Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Hi My son is nearly 15 months. He is in the 1.5 size shoe and he is probably needing a 2 in a minute. He was in the 000 when he was first put in the brace at 2 months. I would think these shoes would be well too small for your son at 9 months. We are in the UK so we do not have brace shops so I cannot comment on how you are treated there but it sounds like a nightmare. Out physio corrected his feet AND put him in his shoes. The shoes should be set at shoulder length from heel to heel and the rotation should be set at 70 degrees on both feet. Also about the red marks on the top of the feet. Connor has these marks and I really have tried everything to get rid of them but they don't seem to get worse or better with any shoe. I have taken the tongues out, loosened the shoe which then weren't on in the morning so that was no good, I have tried cream - everything but they are not raised or sore in anyway but I still worry about them as I keep thinking that eventually the skin will break down there soon enough. I have taken the tongue out right now and that way I can move the strap to a different place on the bridge of his foot. It is obviously the strap that does it but we cannot do with out it. He is in the shoes for 12/14 hours per day and red marks still do not go. Good luck Rach Steve & Conor (b /l c/f) -- New with red sores Hello, I am new to the group. I have a 9 month old with bi-lateral club foot. The right one rated 16 the left at 19. We have had a horrible time with this process. In fact, I spent the whole afternoon today trying to get shoes that would fit him. Only to be sent home from the brace company with plates on the wrong shoes, shoes on the wrong feet, and a different angle set on each shoe. My problem right now is the red tender markings on my son's feet. The marks are blood red and make several crosses on the tops of his feet. Right now his right foot is so tender that touch sends him into tears. The brace company insisted I put the size 000 shoes on the 6th hole for my 9 month old 17 lb son. I think this was too tight. Today I insisted on a new pair of shoes (size 0). I haven't tried them since my husband had to unassembled and reassemble them. I think we will wait a day or two since Matt's feet are so tender. Does anyone have experience with these types of sores? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Hi My son is nearly 15 months. He is in the 1.5 size shoe and he is probably needing a 2 in a minute. He was in the 000 when he was first put in the brace at 2 months. I would think these shoes would be well too small for your son at 9 months. We are in the UK so we do not have brace shops so I cannot comment on how you are treated there but it sounds like a nightmare. Out physio corrected his feet AND put him in his shoes. The shoes should be set at shoulder length from heel to heel and the rotation should be set at 70 degrees on both feet. Also about the red marks on the top of the feet. Connor has these marks and I really have tried everything to get rid of them but they don't seem to get worse or better with any shoe. I have taken the tongues out, loosened the shoe which then weren't on in the morning so that was no good, I have tried cream - everything but they are not raised or sore in anyway but I still worry about them as I keep thinking that eventually the skin will break down there soon enough. I have taken the tongue out right now and that way I can move the strap to a different place on the bridge of his foot. It is obviously the strap that does it but we cannot do with out it. He is in the shoes for 12/14 hours per day and red marks still do not go. Good luck Rach Steve & Conor (b /l c/f) -- New with red sores Hello, I am new to the group. I have a 9 month old with bi-lateral club foot. The right one rated 16 the left at 19. We have had a horrible time with this process. In fact, I spent the whole afternoon today trying to get shoes that would fit him. Only to be sent home from the brace company with plates on the wrong shoes, shoes on the wrong feet, and a different angle set on each shoe. My problem right now is the red tender markings on my son's feet. The marks are blood red and make several crosses on the tops of his feet. Right now his right foot is so tender that touch sends him into tears. The brace company insisted I put the size 000 shoes on the 6th hole for my 9 month old 17 lb son. I think this was too tight. Today I insisted on a new pair of shoes (size 0). I haven't tried them since my husband had to unassembled and reassemble them. I think we will wait a day or two since Matt's feet are so tender. Does anyone have experience with these types of sores? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Hi... My son was in the DBB for 4 weeks. He was also getting major blisters and red sores from them. He was kicking them off every few hours. This is so frustrating, as they are so difficult to get on in the first place. I can sympathize with you! He just had his tenotomy a week ago... and we have the option to go back into the DBB's or try the AFO's. We are going to try the AFO's. I know that most people on the board don't agree with me... but our orth. surgeon feels that they are more comfortable, easier to keep on, and do they same job as the boots with bar. It was also so hard to hold with the DBB's. I felt like I couldn't cuddle with him like I wanted to. We will try the AFO's and see how he does with them .I guess if there is any relapse showing, we will switch back to DBB. ANyone else feel the same??? 2/9/04 BLCF caricarpenter cari.carpenter@...> wrote: Hello, I am new to the group. I have a 9 month old with bi-lateral club foot. The right one rated 16 the left at 19. We have had a horrible time with this process. In fact, I spent the whole afternoon today trying to get shoes that would fit him. Only to be sent home from the brace company with plates on the wrong shoes, shoes on the wrong feet, and a different angle set on each shoe. My problem right now is the red tender markings on my son's feet. The marks are blood red and make several crosses on the tops of his feet. Right now his right foot is so tender that touch sends him into tears. The brace company insisted I put the size 000 shoes on the 6th hole for my 9 month old 17 lb son. I think this was too tight. Today I insisted on a new pair of shoes (size 0). I haven't tried them since my husband had to unassembled and reassemble them. I think we will wait a day or two since Matt's feet are so tender. Does anyone have experience with these types of sores? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Welcome to the board, Cari & Matt. There is a shoe size chart at Markell Shoe Company's website www.markellshoe.com, click on the Ponseti method link under the Tarso shoe section that will help you to figure out what size shoe Matt should be in. Your description of blood red markings on his feet are an indicator to me that something is terribly wrong. Either his foot isn't corrected, and/or the shoes aren't fitting properly. Have you had conversation with his doctor at all about the problem? Often you'll get more support from your doctor than the orthotist. If the sores are very bad, he might have to go back into a cast just to allow the sores to heal but not allow him to lose the correction. There's some great info in our files section under the " Bracing " file including some articles from Hall on how the brace should be set up. Is your doctor using the Ponseti method? I hope this helps- & (3-16-00) left clubfoot, switched to Ponseti method at 4 months old > Hello, > > I am new to the group. I have a 9 month old with bi-lateral club > foot. The right one rated 16 the left at 19. We have had a horrible > time with this process. In fact, I spent the whole afternoon today > trying to get shoes that would fit him. Only to be sent home from the > brace company with plates on the wrong shoes, shoes on the wrong > feet, and a different angle set on each shoe. > > My problem right now is the red tender markings on my son's feet. > The > marks are blood red and make several crosses on the tops of his feet. > Right now his right foot is so tender that touch sends him into > tears. The brace company insisted I put the size 000 shoes on the 6th > hole for my 9 month old 17 lb son. I think this was too tight. Today > I insisted on a new pair of shoes (size 0). I haven't tried them > since my husband had to unassembled and reassemble them. I think we > will wait a day or two since Matt's feet are so tender. Does > anyone > have experience with these types of sores? > > Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Hi, Oh Honey my heart goes out to you. Those shoes sound like they are way too small. I think Rose's first shoe was a 0 and she was 4 months old and less than 17 pounds. She got her second pair of shoes in Dec when she was 9 months old. I would take the shoes off for a couple of days, give your child some baby advil (if okay with your Dr.) That should help shrink the swelling in his feet and get him comfortable. Then when you start the shoes in a couple of days, be sure to take the shoes off every couple of hours for the first few days (not at night of course) and just kind of rub his foot and make sure there are no sores. You may need to put a bandaid or moleskin on a sore spot until he gets used to them. The shoes will soften up in about a week and get more comfortable. We have been so lucky to have caring Drs and the ortho, Greg at Childrens Hospital in Seattle is awesome. He fitted the shoes on Rose's normal foot, showed us how to place the foot in the shoe, lace it and buckle it. We live in Alaska so when it came time to put the shoes on, we were on our own. But, armed with good information, we did just fine. July 4th marked one full year with the DBB. She wears it only at night, dosn't fight me unless she is cranky, and finally she sleeps through the night. I have never been militant about the shoes. She wore them 23/7 the first three months as perscribed, except for a couple of days when she was really sick, high fever, etc. I got sick of dealing with airport security so I take them off when we go to the airport. I never let her win when she is cranky and dosn't want me to put them on. Sometimes we will delay a little bit just to burn off a litte more steam, but they always go on before bed. I don't want her to think the shoes are optional. Only Mommy gets to decide when she dosn't have to wear the shoes. As far as regular shoes, I never had any for her until she started walking. I just used soft pull-on booties. I figured most kids wear shoes during the day and not at night and she is just reversed. When she started walking I got her a pair of little pink Adidas and I am still amazed how much she loves her shoes. Funny quick story, I was getting ready to run to the video rental place to return a movie last weekend and, of course, that means the baby and the dog have to go too. I called to Rose to see if she wanted to go for a ride and headed for the door. I couldn't figure out what was taking her so long when she showed up at the door with one shoe and her jacket. I laughed so hard. It was about 75 degrees outside but she knew she needed shoes and a jacket. Well that was way too long and probably far too much information, but I just wanted to let you know that someone cares and understands. Feel free to email me anytime, here or off board. Robin & Rose 3/12/03 Right club foot. caricarpenter cari.carpenter@...> wrote: Hello, I am new to the group. I have a 9 month old with bi-lateral club foot. The right one rated 16 the left at 19. We have had a horrible time with this process. In fact, I spent the whole afternoon today trying to get shoes that would fit him. Only to be sent home from the brace company with plates on the wrong shoes, shoes on the wrong feet, and a different angle set on each shoe. My problem right now is the red tender markings on my son's feet. The marks are blood red and make several crosses on the tops of his feet. Right now his right foot is so tender that touch sends him into tears. The brace company insisted I put the size 000 shoes on the 6th hole for my 9 month old 17 lb son. I think this was too tight. Today I insisted on a new pair of shoes (size 0). I haven't tried them since my husband had to unassembled and reassemble them. I think we will wait a day or two since Matt's feet are so tender. Does anyone have experience with these types of sores? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Hi, Oh Honey my heart goes out to you. Those shoes sound like they are way too small. I think Rose's first shoe was a 0 and she was 4 months old and less than 17 pounds. She got her second pair of shoes in Dec when she was 9 months old. I would take the shoes off for a couple of days, give your child some baby advil (if okay with your Dr.) That should help shrink the swelling in his feet and get him comfortable. Then when you start the shoes in a couple of days, be sure to take the shoes off every couple of hours for the first few days (not at night of course) and just kind of rub his foot and make sure there are no sores. You may need to put a bandaid or moleskin on a sore spot until he gets used to them. The shoes will soften up in about a week and get more comfortable. We have been so lucky to have caring Drs and the ortho, Greg at Childrens Hospital in Seattle is awesome. He fitted the shoes on Rose's normal foot, showed us how to place the foot in the shoe, lace it and buckle it. We live in Alaska so when it came time to put the shoes on, we were on our own. But, armed with good information, we did just fine. July 4th marked one full year with the DBB. She wears it only at night, dosn't fight me unless she is cranky, and finally she sleeps through the night. I have never been militant about the shoes. She wore them 23/7 the first three months as perscribed, except for a couple of days when she was really sick, high fever, etc. I got sick of dealing with airport security so I take them off when we go to the airport. I never let her win when she is cranky and dosn't want me to put them on. Sometimes we will delay a little bit just to burn off a litte more steam, but they always go on before bed. I don't want her to think the shoes are optional. Only Mommy gets to decide when she dosn't have to wear the shoes. As far as regular shoes, I never had any for her until she started walking. I just used soft pull-on booties. I figured most kids wear shoes during the day and not at night and she is just reversed. When she started walking I got her a pair of little pink Adidas and I am still amazed how much she loves her shoes. Funny quick story, I was getting ready to run to the video rental place to return a movie last weekend and, of course, that means the baby and the dog have to go too. I called to Rose to see if she wanted to go for a ride and headed for the door. I couldn't figure out what was taking her so long when she showed up at the door with one shoe and her jacket. I laughed so hard. It was about 75 degrees outside but she knew she needed shoes and a jacket. Well that was way too long and probably far too much information, but I just wanted to let you know that someone cares and understands. Feel free to email me anytime, here or off board. Robin & Rose 3/12/03 Right club foot. caricarpenter cari.carpenter@...> wrote: Hello, I am new to the group. I have a 9 month old with bi-lateral club foot. The right one rated 16 the left at 19. We have had a horrible time with this process. In fact, I spent the whole afternoon today trying to get shoes that would fit him. Only to be sent home from the brace company with plates on the wrong shoes, shoes on the wrong feet, and a different angle set on each shoe. My problem right now is the red tender markings on my son's feet. The marks are blood red and make several crosses on the tops of his feet. Right now his right foot is so tender that touch sends him into tears. The brace company insisted I put the size 000 shoes on the 6th hole for my 9 month old 17 lb son. I think this was too tight. Today I insisted on a new pair of shoes (size 0). I haven't tried them since my husband had to unassembled and reassemble them. I think we will wait a day or two since Matt's feet are so tender. Does anyone have experience with these types of sores? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Forgive me and please don't delete this before you finish reading it - but I feel like you're making a mistake having gone the AFO route with a bcf baby six years ago with results today way less than acceptable. He can hardly stand on one foot at a time, hardly jump, hardly run, his feet are very stiff and still deformed looking. Falling down is a way of life for him as he has no balance and wobbles around on deformed feet. Buying shoes is a nightmare. Kids in class laugh at his feet for looking funny and for him walking funny and unable to run like they do............ and all of this is AFTER Dr. Ponseti did his best magic to correct the feet destroyed previously by improper treatments including 18 months of PT and AFO's. Imagine my son's world if there was no Dr. Ponseti to help him as much as he did four years ago when my son couldn't walk with out a prescription walker-device. ......breaks my heart I was an ignorant mother, I really live with the guilt of my ignorance back then. My son will live with funky feet the rest of his life because of my ignorance. There is an issue causing the red sores, the AFO will treat the symptoms of the issue, but not the cause of those issues - which could be an improperly corrected foot or improper use of brace, a malfunction in the brace construction, etc. s. Re: New with red sores Hi... My son was in the DBB for 4 weeks. He was also getting major blisters and red sores from them. He was kicking them off every few hours. This is so frustrating, as they are so difficult to get on in the first place. I can sympathize with you! He just had his tenotomy a week ago... and we have the option to go back into the DBB's or try the AFO's. We are going to try the AFO's. I know that most people on the board don't agree with me... but our orth. surgeon feels that they are more comfortable, easier to keep on, and do they same job as the boots with bar. It was also so hard to hold with the DBB's. I felt like I couldn't cuddle with him like I wanted to. We will try the AFO's and see how he does with them .I guess if there is any relapse showing, we will switch back to DBB. ANyone else feel the same??? 2/9/04 BLCF caricarpenter cari.carpenter@...> wrote: Hello, I am new to the group. I have a 9 month old with bi-lateral club foot. The right one rated 16 the left at 19. We have had a horrible time with this process. In fact, I spent the whole afternoon today trying to get shoes that would fit him. Only to be sent home from the brace company with plates on the wrong shoes, shoes on the wrong feet, and a different angle set on each shoe. My problem right now is the red tender markings on my son's feet. The marks are blood red and make several crosses on the tops of his feet. Right now his right foot is so tender that touch sends him into tears. The brace company insisted I put the size 000 shoes on the 6th hole for my 9 month old 17 lb son. I think this was too tight. Today I insisted on a new pair of shoes (size 0). I haven't tried them since my husband had to unassembled and reassemble them. I think we will wait a day or two since Matt's feet are so tender. Does anyone have experience with these types of sores? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 We tried the afo's on Tyler and they do not work! We paid 3000.00 for 2 sets of them that did not help him a bit. Tyler also had the sores from the shoes but now I know that it was not the dbbs it was that his foot was not corrected enough to wear them. If I had it to do over again I would have researched more when I found out that he had club feet and I would not have went the afo route. Mother of Tyler > Hello, > > I am new to the group. I have a 9 month old with bi-lateral club > foot. The right one rated 16 the left at 19. We have had a horrible > time with this process. In fact, I spent the whole afternoon today > trying to get shoes that would fit him. Only to be sent home from the > brace company with plates on the wrong shoes, shoes on the wrong > feet, and a different angle set on each shoe. > > My problem right now is the red tender markings on my son's feet. > The > marks are blood red and make several crosses on the tops of his feet. > Right now his right foot is so tender that touch sends him into > tears. The brace company insisted I put the size 000 shoes on the 6th > hole for my 9 month old 17 lb son. I think this was too tight. Today > I insisted on a new pair of shoes (size 0). I haven't tried them > since my husband had to unassembled and reassemble them. I think we > will wait a day or two since Matt's feet are so tender. Does > anyone > have experience with these types of sores? > > Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
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