Re: Re: Update on Kodys tenotomy

[Guest guest]

It would worry me taking it off that early, even if they replaced it right

away. Infection could get in, for one thing. And removing it too soon the

tendon won't heal where it's supposed to and the whole thing will be a waste

needed done again. I'd say you need to look further in to this, I'm sorry,

makes you wonder how some of these guys get their diplomas, huh.

s.

Re: Update on Kodys tenotomy

,

I am so sorry things turned out this way for you. We also

experienced our baby screaming wildly during the tenotomy--isn't it

awful? I know how stressful it all is when different docs are

telling you different things. Taking off the post-tenotomy casts

after one week seems very premature to me. It seems there has been

some variation between 2 and 3 weeks (my son's were taken off at 2

weeks) but 1 week seems risky to me. Maybe the dr. realized that his

casts were not so great and wanted to get them changed. I think I

would take Kody, bad casts and all, to another doctor (preferrably

off the Ponseti list) to get some more input on what would be best:

leaving the bad casts for at least another week, or getting them off

of there and replacing them with good ones ASAP. Are these casts

rotated to a good degree even if they look strange? Evan's were

rotated outward and toes up more than any of his other casts. The

purpose of the tenotomy will not be achieved if the rotation and

angle are not correct as it heals.

Let us know what happens. We're sending lots of good wishes your way.

and Evan (8-17-00 bcf)

> Thank you everybody for your support and thoughts!

> So this it how it went:

> Kody was not allowed to eat for 4 hours before the tenotomy and

> Dr. King didn't want anybody of us in the room (but I insisted that

> my husband will stay).

> They gave him two different kind of anesthetic (I don't know why)

> and the whole procedure lasted like 15-20 min. Poor Kody screamed

> the

> whole time! The cast they put on looks terrible!!! They put soo

much

> padding under that it looks like an elephantfoot and it's one of

the

> worst cast they applied so far! Also pretty weird is that they ask

> us

> to come back next friday to change the cast???! on wednesday they

> said the cast will stay on 3-4 weeks. Then on friday right after

the

> surgery they said 2 weeks and then he checked

> later (30 min after the cast was put on) and said one week!!!

> Another thing what happened last week is:

> I send (finally)some pics (with and without cast)to Dr. Ponseti and

> he called me back right away and said that Kody is one of the rare

> cases with atypical clubfoot (Nobody else said something like that

> to us before!!). That the treatment suppose to be a little bit

> different: the angle is not suppose to be 70 degree but 40. And he

> was telling me that the casts he saw on the pictures looked

sloppy...

> I was so confused when I went to that Dr. on Friday to let him cut

> my little baby. I'm not very happy with this Dr. Dr. P strongly

> recommended us to use the shoes for Kody and Dr King is

> just so against it (my patients can not afford $400 for a pair of

> shoes (he didn't even ask us if we can afford it or not!!!))

> It's not very efficient if the Dr. is not supporting your opinion.

> Please if somebody could tell me if any other Dr. changed the cast

> after one week after the tenotomy. I can only imagine that this is

> not a very good idea since the tendon is not healed yet there could

> be probably a bigger damage to it, or not??

>

> ,

>

> Kody 2/1/04 rt CF

> Serendy 6/29/02

[Guest guest]

,

My Rose screamed through the whole tenotony too. We were both in the room with

her and I actually held her leg down. But, after it was over, she went to sleep

and when she woke up we gave her Tylnenol with Codene and by the next day she

was fine. This cast was so much bigger than the other casts she had and her

foot turned out much further. But it worked! That was a year ago and her foot

is doing great now.

Robin & Rose

3/12/03

Right club foot.

shelleylapp dslapp@...> wrote:

,

I am so sorry things turned out this way for you. We also

experienced our baby screaming wildly during the tenotomy--isn't it

awful? I know how stressful it all is when different docs are

telling you different things. Taking off the post-tenotomy casts

after one week seems very premature to me. It seems there has been

some variation between 2 and 3 weeks (my son's were taken off at 2

weeks) but 1 week seems risky to me. Maybe the dr. realized that his

casts were not so great and wanted to get them changed. I think I

would take Kody, bad casts and all, to another doctor (preferrably

off the Ponseti list) to get some more input on what would be best:

leaving the bad casts for at least another week, or getting them off

of there and replacing them with good ones ASAP. Are these casts

rotated to a good degree even if they look strange? Evan's were

rotated outward and toes up more than any of his other casts. The

purpose of the tenotomy will not be achieved if the rotation and

angle are not correct as it heals.

Let us know what happens. We're sending lots of good wishes your way.

and Evan (8-17-00 bcf)

> Thank you everybody for your support and thoughts!

> So this it how it went:

> Kody was not allowed to eat for 4 hours before the tenotomy and

> Dr. King didn't want anybody of us in the room (but I insisted that

> my husband will stay).

> They gave him two different kind of anesthetic (I don't know why)

> and the whole procedure lasted like 15-20 min. Poor Kody screamed

> the

> whole time! The cast they put on looks terrible!!! They put soo

much

> padding under that it looks like an elephantfoot and it's one of

the

> worst cast they applied so far! Also pretty weird is that they ask

> us

> to come back next friday to change the cast???! on wednesday they

> said the cast will stay on 3-4 weeks. Then on friday right after

the

> surgery they said 2 weeks and then he checked

> later (30 min after the cast was put on) and said one week!!!

> Another thing what happened last week is:

> I send (finally)some pics (with and without cast)to Dr. Ponseti and

> he called me back right away and said that Kody is one of the rare

> cases with atypical clubfoot (Nobody else said something like that

> to us before!!). That the treatment suppose to be a little bit

> different: the angle is not suppose to be 70 degree but 40. And he

> was telling me that the casts he saw on the pictures looked

sloppy...

> I was so confused when I went to that Dr. on Friday to let him cut

> my little baby. I'm not very happy with this Dr. Dr. P strongly

> recommended us to use the shoes for Kody and Dr King is

> just so against it (my patients can not afford $400 for a pair of

> shoes (he didn't even ask us if we can afford it or not!!!))

> It's not very efficient if the Dr. is not supporting your opinion.

> Please if somebody could tell me if any other Dr. changed the cast

> after one week after the tenotomy. I can only imagine that this is

> not a very good idea since the tendon is not healed yet there could

> be probably a bigger damage to it, or not??

>

> ,

>

> Kody 2/1/04 rt CF

> Serendy 6/29/02