Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 If Tom's feet are not swollen when he gets out of bed in the morning, he probably has the same kind of swelling that I and many others on this list report. Mine swell within a half hour after I get up. The dysfunctional nerves do not stimulate the veins to pump blood back up the legs, so it just pools there. Also, either we don't walk very much, may walk 'funny', or may not walk at all, so the circulation just isn't there to keep things pumping normally. Compression stockings will help to prevent the 'pooling' of blood if they are put on when he gets out of bed. It's also a good idea to keep feet and legs elevated when sitting. Dolores ----- Original Message ----- > Has anyone had problems with baclofen causing edema? Tom's feet and ankles > have recently started swelling for know appartent reason. He has had blood > tests and an ultrasound but everything there looks okay. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 I had just the opposite effect. Every time my baclofen pump dose is increased I see an improvement in the swelling in my feet and ankles. Lynn http://spoilingaunty.tripod.com Re: Update from Kiwi > > > , I am glad that you had a positive meeting with your neuro. > Thats something I would like after 8 years of seeing neuros and no > diagnosis! Regarding your stiffness, have you tried Clonazepam? It > helps me alot with stiffness and reduces anxiety. I take 10mg of > Baclofen and find that it doesnt do anything for stiffness in my legs > but helps me immensely with speech and swallowing. > > Believe me when I say I have searched the freezer section of our > supermarkets and we dont have cookie dough. It looks like the Kiwis > have beat us to that > > > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.322 / Virus Database: 266.11.16 - Release Date: 24/05/05 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 Tom & Trish, My ankles and feet do the same but my GP said I needed a water pill and that would take some of the fluid off and it has quite a bit. The name of the pill is Furosemide 40MG. Jane Anne Re: Update from Kiwi >> >> >> , I am glad that you had a positive meeting with your neuro. >> Thats something I would like after 8 years of seeing neuros and no >> diagnosis! Regarding your stiffness, have you tried Clonazepam? It >> helps me alot with stiffness and reduces anxiety. I take 10mg of >> Baclofen and find that it doesnt do anything for stiffness in my > legs >> but helps me immensely with speech and swallowing. >> >> Believe me when I say I have searched the freezer section of our >> supermarkets and we dont have cookie dough. It looks like the Kiwis >> have beat us to that >> >> >> >> >> -- >> No virus found in this outgoing message. >> Checked by AVG Anti-Virus. >> Version: 7.0.322 / Virus Database: 266.11.16 - Release Date: > 24/05/05 >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2005 Report Share Posted May 26, 2005 The Lasix may or may not help because the swelling is not so much a matter of excess fluid in your body, but the fact that it collects in the lower extremities because of gravity. Thus, the swelling improves markedly or totally, during the night when your legs are elevated. Dolores ----- Original Message ----- From: " King " <gking@... > Tom & Trish, > My ankles and feet do the same but my GP said I needed a water > pill > and that would take some of the fluid off and it has quite a bit. The name > of the pill is Furosemide 40MG. > > Jane Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2005 Report Share Posted May 27, 2005 Jane Anne, I know the feeling because my legs were attractive (so I was told by many a suitor). Now they are swollen and even are two different shapes. My feet remind me of two Idaho potatoes. I guess I'll never wear a dress again--just slacks and not even shorts. I LOVED shoes and in my peak had more than 100 pairs. First the high heels went, then the lower heels, then the flats. Now I live in my sneakers or slippers. Don't you just hate this PLS? Dolores Re: swollen feet > Dolores, > > Mine was excess fluid and I could hear it when I was > breathing. > Since I have taken this it has worked for me. Now on really hot days my > feet,toes and ankles swell so bad that I have to take my shoes off. My > husband married me because of my legs. Well now they are horrible and > deformed on one foot. I use to wear a size 7 quad in heel and double A in > width. Now an 8 Med. and when the feet swell they look horrible. He said > it > did not matter but to me it does. > > Jane Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2005 Report Share Posted May 28, 2005 Dolores, Yes I do hate this disease. I to have over a 100 pairs of shoes. I will not give them away. I think someday I might get to wear them. (HA HA) I am the same way with my clothes. I have so many nice dresses and suits that I can not wear. I will not give them away either. I did go through some of my clothes and gave them away and made so much room in my closet. Poor he hardly has room for anything. All of my evening wear is one whole close full. and then I use the other 2 for me and one I share with . I was such a clothes horse, jewelry, shoes, purses, and hats. Now I am like you tennis shoes. I do have one pair of sandals that I purchase at Lands End. Those are cute. I also bought 2 pair of there tennis shoes that are mesh and feel so good on my feet. You can wear them in the water as well as out. I do not slide with them. The air you get from the mesh makes your feet not get hot like the leather. Oh well so day we will get well. Jane Anne Re: swollen feet > > >> Dolores, >> >> Mine was excess fluid and I could hear it when I was >> breathing. >> Since I have taken this it has worked for me. Now on really hot days my >> feet,toes and ankles swell so bad that I have to take my shoes off. My >> husband married me because of my legs. Well now they are horrible and >> deformed on one foot. I use to wear a size 7 quad in heel and double A in >> width. Now an 8 Med. and when the feet swell they look horrible. He said >> it >> did not matter but to me it does. >> >> Jane Anne > > > > > > > Quote Link to comment Share on other sites More sharing options...
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