good about himself or when to let him fall (not literally!) so he knows life isn't always going to just let him win? Crippled... is a word I suddenly realized the true meaning of one day waiting at Shriners. They call it Shriners Hospital for Crippled Children. I realized right then and there that without treatment my daughter would have been *crippled*. I have an aunt with Muscular Distrophy (she is only 30 days older than me - so we were more like cousins) and she was always *crippled* because she is in a wheelchair and can hardly move her upper torso, nothing in her legs. Crippled was always a very real thing to me as I grew up. The thought that Darbs could have fallen into that category is just kind of a strange thought. Kori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2004 Report Share Posted August 24, 2004 It is a hard one because you know how kids can be.....smart enough to learn quick that they can manipulate your heart with their behaviors. ... " gee mom I can't because my feet hurt " . Hearing a coach refer to him as crippled was an eye opener to me. I talk to a lot, always been totally honest wtih him about everything, not just his feet. But with baseball I told him straight up he'd never be a strong runner so we'd work on his batting and throwing because he has very strong upper body. If he can bat well enough it will compensate for him being a slow runner, and if he can throw good enough he'll be valuable to the team in outfield.....base ball isn't about running fast so much as playing well. I took him out of teh stiff cleats and put him in wrestling-shoes which are a lot like swimming-shoes; he ran a lot better in those. s. Re: To ee (number 23) At 06:31 AM 8/22/2004, you wrote: >Ya Jen, that was me and my boys. Your kids were so cute and well behaved. > > Sadly 's feet are very stiff and they tire out quickly. I try > not to pamper him too much figuring the more he uses his feet the more > limber they will remain, and they will stay strong but when he runs there > is definite difficulty. The saddest thing is what happened at t-ball > this summer, he was running between bases and was tagged " out " . A man > watching the game said he coached t-ball for ten years and seeing them > tag out that " crippled boy " really made him mad. " When I was coaching we > always let the little crippled kids make it home. " Apparently this guy didn't know you were his mother? Ugh, that's a hard one. Should he be given a little extra in situations like this so he doesn't feel like he can't do things or should he be treated the same as the kids who'se feet work like they should? How do you know when to give a little so he can feel good about himself or when to let him fall (not literally!) so he knows life isn't always going to just let him win? Crippled... is a word I suddenly realized the true meaning of one day waiting at Shriners. They call it Shriners Hospital for Crippled Children. I realized right then and there that without treatment my daughter would have been *crippled*. I have an aunt with Muscular Distrophy (she is only 30 days older than me - so we were more like cousins) and she was always *crippled* because she is in a wheelchair and can hardly move her upper torso, nothing in her legs. Crippled was always a very real thing to me as I grew up. The thought that Darbs could have fallen into that category is just kind of a strange thought. Kori Quote Link to comment Share on other sites More sharing options...
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