Re: Looks like we are headed back to casts :(

[Guest guest]

Angel,

How old is your son? He has suffered many relapses?

If you could refer us to a doctor in North Jersey (Bergen, Passaic, Essex,

Hudson County) or just point me in a direction of where I should call to

locate a doctor that doesn't modify his method we would appreciate it very

much.

_____

From: kitaki

Sent: Friday, July 16, 2004 2:11 AM

To: nosurgery4clubfoot

Subject: Looks like we are headed back to casts

I got a preliminary reply from Dr Ponseti today. I have to call him

tomorrow to exchange some more information, and I am still awaiting Dr

Mosca's opinion, but for now it looks like another 1-2 casts for Kai - this

time toe to groin because the forefoot is involved - at 2 week intervals

again. The forefoot is in adduction again for certain, and we will find out

more when we talk to him.

Dr Ponseti wanted us to check the strength in the toe muscles so we did what

he said and, well, it wasnt good. Apparently Kai is not capable of

dorsiflexing his big toe ... I dont know what this means, but I guess we

will find out.

He did say that hte other child who got a blister on the dorsum (top of foot

just in front of ankle) from the shoes also has a foot like Kai's.

His exact words " It occurs only in these short, chubby, difficult to treat

feet "

Thankfully I got over the boohoos last week, now it is just getting ready

for the inevitable. I do look forward to the time that we can go more than

3 months without a relapse though!

Angel

[Guest guest]

So sorry that you have had to go through all of this!!!

(((((HUGS)))) I just want to let you know what an AWESOME mom you

are to be keeping on top of the treatment of Kai's feet!!!

and 2 1/2, bilateral clubfoot and headed back to

Iowa

==================================================================

> I got a preliminary reply from Dr Ponseti today. I have to call

him tomorrow to exchange some more information, and I am still

awaiting Dr Mosca's opinion, but for now it looks like another 1-2

casts for Kai - this time toe to groin because the forefoot is

involved - at 2 week intervals again. The forefoot is in adduction

again for certain, and we will find out more when we talk to him.

>

> Dr Ponseti wanted us to check the strength in the toe muscles so we

did what he said and, well, it wasnt good. Apparently Kai is not

capable of dorsiflexing his big toe ... I dont know what this means,

but I guess we will find out.

>

> He did say that hte other child who got a blister on the dorsum

(top of foot just in front of ankle) from the shoes also has

a foot like Kai's. His exact words " It occurs only in these short,

chubby, difficult to treat feet "

>

> Thankfully I got over the boohoos last week, now it is just getting

ready for the inevitable. I do look forward to the time that we can

go more than 3 months without a relapse though!

>

> Angel

>

>

[Guest guest]

I am so sorry to hear that. I know how hard it is trust me and just

know that we are here and that we will be praying for you. It's so

frustrating but the outcome is definatly worth it just keep that in

mind and I know you do. You have been there for me and know that I

am here for you if you ever need it. If you ever want to call or

you want me to call you ( I have free long distance) then let me

know.

Tyler's mom

bi lat cf 1/14/03

> I got a preliminary reply from Dr Ponseti today. I have to call

him tomorrow to exchange some more information, and I am still

awaiting Dr Mosca's opinion, but for now it looks like another 1-2

casts for Kai - this time toe to groin because the forefoot is

involved - at 2 week intervals again. The forefoot is in adduction

again for certain, and we will find out more when we talk to him.

>

> Dr Ponseti wanted us to check the strength in the toe muscles so

we did what he said and, well, it wasnt good. Apparently Kai is not

capable of dorsiflexing his big toe ... I dont know what this means,

but I guess we will find out.

>

> He did say that hte other child who got a blister on the dorsum

(top of foot just in front of ankle) from the shoes also

has a foot like Kai's. His exact words " It occurs only in these

short, chubby, difficult to treat feet "

>

> Thankfully I got over the boohoos last week, now it is just

getting ready for the inevitable. I do look forward to the time

that we can go more than 3 months without a relapse though!

>

> Angel

>

>

[Guest guest]

,

My son is 19 months old and this will be the 4th set of casting. The first set

(Jan-Mar '03) of casting was only partially successful because the doctor did

not know/understand the dynamics of atypical clubfoot. That has changed and

he is now able to identify and correct it. the second set of casting was done

by Dr Ponseti (Sept-Oct '03) and he finished off the correction that was never

fully attained. The first real relapse happened within 2 months of Dr Ponseti

casting and was due in large to the Markell shoes not being ideal for his kind

of foot. That casting was from Feb - Apr '04 by our doctor in Seattle. This

will be the 2nd relapse and will be casted by the doctor in Seattle. It is not

typical for a clubfoot treated well to relapse that often (or at all, for the

most part).

I could be wrong (my east coast geography is a bit weak) but I think the nearest

list doctors to you are in New York. You can find Dr Ponseti's list here:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/physicians.html#N

You can ask the list about the doctors listed there for a firm recommendation.

Angel'

Looks like we are headed back to casts

I got a preliminary reply from Dr Ponseti today. I have to call him

tomorrow to exchange some more information, and I am still awaiting Dr

Mosca's opinion, but for now it looks like another 1-2 casts for Kai - this

time toe to groin because the forefoot is involved - at 2 week intervals

again. The forefoot is in adduction again for certain, and we will find out

more when we talk to him.

Dr Ponseti wanted us to check the strength in the toe muscles so we did what

he said and, well, it wasnt good. Apparently Kai is not capable of

dorsiflexing his big toe ... I dont know what this means, but I guess we

will find out.

He did say that hte other child who got a blister on the dorsum (top of foot

just in front of ankle) from the shoes also has a foot like Kai's.

His exact words " It occurs only in these short, chubby, difficult to treat

feet "

Thankfully I got over the boohoos last week, now it is just getting ready

for the inevitable. I do look forward to the time that we can go more than

3 months without a relapse though!

Angel

[Guest guest]

Thanks ! We are getting used to it, but it doesnt make it suck less LOL

You all are so sweet

Angel

Re: Looks like we are headed back to casts

So sorry that you have had to go through all of this!!!

(((((HUGS)))) I just want to let you know what an AWESOME mom you

are to be keeping on top of the treatment of Kai's feet!!!

and 2 1/2, bilateral clubfoot and headed back to

Iowa

[Guest guest]

,

Thank you so much. It warms my heart to know that I have helped - even if it is

just support! I is so nice to know that I have people to lean on when things

get rough

Angel

Re: Looks like we are headed back to casts

I am so sorry to hear that. I know how hard it is trust me and just

know that we are here and that we will be praying for you. It's so

frustrating but the outcome is definatly worth it just keep that in

mind and I know you do. You have been there for me and know that I

am here for you if you ever need it. If you ever want to call or

you want me to call you ( I have free long distance) then let me

know.

Tyler's mom

bi lat cf 1/14/03

[Guest guest]

Yes, Manhattan is all of 7 minutes from my house and I didn't mention it.

Good to know I am on top of my game..lol

Thanks again for all of your help.

_____

From: kitaki

Sent: Friday, July 16, 2004 3:32 PM

To: nosurgery4clubfoot

Subject: Re: Looks like we are headed back to casts

,

My son is 19 months old and this will be the 4th set of casting. The first

set (Jan-Mar '03) of casting was only partially successful because the

doctor did not know/understand the dynamics of atypical clubfoot. That has

changed and he is now able to identify and correct it. the second set of

casting was done by Dr Ponseti (Sept-Oct '03) and he finished off the

correction that was never fully attained. The first real relapse happened

within 2 months of Dr Ponseti casting and was due in large to the Markell

shoes not being ideal for his kind of foot. That casting was from Feb - Apr

'04 by our doctor in Seattle. This will be the 2nd relapse and will be

casted by the doctor in Seattle. It is not typical for a clubfoot treated

well to relapse that often (or at all, for the most part).

I could be wrong (my east coast geography is a bit weak) but I think the

nearest list doctors to you are in New York. You can find Dr Ponseti's list

here:

http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/physicians.html#N

You can ask the list about the doctors listed there for a firm

recommendation.

Angel'

Looks like we are headed back to casts

I got a preliminary reply from Dr Ponseti today. I have to call him

tomorrow to exchange some more information, and I am still awaiting Dr

Mosca's opinion, but for now it looks like another 1-2 casts for Kai - this

time toe to groin because the forefoot is involved - at 2 week intervals

again. The forefoot is in adduction again for certain, and we will find out

more when we talk to him.

Dr Ponseti wanted us to check the strength in the toe muscles so we did what

he said and, well, it wasnt good. Apparently Kai is not capable of

dorsiflexing his big toe ... I dont know what this means, but I guess we

will find out.

He did say that hte other child who got a blister on the dorsum (top of foot

just in front of ankle) from the shoes also has a foot like Kai's.

His exact words " It occurs only in these short, chubby, difficult to treat

feet "

Thankfully I got over the boohoos last week, now it is just getting ready

for the inevitable. I do look forward to the time that we can go more than

3 months without a relapse though!

Angel

[Guest guest]

Hi Angel,

I finally had time to sit down and read all the posts since last

night! I'm sorry to hear Kai is headed back to casts but you deserve

such amazing credit for being on top of his foot and knowing quickly

that he was relapsing!! I know you have been an amzing source of info

and advice for me in the short time I've been on the boards. Know

that we are thinking of you and Kai

Marilouise

[Guest guest]

Thank you deeply for this. It is so great to know that I have helped you and

that you are thinking of us.

Angel

Re: Looks like we are headed back to casts

Hi Angel,

I finally had time to sit down and read all the posts since last

night! I'm sorry to hear Kai is headed back to casts but you deserve

such amazing credit for being on top of his foot and knowing quickly

that he was relapsing!! I know you have been an amzing source of info

and advice for me in the short time I've been on the boards. Know

that we are thinking of you and Kai

Marilouise

[Guest guest]

Dear angel.

Good luck. I'm time will heal, you are taking good care of your

child and this is what's important.

Big hugs

Idit, mom to Oshri, 10 month. BL ClubFoot, heavy DBB for 16/24

hours.. http://truly_clubfoot.tripod.com - website in Hebrew. To see

the photos click on the leftist link on the top frame.

> I got a preliminary reply from Dr Ponseti today. I have to call

him tomorrow to exchange some more information, and I am still

awaiting Dr Mosca's opinion, but for now it looks like another 1-2

casts for Kai - this time toe to groin because the forefoot is

involved - at 2 week intervals again. The forefoot is in adduction

again for certain, and we will find out more when we talk to him.

>

> Dr Ponseti wanted us to check the strength in the toe muscles so

we did what he said and, well, it wasnt good. Apparently Kai is not

capable of dorsiflexing his big toe ... I dont know what this means,

but I guess we will find out.

>

> He did say that hte other child who got a blister on the dorsum

(top of foot just in front of ankle) from the shoes also

has a foot like Kai's. His exact words " It occurs only in these

short, chubby, difficult to treat feet "

>

> Thankfully I got over the boohoos last week, now it is just

getting ready for the inevitable. I do look forward to the time

that we can go more than 3 months without a relapse though!

>

> Angel

>

>

[Guest guest]

Dear angel.

Good luck. I'm time will heal, you are taking good care of your

child and this is what's important.

Big hugs

Idit, mom to Oshri, 10 month. BL ClubFoot, heavy DBB for 16/24

hours.. http://truly_clubfoot.tripod.com - website in Hebrew. To see

the photos click on the leftist link on the top frame.

> I got a preliminary reply from Dr Ponseti today. I have to call

him tomorrow to exchange some more information, and I am still

awaiting Dr Mosca's opinion, but for now it looks like another 1-2

casts for Kai - this time toe to groin because the forefoot is

involved - at 2 week intervals again. The forefoot is in adduction

again for certain, and we will find out more when we talk to him.

>

> Dr Ponseti wanted us to check the strength in the toe muscles so

we did what he said and, well, it wasnt good. Apparently Kai is not

capable of dorsiflexing his big toe ... I dont know what this means,

but I guess we will find out.

>

> He did say that hte other child who got a blister on the dorsum

(top of foot just in front of ankle) from the shoes also

has a foot like Kai's. His exact words " It occurs only in these

short, chubby, difficult to treat feet "

>

> Thankfully I got over the boohoos last week, now it is just

getting ready for the inevitable. I do look forward to the time

that we can go more than 3 months without a relapse though!

>

> Angel

>

>

[Guest guest]

Dear angel.

Good luck. I'm time will heal, you are taking good care of your

child and this is what's important.

Big hugs

Idit, mom to Oshri, 10 month. BL ClubFoot, heavy DBB for 16/24

hours.. http://truly_clubfoot.tripod.com - website in Hebrew. To see

the photos click on the leftist link on the top frame.

> I got a preliminary reply from Dr Ponseti today. I have to call

him tomorrow to exchange some more information, and I am still

awaiting Dr Mosca's opinion, but for now it looks like another 1-2

casts for Kai - this time toe to groin because the forefoot is

involved - at 2 week intervals again. The forefoot is in adduction

again for certain, and we will find out more when we talk to him.

>

> Dr Ponseti wanted us to check the strength in the toe muscles so

we did what he said and, well, it wasnt good. Apparently Kai is not

capable of dorsiflexing his big toe ... I dont know what this means,

but I guess we will find out.

>

> He did say that hte other child who got a blister on the dorsum

(top of foot just in front of ankle) from the shoes also

has a foot like Kai's. His exact words " It occurs only in these

short, chubby, difficult to treat feet "

>

> Thankfully I got over the boohoos last week, now it is just

getting ready for the inevitable. I do look forward to the time

that we can go more than 3 months without a relapse though!

>

> Angel

>

>