new member

Posted September 25, 2001 · September 25, 2001

Wow, , I lived on that side of town. Altadena Valley. We went to church in Hoover. What a small world.

Cindy Masters

Posted August 25, 2003 · August 25, 2003

Hi Marie, *wavs*

Welcome and glad you joined the group! There are so many wonderful

people here full of ideas, great advice, and most of all, support. You

are not in it alone! I'm rather new myself, and have already found this

group to be extremely caring, upbeat, informative and fun!

I do hope you talk to a professional about your binging. I won't offer

advice about that because I really know nothing about it. I'm glad you

know it's a definite problem and hope you find the cause of it and learn

to control it.

By the way, I'm 36, 5'7 1/2 " and currently 227 lbs., with a goal weight

of around 147. Please jump in and start posting and see how great this

group is!

Autumn

On Sat, 23 Aug 2003 18:15:41 -0000 " feb_showers16 "

writes:

Hello, my name is Marie. I'm new.

I've struggled with my weight all my life and am sick of dieting. I

want to learn how to live healthfully and exercize for my health and

not my looks... because I am getting nowhere.

I am a compulsive binge eater. It's always been a real problem with

me. I will eat and eat to the point of vomiting and still eat more.

It's ridiculous, and dangerous considering I'm a type 1 diabetic. I

keep my sugars real good with insulin, but the more I eat, the more

insulin I need.

I could really use some support, and I think I could be good support

for others as well.

It's nice to meet you all.

Marie

Posted September 21, 2003 · September 21, 2003

Just wanted to say hello and let everyone know that I am a new member

as well. I look forward to getting to know some new people and

hearing from you! Good luck!

> Just wanted to say hello, and that I am new here. I am struggling

> to lose weight and have a thyroid disorder. If you want to chat

> sometime, you can reach me online via email, and then maybe we can

> chat on messenger too. I look forward to chatting w/ you all.

When

> is the best time to catch people in the chat room area?

>

> Thanks, Dison

Posted January 13, 2004 · January 13, 2004

I first discovered I had 2 uterine fibroids when I was pregnant with

my first child in 2001 (I was 37 at the time). My doctor said that

after I delivered the baby the fibroids would most likely shrink, but

I continued to look very pregnant after my daughter was born. I

conceived again when my first daughter was only 9 months old, and

with my second pregnancy they said I had 5 fibroids. I ended up

needing an emergency C section and they counted 13 fibroids. The

doctor performing the C section said that I should have something

done about them. I have Kaiser in Oakland, CA and I went to a UAE

class they have which was very helpful. They said I should wait

until I was finished breastfeeding before doing anything about my

fibroids, and that UAE generally only reduces the uterus size by

50%. I have some relatively minor pressure symptoms (occasional

constipation, somewhat frequent urination, a little lower back pain),

and moderately heavy bleeding during the beginning of my period.

I've weaned my second daughter now, and I'm ready to do something

about my fibroids. I was sold on UAE, but because I still look so

pregnant, I really just want them all to be completely gone. So now

I'm leaning toward myomectomy, although I'd hate to go through

surgery just to have them grow right back again. I have an

appointment at the end of the month, and I'll be getting an

ultrasound soon. I guess the type, size and location will be factors

in deciding which procedure is best. I was considering hysterectomy,

since we don't want to have any more children, but I've decided

against it after looking into it. I'm just worried that the doctors

won't always recommend the best course of action after researching

what's going on in the medical field with regard to fibroids, so I

want to have as much knowledge as possible before I go for the

appointment. Any suggestions?

Carolyn

Posted January 14, 2004 · January 14, 2004

I have NO specialists and my GP knows next to nothing about it. i

have had NO luck with any doctors to do with EDS and have even seen 2

useless geneticists. The periodontal stuff is said to go with (it is

either type 7 or type 8)now known as Periodontal EDS and there is a

possibility that my family has Hypermobility type (old type III) with

periodontal crossovers (it seems VERY common here to have symptoms of

more than one type. Barbara has a great explaination of how they

decide which type you are.

Yeah my shoulder is pretty bad this time and I am waiting to see

about getting a MRI or ultrasound etc doen to see what soft tissue

damage I have done.

My shoulder OS is away overseas until Monday and even then I doubt if

I will be ablet o get in for at least a month but more likely a few

months.

Good luck in finding an EDS knowledgable doc (Jill has a great list

of EDS doc's around the place) and she can probably give you the name

or names of some doc's in your area.

Sharon

Australia

> Thanks Sharon,

> Sorry to hear about your most recent shoulder issue, Sounds really

bad. Last year I dislocated left shoulder twice in same week. That

was no fun especially since when I can't get it back in lately, the

muscle spasms start and it is very painful...didn't used to be as

painful, just scary. You mentioned periodontal stuff in your family.

I thought the periodontal stuff went with one of the other EDS

types, not type III. I am beginning to think there are not such clear

distinctions between types and that there can be overlaps in types.

The literature I've read says otherwise, but I don't know. Wonder if

others feel the same way?

>

> I live in Naperville, Illinois, USA. I'm about 25 miles west of

Chicago. Out in the suburbs.

> It is hard to believe, being this close to Chicago, which as you

probably know is a very large metropolitan city, but so far I have

been unable to locate a physician who is familiar with EDS and

willing to supervise treatment. I did have one who was familiar with

it in children but he has retired and was unable to refer me to

anyone else. Do you find it any easier to find specialists in

Australia?

> Robin

Posted January 21, 2004 · January 21, 2004

Hi Jen,

Yeah, thank goodness, there is no evidence of fibroid (when my Dr did

the Ablation 14 months back it was confirmed that indeed no fibroids,

but there were polyps which were removed thorugh the procedure.

You are further correct about the sucess rates: Nationally it is 85%

with my Dr claiming 91% locally, it simply seems my body has either

regrown the entire or at least a portion of the endometrium, or they

perhaps did not remove enough of it (deep enough through the laser

removal). With the failure rate of 15% nationally, statistics show

that these women have at least 1-2 more ablations before facing

hysterectomy.

My children are grown and my helath is otherwise excellant so I guess

that leaves me in the position to ponder whether it is worth having

this procedure done every 14 months (taking time off work the

insurance issues etc... and STILL face possibly having the uterus

removed, or simply " fast forward " and be done with things.

Thanks for listenning and responding,

Suzanne

> Are you sure you don't have a fibroid? Endometrial ablation is

> not effective if there are fibroids. Otherwise, it's supposed to

> be very effective

Posted December 3, 2004 · December 3, 2004

> Hello everyone.

> I have just joined this group and have read several back posts

from the

> board and would like to introduce myself and ask a few questions

(though I

> know you must feel as though you are repeating yourselves

constantly to new

> members).

> I have a long family history of low thyroid in my family mom,

mom's mom,

> sister). I am almost certain I have has symptoms on and off of

this for

> several years....I had a doc take some blood (on a better day) and

all I got

> back from them was the secretary called and said the tests were in

the

> normal range....... I am not convinced...esp after reading some

posts on

> this and another loop......The thread on unexplained pain just

clinched it

> for me......oh, I am not crazy...or just lazy!

> I just recently had a rough miscarriage and I will wager that it

had a lot

> to do with dipping thyroid levels....bouts with very cold spells,

etc.(which

> I was having at the onset of miscarriage).

> Anyway, I really, really want to do what I can naturally for

this...however

> I may be stuck with meds no matter what I do and I would like to

know how I

> can find a doctor that knows something about this condition (in

the way you

> are all educated).....

Hi I am sort of a newbie myself. I love this group. I was hypo and

my doctor said my tests were NORMAL. Even though I mentioned all the

symptoms I was having. Would not give me any meds. So, I just had to

start self-medicating. I feel so good.!!!

> I simply can not go on like this as I know you all feel the

same....I have 6

> children which I homeschool and there is little room for mommy is

too tired,

> etc. and we are always getting behind on everything as I wake up

tired....go

> to bed tired, have achy flu like symptoms....etc.etc......all

known to you

> all....

> If anyone would be willing to do an overview of how you treat this

problem

> naturally, I would be surely thankful for your time and efforts!

> Thank you so kindly,

> Kim in Tn

>

Posted December 14, 2004 · December 14, 2004

Hi Kathy,

I¹m more of a lurker, than poster, but I do have a few ideas that may help

you.

I too, have a job where I don¹t get home until 6 or later at night, and I

need something easy to make for dinners. I should mention that I also have

2 teenagers who often don¹t want to wait for mom, and they will cook

something easy for dinner.

On the weekends, I usually make some type of casserole that I divide up into

1 cup servings and put in the freezer. I also make myself porridge oats,

and put that in the freezer for morning breakfasts on the go. (I have a

microwave at work) I keep homemade ³egg & cheese² rolls on hand for a quick

bite as I¹m dashing out the door. I use Egg Beaters, and a slice of ff

cheese on a small deli roll, assemble them, and put them in freezer baggies.

Keeping boneless, skinless chicken breasts on hand is easy- just toss Œem in

a pan with some garlic, turn the oven on to 350, and let them cook.

But my total saving grace is my slow cooker! Take those same chicken

breasts, put Œem in the cooker with a can of Diet Cola, your choice of

brands, about a 1/4 cup of ketchup, some onion or garlic, and let it cook.

When you come home at night, you will have a great BBQ chicken waiting for

you! On the weekends, I chop and prepare fresh veggies for the week¹s

dinners, so it saves me time in the prep work. I¹d really like to try the

BIG cooking on the weekends, so I don¹t have to cook during the week, but

I¹m just not there yet. :-)

Hope that helps a little bit,

Holly

> scarlettquilts wrote:

> Hi, I'm Kathy, I just joined this group because I really really

> really need to change my life! And, I need help.

>

> My main problem: quick healthy meals I can make within 1/2 hour, or

> freeze ahead meals I can put together on the weekend. I work M-F, 8-

> 5--but usually end up having to stay late if a patient isn't done (I

> am a chemo infusion nurse). Last Wed. I didn't get out until 8pm!

> I used to get the Menu-Mailer but don't have the time to put those

> meals together at night.

>

> I haven't weighed myself today, but failed the jeans test--I no

> longer fit in my 16's. That was depressing enough.

>

> Please give me advice and assist. Tomorrow am is the first day of

> the rest of my life -- I am back on the program.

>

> Kathy G.

Posted February 7, 2006 · February 7, 2006

Hi ,

Thank you so much for your reply!!! I didn't think of using tape to hold

the actual hearing aids to his head as opposed to the mold in the

ear...wonderful! Where might I purchase " wig tape " ...a wig shop?

Thanks again for your experienced advice!

Peace, Love & Harmony to you

~Carolyn

> Carolyn,

> I've been browsing through messages and recently found your

> posting. & nbsp; My son is now 3 years-old and has been wearing his aids

> since 3 months. & nbsp; I remember those early days of hearing aids. & nbsp;

> The first day he wore aids also corresponds with the first time he

> really laughed outloud. & nbsp; It was almost immediately after the

> audiologist put the aids in. & nbsp; What a joyful day!

>

> Anyways, we struggled with taking his hearing aids out

> constantly at first, and then again around 8 months old. & nbsp; The worst

> was when he put them in his mouth or would throw them in his

> food. & nbsp; I remember being so frustrated I ended up using about 50

> pieces of scotch tape to adhere the aids to his head. & nbsp; It was an

> interesting fashion statement but that too did not last. & nbsp; I don't

> remember doing anything significant to make his aids stay on, but he

> eventually got used to them and relied on them (except again for about

> a month-long period of protest at 8 months old). & nbsp; I do use little

> strips of wig tape that I cut to fit his hearing aids. & nbsp; This helps

> to hold them to his head so they aren't flopping around when he's being

> active. & nbsp; I also found it reduces feedback.

>

> E-mail me if you have any questions about this.

>

> Take care,

> Walden

> 's mom

> & gt;

> & gt; Hello All, & gt; & gt;I'm new to the group as of today. I recently

> joined the LVAS (enlarged vestibular aqueduct syndrome) list serve. A

> mother on the group recommended I take a look at the Listen Up

> website. I was so excited to see that it was a site for parents only!

> & gt; & gt; & gt; & gt;I am a first time mom to the world's most beautiful

> happy precocious 4 month old baby boy (sorry all of you other moms he's

> taken the title…in my eyes of course) *smile* Wow, who knew that

> your heart could be so overwhelmed with love, joy, and protection until

> you're a parent! & gt; & gt; & gt; & gt;So along with freaking out about being

> a first time mom, Ozzie (my son) was diagnosed with LVAS when he was 3

> months old. The result is moderate to severe hearing loss (sorta

> flat lined) in both ears. He began wearing his first pair of hearing

> aids on 12/21/05. Technology is amazing. The hearing molds were so

> tiny. He's growing so quickly we're already on our 2nd pair of molds

> with the third set of impressions made yesterday. Ozzie is a big

> boy...measuring and weighing in at around 6 months as opposed to his 4

> months. Our audiologist says this is the first time that she has made 3

> impressions in 30 days. & gt; & gt; & gt; & gt;This is an entirely new world

> for my husband and I, as we are not hearing impaired. As far as we know

> there aren't any relatives with hearing difficulties either. Of course

> I had to quiz my husband since he has & quot;selective hearing & quot;

> *smile.* I'm going to saunter my way through the archives for

> tidbits of applicable knowledge. I look forward to everyone's

> experiences and & quot;been there done that…now do this & quot; stories. I

> welcome any and all advice, suggestions, and directions especially from

> parents with kids in hearing aids as infants. You won't offend me!

> & gt; & gt; & gt; & gt;I am so happy to have been guided your way!

> & gt; & gt;Peace, Love & amp; Harmony & gt; & gt;~Carolyn & gt; & gt; & gt; & gt; & gt;

> & gt;

Posted February 7, 2006 · February 7, 2006

I bought toupee tape at a Sally's Beauty Supply store. The little packet was

about $5, and had enough tape (when cut into little lengths to fit tiny ears)

for a lifetime!

Edith

Re: Re: New Member