Re: Can't leave my SillyYak...

[Guest guest]

Another suggestion would be to leave a detailed list about your child.

Here at my home we too have restrictive diets, actually we have three

different ones going on here, diabetic, low salt/low fat, and celiac.

When I go out I make sure I leave a detailed list on each person I am

leaving in their care it includes dietary restrictions, emergency info

and current meds, I also include little nuggets that help the caregiver

understand the person (in your case it would be the aggression towards

others and what that could mean) I also include a list of favorable

activities and of course a schedule for a traditional day...........I

keep this info saved on my computer so that all I have to do is change

the menu and update the med list...................you just can't be

too safe. I also have their food ready so that the caregiver only has

to reheat my pre chosen menu. And of course while away I leave my cell

phone number as well as another emergency contact if there are any

questions..........no matter how

trivial...........................alone time is too important not to

have any.

Mimi

Rejoyce Hanson wrote:

I left my

Celiac child at home with my husband and our friend who is

staying with us. It was an overnight trip about 3 hours south of us

to go to my Great Uncle's funeral. I took my daughter as she is still

nursing and she is such delight, she puts a bright spot on the

saddness of the event. My dear cousin who found his father (my Great

Uncle) collapsed on the floor was really happy to see her smiling

face, so I'm glad a did bring her.

My poor little guy just started to cry when I got home and it was

uncontrollable sobbing. I spoke with my friend who had been watching

the kids play that evening and she said he had started to throw rocks

at the others. I immediately asked what he ate for dinner -- Van's

waffles (GF) and fruit. Well, no wonder! There is absolutely no

protein in that meal to level off his sugar -- pure carbs = a pure

sugar high followed by a sugar low at which point he will get

agressive as if he had eaten wheat. It also explains the sobbing, he

was probably starving and had hit that low, low after a sugar fix.

I'd feel sick if I ate that for dinner, I can only imagine how my son

felt. My husband told me late that our son had not eaten lunch, so

that means he was really hungry and then fed pure carbs...

She didn't want to feed him soup b/c he had that Monday night. Well,

he would have been better off with the chicken soup than waffles, but

she does not know much, if anything, about nutrition -- I'm thankful

it was GF waffles.

So, I am hit by the reality that I can not leave my Celiac child in

the care of others. I will have to work out with my husband how to

put a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15

passanger), as I do not like bringing tons of stuff into someone's

house for an over night trip. I'm thinking a small shelf that can be

locked down to the rear seat bolt holes on the floor and can have a

small microwave bolted to it that would run off our batter back-up

(UPS) for trips (or a hot plate, etc). At this point, I'm thinking a

samll camper with it's own kitchen would be nice (like the Sprinter

campers).

Live and learn... At least he was not fed gluten.

Rejoyce

VA

[Guest guest]

Another suggestion would be to leave a detailed list about your child.

Here at my home we too have restrictive diets, actually we have three

different ones going on here, diabetic, low salt/low fat, and celiac.

When I go out I make sure I leave a detailed list on each person I am

leaving in their care it includes dietary restrictions, emergency info

and current meds, I also include little nuggets that help the caregiver

understand the person (in your case it would be the aggression towards

others and what that could mean) I also include a list of favorable

activities and of course a schedule for a traditional day...........I

keep this info saved on my computer so that all I have to do is change

the menu and update the med list...................you just can't be

too safe. I also have their food ready so that the caregiver only has

to reheat my pre chosen menu. And of course while away I leave my cell

phone number as well as another emergency contact if there are any

questions..........no matter how

trivial...........................alone time is too important not to

have any.

Mimi

Rejoyce Hanson wrote:

I left my

Celiac child at home with my husband and our friend who is

staying with us. It was an overnight trip about 3 hours south of us

to go to my Great Uncle's funeral. I took my daughter as she is still

nursing and she is such delight, she puts a bright spot on the

saddness of the event. My dear cousin who found his father (my Great

Uncle) collapsed on the floor was really happy to see her smiling

face, so I'm glad a did bring her.

My poor little guy just started to cry when I got home and it was

uncontrollable sobbing. I spoke with my friend who had been watching

the kids play that evening and she said he had started to throw rocks

at the others. I immediately asked what he ate for dinner -- Van's

waffles (GF) and fruit. Well, no wonder! There is absolutely no

protein in that meal to level off his sugar -- pure carbs = a pure

sugar high followed by a sugar low at which point he will get

agressive as if he had eaten wheat. It also explains the sobbing, he

was probably starving and had hit that low, low after a sugar fix.

I'd feel sick if I ate that for dinner, I can only imagine how my son

felt. My husband told me late that our son had not eaten lunch, so

that means he was really hungry and then fed pure carbs...

She didn't want to feed him soup b/c he had that Monday night. Well,

he would have been better off with the chicken soup than waffles, but

she does not know much, if anything, about nutrition -- I'm thankful

it was GF waffles.

So, I am hit by the reality that I can not leave my Celiac child in

the care of others. I will have to work out with my husband how to

put a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15

passanger), as I do not like bringing tons of stuff into someone's

house for an over night trip. I'm thinking a small shelf that can be

locked down to the rear seat bolt holes on the floor and can have a

small microwave bolted to it that would run off our batter back-up

(UPS) for trips (or a hot plate, etc). At this point, I'm thinking a

samll camper with it's own kitchen would be nice (like the Sprinter

campers).

Live and learn... At least he was not fed gluten.

Rejoyce

VA

[Guest guest]

Another suggestion would be to leave a detailed list about your child.

Here at my home we too have restrictive diets, actually we have three

different ones going on here, diabetic, low salt/low fat, and celiac.

When I go out I make sure I leave a detailed list on each person I am

leaving in their care it includes dietary restrictions, emergency info

and current meds, I also include little nuggets that help the caregiver

understand the person (in your case it would be the aggression towards

others and what that could mean) I also include a list of favorable

activities and of course a schedule for a traditional day...........I

keep this info saved on my computer so that all I have to do is change

the menu and update the med list...................you just can't be

too safe. I also have their food ready so that the caregiver only has

to reheat my pre chosen menu. And of course while away I leave my cell

phone number as well as another emergency contact if there are any

questions..........no matter how

trivial...........................alone time is too important not to

have any.

Mimi

Rejoyce Hanson wrote:

I left my

Celiac child at home with my husband and our friend who is

staying with us. It was an overnight trip about 3 hours south of us

to go to my Great Uncle's funeral. I took my daughter as she is still

nursing and she is such delight, she puts a bright spot on the

saddness of the event. My dear cousin who found his father (my Great

Uncle) collapsed on the floor was really happy to see her smiling

face, so I'm glad a did bring her.

My poor little guy just started to cry when I got home and it was

uncontrollable sobbing. I spoke with my friend who had been watching

the kids play that evening and she said he had started to throw rocks

at the others. I immediately asked what he ate for dinner -- Van's

waffles (GF) and fruit. Well, no wonder! There is absolutely no

protein in that meal to level off his sugar -- pure carbs = a pure

sugar high followed by a sugar low at which point he will get

agressive as if he had eaten wheat. It also explains the sobbing, he

was probably starving and had hit that low, low after a sugar fix.

I'd feel sick if I ate that for dinner, I can only imagine how my son

felt. My husband told me late that our son had not eaten lunch, so

that means he was really hungry and then fed pure carbs...

She didn't want to feed him soup b/c he had that Monday night. Well,

he would have been better off with the chicken soup than waffles, but

she does not know much, if anything, about nutrition -- I'm thankful

it was GF waffles.

So, I am hit by the reality that I can not leave my Celiac child in

the care of others. I will have to work out with my husband how to

put a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15

passanger), as I do not like bringing tons of stuff into someone's

house for an over night trip. I'm thinking a small shelf that can be

locked down to the rear seat bolt holes on the floor and can have a

small microwave bolted to it that would run off our batter back-up

(UPS) for trips (or a hot plate, etc). At this point, I'm thinking a

samll camper with it's own kitchen would be nice (like the Sprinter

campers).

Live and learn... At least he was not fed gluten.

Rejoyce

VA

[Guest guest]

Although I sympathize with the problem, I completely disagree with your solution. Your husband should have known better and your friend should have known better. I think the answer is either to better educate both of them or to get more competent child care.

--E Can't leave my SillyYak...I left my Celiac child at home with my husband and our friend who isstaying with us. It was an overnight trip about 3 hours south of usto go to my Great Uncle's funeral. I took my daughter as she is stillnursing and she is such delight, she puts a bright spot on thesaddness of the event. My dear cousin who found his father (my GreatUncle) collapsed on the floor was really happy to see her smilingface, so I'm glad a did bring her.My poor little guy just started to cry when I got home and it wasuncontrollable sobbing. I spoke with my friend who had been watchingthe kids play that evening and she said he had started to throw rocksat the others. I immediately asked what he

ate for dinner -- Van'swaffles (GF) and fruit. Well, no wonder! There is absolutely noprotein in that meal to level off his sugar -- pure carbs = a puresugar high followed by a sugar low at which point he will getagressive as if he had eaten wheat. It also explains the sobbing, hewas probably starving and had hit that low, low after a sugar fix. I'd feel sick if I ate that for dinner, I can only imagine how my sonfelt. My husband told me late that our son had not eaten lunch, sothat means he was really hungry and then fed pure carbs...She didn't want to feed him soup b/c he had that Monday night. Well,he would have been better off with the chicken soup than waffles, butshe does not know much, if anything, about nutrition -- I'm thankfulit was GF waffles.So, I am hit by the reality that I can not leave my Celiac child inthe care of others. I will have to work out with my

husband how toput a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15passanger), as I do not like bringing tons of stuff into someone'shouse for an over night trip. I'm thinking a small shelf that can belocked down to the rear seat bolt holes on the floor and can have asmall microwave bolted to it that would run off our batter back-up(UPS) for trips (or a hot plate, etc). At this point, I'm thinking asamll camper with it's own kitchen would be nice (like the Sprintercampers).Live and learn... At least he was not fed gluten.RejoyceVA

[Guest guest]

Although I sympathize with the problem, I completely disagree with your solution. Your husband should have known better and your friend should have known better. I think the answer is either to better educate both of them or to get more competent child care.

--E Can't leave my SillyYak...I left my Celiac child at home with my husband and our friend who isstaying with us. It was an overnight trip about 3 hours south of usto go to my Great Uncle's funeral. I took my daughter as she is stillnursing and she is such delight, she puts a bright spot on thesaddness of the event. My dear cousin who found his father (my GreatUncle) collapsed on the floor was really happy to see her smilingface, so I'm glad a did bring her.My poor little guy just started to cry when I got home and it wasuncontrollable sobbing. I spoke with my friend who had been watchingthe kids play that evening and she said he had started to throw rocksat the others. I immediately asked what he

ate for dinner -- Van'swaffles (GF) and fruit. Well, no wonder! There is absolutely noprotein in that meal to level off his sugar -- pure carbs = a puresugar high followed by a sugar low at which point he will getagressive as if he had eaten wheat. It also explains the sobbing, hewas probably starving and had hit that low, low after a sugar fix. I'd feel sick if I ate that for dinner, I can only imagine how my sonfelt. My husband told me late that our son had not eaten lunch, sothat means he was really hungry and then fed pure carbs...She didn't want to feed him soup b/c he had that Monday night. Well,he would have been better off with the chicken soup than waffles, butshe does not know much, if anything, about nutrition -- I'm thankfulit was GF waffles.So, I am hit by the reality that I can not leave my Celiac child inthe care of others. I will have to work out with my

husband how toput a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15passanger), as I do not like bringing tons of stuff into someone'shouse for an over night trip. I'm thinking a small shelf that can belocked down to the rear seat bolt holes on the floor and can have asmall microwave bolted to it that would run off our batter back-up(UPS) for trips (or a hot plate, etc). At this point, I'm thinking asamll camper with it's own kitchen would be nice (like the Sprintercampers).Live and learn... At least he was not fed gluten.RejoyceVA

[Guest guest]

Although I sympathize with the problem, I completely disagree with your solution. Your husband should have known better and your friend should have known better. I think the answer is either to better educate both of them or to get more competent child care.

--E Can't leave my SillyYak...I left my Celiac child at home with my husband and our friend who isstaying with us. It was an overnight trip about 3 hours south of usto go to my Great Uncle's funeral. I took my daughter as she is stillnursing and she is such delight, she puts a bright spot on thesaddness of the event. My dear cousin who found his father (my GreatUncle) collapsed on the floor was really happy to see her smilingface, so I'm glad a did bring her.My poor little guy just started to cry when I got home and it wasuncontrollable sobbing. I spoke with my friend who had been watchingthe kids play that evening and she said he had started to throw rocksat the others. I immediately asked what he

ate for dinner -- Van'swaffles (GF) and fruit. Well, no wonder! There is absolutely noprotein in that meal to level off his sugar -- pure carbs = a puresugar high followed by a sugar low at which point he will getagressive as if he had eaten wheat. It also explains the sobbing, hewas probably starving and had hit that low, low after a sugar fix. I'd feel sick if I ate that for dinner, I can only imagine how my sonfelt. My husband told me late that our son had not eaten lunch, sothat means he was really hungry and then fed pure carbs...She didn't want to feed him soup b/c he had that Monday night. Well,he would have been better off with the chicken soup than waffles, butshe does not know much, if anything, about nutrition -- I'm thankfulit was GF waffles.So, I am hit by the reality that I can not leave my Celiac child inthe care of others. I will have to work out with my

husband how toput a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15passanger), as I do not like bringing tons of stuff into someone'shouse for an over night trip. I'm thinking a small shelf that can belocked down to the rear seat bolt holes on the floor and can have asmall microwave bolted to it that would run off our batter back-up(UPS) for trips (or a hot plate, etc). At this point, I'm thinking asamll camper with it's own kitchen would be nice (like the Sprintercampers).Live and learn... At least he was not fed gluten.RejoyceVA

[Guest guest]

>

> So, I am hit by the reality that I can not leave my Celiac child in

> the care of others. I will have to work out with my husband how to

> put a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15

> passanger), as I do not like bringing tons of stuff into someone's

> house for an over night trip. I'm thinking a small shelf that can be

> locked down to the rear seat bolt holes on the floor and can have a

> small microwave bolted to it that would run off our batter back-up

> (UPS) for trips (or a hot plate, etc). At this point, I'm thinking a

> samll camper with it's own kitchen would be nice (like the Sprinter

> campers).

>

> Live and learn... At least he was not fed gluten.

>

> Rejoyce

> VA

Turn this into a learning experience for the positive, not a time to

clamp down.

The keys to having someone else care for a special needs child are:

communication

planning

preparation.

We have a chart posted on our fridge for babysitters that shows by

dietary category (protein, dairy, vegetables, etc) almost everything

our little celiac eats. We also have guidelines for making him a meal

- what categories to include, about how much he must eat, what dessert

options there are, etc. We also make it clear to care givers that

SKIPPING MEALS IS NEVER ALLOWED. (and honestly, that one you really

need to discuss with your husband). Before leaving our son with a new

sitter, I print out a copy of the food chart and provide them info on

celiac disease - often before the actual time the sitter is working

here. I make it very clear my son's behavior is closely tied to his

diet, and it is in the sitter's best interest to feed him right!

We also plan menus in advance, making sure all the needed ingredients

are at hand.

And for those times meals will be delayed or problematic, we keep

Pediasure on hand. I don't consider it a meal substitute, but when

there's a problem getting a regular meal on the table when it should

be, I wll use one to tide the kid over until his dinner is ready. (he

also gets one with breakfast every day)

As part of my long range plan for parenting, I make sure that several

other people (including DH) are fully educated about our SillyYak's

special needs - what if something happened to me? If no one else knows

what he needs, what would happen to him?

Maureen

[Guest guest]

>

> So, I am hit by the reality that I can not leave my Celiac child in

> the care of others. I will have to work out with my husband how to

> put a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15

> passanger), as I do not like bringing tons of stuff into someone's

> house for an over night trip. I'm thinking a small shelf that can be

> locked down to the rear seat bolt holes on the floor and can have a

> small microwave bolted to it that would run off our batter back-up

> (UPS) for trips (or a hot plate, etc). At this point, I'm thinking a

> samll camper with it's own kitchen would be nice (like the Sprinter

> campers).

>

> Live and learn... At least he was not fed gluten.

>

> Rejoyce

> VA

Turn this into a learning experience for the positive, not a time to

clamp down.

The keys to having someone else care for a special needs child are:

communication

planning

preparation.

We have a chart posted on our fridge for babysitters that shows by

dietary category (protein, dairy, vegetables, etc) almost everything

our little celiac eats. We also have guidelines for making him a meal

- what categories to include, about how much he must eat, what dessert

options there are, etc. We also make it clear to care givers that

SKIPPING MEALS IS NEVER ALLOWED. (and honestly, that one you really

need to discuss with your husband). Before leaving our son with a new

sitter, I print out a copy of the food chart and provide them info on

celiac disease - often before the actual time the sitter is working

here. I make it very clear my son's behavior is closely tied to his

diet, and it is in the sitter's best interest to feed him right!

We also plan menus in advance, making sure all the needed ingredients

are at hand.

And for those times meals will be delayed or problematic, we keep

Pediasure on hand. I don't consider it a meal substitute, but when

there's a problem getting a regular meal on the table when it should

be, I wll use one to tide the kid over until his dinner is ready. (he

also gets one with breakfast every day)

As part of my long range plan for parenting, I make sure that several

other people (including DH) are fully educated about our SillyYak's

special needs - what if something happened to me? If no one else knows

what he needs, what would happen to him?

Maureen

[Guest guest]

>

> So, I am hit by the reality that I can not leave my Celiac child in

> the care of others. I will have to work out with my husband how to

> put a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15

> passanger), as I do not like bringing tons of stuff into someone's

> house for an over night trip. I'm thinking a small shelf that can be

> locked down to the rear seat bolt holes on the floor and can have a

> small microwave bolted to it that would run off our batter back-up

> (UPS) for trips (or a hot plate, etc). At this point, I'm thinking a

> samll camper with it's own kitchen would be nice (like the Sprinter

> campers).

>

> Live and learn... At least he was not fed gluten.

>

> Rejoyce

> VA

Turn this into a learning experience for the positive, not a time to

clamp down.

The keys to having someone else care for a special needs child are:

communication

planning

preparation.

We have a chart posted on our fridge for babysitters that shows by

dietary category (protein, dairy, vegetables, etc) almost everything

our little celiac eats. We also have guidelines for making him a meal

- what categories to include, about how much he must eat, what dessert

options there are, etc. We also make it clear to care givers that

SKIPPING MEALS IS NEVER ALLOWED. (and honestly, that one you really

need to discuss with your husband). Before leaving our son with a new

sitter, I print out a copy of the food chart and provide them info on

celiac disease - often before the actual time the sitter is working

here. I make it very clear my son's behavior is closely tied to his

diet, and it is in the sitter's best interest to feed him right!

We also plan menus in advance, making sure all the needed ingredients

are at hand.

And for those times meals will be delayed or problematic, we keep

Pediasure on hand. I don't consider it a meal substitute, but when

there's a problem getting a regular meal on the table when it should

be, I wll use one to tide the kid over until his dinner is ready. (he

also gets one with breakfast every day)

As part of my long range plan for parenting, I make sure that several

other people (including DH) are fully educated about our SillyYak's

special needs - what if something happened to me? If no one else knows

what he needs, what would happen to him?

Maureen

[Guest guest]

I also use others suggestions about posting lists on the refrigerator

so that my husband knows what I can and can not eat. I think this is

a good opportunity to start training your husband how to cook and

feed your children. What if something were to happen to you? You

need to feel confident that your husband will be there to back you up.

My husband was previously married and has two sons. Before we

started dating, he used to feed his children ramen regularly for

meals. Pretty much just ramen. Although they do not have any known

dietary restrictions, since I have been with him, I have stressed the

importance of healthy meals for the kids, much to his sons' dismay

(they hate vegetables)! For me, it requires patience and constant

training. My husband is ADD, so it takes a while before something

sticks. The payoff is that when I had surgery 3 weeks ago, my

husband has been able to take care of me and cook delicious GF meals!

You really don't have to do all the caretaking yourself, but you may

have to do quite a bit of training to get your husband and others on

board.

Claire

>

> I left my Celiac child at home with my husband and our friend who is

> staying with us. It was an overnight trip about 3 hours south of us

> to go to my Great Uncle's funeral. I took my daughter as she is

still

> nursing and she is such delight, she puts a bright spot on the

> saddness of the event. My dear cousin who found his father (my

Great

> Uncle) collapsed on the floor was really happy to see her smiling

> face, so I'm glad a did bring her.

>

> My poor little guy just started to cry when I got home and it was

> uncontrollable sobbing. I spoke with my friend who had been

watching

> the kids play that evening and she said he had started to throw

rocks

> at the others. I immediately asked what he ate for dinner -- Van's

> waffles (GF) and fruit. Well, no wonder! There is absolutely no

> protein in that meal to level off his sugar -- pure carbs = a pure

> sugar high followed by a sugar low at which point he will get

> agressive as if he had eaten wheat. It also explains the sobbing,

he

> was probably starving and had hit that low, low after a sugar fix.

> I'd feel sick if I ate that for dinner, I can only imagine how my

son

> felt. My husband told me late that our son had not eaten lunch, so

> that means he was really hungry and then fed pure carbs...

>

> She didn't want to feed him soup b/c he had that Monday night.

Well,

> he would have been better off with the chicken soup than waffles,

but

> she does not know much, if anything, about nutrition -- I'm thankful

> it was GF waffles.

>

> So, I am hit by the reality that I can not leave my Celiac child in

> the care of others. I will have to work out with my husband how to

> put a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15

> passanger), as I do not like bringing tons of stuff into someone's

> house for an over night trip. I'm thinking a small shelf that can

be

> locked down to the rear seat bolt holes on the floor and can have a

> small microwave bolted to it that would run off our batter back-up

> (UPS) for trips (or a hot plate, etc). At this point, I'm thinking

a

> samll camper with it's own kitchen would be nice (like the Sprinter

> campers).

>

> Live and learn... At least he was not fed gluten.

>

> Rejoyce

> VA

>

[Guest guest]

>

> We have a chart posted on our fridge for babysitters that shows by

> dietary category (protein, dairy, vegetables, etc) almost everything

> our little celiac eats. We also have guidelines for making him a meal

> - what categories to include, about how much he must eat, what dessert

> options there are, etc. We also make it clear to care givers that

> SKIPPING MEALS IS NEVER ALLOWED. (and honestly, that one you really

> need to discuss with your husband).

If no one else knows

> what he needs, what would happen to him?

>

>

> Maureen

I've left our kids with a great baby sitter. I have the meals

labeled, I show her and have written down where all the GF foods are

and how they are labeled. I like the idea of adding to that what

consitutes a meal and just keeping it in the kitchen -- Thanks. I

never thought I'd have to tell someone a meal consist of meat and

veggies, not cake and icecream...

My husband fed our son lunch, he just didn't eat it. He has just

recently started eating without the aid of Peractin, so it isn't

uncommon in our house to have our Silly guy miss a meal b/c he refuses

to eat it. What went wrong was not following up later in the

afternoon with the lunch again as I would have or gotten something in

him like a yogurt drink, plus the inadequate dinner issue.

My husband left a friend in charge who is only somewhat familar with

the GF issue. She tried, but she doesn't get " nutrition " , hotdogs and

mac & cheese are not what make a meal and certainly not a quality one in

my book. What went wrong, he left her to fend for herself in feeding

our child, something I've never done to someone I leave in charge of

my kids. He didn't leave her any ideas even of what to feed him.

I do fear what will happen to our son, if I die or am incapacitated.

Who's going to make his GF bread? I guess he would eat store bought.

My husband I think would step up to the plate as far as preparing

healthy meals, but I don't know that for sure. And this scares me.

Does he even know I have recipe cards I've been writing behind my

mixer with GF meals and extras? Does he know where the health food

store moved to in Febuary? Does he know how the co-op works? He

knows how to read labels and does not feed our son gluten, he obeys

the gluten free zones for the most part, he knows the GF PB is labeled

by me with a marker, I know our child would survive and I know my

husband is capable of learning, he sends me websites on GF stuff

occassionally if he is bored at work.

But it is an uneasy feeling when you come home and find your child has

not been fed properly and is in melt down city. Our child suffered

b/c I trusted his daddy to care for his needs and then daddy leaves

that up to a friend who has very little experience compared to us with

feeding our child.

So, the frig list is going to go up this weekend. What constitutes a

meal... with examples GF of course. And I'm going to sit down with

dhubby and find out what would happen if I were incapacitated or dead.

My dh has told me how to go about with the finances, the house, the

vehicles etc if he were to die; but we've never discussed this from

the other perspective of the household manager leaving the scene. And

set some basic rules when leaving our kids in the care of our friends,

rules I live by, but apparently he hasn't picked up on (as in always

leave notice of what to feed our son and show them where it's at).

Our little guy was much better by evening, yes it took all morning to

get him feeling right. And after dinner he ate 4 slices of the fresh

GF sorghum loaf with butter and cinnamon sugar, plus a PB & J sandwich,

plus watermelon!!! All after 9:30pm mind you...

Retiring to bed at now 12:30am

Rejoyce

VA

[Guest guest]

I think you might consider lightening up a bit. The most important thing is that he not get glutened, and this is pretty easy to do if most if not all of the foods in your home are safe. Preparing lunch ahead of time for the babysitter would be helpful to the sitter. Hovering over your husband is just that. Make some suggestions, but ultimately he's in charge too. The kid won't suffer irreversable damage from eating hot dogs and mac and cheese. And before you answer with examples of what low blood sugar can do...you don't need to tell me. I have one that gets ugly when things don't go his way and extremely ugly (things screaming, throwing things, and name calling) when things don't go his way and he hasn't had a good meal for several hours. He's still here and so are we. Life goes on. Please don't

burden yourself with believing that your are irreplaceable as the provider of food and the guardian of diet, you are not. You are irreplaceable as a loving mother. As moms we already feel our lives with enough guilt. We don't need to create more for ourselves!! You didn't say what your son's age is, but I'm going to guess that he is young. Mine are 8 and 11 and believe me many things are not as big a deal as we made them out to be!!!! I've left our kids with a great baby sitter. I have the mealslabeled, I show her and have written down where all the GF foods areand how they are labeled. I like the idea of adding to that whatconsitutes a meal and just keeping it in the kitchen -- Thanks. Inever thought I'd have to tell someone a meal consist of meat andveggies, not cake and icecream...My husband fed

our son lunch, he just didn't eat it. He has justrecently started eating without the aid of Peractin, so it isn'tuncommon in our house to have our Silly guy miss a meal b/c he refusesto eat it. What went wrong was not following up later in theafternoon with the lunch again as I would have or gotten something inhim like a yogurt drink, plus the inadequate dinner issue. My husband left a friend in charge who is only somewhat familar withthe GF issue. She tried, but she doesn't get "nutrition", hotdogs andmac & cheese are not what make a meal and certainly not a quality one inmy book. What went wrong, he left her to fend for herself in feedingour child, something I've never done to someone I leave in charge ofmy kids. He didn't leave her any ideas even of what to feed him.I do fear what will happen to our son, if I die or am incapacitated. Who's going to make his GF bread? I

guess he would eat store bought.My husband I think would step up to the plate as far as preparinghealthy meals, but I don't know that for sure. And this scares me. Does he even know I have recipe cards I've been writing behind mymixer with GF meals and extras? Does he know where the health foodstore moved to in Febuary? Does he know how the co-op works? Heknows how to read labels and does not feed our son gluten, he obeysthe gluten free zones for the most part, he knows the GF PB is labeledby me with a marker, I know our child would survive and I know myhusband is capable of learning, he sends me websites on GF stuffoccassionally if he is bored at work. But it is an uneasy feeling when you come home and find your child hasnot been fed properly and is in melt down city. Our child sufferedb/c I trusted his daddy to care for his needs and then daddy leavesthat up to a friend who

has very little experience compared to us withfeeding our child.So, the frig list is going to go up this weekend. What constitutes ameal... with examples GF of course. And I'm going to sit down withdhubby and find out what would happen if I were incapacitated or dead.My dh has told me how to go about with the finances, the house, thevehicles etc if he were to die; but we've never discussed this fromthe other perspective of the household manager leaving the scene. Andset some basic rules when leaving our kids in the care of our friends,rules I live by, but apparently he hasn't picked up on (as in alwaysleave notice of what to feed our son and show them where it's at).Our little guy was much better by evening, yes it took all morning toget him feeling right. And after dinner he ate 4 slices of the freshGF sorghum loaf with butter and cinnamon sugar, plus a PB & J sandwich,plus

watermelon!!! All after 9:30pm mind you...Retiring to bed at now 12:30amRejoyceVA

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[Guest guest]

Could you please send those forms to me as well? I could sure use them right now! Thanks, Lauretta

Mimi,That's a great idea you offered Rejoyce.Also, Rejoyce... I have two " forms " like this on my computer that I use as a guideline or for ideas for babysitters, when the grandparents visit, etc. I usually give copies of them to our new ROCK members who are interested. I think I sent them to you... but if not, let me know and I can email them to you.Melonie > > > I left my Celiac child at home with my husband and our friend who is> > staying with us. It was an overnight trip about 3 hours south of us> > to go to my Great Uncle's funeral. I took my daughter as she is still> > nursing and she is such delight, she puts a bright spot on the

> > saddness of the event. My dear cousin who found his father (my Great> > Uncle) collapsed on the floor was really happy to see her smiling> > face, so I'm glad a did bring her.> >

> > My poor little guy just started to cry when I got home and it was> > uncontrollable sobbing. I spoke with my friend who had been watching> > the kids play that evening and she said he had started to throw rocks> > at the others. I immediately asked what he ate for dinner -- Van's> > waffles (GF) and fruit. Well, no wonder! There is absolutely no> > protein in that meal to level off his sugar -- pure carbs = a pure> > sugar high followed by a sugar low at which point he will get> > agressive as if he had eaten wheat. It also explains the sobbing, he> > was probably starving and had hit that low, low after a sugar fix.> > I'd feel sick if I ate that for dinner, I can only imagine how my son> > felt. My husband told me late that our son had not eaten lunch, so> > that means he was really hungry and then fed pure carbs...

> >> > She didn't want to feed him soup b/c he had that Monday night. Well,> > he would have been better off with the chicken soup than waffles, but> > she does not know much, if anything, about nutrition -- I'm thankful> > it was GF waffles.> >> > So, I am hit by the reality that I can not leave my Celiac child in> > the care of others. I will have to work out with my husband how to> > put a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15> > passanger), as I do not like bringing tons of stuff into someone's> > house for an over night trip. I'm thinking a small shelf that can be> > locked down to the rear seat bolt holes on the floor and can have a> > small microwave bolted to it that would run off our batter back-up> > (UPS) for trips (or a hot plate, etc). At this point, I'm thinking a> > samll camper with it's own kitchen would be nice (like the Sprinter> > campers).> >> > Live and learn... At least he was not fed gluten.> >> > Rejoyce

> > VA> >> >> >> >> >> >> >

[Guest guest]

Could you please send those forms to me as well? I could sure use them right now! Thanks, Lauretta

Mimi,That's a great idea you offered Rejoyce.Also, Rejoyce... I have two " forms " like this on my computer that I use as a guideline or for ideas for babysitters, when the grandparents visit, etc. I usually give copies of them to our new ROCK members who are interested. I think I sent them to you... but if not, let me know and I can email them to you.Melonie > > > I left my Celiac child at home with my husband and our friend who is> > staying with us. It was an overnight trip about 3 hours south of us> > to go to my Great Uncle's funeral. I took my daughter as she is still> > nursing and she is such delight, she puts a bright spot on the

> > saddness of the event. My dear cousin who found his father (my Great> > Uncle) collapsed on the floor was really happy to see her smiling> > face, so I'm glad a did bring her.> >

> > My poor little guy just started to cry when I got home and it was> > uncontrollable sobbing. I spoke with my friend who had been watching> > the kids play that evening and she said he had started to throw rocks> > at the others. I immediately asked what he ate for dinner -- Van's> > waffles (GF) and fruit. Well, no wonder! There is absolutely no> > protein in that meal to level off his sugar -- pure carbs = a pure> > sugar high followed by a sugar low at which point he will get> > agressive as if he had eaten wheat. It also explains the sobbing, he> > was probably starving and had hit that low, low after a sugar fix.> > I'd feel sick if I ate that for dinner, I can only imagine how my son> > felt. My husband told me late that our son had not eaten lunch, so> > that means he was really hungry and then fed pure carbs...

> >> > She didn't want to feed him soup b/c he had that Monday night. Well,> > he would have been better off with the chicken soup than waffles, but> > she does not know much, if anything, about nutrition -- I'm thankful> > it was GF waffles.> >> > So, I am hit by the reality that I can not leave my Celiac child in> > the care of others. I will have to work out with my husband how to> > put a portable kitchen in our van (it's a Dodge Maxi Wagon -- ie 15> > passanger), as I do not like bringing tons of stuff into someone's> > house for an over night trip. I'm thinking a small shelf that can be> > locked down to the rear seat bolt holes on the floor and can have a> > small microwave bolted to it that would run off our batter back-up> > (UPS) for trips (or a hot plate, etc). At this point, I'm thinking a> > samll camper with it's own kitchen would be nice (like the Sprinter> > campers).> >> > Live and learn... At least he was not fed gluten.> >> > Rejoyce

> > VA> >> >> >> >> >> >> >