Valeie/ Steve Hardy's show

[Guest guest]

I actually posted a message. I think it makes the point.

I cringe when I see people less severely affected than I am with Ehlers-Danlos

Syndrome (which I assume this contortionist fellow has) presented as if items of

amusement. I could do all these things when I was younger but now I am suffering

the consequences of constant pain, joints that won't go back in place and too

long a list of other problems. It makes it hard for people who are more

seriously affected to be taken seriously by the medical community and general

public as the condition is rare and sometimes the one image they have is

somthing like the fellow here. That is almost a bigger tragedy than the daily

effects of this condition. A laugh isn't a laugh when it is at the expense of

someone like me. Producers and hosts need to realize there is a very un-funny

side to this (EDS can actually kill people from arteries rupturing, organs

rupuring and so on) and just stop showing things like this. It is not at all

funny to live with.

Joyce