Re: Re: Fw: lab results..

[Guest guest]

Yeah... I am hoping it's not cancer and was just my allergies flaring up.. they love to wreak havoc on my gland. I'll let you know...

Re: Fw: lab results..

>> > > > Here they are guys, as promised....> > T3 Free 3.2 (2.3-4.2) pg/mL> T4 Free 0.62 (0.59-1.17) ng/dL> TSH 3.20 (o.34-4.82)> > These tests were run on the 21st of Nov, just a few days ago. Hereare my antibody levels..> > Thyab> Anti Thyro <20 (0-40) IU/mL> AB Anti-Thyroid 486 (0-34) IU/mL> > obviously the second results are VERY high. Thoughts?? I feelreally good lately, I am sure my dosage needs to be tweaked but youknow most docs... either way, I need to see what is up with theantibodies. Thanks for the input.>I am not sure about your Anti Thro numbers - that looks in range. Ifthe AB Anti-Thyroid numbers are the same as the ThyroglobulinAntibodies, (TgAB)...then you may need to get scanned. This canindicate a recurrance of Thyroid Cancer or an Autoimmune Diseaseacting up. I just had a CT scan done based on my TgAB numbers going upvery high. I just asked my Endo about this. I asked if all my othernumbers are normal and my TgAB is going up or high, can that meanbenign thyroid tissue is growing somewhere else and he stated No - notbenign. For me, since I had Papillary Cancer, it may indicate thecancer is back. My CT Scan showed 3 small nodules on my lungs...could also be scar tissue from pneumonia, bronchitis, etc. They are1, 2, and 3 mm and too small to tell yet... Just love four letterwords like WAIT and see.

[Guest guest]

Yeah... I am hoping it's not cancer and was just my allergies flaring up.. they love to wreak havoc on my gland. I'll let you know...

Re: Fw: lab results..

>> > > > Here they are guys, as promised....> > T3 Free 3.2 (2.3-4.2) pg/mL> T4 Free 0.62 (0.59-1.17) ng/dL> TSH 3.20 (o.34-4.82)> > These tests were run on the 21st of Nov, just a few days ago. Hereare my antibody levels..> > Thyab> Anti Thyro <20 (0-40) IU/mL> AB Anti-Thyroid 486 (0-34) IU/mL> > obviously the second results are VERY high. Thoughts?? I feelreally good lately, I am sure my dosage needs to be tweaked but youknow most docs... either way, I need to see what is up with theantibodies. Thanks for the input.>I am not sure about your Anti Thro numbers - that looks in range. Ifthe AB Anti-Thyroid numbers are the same as the ThyroglobulinAntibodies, (TgAB)...then you may need to get scanned. This canindicate a recurrance of Thyroid Cancer or an Autoimmune Diseaseacting up. I just had a CT scan done based on my TgAB numbers going upvery high. I just asked my Endo about this. I asked if all my othernumbers are normal and my TgAB is going up or high, can that meanbenign thyroid tissue is growing somewhere else and he stated No - notbenign. For me, since I had Papillary Cancer, it may indicate thecancer is back. My CT Scan showed 3 small nodules on my lungs...could also be scar tissue from pneumonia, bronchitis, etc. They are1, 2, and 3 mm and too small to tell yet... Just love four letterwords like WAIT and see.

[Guest guest]

Good luck... and I will think allergies for you too!! [The_Thyroid_ Support_Group] Re: Fw: lab results..

>> > > > Here they are guys, as promised....> > T3 Free 3.2 (2.3-4.2) pg/mL> T4 Free 0.62 (0.59-1.17) ng/dL> TSH 3.20 (o.34-4.82)> > These tests were run on the 21st of Nov, just a few days ago. Hereare my antibody levels..> > Thyab> Anti Thyro <20 (0-40) IU/mL> AB Anti-Thyroid 486 (0-34) IU/mL> > obviously the second results are VERY high. Thoughts?? I feelreally good lately, I am sure my dosage needs to be tweaked but youknow most docs... either way, I need to see what is up with theantibodies. Thanks for the input.>I am not sure about your Anti Thro numbers - that looks in range. Ifthe AB Anti-Thyroid numbers are the same as the ThyroglobulinAntibodies, (TgAB)...then you may need to get scanned. This canindicate a recurrance of Thyroid Cancer or an Autoimmune Diseaseacting up. I just had a CT scan done based on my TgAB numbers going upvery high. I just asked my Endo about this. I asked if all my othernumbers are normal and my TgAB is going up or high, can that meanbenign thyroid tissue is growing somewhere else and he stated No - notbenign. For me, since I had Papillary Cancer, it may indicate thecancer is back. My CT Scan showed 3 small nodules on my lungs...could also be scar tissue from pneumonia, bronchitis, etc. They are1, 2, and 3 mm and too small to tell yet... Just love four letterwords like WAIT and see.

[Guest guest]

Hello there. I had a question for you. I am currently trying to get pregnant so my endocrinologist tests my thyroid once a month to make sure it does not go out of range (he's trying to keep it between 1 and 2). The past few months, my need for Synthroid has decreased each month as my levels were getting too low, like as low as .4 at one point. Last month in Oct, my TSH came back at 1.53. So he kept me at the same dosage (alternating between 25 and 50). This month, I tested exactly 4 weeks later and my TSH came back at 4.91! What could be causing this huge jump? Is that normal? I tested for pregnancy and it came back negative. Any insight would be helpful thanks!Kathy

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[Guest guest]

My first guess would be potency problems with the Synthroid, but we'll never get anyone to admit it LOL. Are you taking your Synthroid the day of the testing because that can affect the numbers as well. It can take some time to get stabalized as well. Are you careful not to have soy, calcium, magnesium, antacids, mineral supplements within 4 hours of taking your Synthroid. If your diet has changed, that can make a difference in absorption. Are your symptoms changing drastically with all of these readings? For example, did you feel a lot different with the TSH at .4 than you do with it at 4.91? Isn't .4 still in range. I think it's .35-3.0 or something like that. Also, with them jumping around, can you get him to run Free T3 and Free T4 tests to see what's going on with the actual thyroid. TSH is a pituitary hormone, not a thyroid hormone. That's all I can think of for now. Best of luck!

JudyP – If nothing changes, nothing changes.

I had a question for you. I am currently trying to get pregnant so my endocrinologist tests my thyroid once a month to make sure it does not go out of range (he's trying to keep it between 1 and 2). The past few months, my need for Synthroid has decreased each month as my levels were getting too low, like as low as .4 at one point. Last month in Oct, my TSH came back at 1.53. So he kept me at the same dosage (alternating between 25 and 50). This month, I tested exactly 4 weeks later and my TSH came back at 4.91! What could be causing this huge jump? Is that normal? I tested for pregnancy and it came back negative. Any insight would be helpful thanks!

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[Guest guest]

The TSH is so unreliable it shouldn't even be used as a diagnostic tool IMO...............what are your free's like?

And what symptoms do you have? Once on meds the TSH should be under 1.00 and ideally close to zero if you have Hashi's. Are you /is your doc dosing to the TSH or symptoms?...............Meleese xx

-------Original Message-------

From: Judy P

My first guess would be potency problems with the Synthroid, but we'll never get anyone to admit it LOL. Are you taking your Synthroid the day of the testing because that can affect the numbers as well. It can take some time to get stabalized as well. Are you careful not to have soy, calcium, magnesium, antacids, mineral supplements within 4 hours of taking your Synthroid. If your diet has changed, that can make a difference in absorption. Are your symptoms changing drastically with all of these readings? For example, did you feel a lot different with the TSH at .4 than you do with it at 4.91? Isn't .4 still in range. I think it's .35-3.0 or something like that. Also, with them jumping around, can you get him to run Free T3 and Free T4 tests to see what's going on with the actual thyroid. TSH is a pituitary hormone, not a thyroid hormone. That's all I can think of for now. Best of luck!

JudyP – If nothing changes, nothing changes.

I had a question for you. I am currently trying to get pregnant so my endocrinologist tests my thyroid once a month to make sure it does not go out of range (he's trying to keep it between 1 and 2). The past few months, my need for Synthroid has decreased each month as my levels were getting too low, like as low as .4 at one point. Last month in Oct, my TSH came back at 1.53. So he kept me at the same dosage (alternating between 25 and 50). This month, I tested exactly 4 weeks later and my TSH came back at 4.91! What could be causing this huge jump? Is that normal? I tested for pregnancy and it came back negative. Any insight would be helpful thanks!

[Guest guest]

Hi there,Yes he checks my T3 and T4 every month also not just the TSH. He just told me that my TSH needs to stay between 1 and 2 in order for me to get pregnant and to carry a healthy pregnancy. I keep track of it because sometimes his office staff gives me the wrong test results. So here is a listing of my past test results if this helps at all. And I have not changed my diet at all and yes I always make sure that I take any vitamins, etc. after 4 hours. I have not done anything new. This was the only month with the severe jump.

12/05:

3.18 (taking 25mcg)

1/7/06:

2.04 (50 mcg)- dr. said to change to 75

1/24, 06:

2.00 (75mcg)- spoke with dr. he said to alternate between 50 and 75.

4/06: 2.90 (50 and 75)- dr. said to switch to 75

6/3/06: 1.45

(75)- dr. said to stay at 75

6/28/06: 1.20

(75)

7/26/06:

0.45 (75mcg): - dr. said to go back to alternating between 50 and 75

8/11/06:

0.41 (alternating between 50 and 75mcg): - dr. said to drop to 50

9/16/06: .75

(50 mcg)-dr. said to start alternating between 25 and 50mcg daily.

10/21/06:

1.572 (alternating between 50 and 25mcg daily)- dr. said to stay where I am.

11/21/06:

4.91 (alternating between 50 and 25mcg daily)- dr. said to switch to 50 every

day.He now wants me to retest again in 2 weeks to make sure the TSH is changing fast enough. But I have seriously no clue what would cause it to make that huge jump and I am worried! It almost tripled!

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[Guest guest]

Sorry, I missed some of your other questions. I take my synthroid the day of the test as well. And I always make sure I am fasting when I get tested. I can always tell when my thyroid is going out of range. I have been more tired, sluggish, headaches, flushed, lightheaded, get nauseous when I exercise, short of breath, heart palpitations, etc. Re: Re: Fw: lab

results..

My first guess would be potency problems with the Synthroid, but we'll never get anyone to admit it LOL. Are you taking your Synthroid the day of the testing because that can affect the numbers as well. It can take some time to get stabalized as well. Are you careful not to have soy, calcium, magnesium, antacids, mineral supplements within 4 hours of taking your Synthroid. If your diet has changed, that can make a difference in absorption. Are your symptoms changing drastically with all of these readings? For example, did you feel a lot different with the TSH at .4 than you do with it at 4.91? Isn't .4 still in range. I think it's .35-3.0 or something like that. Also, with them jumping around, can you get him to run Free T3 and Free T4 tests to see what's going on with the actual thyroid. TSH is a pituitary hormone, not a thyroid hormone. That's all I can think of for now. Best of luck!

JudyP – If nothing changes, nothing changes.

I had a question for you. I am currently trying to get pregnant so my endocrinologist tests my thyroid once a month to make sure it does not go out of range (he's trying to keep it between 1 and 2). The past few months, my need for Synthroid has decreased each month as my levels were getting too low, like as low as .4 at one point. Last month in Oct, my TSH came back at 1.53. So he kept me at the same dosage (alternating between 25 and 50). This month, I tested exactly 4 weeks later and my TSH came back at 4.91! What could be causing this huge jump? Is that normal? I tested for pregnancy and it came back negative. Any insight would be helpful thanks!

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[Guest guest]

I am not sure what the free's are like yet, I have to wait to get the test results in the mail from the lab. I didn't ask what they were like. I didn't actually speak to the dr. I am going to call tomorrow and see if I can talk to him directly. I don't have Hashi's. He said I have thyroiditis that has not calmed down yet. First I was hyper, then I went hypo. He uses the labs to dose, not my symptoms. I haven't really seen too much of a difference unless I start going over 2. When I was down by .41 I felt like I was getting hyper again. Anywhere between 1 and 2 I feel comfortable. But it appears to be hard to get me stabilized in that area it's always all over the place and my medication constantly has to be changed.

Re: Re: Fw: lab results..

The TSH is so unreliable it shouldn't even be used as a diagnostic tool IMO......... ......what are your free's like?

And what symptoms do you have? Once on meds the TSH should be under 1.00 and ideally close to zero if you have Hashi's. Are you /is your doc dosing to the TSH or symptoms?... ......... ...Meleese xx

-------Original Message----- --

From: Judy P

My first guess would be potency problems with the Synthroid, but we'll never get anyone to admit it LOL. Are you taking your Synthroid the day of the testing because that can affect the numbers as well. It can take some time to get stabalized as well. Are you careful not to have soy, calcium, magnesium, antacids, mineral supplements within 4 hours of taking your Synthroid. If your diet has changed, that can make a difference in absorption. Are your symptoms changing drastically with all of these readings? For example, did you feel a lot different with the TSH at .4 than you do with it at 4.91? Isn't .4 still in range. I think it's .35-3.0 or something like that. Also, with them jumping around, can you get him to run Free T3 and Free T4 tests to see what's going on with the actual thyroid. TSH is a pituitary hormone, not a thyroid hormone. That's all I can think

of for now. Best of luck!

JudyP – If nothing changes, nothing changes.

I had a question for you. I am currently trying to get pregnant so my endocrinologist tests my thyroid once a month to make sure it does not go out of range (he's trying to keep it between 1 and 2). The past few months, my need for Synthroid has decreased each month as my levels were getting too low, like as low as .4 at one point. Last month in Oct, my TSH came back at 1.53. So he kept me at the same dosage (alternating between 25 and 50). This month, I tested exactly 4 weeks later and my TSH came back at 4.91! What could be causing this huge jump? Is that normal? I tested for pregnancy and it came back negative. Any insight would be helpful thanks!

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[Guest guest]

Do you mean T3 and T4 or FREE T3 and FREE T4??

The Free's are the ones we need , the others aren't much use.

Have you been tested for auto-immune disease? More specifically Hashimoto's Disease(9diagnosed by antibodies)

A TSH between 1 and 2 is still quite high when you are on meds..we need the free's (..with ranges ) to really see what is going on.......I might run the need for the TSH to be between 1 and 2 in order to get pregnant by one of my other groups....anonymously of course I won't mention your name................Meleese in Oz xxx

-------Original Message-------

From: Kathy Billie

Hi there,Yes he checks my T3 and T4 every month also not just the TSH. He just told me that my TSH needs to stay between 1 and 2 in order for me to get pregnant and to carry a healthy pregnancy. I keep track of it because sometimes his office staff gives me the wrong test results. So here is a listing of my past test results if this helps at all. And I have not changed my diet at all and yes I always make sure that I take any vitamins, etc. after 4 hours. I have not done anything new. This was the only month with the severe jump.

12/05: 3.18 (taking 25mcg)

1/7/06: 2.04 (50 mcg)

- dr. said to change to 75

1/24, 06: 2.00 (75mcg)

- spoke with dr. he said to alternate between 50 and 75.

4/06: 2.90 (50 and 75)

- dr. said to switch to 75

6/3/06: 1.45 (75)

- dr. said to stay at 75

6/28/06: 1.20 (75)

7/26/06: 0.45 (75mcg):

- dr. said to go back to alternating between 50 and 75

8/11/06: 0.41 (alternating between 50 and 75mcg):

- dr. said to drop to 50

9/16/06: .75 (50 mcg)

-dr. said to start alternating between 25 and 50mcg daily.

10/21/06: 1.572 (alternating between 50 and 25mcg daily)

- dr. said to stay where I am.

11/21/06: 4.91 (alternating between 50 and 25mcg daily)

- dr. said to switch to 50 every day.

He now wants me to retest again in 2 weeks to make sure the TSH is changing fast enough. But I have seriously no clue what would cause it to make that huge jump and I am worried! It almost tripled!

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[Guest guest]

He is also testing you very close together............ It takes 4-6 weeks tfor the meds to really make a change

Is he knowledgeable on thyroid disease? Sounds like he's guessing

Ack!!!...I wish the TSH had never been invented and doctors do what they did before this all came in dose by symptoms and temps!!!!!!!............Meleese in Oz xxx

-------Original Message-------

From: Kathy Billie

Hi there,Yes he checks my T3 and T4 every month also not just the TSH. He just told me that my TSH needs to stay between 1 and 2 in order for me to get pregnant and to carry a healthy pregnancy. I keep track of it because sometimes his office staff gives me the wrong test results. So here is a listing of my past test results if this helps at all. And I have not changed my diet at all and yes I always make sure that I take any vitamins, etc. after 4 hours. I have not done anything new. This was the only month with the severe jump.

12/05: 3.18 (taking 25mcg)

1/7/06: 2.04 (50 mcg)

- dr. said to change to 75

1/24, 06: 2.00 (75mcg)

- spoke with dr. he said to alternate between 50 and 75.

4/06: 2.90 (50 and 75)

- dr. said to switch to 75

6/3/06: 1.45 (75)

- dr. said to stay at 75

6/28/06: 1.20 (75)

7/26/06: 0.45 (75mcg):

- dr. said to go back to alternating between 50 and 75

8/11/06: 0.41 (alternating between 50 and 75mcg):

- dr. said to drop to 50

9/16/06: .75 (50 mcg)

-dr. said to start alternating between 25 and 50mcg daily.

10/21/06: 1.572 (alternating between 50 and 25mcg daily)

- dr. said to stay where I am.

11/21/06: 4.91 (alternating between 50 and 25mcg daily)

- dr. said to switch to 50 every day.

He now wants me to retest again in 2 weeks to make sure the TSH is changing fast enough. But I have seriously no clue what would cause it to make that huge jump and I am worried! It almost tripled!

[Guest guest]

Thyroiditis IS Hashi's.....have you had an antibodies test done?...Hashi's is why you keep going from hypo to hyper....I don't think this doc knows what he's doing, sorry yes he's an endo but they can be the worst for thyroid stuff.....you DO dose by symptoms..........you might do better on Armour.......Meleese in Oz xx

-------Original Message-------

From: Kathy Billie

I am not sure what the free's are like yet, I have to wait to get the test results in the mail from the lab. I didn't ask what they were like. I didn't actually speak to the dr. I am going to call tomorrow and see if I can talk to him directly. I don't have Hashi's. He said I have thyroiditis that has not calmed down yet. First I was hyper, then I went hypo. He uses the labs to dose, not my symptoms. I haven't really seen too much of a difference unless I start going over 2. When I was down by .41 I felt like I was getting hyper again. Anywhere between 1 and 2 I feel comfortable. But it appears to be hard to get me stabilized in that area it's always all over the place and my medication constantly has to be changed.

----- Original Message ----

The TSH is so unreliable it shouldn't even be used as a diagnostic tool IMO......... ......what are your free's like?

And what symptoms do you have? Once on meds the TSH should be under 1.00 and ideally close to zero if you have Hashi's. Are you /is your doc dosing to the TSH or symptoms?... ......... ...Meleese xx

-------Original Message----- --

From: Judy P

My first guess would be potency problems with the Synthroid, but we'll never get anyone to admit it LOL. Are you taking your Synthroid the day of the testing because that can affect the numbers as well. It can take some time to get stabalized as well. Are you careful not to have soy, calcium, magnesium, antacids, mineral supplements within 4 hours of taking your Synthroid. If your diet has changed, that can make a difference in absorption. Are your symptoms changing drastically with all of these readings? For example, did you feel a lot different with the TSH at .4 than you do with it at 4.91? Isn't .4 still in range. I think it's .35-3.0 or something like that. Also, with them jumping around, can you get him to run Free T3 and Free T4 tests to see what's going on with the actual thyroid. TSH is a pituitary hormone, not a thyroid hormone. That's all I can think of for now. Best of luck!

JudyP – If nothing changes, nothing changes.

I had a question for you. I am currently trying to get pregnant so my endocrinologist tests my thyroid once a month to make sure it does not go out of range (he's trying to keep it between 1 and 2). The past few months, my need for Synthroid has decreased each month as my levels were getting too low, like as low as .4 at one point. Last month in Oct, my TSH came back at 1.53. So he kept me at the same dosage (alternating between 25 and 50). This month, I tested exactly 4 weeks later and my TSH came back at 4.91! What could be causing this huge jump? Is that normal? I tested for pregnancy and it came back negative. Any insight would be helpful thanks!

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[Guest guest]

The doctor that I am seeing is the president of the American Thyroid Association in NYC. He's supposed to be the best authority on thryoid in the country, which is why I am going to him. He runs an entire thyroid panel every time he tests me. I have been tested for antibodies and don't have any. He just kept referring to what I had as thyroiditis he didn't specify what kind. I thought you had to have antibodies in order for it to be Hashi's? I know he's testing really close together, but he said he's doing that because I am trying to get pregnant and if I go out of range, he wants to make sure the TSH is on its way down early on so he can keep it in check. I've done research and my reproductive endo person also said that you

need to be between 1 and 2 but certainly not over 2. This whole thing is so confusing. I'll have more info when my labs come in the mail. Re: [The_Thyroid_ Support_Group] Re: Fw: lab results..

The TSH is so unreliable it shouldn't even be used as a diagnostic tool IMO......... ......what are your free's like?

And what symptoms do you have? Once on meds the TSH should be under 1.00 and ideally close to zero if you have Hashi's. Are you /is your doc dosing to the TSH or symptoms?... ......... ...Meleese xx

-------Original Message----- --

From: Judy P

My first guess would be potency problems with the Synthroid, but we'll never get anyone to admit it LOL. Are you taking your Synthroid the day of the testing because that can affect the numbers as well. It can take some time to get stabalized as well. Are you careful not to have soy, calcium, magnesium, antacids, mineral supplements within 4 hours of taking your Synthroid. If your diet has changed, that can make a difference in absorption. Are your symptoms changing drastically with all of these readings? For example, did you feel a lot different with the TSH at .4 than you do with it at 4.91? Isn't .4 still in range. I think it's .35-3.0 or something like that. Also, with them jumping around, can you get him to run Free T3 and Free T4 tests to see what's going on with the actual thyroid. TSH is a pituitary hormone, not a thyroid hormone. That's all I can think

of for now. Best of luck!

JudyP – If nothing changes, nothing changes.

I had a question for you. I am currently trying to get pregnant so my endocrinologist tests my thyroid once a month to make sure it does not go out of range (he's trying to keep it between 1 and 2). The past few months, my need for Synthroid has decreased each month as my levels were getting too low, like as low as .4 at one point. Last month in Oct, my TSH came back at 1.53. So he kept me at the same dosage (alternating between 25 and 50). This month, I tested exactly 4 weeks later and my TSH came back at 4.91! What could be causing this huge jump? Is that normal? I tested for pregnancy and it came back negative. Any insight would be helpful thanks!

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[Guest guest]

Well he may be guessing a little as we all are, but if the doc is willing keep her between 1 and 2, I'd say he's a keeper! I found the total TSH suppression comes more from Armour than from synthetic T4s. Armour sent my TSH from 1.18 to .118, while lowering my frees.

JudyP – If nothing changes, nothing changes.

Is he knowledgeable on thyroid disease? Sounds like he's guessing

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[Guest guest]

Wow, Meleese, you're scaring me so I can't imagine what you're doing to the newcomer!

JudyP – If nothing changes, nothing changes.

Thyroiditis IS Hashi's.....have you had an antibodies test done?...Hashi's is why you keep going from hypo to hyper....I don't think this doc knows what he's doing, sorry yes he's an endo but they can be the worst for thyroid stuff.....you DO dose by symptoms..........you might do better on Armour.......Meleese in Oz

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[Guest guest]

Ok , post them when you get them........because the doctor is known as the " best authority" in the country doesn't necessarily make him the best choice.......or a good doctor.He may be good, I don't know but one of the top authorities in England posted so much drivel that I wanted to throw up as did Shomon and many others! Read these links

http://thyroid.about.com/od/newscontroversies/a/weetman.htm

http://thyroid.about.com/od/newscontroversies/a/weetmanletters.htm

http://thyroid.about.com/od/newscontroversies/a/peatfieldapr06.htm

-------Original Message-------

From: Kathy Billie

The doctor that I am seeing is the president of the American Thyroid Association in NYC. He's supposed to be the best authority on thryoid in the country, which is why I am going to him. He runs an entire thyroid panel every time he tests me. I have been tested for antibodies and don't have any. He just kept referring to what I had as thyroiditis he didn't specify what kind. I thought you had to have antibodies in order for it to be Hashi's? I know he's testing really close together, but he said he's doing that because I am trying to get pregnant and if I go out of range, he wants to make sure the TSH is on its way down early on so he can keep it in check. I've done research and my reproductive endo person also said that you need to be between 1 and 2 but certainly not over 2. This whole thing is so confusing. I'll have more info when my labs come in the mail.

Re: [The_Thyroid_ Support_Group] Re: Fw: lab results..

The TSH is so unreliable it shouldn't even be used as a diagnostic tool IMO......... ......what are your free's like?

And what symptoms do you have? Once on meds the TSH should be under 1.00 and ideally close to zero if you have Hashi's. Are you /is your doc dosing to the TSH or symptoms?... ......... ...Meleese xx

-------Original Message----- --

From: Judy P

My first guess would be potency problems with the Synthroid, but we'll never get anyone to admit it LOL. Are you taking your Synthroid the day of the testing because that can affect the numbers as well. It can take some time to get stabalized as well. Are you careful not to have soy, calcium, magnesium, antacids, mineral supplements within 4 hours of taking your Synthroid. If your diet has changed, that can make a difference in absorption. Are your symptoms changing drastically with all of these readings? For example, did you feel a lot different with the TSH at .4 than you do with it at 4.91? Isn't .4 still in range. I think it's .35-3.0 or something like that. Also, with them jumping around, can you get him to run Free T3 and Free T4 tests to see what's going on with the actual thyroid. TSH is a pituitary hormone, not a thyroid hormone. That's all I can think of for now. Best of luck!

JudyP – If nothing changes, nothing changes.

I had a question for you. I am currently trying to get pregnant so my endocrinologist tests my thyroid once a month to make sure it does not go out of range (he's trying to keep it between 1 and 2). The past few months, my need for Synthroid has decreased each month as my levels were getting too low, like as low as .4 at one point. Last month in Oct, my TSH came back at 1.53. So he kept me at the same dosage (alternating between 25 and 50). This month, I tested exactly 4 weeks later and my TSH came back at 4.91! What could be causing this huge jump? Is that normal? I tested for pregnancy and it came back negative. Any insight would be helpful thanks!

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[Guest guest]

It is confusing, but it really sounds like you're in good hands, so try not to worry. I had two wonderful babies years ago and my TSH was usually in the 4-5 range at that time. I don't know much about Hashi's, but I think that the antibodies are the key to that diagnosis. Hashi's is the most common cause of thyroiditis, but it's not the only one. I found this definition that might explain your ups and downs.

"The inflamed thyroid gland can release an excess of thyroid hormones into the blood stream, resulting in a temporary hyperthyroid state. Once the thyroid gland is depleted of thyroid hormones, the patient commonly goes through a hypothyroid (low thyroid) phase. This phase can last 3-6 months until the thyroid gland fully recovers."

JudyP – If nothing changes, nothing changes.

This whole thing is so confusing. I'll have more info when my labs come in the mail.

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[Guest guest]

Do you want your frees lowered along with the TSH?

I am alittle confused...actually not educated.

But trying to get that way.

M

Judy P wrote:

I found the total

TSH suppression comes more from Armour than from synthetic T4s. Armour

sent my TSH from 1.18 to .118, while lowering my frees.

JudyP

– If

nothing changes, nothing changes.

[Guest guest]

No.. you want TSH going down and frees going up.

It's not uncommon when changing to Armour, natural thyroid, to see both TSH and Frees going down, at first, it has to do with the body being better able to process the natural hormone and using it up.

Free T4 and Free T3 testing shows the amount of those two hormones that are in the blood stream, unused by the body. The fact that those two numbers have dropped mean that the hormone receptors are picking up more of the hormone and less is still in the blood. The hormones have to be picked up/attached to the hormone receptors for our bodies to receive benefit from them. Then next step is to continue to gradually increase the dose of Armour/natural until the symptoms are gone and the levels are looking good, without there being enough to cause the person to become hyper.

The reason that the TSH drops has to do with what TSH is. Thyroid Stimulating Hormone. The more the body needs hormone the higher the TSH level. The lower the TSH level, the lower the stimulation to the hormone gland, the less it works.

When you are dealing with many of the various thyroid disorders the goal is to suppress thyroid gland function, so you want the TSH approaching zero, indicating that the body is receiving sufficient amounts of replacement hormone that it doesn't need to be hollering at the thyroid gland (with TSH) to get it to produce more.

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On Wed, 29 Nov 2006 23:39:01 -0600 Rathbun writes:

Do you want your frees lowered along with the TSH?I am alittle confused...actually not educated.But trying to get that way.MJudy P wrote:

I found the total TSH suppression comes more from Armour than from synthetic T4s. Armour sent my TSH from 1.18 to .118, while lowering my frees.

JudyP – If nothing changes, nothing changes.

[Guest guest]

, that's a great observation and question. No, I did not want my frees lowered with the drop in TSH, so although I had a TSH of .118, I still got an dosage increase. It's just a classic example of how the TSH does not readily reflect what's actually going on with the hormones. My TSH was in the 'hyper' range but my T's were both midrange and I had no hyper symptoms whatsoever. Armour (for me more than synthetic) for some reason can falsely lower the TSH into the hyper zone. If my doctor were only using the TSH, I would have had my meds decreased instead of increased. I've since switched to a combo of Levo and Armour and I'm feeling pretty good on that, but I haven't had new labs done yet. That's one of the reasons that I never take my meds the morning of a test, especially the Armour. The direct T3 can really push down the TSH and it doesn't recover automatically when the stash is gone, so your hormone levels can drop long before the TSH has a chance to come back up again. Some of it is confusing to me too. I don't have Hashi's and I would actually prefer to not suppress the function of my own thyroid, I just really want to supplement it's inactivity. That doesn't seem possible with the Armour, but the other benefits are worth it for now.

JudyP – If nothing changes, nothing changes.

Do you want your frees lowered along with the TSH?I am alittle confused...actually not educated.But trying to get that way.

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[Guest guest]

, I understand all of this but I have a question about it. Since my thyroid is simply underactive, what will happen to it while Armour is suppressing the TSH to the point where it doesn't call on it to do anything? My concern is that it will atrophy without use or worse, some other disease will settle in. If it was removed or I had antibodies, I could understand total suppression, but I'm still having a hard time understanding why I wouldn't want to keep it as active as it can be. What are your thoughts on this?

JudyP – If nothing changes, nothing changes.

When you are dealing with many of the various thyroid disorders the goal is to suppress thyroid gland function, so you want the TSH approaching zero, indicating that the body is receiving sufficient amounts of replacement hormone that it doesn't need to be hollering at the thyroid gland (with TSH) to get it to produce more.

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[Guest guest]

Kathy, can you post your last T3 and T4 results with their ranges as well? That would give us a much better idea of what's going on.

JudyP – If nothing changes, nothing changes.

Yes he checks my T3 and T4 every month also not just the TSH.

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[Guest guest]

I would agree that there are too many changes too often. Best, bubbe Gittel, also perhaps the endo is not the best one to deal with pregnancy issues, wouldn't the gyn or fertile doc be better

[Guest guest]

And my actual diagnosis is sub acute thyroiditis. I

was tested for Hashi's antibodies and Graves disease

and had nothing. I started out with really hyperactive

symptoms, they thought I was having panic attacks.

Then after about 6 months of that, I finally got

diagnosed with a thyroid problem and referred to the

endocrinologist, after my regular doctor kept trying

to give me antianxiety and antidepressants and trying

to convince me I was depressed (because I was having

insomnia as well which was the major symptom).

He gave me some anti-inflammatory pill for a few

weeks, which stopped the hyper and then kicked me into

hypo and I have been on Synthroid ever since, but

trouble getting the right dosage.

This sub acute thyroiditis has been going on for me

for 2.5 years already and he can't understand why. He

thought my thyroid was correcting itself and coming

out of the phase when he examiend me in August beacuse

he said my sonogram came back as my thyroid looking

comlpetely normal, no imflammation at all. And then my

need for meds decreased and he kept decreasing it,

saying my TSH was too low. And then WHAM it jumps back

up again this month!

--- Judy P wrote:

> Kathy, can you post your last T3 and T4 results with

> their ranges as well? That would give us a much

> better idea of what's going on.

>

> JudyP – If nothing changes, nothing changes.

>

>

> ---------------------------------

>

>

> Yes he checks my T3 and T4 every month also not just

> the TSH.

>

>

>

>

>

> ---------------------------------

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[Guest guest]

That would be my concern too. Most say it takes 6 weeks for a particular dose to get into the system enough for the labs to accurately show what that dose is doing. I'm no expert, but I'm sure that 2 weeks is not enough unless there's something else about your condition that I don't know about. If levothyroxine were that fast acting, then you would not be able to tolerate taking a different dose each day. I could miss a day or three and not notice any difference when I was on straight synthetic.

There were know potency problems with your particular brand of Levo in the past. The must have fixed them because they finally got FDA approval, but I still won't trust it. I took Synthroid once about 15 years ago for a little while and my experience was terrible. As soon as I could, I switched brands again. Just saying. I'm taking Lexoyl now and I must say, I'm feeling pretty good. I won't know if it's stabilized yet until my next labs. If you're taking the 25 and 50 on alternate days (which is fine - I did that for a while), then the one that you take on the day of the labs could make a difference I would think. For example, if your 2nd last lab was done on a 50 day and the last set was done on a 25 day, then I'm thinking there would be a difference in your system and in the TSH. Did you read my earlier post about why thyroiditis can cause the fluctuations?

JudyP – If nothing changes, nothing changes.

I am just really concerned because I have no clue what happened from last month to this month for the TSH to change that rapidly. I am worried that he is monitoring me too closely and is changing my medication too frequently and it's taking my body awhile to react to the change in medication. There were times he was changing my meds every two weeks or every month to try to drive the TSH down as you can see from what I posted earlier.

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