Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 From: Tanja Nedergaard Subject: Re: Tanja/medications Hi Cindy C Thank You for writing me, You wrote it really well and I will give my doctor a printout, *************************************************** Glad to help, anytime. If it will help, I can give you list of what he has tried in order, off list. But I'm sure your Dr knows what order they are tried in. The main thing is try try the lowest possible and work up, till you find what makes you funtional, but not waste time to get there. Safty first. Cindy C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 >Hi Tanja, I am on OxyContin for pain. Also use Vioxx and Amitriptylene each night. I have been on OC for almost three years now, since it was approved here, and I am very happy with it. It is a depot type medication, so you only need to take it twice a day. Before that I was on a medication from the UK called DHC (dihydrocodeine), also a 12 hour working med. I had to use a lot of codeine for breakthrough pain though. Back then I was also on Tegretol for a while, but had side effects (nausea and projectile vomiting), so it was discontinued... Before DHC I used different other pain meds, all of the kind that worked 3-4 hours only. That does not work well at all when you have chronic pain, that is for sure. It is as if you are on a pain roller coaster all the time. When I started OC, I wanted to try not to use anything for breakthrough pain except Tylenol. Since OC works so much better for me, I in general have a pain relief I can live with. I am not pain free, but it is down to a level I can handle most of the time. I do have some dreadful days though, but as long as they are not too many, I can handle that. OxyContin is a type A drug here, meaning that it is in the group of the strongest narcotics, together with e.g. Ketogan, Morphine, Fentanyl (Duragesic) etc. It requires a special prescription which you can't e.g. have faxed to the pharmacy. There are different opinions on the use of narcotics for chronic pain. But it is my experience that it really can make a huge difference in the quality of life and function level. I had never had a chance to still be working and doing the things I do, if it weren't for the pain meds. I would e.g. have had huge problems driving a car and such every day things... So for me it has made a huge difference... I am very glad that I have had the opportunity to get these medications, thanks to the pain clinic. It just makes life so much better. It sort of feels like a paper that just sucks up the pain... The only thing I have experienced some of lately, is that it feels like the med stops working after around 10 hours, not 12. Anybody experienced that and discussed it with their doc? Aase Marit >Lana here - I take Ultram (Tramadol) for pain, and Vioxx. Most of the time, >I do pretty good with them. Sometimes I have breakthrough pain, and add >another dose of the Ultram (dr. said I could do this) or I may try just a >plain advil or something like that. It seems, though, when I have a >headache, none of these touch them. I HATE headaches! My doctor hasn't >decided if they're migraines or cluster headaches or what, I hope you get >some medication that helps you - do you have an understanding doctor, or at >least one who will listen, learn, and believe you? I think that may be the >most important thing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 >Hi Tanja, I am on OxyContin for pain. Also use Vioxx and Amitriptylene each night. I have been on OC for almost three years now, since it was approved here, and I am very happy with it. It is a depot type medication, so you only need to take it twice a day. Before that I was on a medication from the UK called DHC (dihydrocodeine), also a 12 hour working med. I had to use a lot of codeine for breakthrough pain though. Back then I was also on Tegretol for a while, but had side effects (nausea and projectile vomiting), so it was discontinued... Before DHC I used different other pain meds, all of the kind that worked 3-4 hours only. That does not work well at all when you have chronic pain, that is for sure. It is as if you are on a pain roller coaster all the time. When I started OC, I wanted to try not to use anything for breakthrough pain except Tylenol. Since OC works so much better for me, I in general have a pain relief I can live with. I am not pain free, but it is down to a level I can handle most of the time. I do have some dreadful days though, but as long as they are not too many, I can handle that. OxyContin is a type A drug here, meaning that it is in the group of the strongest narcotics, together with e.g. Ketogan, Morphine, Fentanyl (Duragesic) etc. It requires a special prescription which you can't e.g. have faxed to the pharmacy. There are different opinions on the use of narcotics for chronic pain. But it is my experience that it really can make a huge difference in the quality of life and function level. I had never had a chance to still be working and doing the things I do, if it weren't for the pain meds. I would e.g. have had huge problems driving a car and such every day things... So for me it has made a huge difference... I am very glad that I have had the opportunity to get these medications, thanks to the pain clinic. It just makes life so much better. It sort of feels like a paper that just sucks up the pain... The only thing I have experienced some of lately, is that it feels like the med stops working after around 10 hours, not 12. Anybody experienced that and discussed it with their doc? Aase Marit >Lana here - I take Ultram (Tramadol) for pain, and Vioxx. Most of the time, >I do pretty good with them. Sometimes I have breakthrough pain, and add >another dose of the Ultram (dr. said I could do this) or I may try just a >plain advil or something like that. It seems, though, when I have a >headache, none of these touch them. I HATE headaches! My doctor hasn't >decided if they're migraines or cluster headaches or what, I hope you get >some medication that helps you - do you have an understanding doctor, or at >least one who will listen, learn, and believe you? I think that may be the >most important thing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 >Hi Tanja, I am on OxyContin for pain. Also use Vioxx and Amitriptylene each night. I have been on OC for almost three years now, since it was approved here, and I am very happy with it. It is a depot type medication, so you only need to take it twice a day. Before that I was on a medication from the UK called DHC (dihydrocodeine), also a 12 hour working med. I had to use a lot of codeine for breakthrough pain though. Back then I was also on Tegretol for a while, but had side effects (nausea and projectile vomiting), so it was discontinued... Before DHC I used different other pain meds, all of the kind that worked 3-4 hours only. That does not work well at all when you have chronic pain, that is for sure. It is as if you are on a pain roller coaster all the time. When I started OC, I wanted to try not to use anything for breakthrough pain except Tylenol. Since OC works so much better for me, I in general have a pain relief I can live with. I am not pain free, but it is down to a level I can handle most of the time. I do have some dreadful days though, but as long as they are not too many, I can handle that. OxyContin is a type A drug here, meaning that it is in the group of the strongest narcotics, together with e.g. Ketogan, Morphine, Fentanyl (Duragesic) etc. It requires a special prescription which you can't e.g. have faxed to the pharmacy. There are different opinions on the use of narcotics for chronic pain. But it is my experience that it really can make a huge difference in the quality of life and function level. I had never had a chance to still be working and doing the things I do, if it weren't for the pain meds. I would e.g. have had huge problems driving a car and such every day things... So for me it has made a huge difference... I am very glad that I have had the opportunity to get these medications, thanks to the pain clinic. It just makes life so much better. It sort of feels like a paper that just sucks up the pain... The only thing I have experienced some of lately, is that it feels like the med stops working after around 10 hours, not 12. Anybody experienced that and discussed it with their doc? Aase Marit >Lana here - I take Ultram (Tramadol) for pain, and Vioxx. Most of the time, >I do pretty good with them. Sometimes I have breakthrough pain, and add >another dose of the Ultram (dr. said I could do this) or I may try just a >plain advil or something like that. It seems, though, when I have a >headache, none of these touch them. I HATE headaches! My doctor hasn't >decided if they're migraines or cluster headaches or what, I hope you get >some medication that helps you - do you have an understanding doctor, or at >least one who will listen, learn, and believe you? I think that may be the >most important thing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 >Hi Lana, If your doc thinks your headaches are either migraines or cluster headaches, why hasn't he let you try any of the medications used for such headaches? It is awful to just have to live through bad migraine attacks. And cluster headaches are even worse, as I understand. I am totally desperate if I have one of my really bad migraines and can't control it somehow. I can't imagine not having anything at all to help with them... Has your doc ever considered referring you to a neurologist who specializes in headaches? That might be a good idea... Aase Marit > I HATE headaches! My doctor hasn't >decided if they're migraines or cluster headaches or what, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 >Hi Lana, If your doc thinks your headaches are either migraines or cluster headaches, why hasn't he let you try any of the medications used for such headaches? It is awful to just have to live through bad migraine attacks. And cluster headaches are even worse, as I understand. I am totally desperate if I have one of my really bad migraines and can't control it somehow. I can't imagine not having anything at all to help with them... Has your doc ever considered referring you to a neurologist who specializes in headaches? That might be a good idea... Aase Marit > I HATE headaches! My doctor hasn't >decided if they're migraines or cluster headaches or what, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 > If your doc thinks your headaches are either migraines or cluster > headaches, why hasn't he let you try any of the medications used for such headaches? > > Has your doc ever considered referring you to a neurologist who > specializes in headaches? That might be a good idea... > Hi Aase, Well, to be fair, I haven't gone back about them. I wanted to go the next time I had one, but they seem to happen either in the middle of the night, or while I'm at work. I really do need to talk to him about them. I should be going back for my yearly dexa scan, so I plan on talking to him then. I did used to go to a neurologist for trigeminol neuralgia, but since I had the brain surgery for that, I haven't seen a neurologist. I will mention it to him. Thanks, kiddo! Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Hi Tanja, I will get to that list ASAP. I have a very full weekend. We are moving everyone in to different bedrooms this weekend, hoping to make Dylan safer. Painting, cleaning, you know. When do you see your Dr next? If you are going soon, I'll be sure to get it to you sooner. Cindy C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Hi Tanja, I will get to that list ASAP. I have a very full weekend. We are moving everyone in to different bedrooms this weekend, hoping to make Dylan safer. Painting, cleaning, you know. When do you see your Dr next? If you are going soon, I'll be sure to get it to you sooner. Cindy C. Quote Link to comment Share on other sites More sharing options...
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