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Hello,

Just curious about the older kiddos still in the bar?? Trenton will be four

next month and possibly ready to come out of the bar, but I'm sure not

ready. Unfortunately he complains a lot more than usual that his feet hurt!!

He will complain and cry in the middle of the night sometimes, more here

lately, to take off his shoes because it hurts, etc.. Any older babies

experiencing this?? I do notice sometimes his big toes are a little red in

the morning and he also complains about walking in the morning because his

feet hurt??

I'm sending another video and some pictures to Dr. P soon, but just wanted

to see if any other older babies experience this. Dr. P tells me that some

kids just tolerate it longer than others. Trenton has usually always been

great about his bar, until lately?? For those of you who stopped the bar at

four, how where your kiddos around the end??

Any feedback from the older babies would be appreciated.

Thanks,

Charity

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Charity,

First of all, I'm so happy to hear that you are doing better.

Recovering must've been such an ordeal. It makes it even more

remarkable that you tackled such a huge project as the quilt, in the

midst of such a stressful time for you. I hope you continue to feel

better each day.

I would love to come to the symposium. I've never been to one.. and

that time period would be a possibility for us.

Second, in answer to your question, Claire turned 4 a couple of weeks

ago, and is still in the brace at night. We have occasionally gone

through resistance from her, in getting it on at bedtime, but not

lately. That seems to come and go. I often wait to put it on after

she's fallen asleep. She has, in the past, complained of her foot

hurting, and at the time I wondered if it was the brace, but have

since determined that it wasn't. (I tend to blame the brace first for

everything. =)

She is one, I guess, who tolerates it well.. and Dr. P and I decided

at her last checkup that since she does, and I don't mind using it,

that we will continue for a bit more, just to be on the safe side.

Her foot looks beautiful.

I'll write more later.. I've gotta take her to ballet..

Talk to you soon.

and Claire

6/29/00

> Hello,

>

> Just curious about the older kiddos still in the bar?? Trenton will

be four

> next month and possibly ready to come out of the bar, but I'm sure

not

> ready. Unfortunately he complains a lot more than usual that his

feet hurt!!

> He will complain and cry in the middle of the night sometimes, more

here

> lately, to take off his shoes because it hurts, etc.. Any older

babies

> experiencing this?? I do notice sometimes his big toes are a little

red in

> the morning and he also complains about walking in the morning

because his

> feet hurt??

>

> I'm sending another video and some pictures to Dr. P soon, but just

wanted

> to see if any other older babies experience this. Dr. P tells me

that some

> kids just tolerate it longer than others. Trenton has usually

always been

> great about his bar, until lately?? For those of you who stopped

the bar at

> four, how where your kiddos around the end??

>

> Any feedback from the older babies would be appreciated.

>

> Thanks,

> Charity

>

>

>

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Guest guest

Hi Charity,

had his FAB/DBB on until he was 4. He seemed to understand

wearing it a bit more the closer he got to 4 years. He didn't say

that his feet hurt. Thanks for your work on the quilt and Precious

Little Feet.

and (3-17-99)

> Hello,

>

> Just curious about the older kiddos still in the bar?? Trenton

will be four

> next month and possibly ready to come out of the bar, but I'm sure

not

> ready. Unfortunately he complains a lot more than usual that his

feet hurt!!

> He will complain and cry in the middle of the night sometimes,

more here

> lately, to take off his shoes because it hurts, etc.. Any older

babies

> experiencing this?? I do notice sometimes his big toes are a

little red in

> the morning and he also complains about walking in the morning

because his

> feet hurt??

>

> I'm sending another video and some pictures to Dr. P soon, but

just wanted

> to see if any other older babies experience this. Dr. P tells me

that some

> kids just tolerate it longer than others. Trenton has usually

always been

> great about his bar, until lately?? For those of you who stopped

the bar at

> four, how where your kiddos around the end??

>

> Any feedback from the older babies would be appreciated.

>

> Thanks,

> Charity

>

>

>

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Guest guest

Hi Charity,

I'm glad you're feeling better. I certainly don't know how you got

to manage surgery recovery, children, quilt stuff coordination,etc,

etc but I'm glad to see you back in action!

I'm so happy you brought this topic up because I do have the same

question.

To make a long story short for those who don't know me. My son was

born on Oct. 2000 with unilateral clubfoot (right), started

treatment with Dr. Ponseti when he was about 6 months old and has

been wearing the brace since then.

We moved to Australia a year ago and last time we saw Dr P was April

2003 (at that time my son was 2.5 years old). In that opportunity Dr

P. advised us to keep him wearing the brace at night for one more

year. On April 2004 we decided to follow Dr. P advise and let him

sleep without wearing the brace for about 3 or 4 weeks. We did this

until I saw a posting of you about chances of relapse in older kids.

Therefore (and also because my son was a late starter with the

treatment) we decided to have him back oon the brace until at least

he turns 4 (Oct 2004).

My son has ALWAYS been VERY GOOD about wearing the brace, he never

complained, was always very willing to cooperate; however and to our

surprise, when we put him back in the brace after a few weeks break

he started complaining about it. He would wake up in the middle of

the night saying that his big toe hurts and that he wants the brace

to be taken off. He does not make a big deal out of it, but he never

ever did that, so I don't know why he is doing it now.

We also noticed that he would not complain when wearing the brace

every night in a row, but if for any circunstaces he does not wear

it for one night (we used to be very diligent about it but have kind

of relaxed a little bit recently and might let him have a night off)

the next night he will complain again about his big toe hurting.

We have been using the red ionized adjustable bar, the small one,

but were thinking about getting the bigger one wondering if his

complain has something to do with it.

I'm sorry I don't have very much to add, just my experience which

happens to be very similar to yours!

Thanks for coordinating the quilt activities, I sure would love to

attend to that symposium in November; however we now live very far

away.

Love,

Andreina & Simon Andres

(uni rigt cf) 10-04-2000

> Hello,

>

> Just curious about the older kiddos still in the bar?? Trenton

will be four

> next month and possibly ready to come out of the bar, but I'm sure

not

> ready. Unfortunately he complains a lot more than usual that his

feet hurt!!

> He will complain and cry in the middle of the night sometimes,

more here

> lately, to take off his shoes because it hurts, etc.. Any older

babies

> experiencing this?? I do notice sometimes his big toes are a

little red in

> the morning and he also complains about walking in the morning

because his

> feet hurt??

>

> I'm sending another video and some pictures to Dr. P soon, but

just wanted

> to see if any other older babies experience this. Dr. P tells me

that some

> kids just tolerate it longer than others. Trenton has usually

always been

> great about his bar, until lately?? For those of you who stopped

the bar at

> four, how where your kiddos around the end??

>

> Any feedback from the older babies would be appreciated.

>

> Thanks,

> Charity

>

>

>

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Guest guest

Hi Charity,

I'm glad you're feeling better. I certainly don't know how you got

to manage surgery recovery, children, quilt stuff coordination,etc,

etc but I'm glad to see you back in action!

I'm so happy you brought this topic up because I do have the same

question.

To make a long story short for those who don't know me. My son was

born on Oct. 2000 with unilateral clubfoot (right), started

treatment with Dr. Ponseti when he was about 6 months old and has

been wearing the brace since then.

We moved to Australia a year ago and last time we saw Dr P was April

2003 (at that time my son was 2.5 years old). In that opportunity Dr

P. advised us to keep him wearing the brace at night for one more

year. On April 2004 we decided to follow Dr. P advise and let him

sleep without wearing the brace for about 3 or 4 weeks. We did this

until I saw a posting of you about chances of relapse in older kids.

Therefore (and also because my son was a late starter with the

treatment) we decided to have him back oon the brace until at least

he turns 4 (Oct 2004).

My son has ALWAYS been VERY GOOD about wearing the brace, he never

complained, was always very willing to cooperate; however and to our

surprise, when we put him back in the brace after a few weeks break

he started complaining about it. He would wake up in the middle of

the night saying that his big toe hurts and that he wants the brace

to be taken off. He does not make a big deal out of it, but he never

ever did that, so I don't know why he is doing it now.

We also noticed that he would not complain when wearing the brace

every night in a row, but if for any circunstaces he does not wear

it for one night (we used to be very diligent about it but have kind

of relaxed a little bit recently and might let him have a night off)

the next night he will complain again about his big toe hurting.

We have been using the red ionized adjustable bar, the small one,

but were thinking about getting the bigger one wondering if his

complain has something to do with it.

I'm sorry I don't have very much to add, just my experience which

happens to be very similar to yours!

Thanks for coordinating the quilt activities, I sure would love to

attend to that symposium in November; however we now live very far

away.

Love,

Andreina & Simon Andres

(uni rigt cf) 10-04-2000

> Hello,

>

> Just curious about the older kiddos still in the bar?? Trenton

will be four

> next month and possibly ready to come out of the bar, but I'm sure

not

> ready. Unfortunately he complains a lot more than usual that his

feet hurt!!

> He will complain and cry in the middle of the night sometimes,

more here

> lately, to take off his shoes because it hurts, etc.. Any older

babies

> experiencing this?? I do notice sometimes his big toes are a

little red in

> the morning and he also complains about walking in the morning

because his

> feet hurt??

>

> I'm sending another video and some pictures to Dr. P soon, but

just wanted

> to see if any other older babies experience this. Dr. P tells me

that some

> kids just tolerate it longer than others. Trenton has usually

always been

> great about his bar, until lately?? For those of you who stopped

the bar at

> four, how where your kiddos around the end??

>

> Any feedback from the older babies would be appreciated.

>

> Thanks,

> Charity

>

>

>

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Guest guest

Charity,

I doubt you directed this to me, but I'll answer anyway. Jakob stopped

wearing the brace in September 2001 when he was 3 1/2. He never

complained about his feet hurting while he wore it though. He

complained once that his feet hurt, but he didn't want to go to school

that day (needless to say, he went to school) :)

charity@... wrote:

> Hello,

>

> Just curious about the older kiddos still in the bar?? Trenton will be

> four

> next month and possibly ready to come out of the bar, but I'm sure not

> ready. Unfortunately he complains a lot more than usual that his feet

> hurt!!

> He will complain and cry in the middle of the night sometimes, more here

> lately, to take off his shoes because it hurts, etc.. Any older babies

> experiencing this?? I do notice sometimes his big toes are a little red in

> the morning and he also complains about walking in the morning because his

> feet hurt??

>

> I'm sending another video and some pictures to Dr. P soon, but just wanted

> to see if any other older babies experience this. Dr. P tells me that some

> kids just tolerate it longer than others. Trenton has usually always been

> great about his bar, until lately?? For those of you who stopped the

> bar at

> four, how where your kiddos around the end??

>

> Any feedback from the older babies would be appreciated.

>

> Thanks,

> Charity

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Guest guest

Thanks ! Do you think you may be able to make the symposium in

November??

Charity and Trenton (8-24-00)

Re: Any four year olds still in the bar??

/ /

Hi Charity,

had his FAB/DBB on until he was 4. He seemed to understand

wearing it a bit more the closer he got to 4 years. He didn't say

that his feet hurt. Thanks for your work on the quilt and Precious

Little Feet.

and (3-17-99)

> Hello,

>

> Just curious about the older kiddos still in the bar?? Trenton

will be four

> next month and possibly ready to come out of the bar, but I'm sure

not

> ready. Unfortunately he complains a lot more than usual that his

feet hurt!!

> He will complain and cry in the middle of the night sometimes,

more here

> lately, to take off his shoes because it hurts, etc.. Any older

babies

> experiencing this?? I do notice sometimes his big toes are a

little red in

> the morning and he also complains about walking in the morning

because his

> feet hurt??

>

> I'm sending another video and some pictures to Dr. P soon, but

just wanted

> to see if any other older babies experience this. Dr. P tells me

that some

> kids just tolerate it longer than others. Trenton has usually

always been

> great about his bar, until lately?? For those of you who stopped

the bar at

> four, how where your kiddos around the end??

>

> Any feedback from the older babies would be appreciated.

>

> Thanks,

> Charity

>

>

>

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Guest guest

Thanks ! Do you think you may be able to make the symposium in

November??

Charity and Trenton (8-24-00)

Re: Any four year olds still in the bar??

/ /

Hi Charity,

had his FAB/DBB on until he was 4. He seemed to understand

wearing it a bit more the closer he got to 4 years. He didn't say

that his feet hurt. Thanks for your work on the quilt and Precious

Little Feet.

and (3-17-99)

> Hello,

>

> Just curious about the older kiddos still in the bar?? Trenton

will be four

> next month and possibly ready to come out of the bar, but I'm sure

not

> ready. Unfortunately he complains a lot more than usual that his

feet hurt!!

> He will complain and cry in the middle of the night sometimes,

more here

> lately, to take off his shoes because it hurts, etc.. Any older

babies

> experiencing this?? I do notice sometimes his big toes are a

little red in

> the morning and he also complains about walking in the morning

because his

> feet hurt??

>

> I'm sending another video and some pictures to Dr. P soon, but

just wanted

> to see if any other older babies experience this. Dr. P tells me

that some

> kids just tolerate it longer than others. Trenton has usually

always been

> great about his bar, until lately?? For those of you who stopped

the bar at

> four, how where your kiddos around the end??

>

> Any feedback from the older babies would be appreciated.

>

> Thanks,

> Charity

>

>

>

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Guest guest

Thanks ! Do you think you may be able to make the symposium in

November??

Charity and Trenton (8-24-00)

Re: Any four year olds still in the bar??

/ /

Hi Charity,

had his FAB/DBB on until he was 4. He seemed to understand

wearing it a bit more the closer he got to 4 years. He didn't say

that his feet hurt. Thanks for your work on the quilt and Precious

Little Feet.

and (3-17-99)

> Hello,

>

> Just curious about the older kiddos still in the bar?? Trenton

will be four

> next month and possibly ready to come out of the bar, but I'm sure

not

> ready. Unfortunately he complains a lot more than usual that his

feet hurt!!

> He will complain and cry in the middle of the night sometimes,

more here

> lately, to take off his shoes because it hurts, etc.. Any older

babies

> experiencing this?? I do notice sometimes his big toes are a

little red in

> the morning and he also complains about walking in the morning

because his

> feet hurt??

>

> I'm sending another video and some pictures to Dr. P soon, but

just wanted

> to see if any other older babies experience this. Dr. P tells me

that some

> kids just tolerate it longer than others. Trenton has usually

always been

> great about his bar, until lately?? For those of you who stopped

the bar at

> four, how where your kiddos around the end??

>

> Any feedback from the older babies would be appreciated.

>

> Thanks,

> Charity

>

>

>

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Guest guest

,

Happy belated birthday to Claire, sorry I missed it!! We also put Trenton's

shoes on after he goes to sleep and he never has had a problem with his

shoes until lately, except for a few times over the past four years when he

was very sick, etc.?? I'm wondering if it is something to do with age and or

development?? I asked Dr. Ponseti if it could be hurting his feet and he

said NO, and that was my biggest concern. I just find it odd that he

complains so much now that he's older, but he too has ups and downs of

complaining and not complaining. Thanks for your response.

Take Care,

Charity and Trenton (8-24-00)

PS I hope you will be able to make it to the symposium. I will let Dr. P

know you are a maybe!!

Re: Any four year olds still in the bar??

/ /

Charity,

First of all, I'm so happy to hear that you are doing better.

Recovering must've been such an ordeal. It makes it even more

remarkable that you tackled such a huge project as the quilt, in the

midst of such a stressful time for you. I hope you continue to feel

better each day.

I would love to come to the symposium. I've never been to one.. and

that time period would be a possibility for us.

Second, in answer to your question, Claire turned 4 a couple of weeks

ago, and is still in the brace at night. We have occasionally gone

through resistance from her, in getting it on at bedtime, but not

lately. That seems to come and go. I often wait to put it on after

she's fallen asleep. She has, in the past, complained of her foot

hurting, and at the time I wondered if it was the brace, but have

since determined that it wasn't. (I tend to blame the brace first for

everything. =)

She is one, I guess, who tolerates it well.. and Dr. P and I decided

at her last checkup that since she does, and I don't mind using it,

that we will continue for a bit more, just to be on the safe side.

Her foot looks beautiful.

I'll write more later.. I've gotta take her to ballet..

Talk to you soon.

and Claire

6/29/00

> Hello,

>

> Just curious about the older kiddos still in the bar?? Trenton will

be four

> next month and possibly ready to come out of the bar, but I'm sure

not

> ready. Unfortunately he complains a lot more than usual that his

feet hurt!!

> He will complain and cry in the middle of the night sometimes, more

here

> lately, to take off his shoes because it hurts, etc.. Any older

babies

> experiencing this?? I do notice sometimes his big toes are a little

red in

> the morning and he also complains about walking in the morning

because his

> feet hurt??

>

> I'm sending another video and some pictures to Dr. P soon, but just

wanted

> to see if any other older babies experience this. Dr. P tells me

that some

> kids just tolerate it longer than others. Trenton has usually

always been

> great about his bar, until lately?? For those of you who stopped

the bar at

> four, how where your kiddos around the end??

>

> Any feedback from the older babies would be appreciated.

>

> Thanks,

> Charity

>

>

>

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