Re: (Long) Rant about meeting with duPont Ortho. Chairman

[Guest guest]

,

I'm sorry they were so rude to you and so unproffessional. We

started out at Dupont and stayed I believe to around Collin's 1st

birthday...and I agree they use a cookie cutter approach and just do

the same for all kids thats why we left. They always were talking

about more surgeries which made me feel uncomfortable that they were

confident in what they were doing. They did do surgery on our son

at 8 weeks old. Now we see Dr. Herzenberg in MD and are very happy.

Michele

Collin's story at http://www.geocities.com/chele323232

[Guest guest]

I let my husband read this. That is, after I picked my chin up off the floor.

His first reaction was to look up duPont, look up Dr Bower, and send him an

e-mail detailing exactly how wrong and insulting he was. Unfortuntely he doesnt

have an e-mail address listed. He DOES, however, have a mailing address listed.

Other's can join in if they wish, I think it might make some impact if he got a

whole bunch of letters about this. We will be sending one - very detailed and

with photos.

It probably will not change his mind in the least, but it WILL show him that you

can't expect to shut up a parent with your " superior knowledge " and get away

with it. It will show him that word gets out.

As a side note, my husband found an article on the duPont site where a child was

misdiagnosed with metatarsus adductus and treated for it for six months before

they figured out that it was skewfoot - which involves the heel as well as the

forefoot and is a whole different thing alltogether. The case file of course

goes on to state how successful BLAH BLAH BLAH. Apparently it isnt uncommon for

them to screw things up. Check it out yourself

http://gait.aidi.udel.edu/res695/homepage/pd_ortho/educate/clincase/skew2htm

Angel

(Long) Rant about meeting with duPont Ortho.

Chairman

OK, I have been stewing on something for more than a month now and I'm still

mad about it so I thought maybe a rant would help! After we had such a

terrible time with duPont hospital in Delaware, and we switched to Iowa, I saw

such major differences between the levels of care Devlin received. I really

thought duPont could benefit from our experience and that other clubfoot

babies---especially Atypical Clubfoot babies---could be treated more

effectively if the doctors at duPont were more aware of the true Ponseti

treatment. You all know what I'm talking about---spreading the word for the

benefit of others.

We called duPont's patient services and worked through the ranks, finally

getting an appointment with the head of Orthopedics at the hospital (Dr.

Bower). The guy claimed to be interested in finding out about our

experiences there and why we were dissatisfied. I talked to Dr. Ponseti

before the meeting to ask what specific points I should drive in. He offered to

train someone from duPont if they would send them out for 2 weeks or so and

I was all excited to suggest that to the guy. I put together the log we had

been

keeping and included color pictures for illustration. I took it all to him to

show

him what went wrong (and right) with Devlin's treatment.

What a joke of a meeting! The jerk really " put us in our place " . Dr. Bower

said

that Dr. Ponseti was someone you could see only if you " had enough money

to lay on the table to get his attention " and that the Ponseti method has never

worked because " he has never found a brace that can hold the correction "

and that " even right now he's working with big orthotics manufacturers trying

to develop something that will work " (I think would be impressed to find

out that he's a " big orthotics company " ). Bower said that if " Ponseti couldn't

find a brace by now, after all these years, he never will " . He also said that

the

University of Iowa " has to let him do what he wants because of his senior

status there " and that they are " indulging him " by letting him continue to

practice. Finally, he said that Dr. Ponseti's method will die with him. I was

so

pissed I could barely speak. I did manage to say " really? tell that to the

troops of doctors from around the world we always see there. " But the jerk

just kept cutting us off and smirking at our naivety.

I don't even need to tell everyone here how absurd everything the guy had to

say was. We could tell that the only purpose of the meeting was to see if we

had grounds or intentions for a lawsuit. I'm so mad at this point I want to sue

just to make them learn how much more they need to know about clubfoot

treatment!

Anyway, feeling rather unempowered, I decided I had to do SOMETHING

about duPont so I put the log and the pictures up on my web site. You can

see it at www.cseel.com/clubfoot/ The search engines are starting to pick it up

and if you do a google search for " clubfoot dupont " ours is the 3rd result. Dr.

Bower may feel like he silenced us, but I beg to differ!

Anyway, thank you for being a forum for my rant! I know everyone here is as

offended and incensed about Bower's Ponseti comments as I am. I just can't

believe guys like this control the future and the fate of so many unsuspecting

babies and their parents. Let's continue to spread the word about proper

clubfoot treatment and stop the few " God-complex " surgeons from maintaining

their status...

[Guest guest]

Thank you Angel for getting me back to the original goal of " positive

action " !!!

First of all, I need to correct something: my spell checker had

changed the name (I had it " learn " Bower for something else)...his

name is Dr. Bowen, not Bower. I never even caught it because at a

glance they look so similar.

I think it would be great if anyone wanted to send him a letter! You

can mention that it's in response to comments he made in a June 25th

meeting with the parents of Devlin Gallagher, or you can make it

seemingly unrelated. I suggest you " cc " over his head since he

already thinks he knows everything there is to know and mere parents

( " mortals " ) cannot offer him ( " The Almighty " ) anything new.

The Address is:

J. Bowen, MD

Chair and Surgeon-in-Chief, Department of Orthopedics

A.I. duPont Hospital for Children

1600 Rockland Road

Post Office Box 269

Wilmington, Delaware 19899

As far as management of the hospital and clinic, the people are:

ALFRED I. duPONT HOSPITAL FOR CHILDREN

P. Ferry

Administrator/Chief Executive

Rita S. Meek, MD

Hospital Medical Director

NEMOURS CHILDREN'S CLINIC — DELAWARE

Roy Proujansky, MD

Chief Executive of the Practice

I really hope maybe if he hears from others he may give more thought

to the Ponseti method. Maybe one set of " disgruntled parents " who

think " the grass is greener in Iowa " (these are my words, not his)

can be easily dismissed, but if he heard success story after success

story he may revisit this issue.

Don't be surprised if we never get anywhere with duPont. In our

experience, as an organization they seem terribly broken. It seemed

that from the people at the reception desk to the cafeteria workers,

all are disgruntled " not my job " bureaucrats (with a few exceptions,

like the O.T. and P.T. who worked with Devlin, and the Geneticist we

saw). They don't seem to have a whole lot of regard for the care of

children. For example, can you believe their " designated nursing

area " is a bathroom stall? Pathetic, isn't it? As of October Aetna

insurance won't deal with them anymore. I'm so glad we finally got

out of there.

But, in thinking of others, maybe we can help them find their way to

better clubfoot treatment by leading a campaign for better Ponseti

method education. Please consider sending a letter to the above

mentioned people.

Thanks again Angel for bringing me back to constructivism!

> I let my husband read this. That is, after I picked my chin up off

the floor. His first reaction was to look up duPont, look up Dr

Bower, and send him an e-mail detailing exactly how wrong and

insulting he was. Unfortuntely he doesnt have an e-mail address

listed. He DOES, however, have a mailing address listed. Other's

can join in if they wish, I think it might make some impact if he got

a whole bunch of letters about this. We will be sending one - very

detailed and with photos.

>

> It probably will not change his mind in the least, but it WILL show

him that you can't expect to shut up a parent with your " superior

knowledge " and get away with it. It will show him that word gets out.

>

> As a side note, my husband found an article on the duPont site

where a child was misdiagnosed with metatarsus adductus and treated

for it for six months before they figured out that it was skewfoot -

which involves the heel as well as the forefoot and is a whole

different thing alltogether. The case file of course goes on to

state how successful BLAH BLAH BLAH. Apparently it isnt uncommon for

them to screw things up. Check it out yourself

http://gait.aidi.udel.edu/res695/homepage/pd_ortho/educate/clincase/sk

ew2htm

>

> Angel

>

> (Long) Rant about meeting with duPont

Ortho. Chairman

>

>

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin received.

I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the hospital

(Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die with

him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was to

see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the 3rd

result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

>

>

>

>

[Guest guest]

I will definitely CC all the people mentioned, and it is my full intention to

reference your meeting. It is unprofessional in the worst degree to do and say

what he did.

Also, and I will include this i my letter, if I am not mistaken, more children

WORLDWIDE are being reached and helped by the Ponseti Method (Dr Pirani's

projects and others like it) than any other single method of treating clubfoot

in existence. I suspect those parents and patients would have alot to say about

how is " doesnt work " ! it is only doctors that are ignorant and unwilling to

learn in my opinion (and those are marks of a VERY BAD doctor) that completely

discount it.

Angel

(Long) Rant about meeting with duPont

Ortho. Chairman

>

>

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin received.

I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the hospital

(Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die with

him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was to

see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the 3rd

result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

>

>

>

>

[Guest guest]

I am totally speechless!!!! If letters will help I will be most happy to

write one. I don't know how in the world he could say it was about money!!!!

We paid for our son's Ponseti treatment totally out of pocket and it was far

less than all the surgeries would have been after insurance!!!!!! I am not

big on lawsuits, but I think they asked for one.

and Caleb 3-31-01

& Derrick

Southern Exposure

Fine Photography & Video

www.sesav.com

(Long) Rant about meeting with duPont Ortho.

Chairman

OK, I have been stewing on something for more than a month now and I'm still

mad about it so I thought maybe a rant would help! After we had such a

terrible time with duPont hospital in Delaware, and we switched to Iowa, I

saw

such major differences between the levels of care Devlin received. I really

thought duPont could benefit from our experience and that other clubfoot

babies---especially Atypical Clubfoot babies---could be treated more

effectively if the doctors at duPont were more aware of the true Ponseti

treatment. You all know what I'm talking about---spreading the word for the

benefit of others.

We called duPont's patient services and worked through the ranks, finally

getting an appointment with the head of Orthopedics at the hospital (Dr.

Bower). The guy claimed to be interested in finding out about our

experiences there and why we were dissatisfied. I talked to Dr. Ponseti

before the meeting to ask what specific points I should drive in. He

offered to

train someone from duPont if they would send them out for 2 weeks or so and

I was all excited to suggest that to the guy. I put together the log we had

been

keeping and included color pictures for illustration. I took it all to him

to show

him what went wrong (and right) with Devlin's treatment.

What a joke of a meeting! The jerk really " put us in our place " . Dr. Bower

said

that Dr. Ponseti was someone you could see only if you " had enough money

to lay on the table to get his attention " and that the Ponseti method has

never

worked because " he has never found a brace that can hold the correction "

and that " even right now he's working with big orthotics manufacturers

trying

to develop something that will work " (I think would be impressed to

find

out that he's a " big orthotics company " ). Bower said that if " Ponseti

couldn't

find a brace by now, after all these years, he never will " . He also said

that the

University of Iowa " has to let him do what he wants because of his senior

status there " and that they are " indulging him " by letting him continue to

practice. Finally, he said that Dr. Ponseti's method will die with him. I

was so

pissed I could barely speak. I did manage to say " really? tell that to the

troops of doctors from around the world we always see there. " But the jerk

just kept cutting us off and smirking at our naivety.

I don't even need to tell everyone here how absurd everything the guy had to

say was. We could tell that the only purpose of the meeting was to see if

we

had grounds or intentions for a lawsuit. I'm so mad at this point I want to

sue

just to make them learn how much more they need to know about clubfoot

treatment!

Anyway, feeling rather unempowered, I decided I had to do SOMETHING

about duPont so I put the log and the pictures up on my web site. You can

see it at www.cseel.com/clubfoot/ The search engines are starting to pick

it up

and if you do a google search for " clubfoot dupont " ours is the 3rd result.

Dr.

Bower may feel like he silenced us, but I beg to differ!

Anyway, thank you for being a forum for my rant! I know everyone here is as

offended and incensed about Bower's Ponseti comments as I am. I just can't

believe guys like this control the future and the fate of so many

unsuspecting

babies and their parents. Let's continue to spread the word about proper

clubfoot treatment and stop the few " God-complex " surgeons from maintaining

their status...

[Guest guest]

Wow, and after all your hard work to prepare for your meeting he just treated

you like dirt. Man that bites, we should gang up on him somehow....I like your

web site idea, anything we can do to help there?

s.

(Long) Rant about meeting with duPont Ortho.

Chairman

OK, I have been stewing on something for more than a month now and I'm still

mad about it so I thought maybe a rant would help! After we had such a

terrible time with duPont hospital in Delaware, and we switched to Iowa, I saw

such major differences between the levels of care Devlin received. I really

thought duPont could benefit from our experience and that other clubfoot

babies---especially Atypical Clubfoot babies---could be treated more

effectively if the doctors at duPont were more aware of the true Ponseti

treatment. You all know what I'm talking about---spreading the word for the

benefit of others.

We called duPont's patient services and worked through the ranks, finally

getting an appointment with the head of Orthopedics at the hospital (Dr.

Bower). The guy claimed to be interested in finding out about our

experiences there and why we were dissatisfied. I talked to Dr. Ponseti

before the meeting to ask what specific points I should drive in. He offered to

train someone from duPont if they would send them out for 2 weeks or so and

I was all excited to suggest that to the guy. I put together the log we had

been

keeping and included color pictures for illustration. I took it all to him to

show

him what went wrong (and right) with Devlin's treatment.

What a joke of a meeting! The jerk really " put us in our place " . Dr. Bower

said

that Dr. Ponseti was someone you could see only if you " had enough money

to lay on the table to get his attention " and that the Ponseti method has never

worked because " he has never found a brace that can hold the correction "

and that " even right now he's working with big orthotics manufacturers trying

to develop something that will work " (I think would be impressed to find

out that he's a " big orthotics company " ). Bower said that if " Ponseti couldn't

find a brace by now, after all these years, he never will " . He also said that

the

University of Iowa " has to let him do what he wants because of his senior

status there " and that they are " indulging him " by letting him continue to

practice. Finally, he said that Dr. Ponseti's method will die with him. I was

so

pissed I could barely speak. I did manage to say " really? tell that to the

troops of doctors from around the world we always see there. " But the jerk

just kept cutting us off and smirking at our naivety.

I don't even need to tell everyone here how absurd everything the guy had to

say was. We could tell that the only purpose of the meeting was to see if we

had grounds or intentions for a lawsuit. I'm so mad at this point I want to sue

just to make them learn how much more they need to know about clubfoot

treatment!

Anyway, feeling rather unempowered, I decided I had to do SOMETHING

about duPont so I put the log and the pictures up on my web site. You can

see it at www.cseel.com/clubfoot/ The search engines are starting to pick it up

and if you do a google search for " clubfoot dupont " ours is the 3rd result. Dr.

Bower may feel like he silenced us, but I beg to differ!

Anyway, thank you for being a forum for my rant! I know everyone here is as

offended and incensed about Bower's Ponseti comments as I am. I just can't

believe guys like this control the future and the fate of so many unsuspecting

babies and their parents. Let's continue to spread the word about proper

clubfoot treatment and stop the few " God-complex " surgeons from maintaining

their status...

[Guest guest]

I just looked at your page, you put a lot of work there but I do wonder why you

are not focused on promoting Dr. Ponseti as you de-promote DuPont. Will that

come soon? Also, the email link at the bottom of your page did not work for me,

might want to look at that.

s.

Subject: Re: (Long) Rant about meeting with duPont Ortho.

Chairman

I let my husband read this. That is, after I picked my chin up off the floor.

His first reaction was to look up duPont, look up Dr Bower, and send him an

e-mail detailing exactly how wrong and insulting he was. Unfortuntely he doesnt

have an e-mail address listed. He DOES, however, have a mailing address listed.

Other's can join in if they wish, I think it might make some impact if he got a

whole bunch of letters about this. We will be sending one - very detailed and

with photos.

It probably will not change his mind in the least, but it WILL show him that you

can't expect to shut up a parent with your " superior knowledge " and get away

with it. It will show him that word gets out.

As a side note, my husband found an article on the duPont site where a child was

misdiagnosed with metatarsus adductus and treated for it for six months before

they figured out that it was skewfoot - which involves the heel as well as the

forefoot and is a whole different thing alltogether. The case file of course

goes on to state how successful BLAH BLAH BLAH. Apparently it isnt uncommon for

them to screw things up. Check it out yourself

http://gait.aidi.udel.edu/res695/homepage/pd_ortho/educate/clincase/skew2htm

Angel

(Long) Rant about meeting with duPont Ortho.

Chairman

OK, I have been stewing on something for more than a month now and I'm still

mad about it so I thought maybe a rant would help! After we had such a

terrible time with duPont hospital in Delaware, and we switched to Iowa, I saw

such major differences between the levels of care Devlin received. I really

thought duPont could benefit from our experience and that other clubfoot

babies---especially Atypical Clubfoot babies---could be treated more

effectively if the doctors at duPont were more aware of the true Ponseti

treatment. You all know what I'm talking about---spreading the word for the

benefit of others.

We called duPont's patient services and worked through the ranks, finally

getting an appointment with the head of Orthopedics at the hospital (Dr.

Bower). The guy claimed to be interested in finding out about our

experiences there and why we were dissatisfied. I talked to Dr. Ponseti

before the meeting to ask what specific points I should drive in. He offered to

train someone from duPont if they would send them out for 2 weeks or so and

I was all excited to suggest that to the guy. I put together the log we had

been

keeping and included color pictures for illustration. I took it all to him to

show

him what went wrong (and right) with Devlin's treatment.

What a joke of a meeting! The jerk really " put us in our place " . Dr. Bower

said

that Dr. Ponseti was someone you could see only if you " had enough money

to lay on the table to get his attention " and that the Ponseti method has never

worked because " he has never found a brace that can hold the correction "

and that " even right now he's working with big orthotics manufacturers trying

to develop something that will work " (I think would be impressed to find

out that he's a " big orthotics company " ). Bower said that if " Ponseti couldn't

find a brace by now, after all these years, he never will " . He also said that

the

University of Iowa " has to let him do what he wants because of his senior

status there " and that they are " indulging him " by letting him continue to

practice. Finally, he said that Dr. Ponseti's method will die with him. I was

so

pissed I could barely speak. I did manage to say " really? tell that to the

troops of doctors from around the world we always see there. " But the jerk

just kept cutting us off and smirking at our naivety.

I don't even need to tell everyone here how absurd everything the guy had to

say was. We could tell that the only purpose of the meeting was to see if we

had grounds or intentions for a lawsuit. I'm so mad at this point I want to sue

just to make them learn how much more they need to know about clubfoot

treatment!

Anyway, feeling rather unempowered, I decided I had to do SOMETHING

about duPont so I put the log and the pictures up on my web site. You can

see it at www.cseel.com/clubfoot/ The search engines are starting to pick it up

and if you do a google search for " clubfoot dupont " ours is the 3rd result. Dr.

Bower may feel like he silenced us, but I beg to differ!

Anyway, thank you for being a forum for my rant! I know everyone here is as

offended and incensed about Bower's Ponseti comments as I am. I just can't

believe guys like this control the future and the fate of so many unsuspecting

babies and their parents. Let's continue to spread the word about proper

clubfoot treatment and stop the few " God-complex " surgeons from maintaining

their status...

[Guest guest]

Oh my , I feel just awful for you and poor Devlin! As I

read and looked at the photos, it's blatantly obvious that " Dr. Jay "

is clueless about the Ponseti method! Her post tenotomy casts were

not even put on correctly - her feet should have been out to the

sides in them. Also, that FAB that you were given, aside from the

shoes being the wrong size, the bar was not the proper length

either! Sheesh! This is why it is so important that parents become

informed. Good for you for taking that next step and getting her to

Iowa!

If I were you, I'd contact a local newspaper or a news station.

Man, I'd be seething too if I'd had that appointment with the head of

orthopaedics. I'm sure that Dr. Bower feels very threatened by the

Ponseti Method and all of it's success (when performed correctly!).

Hugs!

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin received.

I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the hospital

(Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die with

him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was to

see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the 3rd

result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

[Guest guest]

wow!

that si the only word i can come up with right now!

so sorry that you had to endure this!. well god bless the poor kids under his

treatment.

allyn

Seel christine_seel@...> wrote:

OK, I have been stewing on something for more than a month now and I'm still

mad about it so I thought maybe a rant would help! After we had such a

terrible time with duPont hospital in Delaware, and we switched to Iowa, I saw

such major differences between the levels of care Devlin received. I really

thought duPont could benefit from our experience and that other clubfoot

babies---especially Atypical Clubfoot babies---could be treated more

effectively if the doctors at duPont were more aware of the true Ponseti

treatment. You all know what I'm talking about---spreading the word for the

benefit of others.

We called duPont's patient services and worked through the ranks, finally

getting an appointment with the head of Orthopedics at the hospital (Dr.

Bower). The guy claimed to be interested in finding out about our

experiences there and why we were dissatisfied. I talked to Dr. Ponseti

before the meeting to ask what specific points I should drive in. He offered to

train someone from duPont if they would send them out for 2 weeks or so and

I was all excited to suggest that to the guy. I put together the log we had

been

keeping and included color pictures for illustration. I took it all to him to

show

him what went wrong (and right) with Devlin's treatment.

What a joke of a meeting! The jerk really " put us in our place " . Dr. Bower

said

that Dr. Ponseti was someone you could see only if you " had enough money

to lay on the table to get his attention " and that the Ponseti method has never

worked because " he has never found a brace that can hold the correction "

and that " even right now he's working with big orthotics manufacturers trying

to develop something that will work " (I think would be impressed to find

out that he's a " big orthotics company " ). Bower said that if " Ponseti couldn't

find a brace by now, after all these years, he never will " . He also said that

the

University of Iowa " has to let him do what he wants because of his senior

status there " and that they are " indulging him " by letting him continue to

practice. Finally, he said that Dr. Ponseti's method will die with him. I was

so

pissed I could barely speak. I did manage to say " really? tell that to the

troops of doctors from around the world we always see there. " But the jerk

just kept cutting us off and smirking at our naivety.

I don't even need to tell everyone here how absurd everything the guy had to

say was. We could tell that the only purpose of the meeting was to see if we

had grounds or intentions for a lawsuit. I'm so mad at this point I want to sue

just to make them learn how much more they need to know about clubfoot

treatment!

Anyway, feeling rather unempowered, I decided I had to do SOMETHING

about duPont so I put the log and the pictures up on my web site. You can

see it at www.cseel.com/clubfoot/ The search engines are starting to pick it up

and if you do a google search for " clubfoot dupont " ours is the 3rd result. Dr.

Bower may feel like he silenced us, but I beg to differ!

Anyway, thank you for being a forum for my rant! I know everyone here is as

offended and incensed about Bower's Ponseti comments as I am. I just can't

believe guys like this control the future and the fate of so many unsuspecting

babies and their parents. Let's continue to spread the word about proper

clubfoot treatment and stop the few " God-complex " surgeons from maintaining

their status...

[Guest guest]

I have been working on the " rest of the story " for a while. I took

so many more pictures and there is so much more information from the

point of Iowa forward---we were really in the dark before then.

It'll be a lot of work but well worth it I believe. I really only

put this up because it was together already in a word document that I

just made some minor changes to and was able to put it out there. I

am a person who usually never focuses on the negative and at least

balances " the bad " with " more good " . In this case, I wanted to put

it out there right away because the guy made it clear to us that we

were " only " parents, lowly individuals who could do nothing to make

him think outside his pre-determined idea of how treatment should

go. The Internet is how I found out about Dr. Ponseti, from parents

like you. These " high and mighty " surgeons are no longer the

gatekeepers of the information we need to get proper treatment for

our children and we should all share our stories, good and bad.

There are many reasons I think it's important to put the rest of our

story up. First of all, Devlin has Atypical CF and there may be many

babies out there being treated (like she was) for regular CF,

creating a secondary deformity. Also, it's important to highlight

the difference in treatment in general. Lastly, I really want to

promote the Ponseti method in its true form so that others don't fall

prey to the " yeah we use his methods here " lie.

Thanks so much for the heads up on the mail link not working. It

should be working now. There were a few things that didn't work

right when saving the document " as HTML " and I had to go put the HTML

tags in " by hand " . It's probably been 6 years or more since I had to

do that!

Watch for the updates soon to come. Thanks!

> I just looked at your page, you put a lot of work there but I do

wonder why you are not focused on promoting Dr. Ponseti as you de-

promote DuPont. Will that come soon? Also, the email link at the

bottom of your page did not work for me, might want to look at that.

> s.

>

> Subject: Re: (Long) Rant about meeting with

duPont Ortho. Chairman

>

>

> I let my husband read this. That is, after I picked my chin up off

the floor. His first reaction was to look up duPont, look up Dr

Bower, and send him an e-mail detailing exactly how wrong and

insulting he was. Unfortuntely he doesnt have an e-mail address

listed. He DOES, however, have a mailing address listed. Other's

can join in if they wish, I think it might make some impact if he got

a whole bunch of letters about this. We will be sending one - very

detailed and with photos.

>

> It probably will not change his mind in the least, but it WILL show

him that you can't expect to shut up a parent with your " superior

knowledge " and get away with it. It will show him that word gets out.

>

> As a side note, my husband found an article on the duPont site

where a child was misdiagnosed with metatarsus adductus and treated

for it for six months before they figured out that it was skewfoot -

which involves the heel as well as the forefoot and is a whole

different thing alltogether. The case file of course goes on to

state how successful BLAH BLAH BLAH. Apparently it isnt uncommon for

them to screw things up. Check it out yourself

http://gait.aidi.udel.edu/res695/homepage/pd_ortho/educate/clincase/sk

ew2htm

>

> Angel

>

> (Long) Rant about meeting with duPont

Ortho. Chairman

>

>

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin received.

I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the hospital

(Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die with

him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was to

see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the 3rd

result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

>

>

>

>

[Guest guest]

I have been working on the " rest of the story " for a while. I took

so many more pictures and there is so much more information from the

point of Iowa forward---we were really in the dark before then.

It'll be a lot of work but well worth it I believe. I really only

put this up because it was together already in a word document that I

just made some minor changes to and was able to put it out there. I

am a person who usually never focuses on the negative and at least

balances " the bad " with " more good " . In this case, I wanted to put

it out there right away because the guy made it clear to us that we

were " only " parents, lowly individuals who could do nothing to make

him think outside his pre-determined idea of how treatment should

go. The Internet is how I found out about Dr. Ponseti, from parents

like you. These " high and mighty " surgeons are no longer the

gatekeepers of the information we need to get proper treatment for

our children and we should all share our stories, good and bad.

There are many reasons I think it's important to put the rest of our

story up. First of all, Devlin has Atypical CF and there may be many

babies out there being treated (like she was) for regular CF,

creating a secondary deformity. Also, it's important to highlight

the difference in treatment in general. Lastly, I really want to

promote the Ponseti method in its true form so that others don't fall

prey to the " yeah we use his methods here " lie.

Thanks so much for the heads up on the mail link not working. It

should be working now. There were a few things that didn't work

right when saving the document " as HTML " and I had to go put the HTML

tags in " by hand " . It's probably been 6 years or more since I had to

do that!

Watch for the updates soon to come. Thanks!

> I just looked at your page, you put a lot of work there but I do

wonder why you are not focused on promoting Dr. Ponseti as you de-

promote DuPont. Will that come soon? Also, the email link at the

bottom of your page did not work for me, might want to look at that.

> s.

>

> Subject: Re: (Long) Rant about meeting with

duPont Ortho. Chairman

>

>

> I let my husband read this. That is, after I picked my chin up off

the floor. His first reaction was to look up duPont, look up Dr

Bower, and send him an e-mail detailing exactly how wrong and

insulting he was. Unfortuntely he doesnt have an e-mail address

listed. He DOES, however, have a mailing address listed. Other's

can join in if they wish, I think it might make some impact if he got

a whole bunch of letters about this. We will be sending one - very

detailed and with photos.

>

> It probably will not change his mind in the least, but it WILL show

him that you can't expect to shut up a parent with your " superior

knowledge " and get away with it. It will show him that word gets out.

>

> As a side note, my husband found an article on the duPont site

where a child was misdiagnosed with metatarsus adductus and treated

for it for six months before they figured out that it was skewfoot -

which involves the heel as well as the forefoot and is a whole

different thing alltogether. The case file of course goes on to

state how successful BLAH BLAH BLAH. Apparently it isnt uncommon for

them to screw things up. Check it out yourself

http://gait.aidi.udel.edu/res695/homepage/pd_ortho/educate/clincase/sk

ew2htm

>

> Angel

>

> (Long) Rant about meeting with duPont

Ortho. Chairman

>

>

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin received.

I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the hospital

(Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die with

him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was to

see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the 3rd

result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

>

>

>

>

[Guest guest]

I have been working on the " rest of the story " for a while. I took

so many more pictures and there is so much more information from the

point of Iowa forward---we were really in the dark before then.

It'll be a lot of work but well worth it I believe. I really only

put this up because it was together already in a word document that I

just made some minor changes to and was able to put it out there. I

am a person who usually never focuses on the negative and at least

balances " the bad " with " more good " . In this case, I wanted to put

it out there right away because the guy made it clear to us that we

were " only " parents, lowly individuals who could do nothing to make

him think outside his pre-determined idea of how treatment should

go. The Internet is how I found out about Dr. Ponseti, from parents

like you. These " high and mighty " surgeons are no longer the

gatekeepers of the information we need to get proper treatment for

our children and we should all share our stories, good and bad.

There are many reasons I think it's important to put the rest of our

story up. First of all, Devlin has Atypical CF and there may be many

babies out there being treated (like she was) for regular CF,

creating a secondary deformity. Also, it's important to highlight

the difference in treatment in general. Lastly, I really want to

promote the Ponseti method in its true form so that others don't fall

prey to the " yeah we use his methods here " lie.

Thanks so much for the heads up on the mail link not working. It

should be working now. There were a few things that didn't work

right when saving the document " as HTML " and I had to go put the HTML

tags in " by hand " . It's probably been 6 years or more since I had to

do that!

Watch for the updates soon to come. Thanks!

> I just looked at your page, you put a lot of work there but I do

wonder why you are not focused on promoting Dr. Ponseti as you de-

promote DuPont. Will that come soon? Also, the email link at the

bottom of your page did not work for me, might want to look at that.

> s.

>

> Subject: Re: (Long) Rant about meeting with

duPont Ortho. Chairman

>

>

> I let my husband read this. That is, after I picked my chin up off

the floor. His first reaction was to look up duPont, look up Dr

Bower, and send him an e-mail detailing exactly how wrong and

insulting he was. Unfortuntely he doesnt have an e-mail address

listed. He DOES, however, have a mailing address listed. Other's

can join in if they wish, I think it might make some impact if he got

a whole bunch of letters about this. We will be sending one - very

detailed and with photos.

>

> It probably will not change his mind in the least, but it WILL show

him that you can't expect to shut up a parent with your " superior

knowledge " and get away with it. It will show him that word gets out.

>

> As a side note, my husband found an article on the duPont site

where a child was misdiagnosed with metatarsus adductus and treated

for it for six months before they figured out that it was skewfoot -

which involves the heel as well as the forefoot and is a whole

different thing alltogether. The case file of course goes on to

state how successful BLAH BLAH BLAH. Apparently it isnt uncommon for

them to screw things up. Check it out yourself

http://gait.aidi.udel.edu/res695/homepage/pd_ortho/educate/clincase/sk

ew2htm

>

> Angel

>

> (Long) Rant about meeting with duPont

Ortho. Chairman

>

>

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin received.

I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the hospital

(Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die with

him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was to

see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the 3rd

result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

>

>

>

>

[Guest guest]

Hi ,

How awful for you to have made such an effort to inform this doctor

of something SOOO beneficial and for him to be so blantenly RUDE!

I will check out your website. I am sure it is very informative

Marilouise

9/9/03, LCF, cast #4/2nd series

Owen and 3/20/99

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin

received. I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the

hospital (Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die

with him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was

to see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do

SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the

3rd result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

[Guest guest]

Hi ,

How awful for you to have made such an effort to inform this doctor

of something SOOO beneficial and for him to be so blantenly RUDE!

I will check out your website. I am sure it is very informative

Marilouise

9/9/03, LCF, cast #4/2nd series

Owen and 3/20/99

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin

received. I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the

hospital (Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die

with him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was

to see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do

SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the

3rd result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

[Guest guest]

I think there is a lot of your letter right here that would serve well on your

site. Your comment about doctors no longer being the " gate keepers " of

information is awesome because it's so true. It was the internet that lead me

to Dr. Ponseti also, after another know-it-all messed up my son and was likewise

not open to learning more about Dr. Ponseti when I attempted to enlighten him.

s.

(Long) Rant about meeting with duPont

Ortho. Chairman

>

>

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin received.

I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the hospital

(Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die with

him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was to

see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the 3rd

result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

>

>

>

>

[Guest guest]

,

That is just about the most disgusting thing I have ever heard! Talk about a

pompous doctor! I don't know what you can do about it other than spread the

word. Maybe a letter to the editor of your local paper with a copy to the board

of directors of the hospital may be in line. This guy is obviously out of touch

and ignorant to boot. The sad part is 10 years ago he would have been right.

We have been very fortunate that Dr. Ponseti lived long enough for the tide to

turn and him still her to train the Dr's of the world. If things hadn't

changed, it might have died with him. But now there are way too many Dr's

committed to what it can do. Dr. Mosca in Seattle is who treats my daughter and

he told us that he had only been practicing the Ponseti method for 4 years and

he wished he could go back and redo all the children that he had corrected in

the past.

Maybe we should all write letters to the hospital and tell this Dr about our own

experiences and just how wrong he is and, of course, copy the board of

directors. I, for one, will do this. People like that don't deserve to

practice medicine. Imagine how many people he has told that too that have

trusted him and let him cut on their children.

Robin & Rose

3/12/03

Right club foot.

Marilouise Tozier verylittlebrain@...> wrote:

Hi ,

How awful for you to have made such an effort to inform this doctor

of something SOOO beneficial and for him to be so blantenly RUDE!

I will check out your website. I am sure it is very informative

Marilouise

9/9/03, LCF, cast #4/2nd series

Owen and 3/20/99

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin

received. I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the

hospital (Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die

with him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was

to see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do

SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the

3rd result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

[Guest guest]

,

That is just about the most disgusting thing I have ever heard! Talk about a

pompous doctor! I don't know what you can do about it other than spread the

word. Maybe a letter to the editor of your local paper with a copy to the board

of directors of the hospital may be in line. This guy is obviously out of touch

and ignorant to boot. The sad part is 10 years ago he would have been right.

We have been very fortunate that Dr. Ponseti lived long enough for the tide to

turn and him still her to train the Dr's of the world. If things hadn't

changed, it might have died with him. But now there are way too many Dr's

committed to what it can do. Dr. Mosca in Seattle is who treats my daughter and

he told us that he had only been practicing the Ponseti method for 4 years and

he wished he could go back and redo all the children that he had corrected in

the past.

Maybe we should all write letters to the hospital and tell this Dr about our own

experiences and just how wrong he is and, of course, copy the board of

directors. I, for one, will do this. People like that don't deserve to

practice medicine. Imagine how many people he has told that too that have

trusted him and let him cut on their children.

Robin & Rose

3/12/03

Right club foot.

Marilouise Tozier verylittlebrain@...> wrote:

Hi ,

How awful for you to have made such an effort to inform this doctor

of something SOOO beneficial and for him to be so blantenly RUDE!

I will check out your website. I am sure it is very informative

Marilouise

9/9/03, LCF, cast #4/2nd series

Owen and 3/20/99

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin

received. I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the

hospital (Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die

with him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was

to see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do

SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the

3rd result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

[Guest guest]

,

That is just about the most disgusting thing I have ever heard! Talk about a

pompous doctor! I don't know what you can do about it other than spread the

word. Maybe a letter to the editor of your local paper with a copy to the board

of directors of the hospital may be in line. This guy is obviously out of touch

and ignorant to boot. The sad part is 10 years ago he would have been right.

We have been very fortunate that Dr. Ponseti lived long enough for the tide to

turn and him still her to train the Dr's of the world. If things hadn't

changed, it might have died with him. But now there are way too many Dr's

committed to what it can do. Dr. Mosca in Seattle is who treats my daughter and

he told us that he had only been practicing the Ponseti method for 4 years and

he wished he could go back and redo all the children that he had corrected in

the past.

Maybe we should all write letters to the hospital and tell this Dr about our own

experiences and just how wrong he is and, of course, copy the board of

directors. I, for one, will do this. People like that don't deserve to

practice medicine. Imagine how many people he has told that too that have

trusted him and let him cut on their children.

Robin & Rose

3/12/03

Right club foot.

Marilouise Tozier verylittlebrain@...> wrote:

Hi ,

How awful for you to have made such an effort to inform this doctor

of something SOOO beneficial and for him to be so blantenly RUDE!

I will check out your website. I am sure it is very informative

Marilouise

9/9/03, LCF, cast #4/2nd series

Owen and 3/20/99

> OK, I have been stewing on something for more than a month now and

I'm still

> mad about it so I thought maybe a rant would help! After we had

such a

> terrible time with duPont hospital in Delaware, and we switched to

Iowa, I saw

> such major differences between the levels of care Devlin

received. I really

> thought duPont could benefit from our experience and that other

clubfoot

> babies---especially Atypical Clubfoot babies---could be treated

more

> effectively if the doctors at duPont were more aware of the true

Ponseti

> treatment. You all know what I'm talking about---spreading the

word for the

> benefit of others.

>

> We called duPont's patient services and worked through the ranks,

finally

> getting an appointment with the head of Orthopedics at the

hospital (Dr.

> Bower). The guy claimed to be interested in finding out about our

> experiences there and why we were dissatisfied. I talked to Dr.

Ponseti

> before the meeting to ask what specific points I should drive in.

He offered to

> train someone from duPont if they would send them out for 2 weeks

or so and

> I was all excited to suggest that to the guy. I put together the

log we had been

> keeping and included color pictures for illustration. I took it

all to him to show

> him what went wrong (and right) with Devlin's treatment.

>

> What a joke of a meeting! The jerk really " put us in our place " .

Dr. Bower said

> that Dr. Ponseti was someone you could see only if you " had enough

money

> to lay on the table to get his attention " and that the Ponseti

method has never

> worked because " he has never found a brace that can hold the

correction "

> and that " even right now he's working with big orthotics

manufacturers trying

> to develop something that will work " (I think would be

impressed to find

> out that he's a " big orthotics company " ). Bower said that

if " Ponseti couldn't

> find a brace by now, after all these years, he never will " . He

also said that the

> University of Iowa " has to let him do what he wants because of his

senior

> status there " and that they are " indulging him " by letting him

continue to

> practice. Finally, he said that Dr. Ponseti's method will die

with him. I was so

> pissed I could barely speak. I did manage to say " really? tell

that to the

> troops of doctors from around the world we always see there. " But

the jerk

> just kept cutting us off and smirking at our naivety.

>

> I don't even need to tell everyone here how absurd everything the

guy had to

> say was. We could tell that the only purpose of the meeting was

to see if we

> had grounds or intentions for a lawsuit. I'm so mad at this point

I want to sue

> just to make them learn how much more they need to know about

clubfoot

> treatment!

>

> Anyway, feeling rather unempowered, I decided I had to do

SOMETHING

> about duPont so I put the log and the pictures up on my web site.

You can

> see it at www.cseel.com/clubfoot/ The search engines are starting

to pick it up

> and if you do a google search for " clubfoot dupont " ours is the

3rd result. Dr.

> Bower may feel like he silenced us, but I beg to differ!

>

> Anyway, thank you for being a forum for my rant! I know everyone

here is as

> offended and incensed about Bower's Ponseti comments as I am. I

just can't

> believe guys like this control the future and the fate of so many

unsuspecting

> babies and their parents. Let's continue to spread the word about

proper

> clubfoot treatment and stop the few " God-complex " surgeons from

maintaining

> their status...

[Guest guest]

OH MY GOODNESS! And to think Dr Jay was who we started off with....

(Long) Rant about meeting with duPont Ortho.

Chairman

OK, I have been stewing on something for more than a month now and I'm still

mad about it so I thought maybe a rant would help! After we had such a

terrible time with duPont hospital in Delaware, and we switched to Iowa, I saw

such major differences between the levels of care Devlin received. I really

thought duPont could benefit from our experience and that other clubfoot

babies---especially Atypical Clubfoot babies---could be treated more

effectively if the doctors at duPont were more aware of the true Ponseti

treatment. You all know what I'm talking about---spreading the word for the

benefit of others.

We called duPont's patient services and worked through the ranks, finally

getting an appointment with the head of Orthopedics at the hospital (Dr.

Bower). The guy claimed to be interested in finding out about our

experiences there and why we were dissatisfied. I talked to Dr. Ponseti

before the meeting to ask what specific points I should drive in. He offered

to

train someone from duPont if they would send them out for 2 weeks or so and

I was all excited to suggest that to the guy. I put together the log we had

been

keeping and included color pictures for illustration. I took it all to him to

show

him what went wrong (and right) with Devlin's treatment.

What a joke of a meeting! The jerk really " put us in our place " . Dr. Bower

said

that Dr. Ponseti was someone you could see only if you " had enough money

to lay on the table to get his attention " and that the Ponseti method has

never

worked because " he has never found a brace that can hold the correction "

and that " even right now he's working with big orthotics manufacturers trying

to develop something that will work " (I think would be impressed to find

out that he's a " big orthotics company " ). Bower said that if " Ponseti

couldn't

find a brace by now, after all these years, he never will " . He also said that

the

University of Iowa " has to let him do what he wants because of his senior

status there " and that they are " indulging him " by letting him continue to

practice. Finally, he said that Dr. Ponseti's method will die with him. I

was so

pissed I could barely speak. I did manage to say " really? tell that to the

troops of doctors from around the world we always see there. " But the jerk

just kept cutting us off and smirking at our naivety.

I don't even need to tell everyone here how absurd everything the guy had to

say was. We could tell that the only purpose of the meeting was to see if we

had grounds or intentions for a lawsuit. I'm so mad at this point I want to

sue

just to make them learn how much more they need to know about clubfoot

treatment!

Anyway, feeling rather unempowered, I decided I had to do SOMETHING

about duPont so I put the log and the pictures up on my web site. You can

see it at www.cseel.com/clubfoot/ The search engines are starting to pick it

up

and if you do a google search for " clubfoot dupont " ours is the 3rd result.

Dr.

Bower may feel like he silenced us, but I beg to differ!

Anyway, thank you for being a forum for my rant! I know everyone here is as

offended and incensed about Bower's Ponseti comments as I am. I just can't

believe guys like this control the future and the fate of so many unsuspecting

babies and their parents. Let's continue to spread the word about proper

clubfoot treatment and stop the few " God-complex " surgeons from maintaining

their status...

[Guest guest]

OH MY GOODNESS! And to think Dr Jay was who we started off with....

(Long) Rant about meeting with duPont Ortho.

Chairman

OK, I have been stewing on something for more than a month now and I'm still

mad about it so I thought maybe a rant would help! After we had such a

terrible time with duPont hospital in Delaware, and we switched to Iowa, I saw

such major differences between the levels of care Devlin received. I really

thought duPont could benefit from our experience and that other clubfoot

babies---especially Atypical Clubfoot babies---could be treated more

effectively if the doctors at duPont were more aware of the true Ponseti

treatment. You all know what I'm talking about---spreading the word for the

benefit of others.

We called duPont's patient services and worked through the ranks, finally

getting an appointment with the head of Orthopedics at the hospital (Dr.

Bower). The guy claimed to be interested in finding out about our

experiences there and why we were dissatisfied. I talked to Dr. Ponseti

before the meeting to ask what specific points I should drive in. He offered

to

train someone from duPont if they would send them out for 2 weeks or so and

I was all excited to suggest that to the guy. I put together the log we had

been

keeping and included color pictures for illustration. I took it all to him to

show

him what went wrong (and right) with Devlin's treatment.

What a joke of a meeting! The jerk really " put us in our place " . Dr. Bower

said

that Dr. Ponseti was someone you could see only if you " had enough money

to lay on the table to get his attention " and that the Ponseti method has

never

worked because " he has never found a brace that can hold the correction "

and that " even right now he's working with big orthotics manufacturers trying

to develop something that will work " (I think would be impressed to find

out that he's a " big orthotics company " ). Bower said that if " Ponseti

couldn't

find a brace by now, after all these years, he never will " . He also said that

the

University of Iowa " has to let him do what he wants because of his senior

status there " and that they are " indulging him " by letting him continue to

practice. Finally, he said that Dr. Ponseti's method will die with him. I

was so

pissed I could barely speak. I did manage to say " really? tell that to the

troops of doctors from around the world we always see there. " But the jerk

just kept cutting us off and smirking at our naivety.

I don't even need to tell everyone here how absurd everything the guy had to

say was. We could tell that the only purpose of the meeting was to see if we

had grounds or intentions for a lawsuit. I'm so mad at this point I want to

sue

just to make them learn how much more they need to know about clubfoot

treatment!

Anyway, feeling rather unempowered, I decided I had to do SOMETHING

about duPont so I put the log and the pictures up on my web site. You can

see it at www.cseel.com/clubfoot/ The search engines are starting to pick it

up

and if you do a google search for " clubfoot dupont " ours is the 3rd result.

Dr.

Bower may feel like he silenced us, but I beg to differ!

Anyway, thank you for being a forum for my rant! I know everyone here is as

offended and incensed about Bower's Ponseti comments as I am. I just can't

believe guys like this control the future and the fate of so many unsuspecting

babies and their parents. Let's continue to spread the word about proper

clubfoot treatment and stop the few " God-complex " surgeons from maintaining

their status...

[Guest guest]

OH MY GOODNESS! And to think Dr Jay was who we started off with....

(Long) Rant about meeting with duPont Ortho.

Chairman

OK, I have been stewing on something for more than a month now and I'm still

mad about it so I thought maybe a rant would help! After we had such a

terrible time with duPont hospital in Delaware, and we switched to Iowa, I saw

such major differences between the levels of care Devlin received. I really

thought duPont could benefit from our experience and that other clubfoot

babies---especially Atypical Clubfoot babies---could be treated more

effectively if the doctors at duPont were more aware of the true Ponseti

treatment. You all know what I'm talking about---spreading the word for the

benefit of others.

We called duPont's patient services and worked through the ranks, finally

getting an appointment with the head of Orthopedics at the hospital (Dr.

Bower). The guy claimed to be interested in finding out about our

experiences there and why we were dissatisfied. I talked to Dr. Ponseti

before the meeting to ask what specific points I should drive in. He offered

to

train someone from duPont if they would send them out for 2 weeks or so and

I was all excited to suggest that to the guy. I put together the log we had

been

keeping and included color pictures for illustration. I took it all to him to

show

him what went wrong (and right) with Devlin's treatment.

What a joke of a meeting! The jerk really " put us in our place " . Dr. Bower

said

that Dr. Ponseti was someone you could see only if you " had enough money

to lay on the table to get his attention " and that the Ponseti method has

never

worked because " he has never found a brace that can hold the correction "

and that " even right now he's working with big orthotics manufacturers trying

to develop something that will work " (I think would be impressed to find

out that he's a " big orthotics company " ). Bower said that if " Ponseti

couldn't

find a brace by now, after all these years, he never will " . He also said that

the

University of Iowa " has to let him do what he wants because of his senior

status there " and that they are " indulging him " by letting him continue to

practice. Finally, he said that Dr. Ponseti's method will die with him. I

was so

pissed I could barely speak. I did manage to say " really? tell that to the

troops of doctors from around the world we always see there. " But the jerk

just kept cutting us off and smirking at our naivety.

I don't even need to tell everyone here how absurd everything the guy had to

say was. We could tell that the only purpose of the meeting was to see if we

had grounds or intentions for a lawsuit. I'm so mad at this point I want to

sue

just to make them learn how much more they need to know about clubfoot

treatment!

Anyway, feeling rather unempowered, I decided I had to do SOMETHING

about duPont so I put the log and the pictures up on my web site. You can

see it at www.cseel.com/clubfoot/ The search engines are starting to pick it

up

and if you do a google search for " clubfoot dupont " ours is the 3rd result.

Dr.

Bower may feel like he silenced us, but I beg to differ!

Anyway, thank you for being a forum for my rant! I know everyone here is as

offended and incensed about Bower's Ponseti comments as I am. I just can't

believe guys like this control the future and the fate of so many unsuspecting

babies and their parents. Let's continue to spread the word about proper

clubfoot treatment and stop the few " God-complex " surgeons from maintaining

their status...

[Guest guest]

,

I got a chance to check out your website. Very nice! I couldn't help but

notice the one picture of his foot after his second cast. Wow, what little

correction was attained! His foot looked like it wasn't corrected at

all. So sad that they're still doing these kinds of casts without much

correction and just one Ponseti cast (at least for us) had the foot

pointing down which was such a difference from the clubbed look. I also

wanted to ask you what kind of surgery they did on him at 8w old. I was

always under the impression that surgery made it difficult, if not

impossible to correct the foot without surgery. How did this work out for

you? And... as you noted in May there was a possibility of relapse, how

has that turned out? Oh, and if he was unilateral, what was the reason for

the straight last boot on his non-affected foot?

Like all my questions? Just curious you know :~}

He is BTW... very cute!

Kori

At 10:05 AM 8/2/2004, you wrote:

>,

>

>I'm sorry they were so rude to you and so unproffessional. We

>started out at Dupont and stayed I believe to around Collin's 1st

>birthday...and I agree they use a cookie cutter approach and just do

>the same for all kids thats why we left. They always were talking

>about more surgeries which made me feel uncomfortable that they were

>confident in what they were doing. They did do surgery on our son

>at 8 weeks old. Now we see Dr. Herzenberg in MD and are very happy.

>

>Michele

>Collin's story at http://www.geocities.com/chele323232

>

>

>

>

>

>

>

[Guest guest]

,

I got a chance to check out your website. Very nice! I couldn't help but

notice the one picture of his foot after his second cast. Wow, what little

correction was attained! His foot looked like it wasn't corrected at

all. So sad that they're still doing these kinds of casts without much

correction and just one Ponseti cast (at least for us) had the foot

pointing down which was such a difference from the clubbed look. I also

wanted to ask you what kind of surgery they did on him at 8w old. I was

always under the impression that surgery made it difficult, if not

impossible to correct the foot without surgery. How did this work out for

you? And... as you noted in May there was a possibility of relapse, how

has that turned out? Oh, and if he was unilateral, what was the reason for

the straight last boot on his non-affected foot?

Like all my questions? Just curious you know :~}

He is BTW... very cute!

Kori

At 10:05 AM 8/2/2004, you wrote:

>,

>

>I'm sorry they were so rude to you and so unproffessional. We

>started out at Dupont and stayed I believe to around Collin's 1st

>birthday...and I agree they use a cookie cutter approach and just do

>the same for all kids thats why we left. They always were talking

>about more surgeries which made me feel uncomfortable that they were

>confident in what they were doing. They did do surgery on our son

>at 8 weeks old. Now we see Dr. Herzenberg in MD and are very happy.

>

>Michele

>Collin's story at http://www.geocities.com/chele323232

>

>

>

>

>

>

>

[Guest guest]

,

I got a chance to check out your website. Very nice! I couldn't help but

notice the one picture of his foot after his second cast. Wow, what little

correction was attained! His foot looked like it wasn't corrected at

all. So sad that they're still doing these kinds of casts without much

correction and just one Ponseti cast (at least for us) had the foot

pointing down which was such a difference from the clubbed look. I also

wanted to ask you what kind of surgery they did on him at 8w old. I was

always under the impression that surgery made it difficult, if not

impossible to correct the foot without surgery. How did this work out for

you? And... as you noted in May there was a possibility of relapse, how

has that turned out? Oh, and if he was unilateral, what was the reason for

the straight last boot on his non-affected foot?

Like all my questions? Just curious you know :~}

He is BTW... very cute!

Kori

At 10:05 AM 8/2/2004, you wrote:

>,

>

>I'm sorry they were so rude to you and so unproffessional. We

>started out at Dupont and stayed I believe to around Collin's 1st

>birthday...and I agree they use a cookie cutter approach and just do

>the same for all kids thats why we left. They always were talking

>about more surgeries which made me feel uncomfortable that they were

>confident in what they were doing. They did do surgery on our son

>at 8 weeks old. Now we see Dr. Herzenberg in MD and are very happy.

>

>Michele

>Collin's story at http://www.geocities.com/chele323232

>

>

>

>

>

>

>

[Guest guest]

Hey ,

Hi, I'm Marshall's husband & Zander's daddy, and your story just

absolutely made my skin crawl. Nothing makes me steaming mad

more than alleged " professionals " caught up in pettiness, ignorance

and apathy to the detriment of their patients.

Did you a little favor - set up some ads on Google to get more

traffic to your site. If you search " Club Feet " or similar phrases

on Google you'll see an ad that says:

Our Club Foot Nightmare

One Doctor's Incompetence & Apathy

& The Alternative Solution We Found

www.cseel.com/clubfoot

Hopefully you'll see some more traffic.

You could also write a press release about this, I'm sure

some papers / magazines might pick it up.

More power to ya,

Marshall

Seel christine_seel@...> wrote:

OK, I have been stewing on something for more than a month now and I'm still

mad about it so I thought maybe a rant would help! After we had such a

terrible time with duPont hospital in Delaware, and we switched to Iowa, I saw

such major differences between the levels of care Devlin received. I really

thought duPont could benefit from our experience and that other clubfoot

babies---especially Atypical Clubfoot babies---could be treated more

effectively if the doctors at duPont were more aware of the true Ponseti

treatment. You all know what I'm talking about---spreading the word for the

benefit of others.

We called duPont's patient services and worked through the ranks, finally

getting an appointment with the head of Orthopedics at the hospital (Dr.

Bower). The guy claimed to be interested in finding out about our

experiences there and why we were dissatisfied. I talked to Dr. Ponseti

before the meeting to ask what specific points I should drive in. He offered to

train someone from duPont if they would send them out for 2 weeks or so and

I was all excited to suggest that to the guy. I put together the log we had

been

keeping and included color pictures for illustration. I took it all to him to

show

him what went wrong (and right) with Devlin's treatment.

What a joke of a meeting! The jerk really " put us in our place " . Dr. Bower

said

that Dr. Ponseti was someone you could see only if you " had enough money

to lay on the table to get his attention " and that the Ponseti method has never

worked because " he has never found a brace that can hold the correction "

and that " even right now he's working with big orthotics manufacturers trying

to develop something that will work " (I think would be impressed to find

out that he's a " big orthotics company " ). Bower said that if " Ponseti couldn't

find a brace by now, after all these years, he never will " . He also said that

the

University of Iowa " has to let him do what he wants because of his senior

status there " and that they are " indulging him " by letting him continue to

practice. Finally, he said that Dr. Ponseti's method will die with him. I was

so

pissed I could barely speak. I did manage to say " really? tell that to the

troops of doctors from around the world we always see there. " But the jerk

just kept cutting us off and smirking at our naivety.

I don't even need to tell everyone here how absurd everything the guy had to

say was. We could tell that the only purpose of the meeting was to see if we

had grounds or intentions for a lawsuit. I'm so mad at this point I want to sue

just to make them learn how much more they need to know about clubfoot

treatment!

Anyway, feeling rather unempowered, I decided I had to do SOMETHING

about duPont so I put the log and the pictures up on my web site. You can

see it at www.cseel.com/clubfoot/ The search engines are starting to pick it up

and if you do a google search for " clubfoot dupont " ours is the 3rd result. Dr.

Bower may feel like he silenced us, but I beg to differ!

Anyway, thank you for being a forum for my rant! I know everyone here is as

offended and incensed about Bower's Ponseti comments as I am. I just can't

believe guys like this control the future and the fate of so many unsuspecting

babies and their parents. Let's continue to spread the word about proper

clubfoot treatment and stop the few " God-complex " surgeons from maintaining

their status...