Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 Try to stay as positive as possible. I dreamed up so many different scenarios and reasons as to why my surgery would be different and why I'd suffer, but honestly, it's the best thing I have ever done for myself. I no longer have to worry about having a tumor in me, whether it's growing, whether it will will cause me pain today, etc, I am now living fibroid free and am so happy i did it. Even though I ended up with the " worse " surgery for my scenario (doc attempted laparoscopic but had to do a 5 inch cut anyway due to the placement) I feel great. I walked the same day of my surgery, 4 hours after waking up. I think that this is very important. The more you walk, the faster you'll heal. I'm amazed at how my body has been recovery wise. Today I am 3 months post myo (8.4.03) and am doing well. I went on rollercoasters 4 weeks post myo. There is definitely life after myo, and you will be so happy to have this behind you. I promise! :-) Good luck, we'll be thinking of you. > Hello everyone and thank you to those of you who responded to my post > in August. These last few months have been terrible and this group > is truly wonderful and has helped me tremendously. Thank you! > > My abdominal myomectomy is scheduled for this coming Monday, November > 10 at UCLA with Dr. DeCherney. I am terrified of surgery. > > What should I do to prepare? > What should I expect before/during/after the surgery? > Is there anything I can do to help diminish the scar either pre/post- > op? > > I am nervous, terrified, and have been having nightmares these last > few nights. Logically, I know I have to have the surgery. I am just > hoping someone can tell me anything to calm me down and help me > prepare, both physically and emotionally, for the surgery. > > I can't wait for a " fibroid-free " life again, although I honestly > can't remember what that was like! > > Thank you, > Charlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 Hi Charlene, I think you'll feel much calmer after pre-op appt. I'm having my abdominal myo on 11/26 so can only tell you that I was were you are worry or fear wise just last week and now I'm at the point of looking forward to how cool it will be too have this surgery over and done with. Also looking forward to some down time in the hospital and having people be extra nice to me:) I wasn't given any specific for before surgery instructions yet but have quit smoking (hard in time of stress!)Physically- I'm practicing just walking around the house and not bending (not easy)and doing regular stuff..like gardening, raking leaves. In general I'm avoiding foods that I tend to eat too much of or that give me gas. I like books and audio books when I need to relax, just regular novels work for me...takes my mind off all things stressful. I hope you get some good replies. I'm more worried about having a flabby tummy after myo than the scar which in my case is going all the way across. You will be fine:) Best wishes, Jan PS- I hired a person today to do my vacuuming, shopping, etc. and this womens daughter has had 2 myo's and is fine and was just a bit sore afteward...first live person I've met who even knew what a myomectomy was. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 First, relax, it isn't as bad as what your imagination can dream up. Close your eyes and guide yourself through surgery and recovery as being a positive thing. Hey, I think the technical term is " guided imagery " Whatever. It does work. I ran and finished 4 marathons several years ago and I did not consider myself a runner. I went to classes and we closed our eyes and the teacher told us to listen and envision everything he said about the course and he mentally guided us through the course. Then he told us to practice that in addition to physical practice. That mental stuff affects you physically. Be happy you will be fibroid free. I'm so glad not to have the pressure on my bladder! Hopefully you have done your homework and you are comfortable with your doctor. My abdo myo was Oct 21, tomorrow will be 2 weeks and I'm able to walk around, bend down, I have a big purple bruise and I'm still a little bloated/swollen, but hey, it has only been 2 weeks. I'm even able to put my tennis shoes on and tie them (this is progress from last week). You will bleed after the surgery, but it shouldn't be anything more than a normal type period. Everyone is different. My period was supposed to start the following week and I think it started right after surgery. After 5 days of a regular type period with no clotting, there was a day or two of spotting and then nothing! I never had surgery or had been under general anesthesia. Everyone at the hospital was very professional, I was calm, had a good attitude, even joked with the doctor if I could take the fibroid home in a jar. I never knew what hit me in the surgery room, they wheeled me in, someone said " We are going to give you a nice leg massage here " and they put those blood pressure type cuff things on my legs and that is all I remember! I think relaxing helps greatly with your recovery. It may be hard, but just think of the positives. I seriously had no pain, just cramping, like menstrual cramps, right after surgery (I also turned this into a positive " thank goodnes the fibroid is out and I have my uterus because I know that is what is cramping " ) That was quickly relieved with the Morphine drip. I was able to get up the next day and walk. While uncomfortable, I really felt no pain. Do a search on this site like " hospital " or " list " etc. as some people have made a great list of what to bring to hospital that will be helpful. Bring a portable CD player and headphones of your favorite music (and lots of batteries) to listen to while you are in the hospital to relax. Maybe you can find a CD of ocean waves or sea sounds or something like that to calm you. I, myself, had a hypnosis CD that had 2 tracks I used every day--one for relaxation and one for sleep. It really worked for me!! Make sure to walk a little every day and probably a few times every day, walk around the living room in circles for 10-15 minutes if you are afraid to leave the house. Keep the circulation going--very important. Avoid eating anything the night before that will will cause gas (brocolli, onions, beans, etc.) and avoid those types of foods the first week when you are done with surgery. Also avoid straws right after surgery and carbonated drinks as you will swallow air and that could add to the gas. Fortunately, I was able to burp up a lot after surgery. I think it is from the anesthesia. If you have a good anesthesiologist you shouldn't have a problem. Bathing - I had staples and a big gauze pad taped over my incision area so I could not take a shower until the staples were taken out in a week. They give you a non-rinse cleaning solution in the hospital. You can also use baby wipes to clean yourself off, but you cannot get that bandage wet. I was able to wash my hair by myself in the sink, so I got by until the staples were out. Scar - don't worry too much about it. My sister had a C-section 8 years ago and I looked for her scar and couldn't even see one--I was amazed! I think some people recommended rubbing Vitamin E or some kind of cream in that area. However, I can barely stand to touch that area as it is very sensitive after week 2 so I'm not rubbing anything there. Also, the doctor cut along what is a natural crease for me there so I think the scar will be very minimal. I wasn't planning to model bikinis anyway!! Be glad they do a bikini cut. My mom had 2 C-sections and back then it meant a cut straight down from her belly button to the hairline and her scar looked awful. Good luck on your surgery. Really, don't worry. I was a big baby when it came to all of this, but keeping a positive attitude got me through. > My abdominal myomectomy is scheduled for this coming Monday, November > 10 at UCLA with Dr. DeCherney. I am terrified of surgery. > > What should I do to prepare? > What should I expect before/during/after the surgery? > Is there anything I can do to help diminish the scar either pre/post- > op? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 First, relax, it isn't as bad as what your imagination can dream up. Close your eyes and guide yourself through surgery and recovery as being a positive thing. Hey, I think the technical term is " guided imagery " Whatever. It does work. I ran and finished 4 marathons several years ago and I did not consider myself a runner. I went to classes and we closed our eyes and the teacher told us to listen and envision everything he said about the course and he mentally guided us through the course. Then he told us to practice that in addition to physical practice. That mental stuff affects you physically. Be happy you will be fibroid free. I'm so glad not to have the pressure on my bladder! Hopefully you have done your homework and you are comfortable with your doctor. My abdo myo was Oct 21, tomorrow will be 2 weeks and I'm able to walk around, bend down, I have a big purple bruise and I'm still a little bloated/swollen, but hey, it has only been 2 weeks. I'm even able to put my tennis shoes on and tie them (this is progress from last week). You will bleed after the surgery, but it shouldn't be anything more than a normal type period. Everyone is different. My period was supposed to start the following week and I think it started right after surgery. After 5 days of a regular type period with no clotting, there was a day or two of spotting and then nothing! I never had surgery or had been under general anesthesia. Everyone at the hospital was very professional, I was calm, had a good attitude, even joked with the doctor if I could take the fibroid home in a jar. I never knew what hit me in the surgery room, they wheeled me in, someone said " We are going to give you a nice leg massage here " and they put those blood pressure type cuff things on my legs and that is all I remember! I think relaxing helps greatly with your recovery. It may be hard, but just think of the positives. I seriously had no pain, just cramping, like menstrual cramps, right after surgery (I also turned this into a positive " thank goodnes the fibroid is out and I have my uterus because I know that is what is cramping " ) That was quickly relieved with the Morphine drip. I was able to get up the next day and walk. While uncomfortable, I really felt no pain. Do a search on this site like " hospital " or " list " etc. as some people have made a great list of what to bring to hospital that will be helpful. Bring a portable CD player and headphones of your favorite music (and lots of batteries) to listen to while you are in the hospital to relax. Maybe you can find a CD of ocean waves or sea sounds or something like that to calm you. I, myself, had a hypnosis CD that had 2 tracks I used every day--one for relaxation and one for sleep. It really worked for me!! Make sure to walk a little every day and probably a few times every day, walk around the living room in circles for 10-15 minutes if you are afraid to leave the house. Keep the circulation going--very important. Avoid eating anything the night before that will will cause gas (brocolli, onions, beans, etc.) and avoid those types of foods the first week when you are done with surgery. Also avoid straws right after surgery and carbonated drinks as you will swallow air and that could add to the gas. Fortunately, I was able to burp up a lot after surgery. I think it is from the anesthesia. If you have a good anesthesiologist you shouldn't have a problem. Bathing - I had staples and a big gauze pad taped over my incision area so I could not take a shower until the staples were taken out in a week. They give you a non-rinse cleaning solution in the hospital. You can also use baby wipes to clean yourself off, but you cannot get that bandage wet. I was able to wash my hair by myself in the sink, so I got by until the staples were out. Scar - don't worry too much about it. My sister had a C-section 8 years ago and I looked for her scar and couldn't even see one--I was amazed! I think some people recommended rubbing Vitamin E or some kind of cream in that area. However, I can barely stand to touch that area as it is very sensitive after week 2 so I'm not rubbing anything there. Also, the doctor cut along what is a natural crease for me there so I think the scar will be very minimal. I wasn't planning to model bikinis anyway!! Be glad they do a bikini cut. My mom had 2 C-sections and back then it meant a cut straight down from her belly button to the hairline and her scar looked awful. Good luck on your surgery. Really, don't worry. I was a big baby when it came to all of this, but keeping a positive attitude got me through. > My abdominal myomectomy is scheduled for this coming Monday, November > 10 at UCLA with Dr. DeCherney. I am terrified of surgery. > > What should I do to prepare? > What should I expect before/during/after the surgery? > Is there anything I can do to help diminish the scar either pre/post- > op? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 First, relax, it isn't as bad as what your imagination can dream up. Close your eyes and guide yourself through surgery and recovery as being a positive thing. Hey, I think the technical term is " guided imagery " Whatever. It does work. I ran and finished 4 marathons several years ago and I did not consider myself a runner. I went to classes and we closed our eyes and the teacher told us to listen and envision everything he said about the course and he mentally guided us through the course. Then he told us to practice that in addition to physical practice. That mental stuff affects you physically. Be happy you will be fibroid free. I'm so glad not to have the pressure on my bladder! Hopefully you have done your homework and you are comfortable with your doctor. My abdo myo was Oct 21, tomorrow will be 2 weeks and I'm able to walk around, bend down, I have a big purple bruise and I'm still a little bloated/swollen, but hey, it has only been 2 weeks. I'm even able to put my tennis shoes on and tie them (this is progress from last week). You will bleed after the surgery, but it shouldn't be anything more than a normal type period. Everyone is different. My period was supposed to start the following week and I think it started right after surgery. After 5 days of a regular type period with no clotting, there was a day or two of spotting and then nothing! I never had surgery or had been under general anesthesia. Everyone at the hospital was very professional, I was calm, had a good attitude, even joked with the doctor if I could take the fibroid home in a jar. I never knew what hit me in the surgery room, they wheeled me in, someone said " We are going to give you a nice leg massage here " and they put those blood pressure type cuff things on my legs and that is all I remember! I think relaxing helps greatly with your recovery. It may be hard, but just think of the positives. I seriously had no pain, just cramping, like menstrual cramps, right after surgery (I also turned this into a positive " thank goodnes the fibroid is out and I have my uterus because I know that is what is cramping " ) That was quickly relieved with the Morphine drip. I was able to get up the next day and walk. While uncomfortable, I really felt no pain. Do a search on this site like " hospital " or " list " etc. as some people have made a great list of what to bring to hospital that will be helpful. Bring a portable CD player and headphones of your favorite music (and lots of batteries) to listen to while you are in the hospital to relax. Maybe you can find a CD of ocean waves or sea sounds or something like that to calm you. I, myself, had a hypnosis CD that had 2 tracks I used every day--one for relaxation and one for sleep. It really worked for me!! Make sure to walk a little every day and probably a few times every day, walk around the living room in circles for 10-15 minutes if you are afraid to leave the house. Keep the circulation going--very important. Avoid eating anything the night before that will will cause gas (brocolli, onions, beans, etc.) and avoid those types of foods the first week when you are done with surgery. Also avoid straws right after surgery and carbonated drinks as you will swallow air and that could add to the gas. Fortunately, I was able to burp up a lot after surgery. I think it is from the anesthesia. If you have a good anesthesiologist you shouldn't have a problem. Bathing - I had staples and a big gauze pad taped over my incision area so I could not take a shower until the staples were taken out in a week. They give you a non-rinse cleaning solution in the hospital. You can also use baby wipes to clean yourself off, but you cannot get that bandage wet. I was able to wash my hair by myself in the sink, so I got by until the staples were out. Scar - don't worry too much about it. My sister had a C-section 8 years ago and I looked for her scar and couldn't even see one--I was amazed! I think some people recommended rubbing Vitamin E or some kind of cream in that area. However, I can barely stand to touch that area as it is very sensitive after week 2 so I'm not rubbing anything there. Also, the doctor cut along what is a natural crease for me there so I think the scar will be very minimal. I wasn't planning to model bikinis anyway!! Be glad they do a bikini cut. My mom had 2 C-sections and back then it meant a cut straight down from her belly button to the hairline and her scar looked awful. Good luck on your surgery. Really, don't worry. I was a big baby when it came to all of this, but keeping a positive attitude got me through. > My abdominal myomectomy is scheduled for this coming Monday, November > 10 at UCLA with Dr. DeCherney. I am terrified of surgery. > > What should I do to prepare? > What should I expect before/during/after the surgery? > Is there anything I can do to help diminish the scar either pre/post- > op? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 cs! Well...this is cause for great celebration! The main thing is...your imagination is much worse than the surgery will ever be...in other words...you have already been through the worst of it. I think this is true. When you wake up you will feel empowered and relieved and each day will be better and then your quality of life will be so good! In an ideal world just before of the night before I would get a massage or some guided imagery, perhaps hypnosis even, I would be with a friend as I drifted off with all those lovely drugs they give you to feel peaceful.... Post surgery, vitamin C greatly inhibits scarring. Check with your doc to see if that is ok for you....the best of luck! gg cs_barone wrote: >Hello everyone and thank you to those of you who responded to my post >in August. These last few months have been terrible and this group >is truly wonderful and has helped me tremendously. Thank you! > >My abdominal myomectomy is scheduled for this coming Monday, November >10 at UCLA with Dr. DeCherney. I am terrified of surgery. > >What should I do to prepare? >What should I expect before/during/after the surgery? >Is there anything I can do to help diminish the scar either pre/post- >op? > >I am nervous, terrified, and have been having nightmares these last >few nights. Logically, I know I have to have the surgery. I am just >hoping someone can tell me anything to calm me down and help me >prepare, both physically and emotionally, for the surgery. > >I can't wait for a " fibroid-free " life again, although I honestly >can't remember what that was like! > >Thank you, >Charlene > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2003 Report Share Posted November 5, 2003 Hi Charlene, I had my myo on Spet 23 and i doing very well..2 fibroids wre remov ed from me.. To prepare just get plenty rest before , you will need all your energy after..try not to get too stressed out..think how you will feel a couple months after surgery..this is all for the best.. Before surgery you will be anxious..this is normal , cant really do anything to supress that..during you will be knocked out so no worries there..after surgery use your pain pump when needed..i had a lot of nausea with my morphine pump so i tried not to use it..or i had the nurse piggy back Gravol via IV to decrease my nausea..that helped alot.. The best thing to use to diminish the scar is Vit. E capsules from any Rx store..open the capsules and rub them over the scar...this helped me considerably..Im a woman of colour and you can hardly see my scar thanks to the Vit E capsules,, i also use Cocoa butter, this helps but takes longer to see results... Just think how close to a fibroid free life you will be near too.. My thouhts will be with you and prayer on your surgery day Take care and best of luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2003 Report Share Posted November 5, 2003 Dear Charlene, I understand your fear but the time leading up to the surgery is worse than the surgery. Basically all I remember is them saying " you will be out in about 20 seconds " then " we are done!! " If you start feeling pain when you wake up, they are pretty liberal with the morphine. Usually I am not a proponent of taking narcotics. But in this case, it helps you get rid of any pain so you can walk. And my surgeon was insistent that I walk ASAP--meaning about 1 hr after surgery. So I was up and about pretty quickly. If not for the morphine, I am sure it would have been harder. His theory is (also my massage therapist's) that walking around keeps the scars from forming right off the bat. Imagine a cut, it will ooze and dry up. When you have cuts on your uterus they oooze a bit and will attach to the other organs (tubes, ovaries) that float above. So do the best you can ---yes, it is hard. To walk as much as possible. I stayed the night in the hospital but got up every two or three hours to walk. Also, if you can't walk right away, don't worry too much you will have a chance to as the pain gets better really quickly (it did for me). I am sure you have heard to bring a change of cloths to the hospital. I brought some of those nice face wipes from shisedo (you can get other brands from the local drug store) so I could wipe my face without getting up to the bathroom. I also brought bottled water since what they give you is from the tap (my husband carried all of this). Get underwear that go way above your belly button --- sometimes the elastic can be bothersome. Before surgery - try to strengthen your tummy and leg muscles as much as possible. It makes getting around easier .. I bought a yoga tape. I did not do this the first time and it made getting up and down harder. I also used a relaxation tape and took a walk in my favorite park the day beofore. If you are very, very anxious, ask your doc for a scrip for anxiety meds. When I told my doc I was a bit nervous (for my first surgery) he said he did not believe in making anyone suffer so he got me some anti-anxiety medication. I took it one night and it really helped. This time though, I got the tape and felt a little calmer just because I had had surgery with this doc before in the same hospital. It is much easier when you are walking into the known and not the unkown. I also made sure I had lots of bollioun cubes aroudn. If you have time make homemade chix stock -- or ask a friend who knows how to make some for you. This is a very healing soup--b/c of the bone marrow, etc. I wish you the best. I really changed after my surgery. I felt so happy to have it all past me. It really feels like a small life triumph. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2003 Report Share Posted November 5, 2003 Charlene, I forgot to tell you. I had 14 fibroids removed (range from 1.2cm to 4.5) and my appendix removed. I think the walking helped because i was totally pain free and walking at a normal pace after five or six days. Good luck!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2003 Report Share Posted November 6, 2003 Don't worry. It's likely not to be as bad as you're expecting. If you're in pain or feel nauseous ask for something for that. Ask about the morphine pump if you have one, and avoiding nausea. Sitting/lying still helps pain to go away, resting the abdominal muscles in a comfortable position. I had (burning and pulling) sensations in the scar area with early walks, rather than pain you'd need a pain killer for. Drink plenty of water before and after surgery. After surgery, wriggle toes, move your legs and ankles to help your circulation, which is important. This why people say walk about when you're up to that Move slowly -> especially getting in and out of bed. Avoid pulling on your 'stomach' muscles. Getting back into bed won't hurt too much if you sit part way down the bed,carefully lift your legs on to the bed and lower yourself down gently via your arms. Getting out of bed was REALLY painful the first time. It's a good idea to have a painkiller or press the morphine pump before trying that the first time. Nurses reccommend a rolling motion. I personally preferred hitching myself into a seated position in bed *slowly* and then swivelling so my legs dangled over the edge to stand up. Have a magazine or low concentration book with you in case you do feel like reading and are bored. I didn't feel fuzzy and did read a bit. Don't eat or have coffees etc. until the doctor says it's ok. The person doing the rounds with the drinks trolley or food menu doesn't know individual cases. Take in some tissues too. Earplugs or headphones are handy if you're next to someone in pain or who snores loudly, etc. Nightdresses may be better for the catheter. Your whole stomach area up to your belly button will feel bloated and tender. It's normal for it to feel externally numb when you touch it. There may also be coloured dye on it that washes off after the operation. I found the most comfortable knickers were up to the belly button!! In the first couple of weeks you might want to consider a size bigger than usual. Take in an extra top in case the hospital is chilly. I was glad I had one or two. _____ (For much more, see Smartgroups UK fibroids group Cat's myo diary) GOOD LUCK!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2003 Report Share Posted November 6, 2003 I also found it useful to use my elbows and heels to put my weight on while getting in and out of bed to take the pressure off my abdomen. The rolling method didn't work as well for me, either. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2003 Report Share Posted November 6, 2003 I also found it useful to use my elbows and heels to put my weight on while getting in and out of bed to take the pressure off my abdomen. The rolling method didn't work as well for me, either. Quote Link to comment Share on other sites More sharing options...
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