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Hi everyone :-)

With me being a newbie and everything could someone kinda tell

me what is going on? I am trying to find out about the New Years

Challenge and something about a spreadsheet. Sorry for being kinda

slow...I'm having a blonde week *lol* How long is the Challenge

for? Thanks a bunch. Just to let you know ahead of time. I can

sometimes ask a lot of questions. If I start to bug ya too much just

let me know.

Manda

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Hey, you feel free to ask whatever you need to, we just tend to babble sometimes without thinking others may not have a clue about what we are talking about. Okay, we are having a challenge for the year 2002. Some have already started like me but it's okay to wait until Jan 1 or 2. Joya is spearheading the stats so send your stats into the link she sent earlier or whatever it was she sent (I pay attention..LOL) and start posting your meals and such. Let us know what you need help with. For me, it's snacking on the wrong things and no exercise. Everyone on this list is welcome to join!

Kari

I have a question

Hi everyone :-) With me being a newbie and everything could someone kinda tell me what is going on? I am trying to find out about the New Years Challenge and something about a spreadsheet. Sorry for being kinda slow...I'm having a blonde week *lol* How long is the Challenge for? Thanks a bunch. Just to let you know ahead of time. I can sometimes ask a lot of questions. If I start to bug ya too much just let me know. MandaPlease visit our homepage at http://members.xoom.com/AChallengersYou will find information, recipes, before and after pictures.To contact any of the the list moderators, you can email them at:Kari (kari@...) (jocee131@...)Norma (norwood@...)JJ (cybercat1@...)Dianne (lambart@...) Joya (bocock@...)

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Mandi.....I am not entirely sure on all the rules and regulations of the various challenges, but we aren't strict on them so don;t worry. We want to get in three days of exercise a week, at least.....I know for sure we are doing induction the straight two weeks (if not more) with NO EXCUSES ALLOWED. The spreadsheets are for you convenience, just to make things a bit more fun, and the weekly weigh in is tomorrow, but will usually be every Monday. At the end of the year we count up the total pounds lost.

There are various challenges throughout the year and even PRESENTS are awarded! So stick around, you will have lots of support and fun!'

Joya

> Hi everyone :-)> > With me being a newbie and everything could someone kinda tell > me what is going on? I am trying to find out about the New Years > Challenge and something about a spreadsheet. Sorry for being kinda > slow...I'm having a blonde week *lol* How long is the Challenge > for? Thanks a bunch. Just to let you know ahead of time. I can > sometimes ask a lot of questions. If I start to bug ya too much just > let me know. > > Manda> > > Please visit our homepage at http://members.xoom.com/AChallengers> You will find information, recipes, before and after pictures.> > To contact any of the the list moderators, you can email them at:> > > Kari (kari@...)> (jocee131@...)> Norma (norwood@...)> JJ (cybercat1@...)> Dianne (lambart@...) > Joya (bocock@...)> > > >

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  • 3 years later...
Guest guest

I have no idea, Sandy. Everybody whose kidney function drops below 50%

starts losing ability to eliminate phosphate. That's why a renal diet is a

low phosphorus diet (phosphorus and phosphate can be taken to mean the same

thing in this context). The higher level of phosphorus in the blood itself

isn't known to be harmful to the kidneys, but it IS known to be harmful to

the body in several ways, the main one being that it draws calcium out of

the bones, and that eventually causes bone disease. Guai is Ok occasionally

as when it's part of a cold medication, but I have no idea what using it

regularly for a long time would do.

Unfortunately, nephrologists are powerless when it comes to the flank pain

many people describe. I've heard other people mention the same thing as you

describe with diuretics, though. I don't know what the mechanism for pain is

in that case. What are you taking the diuretic for?

Pierre

I have a question

>

>

> Hi Sorry I havent been online for awhile,, But I been involved in a

> list I started for fibromyalgia and rh negative blood,,

>

> I just saw on here about the ibuprofen going through the kidney, That

> is a good thing to know ,, thanks,, I was taking to many of them

> ,but,

> I hate to go to a pain clinic , it is so expensive and I really cant

> afford it,,

>

> My question is ,, would it be harmful ,, to take guai,, so many

> people

> have suggested it to me for my fibromyalgia, and other muscle

> problems,

> but the theory of taking it is that a fibromyalgia doctor said that

> people with fibro's kidneys dont excrete phosphates,,

> I wonder if taking it would speed up the igan disease,, which I have

> also,, any thoughts on this?

>

> And another question I have is, I have been taking a duiretic for

> about

> a year now and recently,, as soon as I take it and it takes effect,,

> my

> back in the kidney area starts to hurt,, I called my nephro and

> talked

> to the nurse,, she said it wasnt kidney related,, and to go to my GP

> well duh the pain is coming from the kidney area where it never

> hurts,,

> my fibro pains are in my shoulders, and neck,, I cant see my nephro

> until May,, Any thoughts on this also.

>

> Thank you so much,,

> Sandy

>

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Guest guest

thanks Pierre

My nephro doctor gives me me duiretics, for swelling,,my feet get so

big sometimes, I cant wear my shoes,,and my hands swell also, and

sting,,

when I go to bed at night, my feet are swelled, they go down during

the night and my face is swelled,when I wake up,, If I go walking and

my hands hang to my side. my hands swell,,

I think the people who suggested me taking guai , think you have to

take it everyday for a least a year,, I dont think it is a good idea

since I have IgAN,, I think it would be too much strain on my kidneys

but I wanted to know for sure, Guai, Is recommended by Dr Amand a

fibromyalgia doctor for it,

thanks so much for your reply

> I have no idea, Sandy. Everybody whose kidney function drops below

50%

> starts losing ability to eliminate phosphate. That's why a renal

diet is a

> low phosphorus diet (phosphorus and phosphate can be taken to mean

the same

> thing in this context). The higher level of phosphorus in the blood

itself

> isn't known to be harmful to the kidneys, but it IS known to be

harmful to

> the body in several ways, the main one being that it draws calcium

out of

> the bones, and that eventually causes bone disease. Guai is Ok

occasionally

> as when it's part of a cold medication, but I have no idea what

using it

> regularly for a long time would do.

>

> Unfortunately, nephrologists are powerless when it comes to the

flank pain

> many people describe. I've heard other people mention the same

thing as you

> describe with diuretics, though. I don't know what the mechanism

for pain is

> in that case. What are you taking the diuretic for?

>

> Pierre

>

> I have a question

>

>

> >

> >

> > Hi Sorry I havent been online for awhile,, But I been involved in

a

> > list I started for fibromyalgia and rh negative blood,,

> >

> > I just saw on here about the ibuprofen going through the kidney,

That

> > is a good thing to know ,, thanks,, I was taking to many of them

> > ,but,

> > I hate to go to a pain clinic , it is so expensive and I really

cant

> > afford it,,

> >

> > My question is ,, would it be harmful ,, to take guai,, so many

> > people

> > have suggested it to me for my fibromyalgia, and other muscle

> > problems,

> > but the theory of taking it is that a fibromyalgia doctor said

that

> > people with fibro's kidneys dont excrete phosphates,,

> > I wonder if taking it would speed up the igan disease,, which I

have

> > also,, any thoughts on this?

> >

> > And another question I have is, I have been taking a duiretic for

> > about

> > a year now and recently,, as soon as I take it and it takes

effect,,

> > my

> > back in the kidney area starts to hurt,, I called my nephro and

> > talked

> > to the nurse,, she said it wasnt kidney related,, and to go to my

GP

> > well duh the pain is coming from the kidney area where it never

> > hurts,,

> > my fibro pains are in my shoulders, and neck,, I cant see my

nephro

> > until May,, Any thoughts on this also.

> >

> > Thank you so much,,

> > Sandy

> >

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Guest guest

thanks

Sandy

>

> Hi Sandy,

>

> Having Fibromyalgia and IgAN puts a different spin on things. I

know

> fibromyalgia can be very painful. I really would consult your

Rheumatologist and

> Neph together on what to do about pain management. I do not know

anything

> about Guai, so that is another thing that you should consult with

both your

> doctors about.

>

> The flank pain you are describing does sound kidney related. I

realize that

> many doctors do not accept that flank pain is associated with

kidney

> disease, but so many on this board have it that I think there is

likely a

> connection. You are not alone in this!

>

>

>

> In a message dated 4/8/2005 8:16:11 P.M. Pacific Daylight Time,

> sandyflowers3@y... writes:

>

>

>

> Hi Sorry I havent been online for awhile,, But I been involved in

a

> list I started for fibromyalgia and rh negative blood,,

>

> I just saw on here about the ibuprofen going through the kidney,

That

> is a good thing to know ,, thanks,, I was taking to many of them

> ,but,

> I hate to go to a pain clinic , it is so expensive and I really

cant

> afford it,,

>

> My question is ,, would it be harmful ,, to take guai,, so many

> people

> have suggested it to me for my fibromyalgia, and other muscle

> problems,

> but the theory of taking it is that a fibromyalgia doctor said

that

> people with fibro's kidneys dont excrete phosphates,,

> I wonder if taking it would speed up the igan disease,, which I

have

> also,, any thoughts on this?

>

> And another question I have is, I have been taking a duiretic for

> about

> a year now and recently,, as soon as I take it and it takes

effect,,

> my

> back in the kidney area starts to hurt,, I called my nephro and

> talked

> to the nurse,, she said it wasnt kidney related,, and to go to my

GP

> well duh the pain is coming from the kidney area where it never

> hurts,,

> my fibro pains are in my shoulders, and neck,, I cant see my

nephro

> until May,, Any thoughts on this also.

>

> Thank you so much,,

> Sandy

>

>

>

>

>

>

>

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