Re: Seeing Prof Bird at long last!

[Guest guest]

In a message dated 2/4/04 11:08:39 AM Eastern Standard Time,

sicklizard@... writes:

<< I will let you know how things go

tomorrow as soon as I can. >>

We're thinking of you and praying for you and waiting to hear how things go.

Take care.

Hugs,

Sue G.

[Guest guest]

Jo --

Good luck and I hope Dr Bird is able to help!!!

Love, Patti

Seeing Prof Bird at long last!

o learn more about EDS, visit our website: http://www.ceda.ca

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[Guest guest]

Jo,

what truly wonderful news. PLEASE keep us all posted. Also may be a

good idea to pack a bag and take it just as a precaution due to the

distance etc. That way if he wants to run tests etc there is NOTHING

stopping him doing the there and then (saving you to many return

trips).

Good Luck and I am so happy that you finally have an appointment with

him (I guess your talk and your current bleeding issues have shocked

your GP into action FINALLY....

Sharon

xxx

> Hi everyone,

>

> I just received a phone call from Prof. Birds secretary asking me

if

> I could attend an appointment - tomorrow morning! It is going to

mean

> a very early for me as the appointment is 9:15 and we have a fairly

> long, busy drive down to Leeds to negotiate. But I have waited so

> long and really need to see him urgently that I can't turn down the

> opportunity.

>

> I am feeling very nervous as so much is resting on the outcome of

> this, but also really glad to finally be seeing him. Especially so

> with my current bleeding issues too, at least he will get to see my

> haematomas etc. I had a very scary incident on Monday evening when

> the vessel in my wrist ruptured and was pumping blood everywhere

for

> quite some time. I now have a glorious deep purple lump from the

palm

> of my hand down my arm. I'm covered in bruises from all these

> bleeders, I look like I've had a serious argument with

gravity....and

> lost! I'm just glad that the timing of this appointment will give

me

> the chance to show what is happening as I'm starting to think it is

> more EDS related than a blood disorder.

>

> I intend making a list of things I need to tell Prof Bird about and

> ask him, but have to confess that my mind is still a little

frazzled

> right now as it's come as a big shock for me after so long waiting!

> I'm sat here with my body aching, mind in hyperdrive and not

knowing

> whether I'm on my head or my heels - but at least I am making

> progress at long last. I only pray that he can give me some

answers,

> options and maybe even some hope. I will let you know how things go

> tomorrow as soon as I can.

>

> Thanks again for all your support, kindness and understanding - it

> means so much to me. I will try to catch up on posts as I can, but

> please know that I am thinking of you all.

>

> Love and hugs....Jo

> xxx