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Ray, Before i found my sons doctor in columbia, MO i was going to go to Chicago, IL if needed. I was really concerned how i was going to get back and forth every two weeks because of the 5 hour trip. Cranio tech in IL recommended http://www.lifelinepilots.org/ . If you find a location that you are comfortable with, then that is where you should go. Lifelinepilots are all over the US. I felt alittle wierd about asking for help like that. I told the lifeline operator that i would be getting paid everytime i took off work, but she insisted for me to fill out the forms anyways. The way she explained it to me, is the pilots are there for little ones in need of a flight to get medical attention. And ask me if a cab to the airport and plane fee would burden me every other week. Heck yea, it would. Traveling from state to state every two weeks would put anyone in a financial bind.

Exspecailly if you have to pay for the helmet out of pocket. Please check it out. The most leg work you have to do with the forms is find someone like a clergy man to fill out why you are in need of this and have your ped fill out section that allows her to fly. Hope this helps alittleRay Fox <starman1717@...> wrote: Anyway, if you can get a consultation with Cranial Tech (they're free) Ray, probably the physical therapist there will be able to tell you everything you need to know (mine says she can tell the minute she looks at the child). Looking at Cranial Tech's website (www.cranialtech.com) I see that there are very few clinics, though it sounds like many in this group have made the

trek. It's a major undertaking to get our wee one to Walmart, let alone put him on a plane to consult with a technician. Did you choose Cranial Tech because you couldn't find help locally? Or because they specialized in Plagio? Or were you just darn lucky to have a clinic close by? -Ray Crystal

Pinpoint customers who are looking for what you sell.

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So, CT provides PT services as part of wearing the band? do they only do doc bands? what do people prefer? I am going on Tues. for a consultation.nikkisliam <nikki90572@...> wrote: We were just lucky to be living close to Charlotte, NC, where there is a Cranial Tech. After reading everything I could find online, I felt like they were more experienced and a better option. I was sooo excited when I learned there was an office in Charlotte. However, in looking at the pictures posted here, it seems there has been

great success with other bands. The first day I spoke with CT, I asked for a consultation with the most experienced person there. She is the one we see every 10 days & I am confident in her ability. I think ultimately the Physical Therapist you work with (ask for the one who's been doing it the longest) is as important as which helmet is worn.Nikkimom to Liam (6 1/2 mos.)DOC helmet (7 wks.)> >> > > Anyway, if you can get a consultation with> > > Cranial Tech (they're free) Ray, probably the physical therapist> > > there will be able to tell you everything you need to know (mine says> > > she can tell the minute she looks at the child).> > > > Looking at Cranial Tech's website (www.cranialtech.com) I see that > > there are very few clinics, though it sounds like many in this group > > have made the trek. It's a major

undertaking to get our wee one to > > Walmart, let alone put him on a plane to consult with a technician. > > Did you choose Cranial Tech because you couldn't find help locally? > > Or because they specialized in Plagio? Or were you just darn lucky > > to have a clinic close by?> > > > -Ray> >>

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Oops, i meant to put "that allows him to fly" sorry about that.Crystal Burnett <burnettracer@...> wrote: Ray, Before i found my sons doctor in columbia, MO i was going to go to Chicago, IL if needed. I was really concerned how i was going to get back and forth every two weeks because of the 5 hour trip. Cranio tech in IL recommended http://www.lifelinepilots.org/ . If you find a location that you are comfortable with, then that is where you should go. Lifelinepilots are

all over the US. I felt alittle wierd about asking for help like that. I told the lifeline operator that i would be getting paid everytime i took off work, but she insisted for me to fill out the forms anyways. The way she explained it to me, is the pilots are there for little ones in need of a flight to get medical attention. And ask me if a cab to the airport and plane fee would burden me every other week. Heck yea, it would. Traveling from state to state every two weeks would put anyone in a financial bind. Exspecailly if you have to pay for the helmet out of pocket. Please check it out. The most leg work you have to do with the forms is find someone like a clergy man to fill out why you are in need of this and have your ped fill out section that allows her to fly. Hope this helps alittleRay Fox <starman1717comcast (DOT) net> wrote: Anyway, if you can get a consultation with Cranial Tech (they're free) Ray, probably the physical therapist there will be able to tell you everything you need to know (mine says she can tell the minute she looks at the

child). Looking at Cranial Tech's website (www.cranialtech.com) I see that there are very few clinics, though it sounds like many in this group have made the trek. It's a major undertaking to get our wee one to Walmart, let alone put him on a plane to consult with a technician. Did you choose Cranial Tech because you couldn't find help locally? Or because they specialized in Plagio? Or were you just darn lucky to have a clinic close by? -Ray Crystal Pinpoint customers who are looking for what you sell. Crystal

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us.

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Jen,

The staff at CT is comprised of Physical Therapists & Occupational

Therapists, they only do DOC bands and we went with the DOC band

because their company has been around much longer than the others &

they were the first to be approved by the FDA, so I thought we would

have a better chance of getting a more experienced PT. The $3000

covers everything... band, office visits, PT, casting, etc. If you

don't have insurance, or ins. co. doesn't cover it, it's $1600. (or

$400/mo.)

We have neck exercises we do daily (2 exercises, 3 times ea. for 15

secs., 5-6 times per day) for torticollis. It's tough to get them all

in every day, but it's working.

I made a list of questions for my consultation. Repositioning didn't

work AT ALL for us, so I scheduled the casting on the same day as the

consultation because I knew I wanted the band. After speaking with

the PT for 5 minutes, I felt confident about what we were doing.

> > >

> > > > Anyway, if you can get a consultation with

> > > > Cranial Tech (they're free) Ray, probably the physical

therapist

> > > > there will be able to tell you everything you need to know

> (mine says

> > > > she can tell the minute she looks at the child).

> > >

> > > Looking at Cranial Tech's website (www.cranialtech.com) I see

> that

> > > there are very few clinics, though it sounds like many in this

> group

> > > have made the trek. It's a major undertaking to get our wee one

> to

> > > Walmart, let alone put him on a plane to consult with a

> technician.

> > > Did you choose Cranial Tech because you couldn't find help

> locally?

> > > Or because they specialized in Plagio? Or were you just darn

> lucky

> > > to have a clinic close by?

> > >

> > > -Ray

> > >

> >

>

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  • 1 month later...

Rose is doing great with repositioning, and will most likely not need a

band. but, if she did we were going to go to cranial tech. i spoke

with the oakbrook, IL location about variances for the casting

procedure such as, being held in a lap, or cutting away the mesh right

away, etc. they are not willing to be flexible on any of these items.

like i said, rose should not need a band, but i was hoping to have a

place lined up just in case. there is a starband location in the city

that i could go to. anyone have similar experiences with cranial tech?

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We are using the Cranial Tech clinic in Glenview, IL.

The casting was a non-event, frankly, insofar as it went very smoothly

and quickly.

Perhaps if you have not already, you should ask them why they resist

varying their casting protocol.

I was anxious for my daughter, of course, but chose to follow their

suggestions and direction regarding the casting to the letter. We

decided to trust in the fact that the technicians at Cranial Tech are

very experienced at doing castings.

My six-month-old daughter has worn the helmet for seven weeks now, and

our clinician estimates that she will need to wear it for about five more.

Good luck with the repositioning, but if your daughter must ultimately

undergo helmet therapy, I think the team at Cranial Tech (Glenview)

does an outstanding job in all aspects of the treatment, including the

casting.

>

> Rose is doing great with repositioning, and will most likely not need a

> band. but, if she did we were going to go to cranial tech. i spoke

> with the oakbrook, IL location about variances for the casting

> procedure such as, being held in a lap, or cutting away the mesh right

> away, etc. they are not willing to be flexible on any of these items.

> like i said, rose should not need a band, but i was hoping to have a

> place lined up just in case. there is a starband location in the city

> that i could go to. anyone have similar experiences with cranial tech?

>

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I guess I'm confused. The part where you are wondering if others have

had similiar experiences with cranial tech...what do you mean? If you

mean about them being flexible with the casting procedure, I wouldn't

let that be a deterant....they have been doing the casting/banding for

a long time and I'm sure how they do it is how they have found to work

best. We were extreemly pleased with every aspect of CT in AZ and I

think all of the locations operate similiarly.

PS: I know many people that have great experiences with Star;

however, personally if CT is close to you, I would go with them. I

have heard VERY few negatives about CT when compared to negatives with

STAR. But again, it truly depends on the experience of the ortho.

>

> Rose is doing great with repositioning, and will most likely not

need a

> band. but, if she did we were going to go to cranial tech. i spoke

> with the oakbrook, IL location about variances for the casting

> procedure such as, being held in a lap, or cutting away the mesh

right

> away, etc. they are not willing to be flexible on any of these

items.

> like i said, rose should not need a band, but i was hoping to have a

> place lined up just in case. there is a starband location in the

city

> that i could go to. anyone have similar experiences with cranial

tech?

>

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I agree with that I wouldn't base my decision of where to get a

band on the casting proceedure. Not all Starband facilities have

scanners, some cast. To find one with a scanner check www.orthomerica.com.

My daughter was scanned, but I wouldn't have objected to having her

casted if I was confident in the person providing the band.

-christine

sydney 22 mo starband grad

> >

> > Rose is doing great with repositioning, and will most likely not

> need a

> > band. but, if she did we were going to go to cranial tech. i spoke

> > with the oakbrook, IL location about variances for the casting

> > procedure such as, being held in a lap, or cutting away the mesh

> right

> > away, etc. they are not willing to be flexible on any of these

> items.

> > like i said, rose should not need a band, but i was hoping to have a

> > place lined up just in case. there is a starband location in the

> city

> > that i could go to. anyone have similar experiences with cranial

> tech?

> >

>

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